Older Visitor Remarks Page 2
Love your site.
Will be back to visit often as time permits.
Our support for world ministries keeps us very busy.
Enjoyed your tribute to Dusty. We had our "Angel" a Terri- Poo
(looked just like movie star Benjie) for 16 yrs, 11 months when she
was attacked by a larger dog. After a long battle we had to put her
down in July 1999. We were blessed for many years by this little
bundle of joy and
so replaced her in the fall with "Brooke" a 12 pd. Yorkie with
silken hair. She unfortunately ran off a neighbours deck while we
were away into the "covered" pool and drowned before anyone found
her. She was three and a bit.
We now have "Cassidy", a Llaso-Poo at almost 6 months.
We're hoping for a little better fortune for this little one. It is
so hard when you lose them.
I'll try to send a picture or two if I can figure out how to do it
from your site.
Bless you both for your efforts and sharing so much of God
for others to see.
Best regards,
Alex & Wanda
Alex & Wanda Kilpatrick
<akilpatrick@maryruthswope.co.>
Kingston, On Canada - Monday, January 28, 2002 at 18:39:39 (GMT)
Thank you so much for your web site. I suffer from MCS, but of
course no one will recognize it. My husband and my boys are very
understanding. My husband is a carpenter and I used to work with
him. I painted and stained homes. This is when I first developed
symptoms. I am sensitive to perfumes,paint,rubber, exhaust fume
from cars, lawn mowers.
I have several symptoms. I have chemically induced asthma, mood
swings,confusion, chest pain, weakness, headaches, tingling in my
arms and neck. Pinesol would porbably kill me if I could not get
away from it. I have had problems with work and am presently
unemployed because of MCS. I don't wish this to happen to anyone
else, but it can happen to anyone at any time. People need to be
careful what they say. I am always apoligizing because I can't be
around someones perfume or air freshener, etc., but I am the one
that has to deal with feeling bad. I cannot go in Hardware Stores,
wallpaper places, carpet stores, any new buildings.
I am very fortunate, some people have worse symptoms than me. I
really enjoy being around people and helping people, especailly
older people, but to some people, I am a nuisance now. It has
really helped me to read your web site and to know that there are
people that understand.
Barbara Culbertson <barb_24272@yahoo.com>
Nora, VA USA - Monday, January 28, 2002 at 02:46:57 (GMT)
hi peachpalace, I have mild to moderate mcs and I can use Magick
Botanicals ff shampoo(frm Needs)and they have frag free hair spray
and gel.
liz <lizv786@earthlink.net>
cleveland, oh USA - Sunday, January 27, 2002 at 00:43:57 (GMT)
i just want to say that i am so sorry i looked at dustys page
and i cried and cried i hope all of u can get through pet(friends)
deaths and god bless you all
Dana <dana_dan_2000@hotmail.com>
washington, dc USA - Thursday, January 24, 2002 at 01:29:00 (GMT)
After reading a few entries before mine I thought it worth
adding a few more comments. I concider myself a realist and a
pragmatic person so what I am about to type may get you a little
down. Those of you out there who are optimistic enough to believe
that your activism will take these harmful substances off the
market and that you will ever get fair treatment in the job market
better brace yourself. I you were to do what it takes to stop the
manufacture and distribution of all the things that cause and
inflame MCS you would be starting a literal war. Those who do not
suffer as we do will fight tooth and nail to wear perfume, buy
plastic, and grow food contaminated by industrial pesticides and
herbicides. There are varying degrees of MCS. I just happen to have
it bad enough that I can no longer participate in society. It is
getting to the point where I have difficulty finding uncontaminated
food and water. I have had to resort to eating only home grown
garden vegetables and wild meat (Moose, bear, fish). In the future
my wife and I hope to get goats to have milk and meat that is not
contaminated with steriods, antibiotics, and whatever else they
juice them up with. If your MCS gets bad enough you may have to
turn into a caveman and crawl into the wilderness like a fugitive.
A doctor can not give you a magic pill or surgery to make it go
away. The only way to get well is to decontaminate, and that is
getting harder and harder to do every year that goes by. I really
believe that if poloticians, bussiness men and other powerful
people were to try to put a stop to this chemical madness, that
there would be some assasins commissioned to quell the "rebellion"
against the "plastic age" by terminating anyone impinging on the
profit margin of these chemical producers. It is big, real big. It
would affect every industry in this country. The profits are to
monumental for them to just stop producing it. Certian industries,
like palstic fabrication are just impossible to do in a safe manner
and still make profits. The EPA advises to have ventilation in
these facilities but the real story is that you are still getting
poisoned when the fan is on and the door is open at the plasti fab
plant. When ever you buy some stupid plastic toy for you child, or
an acrylic clothing item you are feeding an industry that kills
it's employees. One trick they use is to lay off people after a
year or two so that when they get cancer or MCS a few years later
it becomes impossible to prove a cause/effect relationship between
a previous job and the illness. That is how I get cheated out of
suing for damages. It was three years after I moved on from that
rotten job in plastics before I figured out I had MCS. By then it
is to late to prove that their shop made me sick. I've gone to
several doctors trying to get diagnosed but they don't even know
what MCS is and blow me off. So I gave up on that course of action
and moved to Alaska, hoping that I could live off the land to
sustain my pathetic existence. I guess it will just take every one
in the whole world getting sick before people will wake up and stop
these products from killing us. Most people have to suffer before
they will do anything.
Mike Grace <grisval70@hotmail.com>
Nenana, Ak USA - Sunday, January 20, 2002 at 05:50:02 (GMT)
When in Iowa I worked in hot plastic vaccuum forming. That is
essentially making things out of hot plastic. It nearly ruined my
life. I would like to warn any one in the bussiness of plastics to
get out. Working with hot plastics will eventually kill you and if
it doesn't it will wreck your body. That in combination with other
chemicals I worked with has given me what I concider to Be MCS. I
can no longer work in most environments and have had to fall back
on my wifes noble efforts to support us. It would give me a warm
fuzzy feeling if everyone in America would boycott the use of any
and all plastic. It is cheap poisenous junk. Whenever you heat up
plastic above 200F it starts giving off formaldehyde in massive
quantities. Acrylic, dacron, rayon, and all polyesters are nothing
more that cloth made of plastic thread. When you wear hot acrylics
fresh out of the dryer it will poisen you. Well I could moan a lot
longer but I'll spare every one that misery. Sincerely Mike
Grace.
Mike Grace <grisval70@hotmail.com>
Nenana, Ak USA - Sunday, January 20, 2002 at 05:10:31 (GMT)
Allergists and MD's often do not believe in MCS. I hope I can
find some relief soon.
Judy Jarden <jesuslovesmom@yahoo.com>
Quincy, IL USA - Thursday, January 17, 2002 at 16:55:34 (GMT)
To: The "MCS" Community. It is PAST TIME to "UNITE"!
It Is The Right Thing To Do!
The "MCS" Beacon of Hope Foundation has sent a proclamation to
President George W. Bush requesting the month of May to be
declared: "MCS" Awareness & Education Month.
To all those who have already signed on in support...we THANK YOU!
To Everyone who has yet to do so, we ask you to please sign on in
support TODAY.
The public has a right to know about chemically induced illnesses,
and that safer choices and practices are readily available.
All Doctors, Lawyers and Merchants who provide services to the
Chemically ill community, as well as those concerned about the
health & well being of our environment, are also asked to join
us in this important mission.
We look forward to reading any comment you might wish to include.
"Please" add your name, any credentials & at least the state
you reside in. An E-mail address is required, but is not released
to the general public. If you do not have access to internet or do
not have an email account, you may still sign on by using someone
else's email address. To those who do not have access to Internet
you may fax us at: 309-294-4921 or 309-407-2541 giving us
permission to add your name, state and any comment you want
included.
Please forward our websites on to everyone you know, love and care
about.
Petition for U.S. Citizens:
http://www.PetitionOnline.com/31032/petition.html
Petition for Non U.S. Citizens:
http://www.petitiononline.com/10862/petition.html
"MCS" Beacon of Hope at: www.ncchem.com/mcsbeacon
If you know of any "Angels" that are willing to make a tax-free
donation or volunteer a little of their time, energy and talents to
help us help others, please send them our way!
Thanks from your friends at the ìMCSî Beacon of Hope
Foundation,
Peggy, Julia and our Volunteer Team: Ingrid, Kathryn, Diane &
Linda
Julia Williams <juliamcs@tampabay.rr.com>
St. Petersburg, fl USA - Wednesday, January 16, 2002 at 15:54:24
(GMT)
Thanks for the good info. It is very good.
God Bless You,
Courtney Mamakeesic
Courtney Mamakeesic <c_mamakeesic@hotmail.com>
Balmertown`, ON Canada - Monday, January 14, 2002 at 02:16:30 (GMT)
Your site is beautiful!!! Thank you for sharing your story of
your 'special little friend. So many love their fur kids so much
that it hurts to let them go as with any loved one. I had to say
goodnight to my two special fur kids during the last couple of
years. My 16 year old Ebony (Ebby--dog, 1983-1999), and my 17 year
old Binkie--cat (1983-2000). They both went peacefully in my arms
as the star studded night sky turned into the light of dawn. They
still live because I took a picture and tucked it into my heart to
carry with me always. Thank you again for your beautiful web
page--it's now booked marked in my favorites.
http://www.angelfire.com/fl5/usa2001/
and
http://www.angelfire.com/anime3/socks/
Diane <beesley601@aol.com>
FL USA - Sunday, January 13, 2002 at 13:52:21 (GMT)
hi
kaitlyn <aaliyah_timberlin@hotmail.com>
ont, ? USA - Saturday, January 12, 2002 at 19:27:03 (GMT)
WOW!THIS IS GREAT!im a christian too,i think its great that you
are using this website to minister to people.ive had CH. for 13yrs
now,and its really comforting to find a website with all this info.
and someone who understand the condition when everyone else thinks
your crazy!i seriously PRAISE GOD for this site.thankyou mark
mark whitelock <markfmx@onebox.com>
laguna niguel, ca USA - Saturday, January 12, 2002 at 02:24:03
(GMT)
Your story was beatiful. Not long ago I had to have my fiend of
13.5yrs go home. She saw me and my second son thru so much; it was
horrible. But as I have learned to take it one day at a time. That
was in Sept. It is now the new year and I am looking forward to
soon looking to see if there is another "furbaby" for us.
cindy aponte <carrottred@yahoo.com>
new britain, ct USA - Sunday, January 06, 2002 at 02:33:46 (GMT)
I am glad I found this site, now I have a question for someone.
I work in a department store and have observed normally healthy
people suddenly becoming quite ill with stomach problems, 2 of them
with Chrohns Disease. These are young people too. It has suddenly
occurred to me that they may be poisoned by their department which
sells, sheets, towels and comforters coming from many places around
the world. I want to warn them and my higher ups, but want more
info before I do, can someone alert me please. Thanks. Joy
Joy den Otter <harrietden@hotmail.com>
Victoria, BC Canada - Wednesday, January 02, 2002 at 19:12:18 (GMT)
When were the trade secrets laws published protecting scented
products from government regulation? Some biochemists think that if
this law is not overturned soon, our civilization will go down. The
people at EPA and FDA think that the situation is alarming. A list
of poisonous chemicals and the illnesses they cause can be found
at:
wwws.us.ohio-state.edu/~steen/ei/doc/fragrance_chemicals.html
How do we involve the churches in the project of obtaining a
federal law regulating scented products?
Sylvia Richey <sylviarichey@aol.com>
Fort Myers, FL USA - Wednesday, January 02, 2002 at 13:07:59 (GMT)
For MCS sufferers who are applying for disability benefits, I
have put together alot of information about the Social Security
Disability process. Please visit www.mcsinfo.homestead.com and
share this site with friends who made need help with this ordeal.
Thanks! Priscilla
Priscilla Farrell <perfectplanner@juno.com>
Rogers, AR USA - Monday, December 31, 2001 at 18:15:35 (GMT)
I ran across your site by accident. What a wonderful wonderful
story about Dusty. It broke my heart as I read it, because five
years ago this coming January I put my llasa down due to old age
and digestive failure. It took me a long time before I could
actually let him go. He will always be with me and I know I will
see him someday when I cross over the bridge.
Cindy <carolyn.cindric@gene.ge.com>
Charlotte, NC USA - Thursday, December 27, 2001 at 20:35:08 (GMT)
Finding your web site was like a miracle!
Four years ago, after being extremely tired, ill and overworked,
suffering from psoriasis, and after a series of tests in the
hospital, I was told that I am allergic for formaldehyde (I have to
wear special shoes), nickel, phenol and "fragrance mix". Nobody,
however, could tell me more about it. Not even the dermatologist.
Nobody could name it for me. The doctors did not even tell me to
stay away from persons with an overdose of aftershave, gel,
deodorant, softener or perfume. I had to find it all out for
myself.
It was a colleague at school where I am teaching, a Witness of
Jehova, who showed me some articles in their American magazine. And
here I learned at last that my allergy had a proper name: MCS.
With that information I tried Internet and got straight into your
web site!
It is as if I finally am getting recognition for something that
even my house doctor seems to think of that I am "overdoing it a
little bit".
I am learning a lot from your site. But most of all: I do not feel
so alone anymore!
Thanks!
ATI MUL
( Mrs) Ati Mul <vriesmul@wxs.nl>
NL-3069 LJRotterdam, Netherlands (Eu) - Thursday, December 20, 2001
at 16:52:12 (GMT)
I am an environmntal physician and educator. I would like to be
added to your mailing lists.
Glad to see the hard work is paying off.
Beautiful site.
Gina
Dr. Gina Makris <drmakris@earthlink.net>
geneva, il USA - Tuesday, December 18, 2001 at 22:19:32 (GMT)
I LOVED YOUR TRIBUTE TO DUSTY. THE SONG WAS WONDERFUL. I'LL PRAY
FOR YOU AND I SYMPATHEISE IN YOUR LOSS. BUTTONS MY LITTLE FUR BABY
WAS THE SAME AGE, WHEN WE LOST HIM LAST YEAR. THE PETLOSS SITE
HELPED SO MUCH, AND OUR LOCAL PETLOSS SUPPORT GROUP IN COLUMBUS,OH.
GOD BLESS YOU AND KEEP YOU TIL YOU MEET DUSTY AT THE RAINBOW
BRIDGE. BIG HUGS, PAT "BUTTONS" MOM
PAT "BUTTONS" MOM <CAROU97791@AOL.COM>
COLUMBUS, OH USA - Sunday, December 16, 2001 at 03:32:22 (GMT)
I am having an experience @ work regarding a co-worker and very
heavy perfume. She is new and it took me a week to figure out why I
was getting awful headaches. The whole office has commented about
about it. I work in a retail store that is approx. 6000sqft inside
and this perfume can be strongly smelt all day anywhere in the
store. I spoke up, offending her, and her comment was "I can smell
smoke on you which is no different." I do not smoke at my desk. I
go outside, summer or winter, twice a day to smoke and usually have
2 at lunch. Why does cigarette smoke not affect me but perfume
does? I am trying to be fair and get all my faxes together before
taking this matter to management. Your imput would be greatly
appreciated. Thank You!
Jami Perdue <tomandjami@prattusa.com>
Pratt, KS USA - Thursday, December 13, 2001 at 03:30:08 (GMT)
i have mcs and feel so alone sometimes, my friends try to
understand but unless you have this problem it is really difficult.
they frequently don't even smell the things that are making me so
ill. my family thnks i have a mental problem and that is why i
isolate myself.
kim kimbrell
USA - Monday, December 10, 2001 at 19:03:52 (GMT)
I really love the Christian section of your page...I simply
think it is a great witness, and I am still exploring it now,
reading those scriptures...It's all great! Thanks so much...:)
Ben Godfrey <viper62@rocketmail.com>
New Paris, IN USA - Saturday, December 08, 2001 at 22:43:31 (GMT)
I am enjoying your website...I found it as I surfed through the
petloss.com website. Your "Dusty" story is beautiful, as is your
testimony and your witness. God bless you.
Tammy Holman <WalkADifferentRd@aol.com>
Birmingham, AL USA - Saturday, December 08, 2001 at 03:04:22 (GMT)
thankyou
arriel
edmonton, ab canada - Thursday, December 06, 2001 at 23:13:35 (GMT)
I enjoyed your little place
steve barg
calgary, Ab Canada - Wednesday, December 05, 2001 at 15:21:44 (GMT)
Thank you so much for your detailed information. It has helped
me understand (Ha), look more into the chemical factors of my
illness's MCS,FM,CF, (ME). Thank you Louise
Louise Perron <freeasaneagle@shaw.ca>
Langley, B.C. Canada - Saturday, December 01, 2001 at 10:03:50
(GMT)
Dear Sirs (Madam),
I am very interested in your website. Now, I would like to get some
new information about fabric softener. I know that it has some
effects to our health. Thus, I want to choice some kind of softener
that can be minimized bad effective to our health. Could you please
give me that information?
Best regards,
D.H.Thuan
Dang Huu Thuan <thuan_danghuu@yahoo.com>
HCMC, 06 Vietnam - Tuesday, November 27, 2001 at 15:27:39 (GMT)
Thanks for this informative site. I have been wondering for some
time if the problems I have are allergy related. But I just thought
of perfumes and cleaning products as the culprits. Seems I have a
little more eliminating to do in my life ( as much as possible) any
way. Thanks again.
B Mains <bmains55@earthlink.net>
Versailles, IN USA - Sunday, November 25, 2001 at 11:25:26 (GMT)
Im doing a project on hairspray and its dangers to the
enviroment. If anyone has ANY USEFULL INFO. for my project please
contact me. I've searched and searched and still can't find
anything. PLEASE! HELP!! thanks.
Kid <wolfgirl4000@hotmail.com>
canada - Friday, November 23, 2001 at 23:22:31 (GMT)
I just wanted to let everyone know that I have moved my MCS site
to a new domain that is now my husband's & mine. The new URL is
http://www.icgolddesigns.com/mcs/ -- please check out the home page
for our business, too @ http://www.icgolddesigns.com --
Thanks
Sharon <goldenfire@icgolddesigns.com>
Clinton, MS USA - Thursday, November 22, 2001 at 01:39:43 (GMT)
I have just added a new addition to my MCS/EI web site regarding
my disease known as Myoclonus. It can be found at
http://goldenfiresmcs.vr9.com/myoclonus.html
Thank you!
Sharon <goldenfire@jam.rr.com>
Clinton, MS USA - Friday, November 16, 2001 at 04:07:52 (GMT)
What a blessing to find your site! Thank you so much for sharing
your story and providing so much invaluable information on MCS.
I was diagnosed with MCS about 1 1/2 years ago although we think I
have suffered from it for years. It broke my heart to recently quit
my job as a ministry assistant at The Chapel in Akron, Ohio. I love
the people I had the privilege of working with but the upkeep of
the very large building was aggravating my condition more and more.
As a dear friend said, I was like a canary in a mine. Many people
working there have struggled for years with symptoms that indicate
it's a sick building. I've tried to educate people but it is quite
an up hill battle.
I too rely on my faith in God. I know He has given me this time at
home for a purpose and I thank him for that. I have the opportunity
to write, enjoy my needlework and spend time with our cats.
My husband has been so wonderful through my illness. His
unconditional love and devotion have meant the world to me. He is
very protective of me and often notices things he knows will bother
me before I notice it myself. Larry and our doctor were encouraging
me to quit my job for months before I was ready to make the break.
Our financial losses have been and continue to be great but we
trust God will see us through.
Thank you so much for the Bible verses you have included on your
site. I do have days of discouragement and frustrations due to the
limitations I face in what I do, where I go and who I spend time
with. It has been especially discouraging when people I love
continue to wear perfumes, hair sprays, etc. knowing full well how
it will effect me. How I miss their hugs and time with them. Unless
someone has lived with this disorder, they cannot fully understand
how life changing it is.
I was wondering if you have receiving any kind of treatment for
your allergies. Because I am so sensitive to chemicals, many
medications and traditional means of treatment simply do not work.
Even the non-traditional means of treatment I have tried have only
provided limited, short-term relief. I would appreciate your
sharing things that have worked for you beyond the non-toxic living
suggestions you've provided here.
As an extrovert, I could go on and on but I will say farewell.
Again, thank you for your website. It is a real blessing.
Linda Lamb <lclstitch@aol.com>
Medina , OH USA - Thursday, November 15, 2001 at 13:52:53 (GMT)
A great site! I'm sending the link to all my friends and family.
I'm in a business that promotes non-toxic skin care products and
all-natural organic supplements. It sounds like a lot of people who
have posted on here might benefit from these products. We are proud
to promote our products, since we KNOW with certainty that they are
100% safe. Please feel free to email me if you want the website.
God Bless!
Betsy Burke <agarici@mindspring.com>
Flint Hill, VA USA - Wednesday, November 14, 2001 at 15:00:16 (GMT)
Jackie,
Thank you for your website. When I returned back to work, I was
encouraged that there was someone aiding those with MCS, especially
form a Christian perspective. I thank God for many things, but 2
years ago I was simply glad to be alive, thankful that God had
spared my life from death and showed me the reason for my failing
health over the last 2-3 years. This is my story....for 2-3 years,
I had experienced all the classic symptoms of carbon monoxide
poisoning, from chronic headaches, fatigue, dizziness, nauseau,
ETC- too many problems to mention- I think you may know what I
mean. Through doctor visits, in Oct 1999, I was diagnosed with MCS,
yet not knowing why? I proceeded to rid my house of all toxins I
could, start on vitamins and antioxidants, and read up on MCS. By
February 2000, I was having EXTREME difficulty breathing. I started
to question the gas heat in our house, as almost every other source
of toxins had been eliminated. I remember testing the vents;
standing directly over them for 1-2 minutes and nearly passing out.
The gas company came out to check the furnace- found nothing and
assured us everything was operating properly. The next week, while
I was praying thru the night (sleep was intermittent with pain), I
felt God telling me to turn off the gas, no matter what the "gas
experts" said, no matter that my husband was opposed to being cold,
and then I would live. With that resolve, I did. In 2 days, I had
relief. Weeks later, we found a crack in the exhaust vent from our
hot water heater and furnace. Because I was exposed the most, I
suffered the most- except for the cat, who lost all his fur, threw
up a lot and had many other symptoms I'm probably not aware of. I
had slept over the leak (our bedroom is above the garage), was home
all day, seldom getting outside, and was often going in and out of
the garage.
Since then we have all been recovering. I must say, it was very
frightening at first (like for a year later), all the strange
things that were happening to me as I went through "healing
crises". But God has been good to bring healing to me and my family
and yes, the cat has grown back most his fur.
God has brought me thru a lot and if I could help others with what
He has shown me, I'd be glad to. I've learned more about toxins and
detoxing than I ever wanted to.
Sherie Simmons <steven.j.simmons@boeing.com>
Kent, WA USA - Monday, November 12, 2001 at 18:23:49 (GMT)
Thank you. Thank you. THANK YOU. I just discovered your website.
It's THE BEST information on MCS that I have found. I have been
dealing with this illness since January, 1994. I went through the
same thing you did with doctors. I finally discovered for myself
what was wrong with me.
I'm already familiar with much of the information in your site, but
I've also learned new and important things. I also like your site
because it will give me a place to tell friends to go to get a
great overview of my illness and also to learn what our environment
is doing to them. People think they are "bullet proof" until it
happens to them. As you point out, they are all affected to some
degree. They just haven't "crashed" yet.
Most importantly it's nice to hear the story of someone who has
been through this.
Your website is great in an of itself. The organization, layout and
links are terrific. I have only read a small part so far and I'm
looking forward to reading the rest.
Thanks again for your fine work.
Cynthia Scott <thalmann@swbell.net>
Houston, TX USA - Saturday, November 10, 2001 at 01:43:09 (GMT)
Thanks for your web site. It helped me understand some of my
systoms. Can the FDA test some of the substances mentioned on you
web site.
Ken Burkhalter <kburk@cox-internet.com>
Conroe, TX USA - Tuesday, November 06, 2001 at 21:17:50 (GMT)
What a interesting website. I got introduced to it through out
Pharmocology Class at school. Very interesting. I'll be visiting on
a regular basis. A lot of good information. Thanks
Brenda Vassar <ricvassarbrenda@netscape.net>
Ferryville, WI USA - Tuesday, November 06, 2001 at 18:34:00 (GMT)
I'm looking for a doctor or a clinic in Minnesota that will
diagnose me. I have suffered for 10 years. Thank You
Mary Rand <sprand@mncable.net>
Thief River, Mn USA - Tuesday, October 30, 2001 at 16:07:25 (GMT)
Hi I would like to hear from anyone who has any info on an
established copper or iron overload in their system and how it has
contributed or ignited MCS.
I have MCS and just was tested for iron and copper.....dangerously
high levels in my blood. I will start phlebotomy next week (blood
letting) Anyone ever researched or thought of that as a Link?
THANKS
Suzi <ironmac2@LVCM.com>
Las Vegas, NV USA - Saturday, October 27, 2001 at 21:37:16 (GMT)
I was recently poisoned from perfume and hospitalized. I have
asthma and while doing a breathing treatment my friends neice used
my bathroom. After leaving my bathroom I noticed a strong tatse of
perfume in my mouth. By this time it was too late I had breathed in
several particles of her perfume deep into my lungs. I tasted
perfume all night. three hours later I wasa rushed to the hospital
my lungs were not functioning and they were not responding to
steroids or other treastments the hospital administated. However
hours went by and I finally stared to respond a litle bit . I am
still on Oxygen because of this childs mistake and will be so for
quite sometime. So my point is this if you like perfume use it
sparyingly and above all do it in a ventilated area, where it will
have a chance to air. Remeber even if you don't think about your
own lungs think about others.. Thank you for listening.
Rose Forsythe <catac909@aol.com>
lake elsinore, ca USA - Saturday, October 27, 2001 at 09:55:02
(GMT)
I just found out what was wrong with me in July of 2001
after going from specialist to specialist.The only comfort
I get now is being in a control enviroment.I not comfortable
in a social setting.I haven't been to church in three month
because people just do not understand ,just because perfume smell
good it is posion to some people.The public need to be educated to
the effect of chemicals to the human system.
Lena Solomon <tbslms@msn.com>
Omaha, NE USA - Monday, October 22, 2001 at 03:11:59 (GMT)
Thanks for such an informative website
Julia
USA - Monday, October 22, 2001 at 00:56:53 (GMT)
THank you for sharing about mcs. I never thought that I would
have this, I loved my perfume, the flowers, the smell of fresh
grass cut,cleaning chemicals that were lemon scented, candles and
now all those pleasures are tormentors to my body. I remember
exactly when it first began, the year and week. The pecan trees
made me sick with their tags or blooms and then it was more and
more down hill, and tormenting to be around the very pleasures, I
had enjoyed. People just think it is mild allergies, they do not
understand ,unless their immune system is compromised, with Chronic
Fatigue immune dysfunction or fibromaylgia or other
illnesses.
Sheri
AL USA - Saturday, October 20, 2001 at 03:35:52 (GMT)
SSDI/SSI Survey Results are now posted to
www.mcsinfo.homestead.com This info could be invaluable to anyone
disabled by MCS/EI/CI and trying to get Soc Sec disability
benefits. This is a new website that has alot of other great
information...including much of the MCS Info Packet that I provided
a few months ago with the sponsorship of CIIN.
Priscilla Farrell
<perfectplanner@juno.com>
Rogers, AR USA - Friday, October 19, 2001 at 18:19:56 (GMT)
Greetings from Arizona!
Just wanted to make up for errors in my last posting. Spelling
error occured for the name of my state, its Arizona (must have been
smust in my brain?) Here in Arizona we get a combination of smog
and dust (the smog rolls in ovefrom Californian :>)) and with
the abundance of Arizona dust we have it turns into smust!
Also, Tucson is not too far to travel to sit in on a support group
meeting for MCS sufferers. That's how much I would like to attemd a
"face-to-face" interaction with other MCSers/EI people. We could
share emotional support.
Would K.O. tell me more about the HEAL group? Is it self-help?
Facilitated by a clinician with medical background or knowledgeable
about MCS/EI? Please email me again.
Also, anyone wishing to email me with shared experience information
is welcome, would like to hear from other states too.
My mask still protects me from people wearing fragances, I wish
they'd realize yes, they have a right to wear it, BUT on the other
hand, we/I have a right to BREATHE. In my thinking isn't breathing
a priority?
Brenda. brennyw@hotmail.com Arizona. USA.
Brenda <brennyw@hotmail.com>
AZ USA - Thursday, October 18, 2001 at 08:15:36 (GMT)
Thank you for the website. Now I know, I am not the only one
with this. My doctor just recently figure out what was wrong with
me. He didn't give me much information about it either. He said it
was just an allergy. But noe I know it has a name. Which makes me
feel much better. So know I can tell people it. An they won't think
I'm making it up.
Jessica Zimmerman <jlz_smart1@hotmail.com>
Norwalk, OH USA - Tuesday, October 16, 2001 at 16:10:17 (GMT)
I love this site! Wish I had come across it sooner. Does anyone
else in Aeizona want someone to email to and "chat" about our
experiences (eg doctors, being in public with masks on, needing o2,
etc). Does anyone know of a self-help group in AZ (Maricopa County)
for MCS'ers? I've looked and looked and only find one in or around
Tucson which is too far for me.
Brenda. Metro Phoenix area, Ariz. brennyw@hotmail.com
Brenda <brennyw@hotmail.com>
AZ USA - Sunday, October 14, 2001 at 22:21:11 (GMT)
I am really happy to find this site. I knew I was not the only
one with MCS but I had no idea that there were so many.
Everyone at my job thinks I am selfish and nuts. Thank you for this
website.
Bev <bigles10@att.net>
W. Hempstead, NY USA - Sunday, October 14, 2001 at 00:14:07 (GMT)
Thank you for posting this site.
I have MCS - but not nearly as severely as yours was when you
finally put all the clues together. Mine is moderate by comparison.
I get the hot face, flushed face, dizziness and mental confusion as
well as inflammation in soft tissues and joint pain. And fatigue of
course - not debilitating, but chronic.
Thanks to your site, which I have visited often, I know what my
triggers are. I've removed all the chemicals from my bathroom and
kitchen. I clean my house with baking soda, borax and vinegar. My
vacuum has a hepa filter. My clothes are 100% cotton or wool. We
have NO particle board furniture at all.
We are looking at building a new home in the next year and are
already factoring my MCS into the cost of building. There will be
no particle board, no carpeting or vinyl linoleum of any kind. Just
hardwood, tile and logs. I'm really looking forward to it. I know
I'll feel so much healthier once I'm out of this living space.
I, too, have to wear a mask when I go out - perfume sensitivity. I
take the bus to work and lately the university students have made
that ride difficult with perfume being in fashion. My office isn't
the best environment but the windows open, allowing for fresh air
intake. And the university campus is a huge green space, so the air
is very fresh as compared to working downtown.
Anyway, thanks for your page and the resources you have listed.
You've helped me so much. You've helped me more than any of my
doctors have!
Victoria <shore_lines@yahoo.com>
Victoria, BC Canada - Tuesday, October 09, 2001 at 16:34:18 (GMT)
Just wanted to say Hi! I have this illness and am actually going
to work in town ,hopefully I'll be able to stay there. I am not as
bad as some people yet but I do have to stay away from alot of
things. When I did the interview nothing bothered me (and I am a
fast reactor) but anyway I share in your Christian Faith and praise
the Lord for a web-site such as yours,I just hope that many more
people in this world start using less toxic products because this
illness is hard to live with.
Cindy Grimm <mgcg@bluebon.net>
Giddings, Tx USA - Saturday, October 06, 2001 at 17:08:17 (GMT)
your sight is beautiful and it has blessed my spirit
karmen
USA - Friday, October 05, 2001 at 17:27:19 (GMT)
I visited your website because it was crossreferenced with the
sulfite sensitive folks. Like the other folks who write on that
website, I hope to find solice in knowing that I am not alone in my
"illness" although I am pretty defenseless...
Margie Salazar <amij93@yahoo.com>
San Antonio, TX USA - Thursday, October 04, 2001 at 13:41:47 (GMT)
I appreciate the effort you put into explaining how "Trust in
the Lord" cemments our relationship with Jesus, God, our savior.
This is the best explanation I have read.
God Bless You
Darrell Spencer <peace728@earthlink,net>
San Francisco, USA - Sunday, September 30, 2001 at 02:35:53 (GMT)
I have MCS and when I found this web site I felt that I was not
alone. So many people are affected by it .We moved from PA. 7yrs.
ago for our daughters health and she got better and one night as I
walked outside the mosquitio control truck sprayed me full force
and I haven't been the same since then.I started to have all kinds
of different systems with my body and when I mentioned about the
spraying doctors told me that it was not harmful. Now I cant handle
anything when it comes to any kind of frangences and chemical. This
web page is wonderful I now know it's not all in my head. God Bless
you all
Natasha Terriere <tata-n-mama@msn.com>
Holiday, Fl. USA - Friday, September 28, 2001 at 14:40:42 (GMT)
WOW!! I am in the process of finally making the connection and
getting treated for what is most certainly MCS. I have been
disabled (sick with multiple symptoms) for 13 years now. I'm
finally with Drs. who know and can treat my severe allergies and
illnesses. Praise God! Thanks for a site that is truly a God-send
for me. I now feel like I am not alone.
Sincerely, Beth Le Sieur
Beth Le Sieur <glesieur@chesapeake.net>
North Beach, MD USA - Friday, September 28, 2001 at 14:21:24 (GMT)
Wow!! An extensive network of resources and information . .
. so much so that I wish I didn't have to wear cotton gloves
to tolerate the keyboard.
Holly Rotman <makanamacfadden@yahoo.com>
Holt, MI USA - Thursday, September 27, 2001 at 21:00:34 (GMT)
I was just told about MCS and found your website very
interesting. Thanks
Barb Murphy <murfrnch@midrivers.com>
USA - Tuesday, September 25, 2001 at 16:29:03 (GMT)
I visited your website and was filled with joy by your story,
your faith, and your desire to serve others who are suffering with
environmental illness. I am working on issues here in Pensacola and
would like to share our ideas and thoughts with you. We have an
organization called Advocacy for the Chemically Sensitive. As I am
a retired attorney (because of MCS) I am trying to use my legal
knownledge to help people advocate for their rights under various
laws. Education is also a big part of your efforts.
Please keep in contact. God Bless you, Sherri Myers
Sherri Myers <MCSrights@aol.com>
Pensacola, Florida USA - Sunday, September 23, 2001 at 18:21:25
(GMT)
hi my mom has the problenm with perfumes and potpouri and smelly
products and she went to a hospital in pennsylvania and the doctor
there didnt believe her and thought something from her childhood
that she smells triggers these attacks on. and they thought she was
crazy and i am happy to see so many people that know that something
is wrong. i am doing a report for school on this and if you have
any information on this or any other i should say, i would be
greatful if you could send it to me thank you very much.
Kelly
Kelly O'Leary <kelbel132@aol.com>
Bellmawr, nj USA - Thursday, September 20, 2001 at 14:28:36 (GMT)
my sister sent me this site. i like it
linda l. howard <bigmomma13@aol.com>
findlay, OH United States - Sunday, September 16, 2001 at 00:10:35
(GMT)
Found your website while looking for information on MCS. It is
nice to know others can relate to this problem since most people
act like I am crazy when I say anything about being sensitive to
smells.
Kittie <kfr@texoma.net>
Sherman, TX USA - Tuesday, September 11, 2001 at 03:02:41 (GMT)
I was diagnosed in 1999 after getting some chemicals on me while
at work to be allergic to para-phenylenediamine. This is hard to
stay away from especially when it is in gasoline. I know it is
getting where I cannot stand to be around perfumes and smelly hand
lotions because it takes my breath away. If we all get together and
write our Senators, Congressmen and the FDA about our reactions to
chemicals hopefully we could get manufacturers to use some less
hazardous chemicals. Maybe not look how our Gulf War vets were
treated about their MCS complaints. Thank you for caring and having
this website to let people know about the things people can face in
everyday things.
Nadine Cherry <kncherry@yahoo.com>
Landis, NC USA - Thursday, September 06, 2001 at 14:52:31 (GMT)
I have MCS, highly allergic to latex, nickle, cobalt, gold,
formaldehyhe, fragrances and some 40 other allergies. I am
presently trying to learn what I can about mcs and how to protect
myself and inform others. This is great info.
Marjorie Gosse <mrgosse@nf.sympatico.ca>
Blaketown, nf Canada - Wednesday, September 05, 2001 at 13:51:45
(GMT)
Our son started 2nd grade in a new school this year. The start
of the 2001-2002 school year was delayed for several weeks in order
to complete the new school. Our son shows mild tics but after the
first day of school his tic (head shaking) was nearly constant.
This went on for the first week of school. Week #2 begins on
Tuesday (after labor day) and we have already decided not to put
him back in and will start home school until we see a change or
determine why the sudden and drastic change. After visiting your
web site we plan to contact a qualified allergist ASAP to have him
tested. We have seen nutritionist but have not seen a reduction
(some times the opposite occurs) in tics when he is taking vitamins
(full range - calcium, B, multi, zinc, etc.).
Background:
Our son first showed tics after his 4 yr old vaccinations. He ran a
fever (102 degrees) after he received the vaccination. In less than
a week he began showing tics (tongue would stick out constantly).
After a month we went to see a nutritionist and started detox
powders and vitamins. We requested a hair analysis that showed he
was toxic in minerals present in the vaccinations.
Ernest Duncan <EDuncan@clearsail.net>
Spring, TX USA - Tuesday, September 04, 2001 at 01:33:26 (GMT)
Where in N.Florida are you? I visit there often, have family
there and plan to retire there in about 5 years.
Donna Inman <Dinman1519@aol.com>
USA - Monday, August 27, 2001 at 23:01:58 (GMT)
Thank you for this information. I have candida overgrowth,
fibromyalgia and now inflammatory arthritis. I am
searching for help. I appreciate your strong faith and
commitment. Thank you again. Mary Clare
Mary Clare Kolinski <MCKolinski@aol.com>
St. Charles , Il USA - Monday, August 27, 2001 at 17:04:05 (GMT)
I have just written my own story & created a web site for
it. You were quite an inspiration to getting my story out there,
too. My husband was very supportive of this idea. My page is
http://goldenfiresmcs.vr9.com
Sharon
Sharon Pritchard
<goldenfire@rocketmail.com>
Clinton, MS USA - Monday, August 27, 2001 at 00:05:02 (GMT)
Phil,
I live in Ireland and used to do all our painting. I cannot do so
now and our painters used water based paints by Permoglaze and
Crown. I suggest that you use latex based paints instead of oil
based paints on the outside of your windows unless you are allergic
to latex.. it flexes with the temperature instead of splitting and
I wasn't allergic to it.
There is a German lass in Co. Clare, Ireland who makes organic
paints. I don't have an address for her.. She was on a TV programme
about building houses by RTE in Donnybrook, Dublin.
Good luck,
Sandy
Sandy Perceval
<sandy@templehouse.ie>
Sligo, Ireland - Saturday, August 25, 2001 at 17:45:26 (GMT)
I found your site link while visiting OO and found your story
there to be inspiring to say the least. Thank you for being brave
enough to share it with the world. Peace
Whimsy <whimjest@hotmail.com>
Devon, PA USA - Saturday, August 25, 2001 at 13:26:54 (GMT)
Thanks for your most excellent website
Dragonballz
Orlando, FL USA - Friday, August 24, 2001 at 19:05:50 (GMT)
I AM TRYING DESPERATELY TO FIND NON-TOXIC PAINTS AS WE ARE IN
THE PROCES OF DESCORATING OUR HOME. ONE ROOM HAS BEEN DONE WITH
THEMOTHER KIND AND I CANNOT FIND ANYONE IN THIS COUNTRY - THO THERE
MUST BE - WHO SUPPLIES THEM. IF YOU KNOW OF A SUPPLIER I WOULD BE
GRATEFUL FOR YOUR HELP. GOD BLESS YOU AND YOURS. PHIL SMART
MRS.PHILOMENA SMART <loonywood1962086@aol.com>
EWELL, SURREY ENGLAND - Friday, August 24, 2001 at 16:11:33 (GMT)
Cool site.
Art Bell
USA - Thursday, August 23, 2001 at 08:20:49 (GMT)
I would like to ask if I could quote your statements out of
your website in our Union paper, the paragraphs titled, No
Perfume Means Healthier Air, Some Toxic chemicals found in
fragrances and As Romantic as Hazardous Waste? Please respond asap.
Thanks, April
April Lipstein <topcatrules@aol.com>
Sarasota, FL USA - Tuesday, August 21, 2001 at 23:19:35 (GMT)
Has anyone out there had experience with a 24 HR Holter Monitor
Test to show heart irregularities? I am looking for tests that can
document my symptoms from exposures for Soc Sec Disability. Heart
irregularities is a big problem for me. Then there is my brain
dysfunction...but cardiologists are easier to find than
neurologists, in my limited experience. Any words of wisdom or
experience are welcome. Thanks.
Priscilla
<jack.jane@juno.com>
Rogers, AR USA - Saturday, August 18, 2001 at 19:01:43 (GMT)
Nice site...
wallpapers <vjmouwp@stopdropandroll.com>
USA - Wednesday, August 15, 2001 at 22:11:52 (GMT)
Dearest Jacki ... Praise Jesus for having led me to your story
on the internet .. Hello from the Westcoast of Florida .. :-) I
read with GREAT interest about your "conversion" as it mirrors to
some degree my own experience. I "departed" from the catholic
church many years ago when I was 16 years old for the VERY
same/similiar reasons you have and stated yourself in your story ..
"FEAR OF GOING TO HELL" joked and numbed me through my entire
childhood and youth as my entire family - all "devout" catholics -
forced upon me that "going to church, confessing to priests,
attending sacraments, etc etc" for the rest of life was my ONLY way
to MAYBE !!! get to heaven ... .. many many years later, that being
in 1999, a christian lady who was my supervisor in a temp
assignment I was sent to, invited me to "her church" and during my
very first visit there, I was saved .. all of that lifelong
suppressed desire I had to REALLY know and love Jesus released
itself from my heart and soul in an almost unending "river of
tears" which I cried relentlessly while being saved ... as you say
and I couldn't agree M O R E if I tried, I was finally liberated
and FREE to love Jesus as I had always wanted to, but never
could/was allowed to! Shortly after I was saved, I learned
something MOST important, and that was so fantastic, and that
was
that Jesus has always "been" and only took on an earthly body in
the womb of his mother mary to be born and accomplish the mission
God sent Him to accomplish to redeem mankind .. after I had learned
this information which miraculously came to me .. and while day
meditating on the word "Savior" in the book of Titus, I had a mind
boggling "Jesus nearness" experience .. please click in on my
website and read the portion/page called "Dancing with my champion"
..whereon I have documented this experience, I am sure you will
enjoy it :-) Since I HAVE been saved, I am still and all searching
for a "spiritual home" and, since a catholic church is only about 2
blocks from my home, I started attending services there this past
January (old habits die hard ?? Lol lol) out of "convenience" and,
after only SIX months of attending, I have once again re-learned
that what I have learned and experienced as a Christian, does NOT
at all chive/agree with what the catholic church "broadcasts" yes !
"broadcasts" .. for the last couple of days, I have been surfing
the net for "answers" and Jesus in His infinite wisdom led me to
your story and website .. your story was my so-to-speak "star
witness" to convict :-) (I am a paralegal.. lol) and all that you
wrote really really spoke to me .. I am going to conduct an in
depth search for a new spiritual home .. it might even be a
lutheran church .. as I could very much identify with what I read
about Lutherans (I am also a native german !) I am sure Jesus will
lead me to a new church just as certain as He led me to your
website and on this note, I don't want to take up any more space in
your visitor remarks page ;-), but want to thank you very very much
for sharing your story and experience with the world via the
internet .. it has truly aided me in understanding and accepting
that I must bid the catholic church farewell for once and all
forevermore .. for I have been saved by Grace and am living a life
by the very example of Jesus in the bible ...
".. I will reveal myself to those who love and obey me .. " John
14:23 ... Warm regards, Monique on da west coast :-)
Monique <contracheck@hotmail.com>
SW of Tampa, FL USA - Tuesday, August 14, 2001 at 03:00:02 (GMT)
Good Info.....I am going to put a link on my site if that is ok.
Please visit my website. I have some very interesting information
for you.
Sue Kurtz <dkurtz@webtv.net>
Blaine, TN USA - Saturday, August 11, 2001 at 16:30:08 (GMT)
I am a 40 yr old mother of 2 that was diagnosed with Myoclonus
& EMF Sensitivities due to MCS & EI in 1992. I was pregnant
with my youngest child at the time and living in a mobile home. It
was placed over a natural gas line with crop dusting outside the
door. The bedroom window had an electrical transformer placed 10
ft. away. I went to EHC-D and saw Dr. William Rea. He was the first
doctor that was able to really tell me what was wrong. All the
others said I was having myoclonus - but couldn't determine the
cause since it's not in my brain. (But it is in my head -
psychosymatic). My seizures can last from 30 minutes to 4 hours. I
would love to talk to others that suffer from myo or EMF.
Sharon Pritchard
<goldenfire@rocketmail.com>
Clinton, MS USA - Wednesday, August 08, 2001 at 19:16:07 (GMT)
Has anyone reacted to anesthethia? Sorry can't spell it! Going
"under" with gas for surgery.....could it hurt your chemical
sensitivity? I am guessing that it could!!
Suz <ironmac2@LVCM.com>
Las Vegas, NV USA - Tuesday, August 07, 2001 at 03:31:11 (GMT)
I get classical allergic symptoms in response to inhalation
and/or skin contact with perfumes,laundry detergents containing
fragrance or enzymes, air fresheners, all other scented products,
some adhesives, and mothballs (paradichlorobenzene). By classical I
mean severe rhinitis, bronchial constriction, swollen eyes,
conjunctivitis, earache, headache, and hives. I am a consulting
toxicologist by profession and am concerned when sufferers from
allergy or chemical sensitivity are on a tirade against chemicals
in general. High enough exposures to some substances (such as
chloramine, formaldehyde, or cyanide) are acutely toxic to all
people. Similarly, exposures to other substances (such as benzene
or asbestos) at sufficiently high levels and for sufficiently long
durations can produce severe health effects (even cancer) in
anyone. But the chemical substances that produce such terrible
acute effects in us at extremely low levels of exposure are
essentially non-toxic to non-sufferers at those same exposure
levels. The sooner we allergic and/or chemically sensitive people
stop behaving like angry, ignorant Luddites, the sooner we will
begin to obtain cooperation from regulatory agencies (and perhaps
manufacturers) in our quest for an environment in which we can move
about freely without fear of acute health consequences. We should
think of ourselves as handicapped and go about trying to educate
the rest of the world about our handicap in an effort to get them
to want to stop impairing our health.
I live in Seattle and would love to meet other people in this area
who strive to maintain a fragrance-free, allergen-free
lifestyle.
Does anyone know of a resource for finding fragrance-free
accommodations? In particular I would like to find a hotel or Bed
and Breakfast in the San Francisco Bay Area (Berkeley or environs),
as I will be traveling there in a few days.
G.G. <ggDABT@aol.com>
Seattle, WA USA - Monday, August 06, 2001 at 06:30:35 (GMT)
I did not know this site even exsisted! I 'am so tired of trying
to explain to people and my husband what smells do to me!!!! I can
get a headack in less then a minute if i come across a smell
weather it be gasoline ,furnture polish, soaps cooking smells! I
can not help this. I have m.v.p. and when i come in contact with
smells that get me fast it starts the mitrol valve to flare up and
then the migrains!!!! If there any thing you can send to me about
this to show how bad it can get and it's (not) in my head PLEASE do
so. People just do not understand how bad this can be .I can't go
into a place to eat or shop with out the fear of if i smell
something then what well, i have to leave or i get migrains! or
sick to my stomach. My address is 485 otinger drive Horton Ala
35980 phone is 1 (256) 593-8694 THANK'S
Brenda Miller <millerjw@hiwaay.net>
Horton, AL USA - Saturday, August 04, 2001 at 10:10:21 (GMT)
I am a disabled MCS sufferer going thru the Soc Sec Disability
process (SSDI). I am also conducting a survey of others in any part
of the SSDI/SSI process past or present. From this info I hope to
be able to help others with the process and the outcome of their
applications. The survey is on a new site:
www.mcsinfo.homestead.com. Please log onto that site to obtain the
survey. Deadline for completion has been extended to Sept 25, 2001.
The report will be available to the public. Your input could help
others. THANKS!
Priscilla Farrell
<jack.jane@juno.com>
Rogers, AR USA - Friday, August 03, 2001 at 00:26:07 (GMT)
There are many things in my environment that make me very ill.
The other David who posted on 13 July should consider himself very
fortunate to not live in a hostile chemical environment.
David Sloan <dsloan@umhb.edu>
Temple, TX USA - Thursday, August 02, 2001 at 20:59:17 (GMT)
I have just joined this webring under may soon to be wife's
connection with MCS which she is victim of her self. Just wanted to
say you have a nice site. I like tweetie COOL.
Daniel A Schreiner <daschreiner@hillbillyacres.com>
Fordland, MO USA - Sunday, July 29, 2001 at 18:24:45 (GMT)
Loved your site! Very nicely done and lots of good information
for the educated and new. Thank you for sharing your knowledge!
Donna Knauss <dmk1197@aol.com>
USA - Wednesday, July 25, 2001 at 02:53:16 (GMT)
Has anyone with MCS suffered with endometriosis? Do you have any
theories about dioxin link to it? What about estrogen in drinking
water?
Suz <ironmac2@LVCM.com>
Las Vegas, NV USA - Tuesday, July 24, 2001 at 08:45:53 (GMT)
Allene R. Wahl, Ph.D., C.N.C.
Int'l. Resource Center for Chemically Induced Immune Disorders
Ph. (847) 678-5934 e-mail: allenew@juno.com
True cause of epidemic:
http://members.tripod.com/immune_disorders/index.html
Allene
Wahl, PhD, CNC <allenew@juno.com>
Schiller Park, IL USA - Friday, July 20, 2001 at 11:12:18 (GMT)
Your web site has been of great help.I never realised the
dangers in what I use every day.Thank You so much for teaching me
what might save my our lives and help use live healther and happier
ones.
Alanna L. Lewis <bewareofsnakes@msn.com>
Glen Burnie, MD United States of America - Thursday, July 19, 2001
at 07:24:34 (GMT)
MY WIFE SUFFERS FROM MULTIPLE CHEMICAL SENSITIVITY. SHE HAS
BEEN WORKING AT GA. POWER CO. IN ATLANTA, GA. FOR MANY YEARS. I
BELIEVE THE AIR IN THE BUILDING IS BAD. ALSO, HER EXPOSURE TO
OTHERS PEOPLE (FRAGERENCES) IN THE BUILDING HAVE TAKEN THEIR TOAL
ON HER IMUNE SYSTEM. WE NEED SOME HELP. WHERE DO WE GO NOW? PLEASE
ADVISE IF CURES ARE AVAILABLE.
TOM MILLER <agdp1@home.com>
MONROE, GA USA - Wednesday, July 18, 2001 at 02:25:02 (GMT)
Hi - I enjoyed your website, the gentle, loving and cheerful
tone and the witness for Christ. I've responded to a few of the
people on the visitor remarks page - the format seems very helpful.
I found your site while trying to help my beloved friend in Calif.
who just accidently rented a house at great expense
(non-refundable) w/ 18 month lease who has extreme reaction to some
chemical there (maybe carpets) so can't move in and I'm floundering
about trying to see how to help. It's amazing to me how many people
must be "silently suffering" out there, so I'm thinking now how to
help them - particularly with inventions, and secondly with info.
For now, best wishes. Yours in Christ.
John Shell in Virginia
PS I do wish you would use the King James Bible which I've found to
be the best version - it's very more powerful and alive, clearer
and easier to memorize scriptures from and more beautiful also, in
my experience - it's very wonderful! The other versions in general
seem based on messed up Greek texts. The cross references between
verses seem much easier to me also. Lord willing, more later, but
... got to run now.
John Shell <johnshell3@aol.com>
Fairfax, VA USA - Tuesday, July 17, 2001 at 19:17:03 (GMT)
It is ashame to read some peoples attacks on the message site. I
think this is really a peaceful site that only brings a
person that has been touched by God closer together to inspect the
polutions around us. God does have a desire to have a personal
relationship with each and everyone of us and he also tells us to
ask for Wisdom. Thru meditational
prayer I recieved the answer that my 8 yr old daughter has Tourette
Syndrom. I will continue to pray for wisdom and knowledge on this
subject.I am just so amazed that I have seen symptoms since she was
3? May God Bless you all.
tracy otley gill <tracyg@epix.net>
Amish Country, PA USA - Tuesday, July 17, 2001 at 06:20:23 (GMT)
I really liked your site!! It is encouraging!!!
Love in Him, Ginni
Ginni
<white_rose_inthe_desert@yahoo.com>
USA - Monday, July 16, 2001 at 23:39:23 (GMT)
Hulda Clark recommends a parasite cleanse in her book "Cure for
ALl Diseases". Alot of information can be found on her website,
which I just found, www.huldaclark.com. However, MCS people may
have trouble with the products...cloves, black walnut extract and
wormwood. This is to add to the info about coffee enemas, liver
cleanses, etc. I am trying colon irrigations right now, also called
high enemas or colonics. They can also be very helpful in cleaning
out parasites and other garbage.
Priscilla Farrell <jack.jane@juno.com>
Rogers, AR USA - Monday, July 16, 2001 at 22:42:23 (GMT)
Just wanted to tell you also what I have found that is helping.
This isn't the sweetest subject, but us sufferers are beyond pride
and squeemishness. I don't know if you've ever heard of Dr. Max
Gerson? He seems to be the one who brought coffee enemas back to
light. This treatment really flushes the poisons out of the
overburdened liver quickly, which is unable to filter out all the
poisons like it is supposed to. Whenever I feel sickness coming on
to end up in a bad headache from some fumes I have breathed or from
some chemicals I have eaten, I do the coffee treatment as soon as I
can. (Which is about everyday now.) This eliminates so much pain I
just can't praise God enough for leading me to this. I also have an
herbal liver tonic that a friend of mine gives me the herbs to
make. This helps especially with any petro-chemical toxin that has
entered from breathing. I don't know what herbs are in the mix, but
my friend does. I have a suspicion that my liver is clogged up from
years of welding, being around auto shops, etc., so I am preparing
to do a liver cleanse prescribed by dr. Hulda Clark. But first I
have to cleanse my kidneys. If you've never heard of her I strongly
recommend her book, "The Cure for All Diseases". It is very simple
and you will learn alot.
Also, I have found some relief with NAET: Nambudripad Allergy
Elimination Technique, done with EDS: Electro-Dermal Screening,
which quickly determines what substances one is allergic to.
Also, people in our weakened state are prime candidates for cancer.
I cannot recommend highly enough a book called "World Without
Cancer" by G. Edward Griffin. I have personally met him and have
followed much of his research for many years. He has an impeccable
record for bringing out the truth. More info available at
www.VitaminB17.org. I hope this helps, sister.
In Christ,
jeff
jeffrey b. mueller <j.e.f.f.r.e.y@juno.com>
scottsdale, az USA - Saturday, July 14, 2001 at 03:10:20 (GMT)
I just read your thoughts under "Our Christian Faith" and it
sounded like you were reading my story. I, too, suffer from
environmental illness and only the Lord is keeping me alive. Thanks
for your site and encouragement!
In Christ,
jeff
jeffrey b. mueller <j.e.f.f.r.e.y@juno.com>
scottsdale, az USA - Saturday, July 14, 2001 at 02:21:49 (GMT)
You're all hyper-sensitive...Why are you attacking perfume? What
do you hope to accomplish? What about the sun? The rain? The air?
The food you eat? The clothes you wear? How about that CAR you
drive to and from church?! The gas you pump into it, the oil?
Hmmm... Is your church painted? How about your house? Do you buy
things made with plastic or rubber? All of those things will
involve dangerous chemicals at some point in the manufacturing
process...I know you know this so my question still stands... WHAT
DO YOU HOPE TO ACCOMPLISH BY ATTACKING PERFUME? Get over it... I
would *much* rather stand next to a person that smelled good than a
person who smells of BO!
David
USA - Friday, July 13, 2001 at 03:53:02 (GMT)
qEEG tests (quantitative electroencephalogram) map the brain and
have been effective in MCS cases for disability, etc. Has anyone
out there had one done and how helpful was it? This test is going
to be available at the MCS conference in Aug in Santa Fe and at a
reduced fee (if enough people sign up). It is otherwise not
available to many of us because it is specialized for MCS
sufferers. You don't have to be attending the conference to
participate. Would appreciate any input. Thanks. Priscilla
Priscilla <jack.jane@juno.com>
Rogers, AR USA - Thursday, July 12, 2001 at 22:48:16 (GMT)
Thank you for sharing your story. I have for years been
struggling with the subject of total surrender to God. This is what
lead me to your site. I am not quite sure how to do it or if I
should do anything at all. Maybe I should just remain silent for as
you say.
Thanks
Aleata
Aleata Holloway <jahsknight@yahoo.com>
Chicago, IL USA - Wednesday, July 11, 2001 at 14:49:43 (GMT)
I'm asking for chemecal materail under the name(polyestrimdite)
please advice me for companies that producing it fastly.
ammar daham
ammar daham <ammar76@uruklink.net>
baghdad, bagahada iraq - Wednesday, July 11, 2001 at 08:31:25 (GMT)
I appreciate the work you are putting into the hazards of
perfumes. We know from personal experience how much damage perfumes
cause.
Tony Brown <tony.brown@sympatico.ca>
Kanata, ON Canada - Tuesday, July 10, 2001 at 12:40:43 (GMT)
I was delighted to find your website. I am a multiple chemical
sensitivity sufferer, and am just in the process of trying to
change my life.
Miriam Myett <Myettrockhound@msn.com>
Belgrade, MT USA - Thursday, July 05, 2001 at 18:28:53 (GMT)
great site!
kamal <kamal@tripod.cl>
USA - Thursday, July 05, 2001 at 17:35:45 (GMT)
Diagnosed two years ago with MCS,changed my life,end of my job.
looking for a new career! ANY SUGGESTIONS? Medically should be from
my own home for best chance of a safe environment.
J. Coates <coatesclan@telus.net>
Vancouver, BC Canada - Thursday, July 05, 2001 at 15:35:29 (GMT)
Trying again as the url didn't show. This is the webring url
http://nav.webring.yahoo.com/hub?ring=thevoiceofmcs
Or scroll down the page of my site and you will find the webring
The Voice of MCS.
Nancy
<infchoice@webtv.net>
Slidell, LA USA - Wednesday, July 04, 2001 at 06:15:31 (GMT)
http://www.needs.com/ THIS IS A SITE THAT CATERS TO MCS PEOPLE
THEY CARRY GRANNYS PRODUCTS WHICH HAVE I HAVE BEEN ABLE TO TOLERATE
DIDNT KNOW IF STEPHANIE HAD TRIED THESE MAY GOD BLESS
BRENDA <I6BKB12@AOL.COM>
USA - Thursday, June 28, 2001 at 18:15:27 (GMT)
I TOO AM HOMEBOUND DUE TO MCS, EI,. I AM FORTUNATE TO LIVE CLOSE
TO DR WILLAIM REA IN DALLAS. THANK YOU FOR YOUR GREAT
WEBSITE
BRENDA <I6BKB12@AOL.COM>
LEWISVILLE, TX USA - Wednesday, June 27, 2001 at 22:38:53 (GMT)
I wanted to add that I have been trying to find out how to
contact The australian Chemical Trauma Alliance (ACTA).
I wondered if you could help.
My Son, whom I was pregnant with at the time of exposure is also
very effected and I would like to see if we can be treated.
Maggie Dickson <Avalon@Gidgenet.com.au>
Gidgegannup, WA AUSTRALIA - Tuesday, June 26, 2001 at 04:03:53
(GMT)
I have chemical sensitivity/chronic fatigue,
due to being exposed to chemicals produced by a tannery in
queensland.
maggie dickson <avalon@gidgenet.com.au>
gidgegannup, wa AUSTRALIA - Tuesday, June 26, 2001 at 03:59:21
(GMT)
Just surfin through and really enjoyed your site!~JIM
Mexico Jim <MexicoJim@yahoo.com>
Santa Rosa, TX USA - Wednesday, June 20, 2001 at 05:03:58 (GMT)
I enjoyed your site. I have been healed by Jesus of over 20
things myself! Praise God!
I would like to be a link also. We have a lot in common.
Maybe they would like Christian Counsel and Prayer Online (CCAPO)
also.
Carlotta
<crosswalk02@juno.com>
Tallahassee , Fl USA - Wednesday, June 20, 2001 at 01:11:58 (GMT)
Thank you for your obedience to our Lord Jesus Christ. I thank
you so much for providing this website and info. on environmental
sensitivities, but I especially rejoiced when I pulled up your
testimony page and realized you were fellow believers. My prayer
for you is that the Lord God would continue to fill you with the
Knowledge of His will in all wisdom and spiritual understanding,
that you may walk worthy and fully pleasing to Him, continually
being fruitful in every good work and increasing in the Knowledge
of Him....Col. 1:9-12
I am a 43 yr old servant of our Lord Jesus, retired RN, (due to my
MS symptoms worsening (1-1/2 yrs ago))and increasingly getting more
and more sensitive to certain environments. One of which happens to
be our church building which grieves my heart! It is about 100
years old,
located at the beach with no ventilation, air conditioning, just
lots of humidity, mold,mildew, musty smells etc. I limit my
exposure now to the building because of the triggering symptoms and
the residual effects on the MS symptoms for days afterward. I
improve greatly when I am not exposed for weeks at a time. But this
is difficult to do since the Lord has blessed my husband with
serving on the worship team and myself with the Women's Ministry.
Monday nights are difficult for me since I am in the building for
the Women's study from 6:30pm-9:30pm. It has definitely taken a
toll on my health but I can't discern between spiritual warfare or
if the Lord wants to move me elsewhere (I am in leadership and lead
one of the studies)
Do you have any suggestions? My husband and I attend another bible
teaching non-denom church every sat.evening that does have
air-conditioning and I feel great when I am there and can
consentrate on the message too whereas when I am in the other
church building, my CNS symptoms are pretty bad. The difficult
thing is that our church that I'm allergic to is in dire need of
servants who are grounded in the Word and sold out for Jesus
willing to serve (women's ministry esp.) Do you have any input
concerning being able to tolerate the environment of the church
building..thank you so much for your ministry, In His grip,
Dawn
Dawn Marie <just_lovin_Jesus@hotmail.com>
Carlsbad, CA USA - Monday, June 18, 2001 at 20:57:49 (GMT)
I'm a Christian with MCS. It has been the most difficult few
months I have ever experienced in my whole life. Many times, I have
wished for God to take me home, but somehow I know there must be a
new beginning for me out of this dark time. I'm clinging on to
hope. Thank you for making this site. It has encouraged me
greatly.
Jeffrey Ballaro <jeffballaro@worldnet.att.net>
Charlotte, NC USA - Monday, June 18, 2001 at 03:36:18 (GMT)
I am conducting a survey of MCS SSDI/SSI claimants in the hopes
of improving the process and outcome of MCS claims. A report of the
findings will be available to the public. To obtain a copy of the
survey and/or more information, please 1) go to
www.perfectplanner.homestead.com or 2)e-mail me for a copy to be
e-mailed back to you. If you have an SSDI/SSI claim in any part of
the process, your input could help someone else in the future.
Deadline to file surveys is Aug 25, 2001. Thank you for your
participation.
Priscilla Farrell <perfectplanner@juno.com>
Rogers, AR USA - Sunday, June 17, 2001 at 15:44:11 (GMT)
very interesting,
nweze nweze <peteroliseh@yahoo.com>
lagos, lagos nigeria - Thursday, June 14, 2001 at 22:34:22 (GMT)
Thank you so much for your wonderful website. After years of
hearing doctors tell me that there was nothing wrong with my 9 year
old son, I think we have finally found the root of our problems. He
is allergic to newsprint and certain perfumes. While trying to
narrow down the chemicals he has problems with I have come up with
Benzophenone, Benzyl Acetate and Benzyl Alcohol. The biggest
problem I have now is how to help him in school where his symptoms
are the most severe. (headaches, conjestion, exhaustion,
irritability) If anyone has any suggestions as to what I could tell
his teachers or how I can help them to provide a safe environment
for my son, I would greatly appreciate it.
Thanks, Maria
Maria Wyatt <maria_wyatt@hotmail.com>
Seminole, Fl USA - Thursday, June 14, 2001 at 14:58:21 (GMT)
Hi, I actually just read your story on the OO web page,
I think it is great that you were finally able
to change your relationship with food, it must be
so freeing not to have food be your main focus in life anymore. I
am just stating my journey, well actually it will be almost a year
this july that I started eating in responce to hunger, I have
managed to lose 90 Lbs. by listening
to my body but it has been a strugle, especially lately,
I think it is because as I lost I started having too much of a self
focus and started thinking about dieting again. I would love to
hear where you are at with OO, is it still a big part of your life?
I hope that sometime in the future you will update your web page
with new pictures and where your life has taken you. I will check
back soon.
God bless,
Ladybug
Ladybug
Portland, OR USA - Wednesday, June 13, 2001 at 19:05:37 (GMT)
great site!
rajini <rajini@tripod.de>
USA - Wednesday, June 13, 2001 at 18:39:39 (GMT)
I AM A GULF WAR VET WHO IS LOOKING FOR THE ANSWER TO MINE AND MY
FAMILYS ILLNESS. I CAME ACROSS YOUR SIGHT LOOKING FOR SPECT SCAN. I
HOPE AND PRAY THAT YOU WILL FIND THE CURE TO YOUR ILLNESS. THANK
YOU FOR YOUR INFORMATION.
SINCERELY YOURS ROBB
ROBERT HOLDGE <HOLDGE5@AOL.COM>
YUKON, OK USA - Wednesday, June 13, 2001 at 02:41:26 (GMT)
This is a great site!!! I'm going to try to recommend it to my
boss so that he can understand what's really going on with the
perfume issues I raise to him at work. Thanks for all you've
done!!! It's good to know that SOMEONE understands. Be well and
rapid healing.
AC <verdicat@gateway.net>
Pound Ridge, NY USA - Thursday, June 07, 2001 at 04:04:32 (GMT)
Jacki,
I was a member of the folk chore and CYA at Sacred heart Catholic
Church, Warner Robins, GA in the late 80. Hi, Michelle. Jacki,
Please e-mail me I would like to share some of my feelings about
the Catholic church.
christine <chrishoskinson@hotmail.com>
Headland, AL USA - Thursday, June 07, 2001 at 01:52:12 (GMT)
What a GREAT website! I have asthma but when I switched to
non-toxic products, my health improved greatly! I purchase these
products at wholesale price and they are terrific! I hope everyone
takes this website to heart!
Barrie <bare@alltel.net>
GA USA - Tuesday, June 05, 2001 at 04:56:04 (GMT)
Thank you for your site ! I am looking for information on the
environmental effect on children with tourettes. We live in Smyrna,
Tn. near the Nissan plant and we just have entirely too many
children who are demonstrating symptoms of tourette. I feel
something is going on and I believe your site was a good place to
start. Thank you.
Sue Ford <sford17@msn.com>
Smyrna, Tn USA - Monday, June 04, 2001 at 13:17:47 (GMT)
Profession: Safety Engineer (CAN) working in the Middle East
Lack of info on safety concerns with general public
Awareness program for locals on-going (construction Industry).
Basic rights - poor.
Product toxins - - a concern (education)
Grant Wilson <desert_canuck@hotmail.com>
Abu Dhabi, United Arab Emirates - Friday, June 01, 2001 at 11:00:08
(GMT)
I'm adding this site to our favorites. My husband suddenly
developed a severe case of MCS 4 years ago at my niece's wedding. I
thought I was going to have to take him to the hospital as he
couldn't breathe, was ashen, foggy, and almost incoherent. Of
course the doctors he went to thought he was crazy and had a panic
disorder or something, so we had to begin doing research ourselves.
As we slowly switched over to healthier products, removed all
scents from our home, and found a more sympathetic doctor, he has
gradually gotten to the point where he can actually enjoy going to
church again and usually can sit through the entire service (unless
someone with perfume sits down near him). It has been a long and
arduous journey and it's somehow comforting to know that there are
others who also struggle to live in a society that simply doesn't
understand or even care to understand. What hurts most is when
relatives who know and should care come to family events reeking of
perfume, clothes softeners, hair products, etc. Thanks for your web
site and product information. God bless you. Wendy
Wendy Davis <ranandwen@email.com>
Hollywood, MD USA - Wednesday, May 30, 2001 at 18:22:57 (GMT)
I live in south fl, I have ms and I am very chemically
sensitive, I am looking for a dr, to help me with this
problem, can you suggest anyone or remedies that will help
me to feel better and detox slowly thank you sharon
sharon M. <joachimna@aol.com>
coral springs , fl USA - Wednesday, May 30, 2001 at 01:58:44 (GMT)
i was very impressed about jackies story. when my husband and i
moved here from pennsylvania for my daughters health i had no idea
my whole life would change. we moved here in 1995 not knowing that
they do mosquite spraying in our subdivision. on this one night i
couldn't figure out what the noise was and i stepped out to see and
the mosquite control truck came down the strret and sprayed me full
force i ran in the house told my daughter to close all the windows
and i took a shower little did i know the damage was done . i
started having alot of problems sinuses bladder female problems and
sensitive to everything newspaper tar perfumes cleaning products
shampoo nail polish nail polish remover and the list goes on. i
have been to 6 doctors and the last one is the one that told me i
had mcs i did 30 sessions of chelation therphy and 3 colonics but i
still am sensitivie to chemical. i need to see a doctor like jackie
did. DR. Albert Robbins in Boca Raton but dont they have one closer
to where i live in the tampa bay area.i printed the story of jackie
for my doctor and for myself to show my husband that there is help
out ther for people with mcs thank you so much god bless you all
sincerely natasha terriere
natasha terriere <tata_n_mama@hotmail,com>
holiday, fl USA - Tuesday, May 29, 2001 at 20:05:03 (GMT)
Gold/Silver filling's and the Amalgum mercury that held the
filling's and cap's in have cost me in many way's, the best part's
of my life,that is the bottom line !!!
I thank the non proffit group D.A.M.S for there effort's
to inform person's like me !!
Getting my Gold/Silver filling's taken out along with the Root
canal's and the cavitation cleaning's done I feel this has given me
back some quality life again ,now I can look for my other half
,Pray for me Please!!
Thank You Jim
jim <jim@glacierview.net>
seattle area, wa USA - Monday, May 28, 2001 at 08:22:16 (GMT)
Hi! I have MCS - I get migranes from the slightest smell of
perfumes , chemicals, etc. Anyone out there with this problem - I
would love to talk to you.
I am 50 yrs. old and work with this problem for a doctor and am
really struggling to live normally. It is getting harder and harder
to cope everyday and remain upbeat and cheery. Pls write. Pat
Pat Bergeron <rbergeron07@snet.net>
Putnam, Ct USA - Saturday, May 19, 2001 at 20:21:06 (GMT)
I found this web site to be very informative. I have always felt
that the way of the world was causing problems for adults as well
as children. People complain about second hand smoke,as they stand
there with sprays on that will give one an instant headache. I
truly believe in what you are saying.
Karen
Pa USA - Saturday, May 19, 2001 at 02:30:43 (GMT)
This site has been so helpful. I recently found replaced all my
cleaning products with a non-toxic brand. It is amazing the
difference in my moods. My headaches are gone. I always thought is
was strange that as I "cleaned" my I felt sick! Thanks for the
great info.
Debbie <hihohallaert@yahoo.com>
USA - Thursday, May 17, 2001 at 17:47:51 (GMT)
Are you insane...or just the "Food Police" in disguise...serving
double duty...telling us what NOT to eat...what NOT to use.....Last
I checked we were not in a communist country....and thank almighty
God for the freedom that we have to wear whatever fragrance we
choose... as opposed to smelling badly like way too many people
do....
Millie <Millieg350@aol.com>
Elizabeth, NJ USA - Monday, May 14, 2001 at 20:36:11 (GMT)
Please send me the free booklets on MCS. I visited the
Tourette's Syndrome & EI section as well as all the other
catagories. I didn't get through all the articles, but I wil return
to finish reading them. I have 2 Children girl-14yrs. boy-9ys. who
both have "Tourette Syndrome". My boy also has asthma. We don't
have anyone on either side of the family with T.S. but we have alot
of allergies on both sides. I can't explain the emotions I
experienced reading on the Tourette's & EI. Can you please send
me names & PH#'s of Doctor's close to the State of Mo.? I know
my children's symptoms are highly related to allergies. In fact my
daughter was tested positive to allergins several years ago. She
also has ADHD & OCD. I never had her retested because it took 4
people to hold her down for the pric testing at age 4. I could't
put her through that again. My son tested negative to the testing
although he is on many medications to control his activity enduced
asthma. He uses a Ventolin inhaler-2puffs as needed, Intal
inhaler-2puffs 3xdly.,Serevent inhaler-2puffs 2xdly,Pulmicort
inhaler-2puffs 2xdly,Claritin Redi-Tabs,& Singulair. I planned
on getting a 2nd opinion from a childrens Hospital for his asthma
but I feel his medicines to treat his asthma may be triggering it,
as well as food & who know's what else. He just started vocal
& motor tics about 10mo.'s ago. I will now take a different
approach for treatment of their symptoms. I'm excited to know that
they probably don't have T.S. That may sound strange, but I have
been searching for a reason why they have Tourette's. My 12yr.
search has now come to an end & I feel very confident that it
is connected to environmental & allergies. I want to thank you
so much for putting this web site together. Please send the
requested info. via e-mail. Thanks for all your information.
Connie.
Connie Helm <Red6785@aol.com>
Smithville, MO USA - Saturday, May 12, 2001 at 16:58:35 (GMT)
really liking your site, will return later as I must go to bed,
soon, bett
BW Kolk <bwkolk@mwci.net>
WI USA - Saturday, May 12, 2001 at 03:42:49 (GMT)
In recognition of MCS Awareness Week May 6 - 12, FREE
information packets are available re multiple chemical
sensitivities. Simply e-mail me the street address where you would
like one sent. Sponsored by the Chemical Injury Information Network
(CIIN).
Priscilla <jack.jane@juno.com>
Rogers, AR USA - Tuesday, May 08, 2001 at 18:20:12 (GMT)
I found your website very informative. I love the section "Our
Christian Faith". I am waiting for my daughter to teach me how to
use the support sections. 12 years ago I was diagnosed with
Fibrositis. March 27, 2001 I inhaled chemicals at work and have
been sick ever since. After smelling floor polish at a restaurant
and having a severe reaction I realized that my fibrositis was
somehow related and caused by inhaling floor polish daily while at
work as a baker. The damage to my body is unbeleivable, sometimes I
have the mobility of a 90 year old woman. I suffer all the
resperatory problems along with tingling in my legs and hands and
the loss of use of my legs, loss of use of my left arm, heart
problems, drooling, loss of bladder & bowel control, &
difficulty in feeding myself. PTL these things go away and only
happen when I come in contact with certain things. Unfortunately I
often don't find out till it is too late. I thank God for your
willingness to start such a informative website. I pray that God
will move the hearts of people to realize what is going on before
it is too late. Even my own family thinks that I am overreacting.
Thank you for allowing God to use in such an awesome way. God Bless
You
Ritta
Ritta Reynders <reyndersritta@hotmail.com>
Surrey, BC CAnada - Monday, May 07, 2001 at 20:56:26 (GMT)
Sorry about the spelling last time. I am so thrilled to find a
Christian site such as yours. Because of the sensitvity I have to
perfumes, going to church has turned into a chore. Besides being so
sick afterwards, there seems to be so few who actually believe
there is a problem. Due to allergies, asthma, chemical sensitivity
I am unable to work. Do you know of any Christian chat rooms for
those of us with MCS? It would be so nice to talk or type with
other Christians who share faith in the Lord and their honest
struggles and encouragement. Thanks you so much!!
Teresa <hafadzn@hotmail.com>
va USA - Monday, April 30, 2001 at 20:46:13 (GMT)
Tahnk you so much for your informative wev site. It is a real
blessing.
teresa <hafadzn@hotmail.com>
va USA - Monday, April 30, 2001 at 20:29:01 (GMT)
I hope you can get help soon!
-Matt
Matt <sasquash15@hotmail.com>
Costa Mesa, CA USA - Monday, April 30, 2001 at 17:38:58 (GMT)
I am writting in hope that I can get someone to help me.
I have reaction to perfume scent at work. I have gone to my Dr.and
to my company Dr.for help.My company Dr. is saying that it is a
tolerance thing. My company has threatened to
terminat me if I have any more reaction.
My company is GE/Honeywell At 3333 Unity Dr.Mississauge Ontario
Canada. L5L 3S6
Please Help Me!
Thank You
Evelyn Frankland
43 Greenbrair Rd.
Brampton, On
Canada L6S 1V8
Evelyn Frankland <ecfrankland@home.com>
Brampton Ontario, Canada - Thursday, April 26, 2001 at 14:48:11
(GMT)
If you have used sun-blocking film on the windows in your house,
did you experience any adverse side effects? What other means have
you used to keep the heat out of the house? The Arizona sun is
merciless. Any information will be gratefully received. Many
thanks.
M. H. Miller <china@vtc.net>
Pearce, AZ USA - Monday, April 23, 2001 at 14:37:39 (GMT)
I need to ask a Nurse Midwife if they will answer some of my
Questions
Michelle Lowe
Marshall, IL USA - Monday, April 16, 2001 at 21:52:24 (GMT)
Wow...I can hardly believe it is the same website!! You are
progressing so much!! I contacted you last year to link with you. I
am just feeling well enough again to work on my website. Going has
been tough. Hope you have been doing better. You have done a
wonderful job. Hope to report that I am ready to link up
soon...will probably have a few questions at that time. Really
great job.
Happy Resurrection Day!! Love & Prayers Peggy Voss
Peggy Voss <commonthread@dtgnet.com>
Beresford, SD USA - Friday, April 13, 2001 at 23:22:32 (GMT)
A Big Arizona Hi to all my fellow MCS friends! I am very glad I
found this site. Some of you are so much worse than I am and I am
praying for you all. I first became aware that something was wrong
with me in 1993, when I turned forty. I had been overcome with a
pesticide called Durspan. I had never has asthma, just slight
pollen allergies that were seasonal and Seldane put them in there
place. I was the CEO of the 5th largest Mental Health Program in
the Westen states. I had to leave my job because I was getting
sicker and sicker. I have a great education but companies only saw
me as a liaability not an asset. After 6 years of being sick I
finally discovered what I had, MCS. I have spent the last 3 years
working for a very large car dealership in telemarketing and
internet sales. I earn enough to live and keep my health insurance.
I have been recognized by two doctors in my area as having MCS and
EI. Neither knows what to do with me, so I do research and tell
them what I want done. Currently the MCS has degenerated to the
point that I now have Congestive Heart Failure and Kidney failure.
Because of these two wonderful bi-products of MCS I have been
recognized and protected in my employment and a Disabled Person.
They dont like it but they are Reasonably Accomodating me by making
our office fragrance free- That means even the cleaning p[roducts.
They have also installed a Heppa Filer, extra ventilation and a
window. Sometime when I am to ill to work I am able to do somee of
my work from home. I dont know the answers to what ails us but I
know we need to keepp on going. I have found a soap that iss for
Shampoo aand body washing that has no 'Chemicals' in it. It is
primarily Aloe and Lanolin - "SO-Soft can be found at
www.SO-Soft.com The company is Astro Sales in Pearce Arizona
(520)826-4133. Please feel free to contact me at my e-mail address.
I would love to hear from people in Arizona!
Kaydee Thomas-Wieszczak <doublewidow@dcsinter.net>
Tempe, Az USA - Sunday, April 08, 2001 at 04:30:32 (GMT)
after exposure to mold in my mobile home, brand new w/lots of
formaldehyde, an allergist gave me lots of broad-spectrum
antibotics, now I have candida, mcs, food allergies etc. my boss
likes to spray lysol, my doctor says i'm not sick enough to be on
disability, and i'm becoming the 'incred.shrinking.woman'
debs
USA - Saturday, April 07, 2001 at 00:32:55 (GMT)
great site
seenu
USA - Wednesday, April 04, 2001 at 16:38:00 (GMT)
as i am sitting here typing this i am in the middle of an
allergy attack at 3:30 am .people that dont have allergy,s dont
understand. i hurt my wifes feelings over her perfume but i cant
help it i want allow any kind of perfume in my house because of my
allergy but my kids and wife dont understand . i was in adepartment
store two years ago and they had sit out potperia and igot sick at
my stomach and dizzy and fainted i found out later it was the
smell.i am 46 years old and these allergy,s just started about five
years ago and i dont understand why i had not been botherd
before
blake guinn <pennyguinn@yahoo.com>
hampton, tn. USA - Tuesday, April 03, 2001 at 08:17:56 (GMT)
It certainly brings back memories of my first encounter with
allergies to chemicals and can relate to Jacki's Story. I wish they
had the internet 20 years ago!!
Sue Harley-Kidd <kiwi@vaxxine.com>
Port Robinson , Ont Canada - Tuesday, April 03, 2001 at 01:15:44
(GMT)
Thanks for putting together these webpages. I found them quite
helpful as I am a new MCS sufferer (altho no doctor wants to admit
that). Maybe someday I'll share my story with you too. I was also
encouraged by your Christian faith page - great testimony! I am a
missionary teacher, and firm believer in Christ. I will pray for
you and the ministry you have to others through these webpages. God
bless you!
Kathy O'Brien <akaobrien@juno.com>
Tucson, AZ USA - Monday, April 02, 2001 at 00:13:16 (GMT)
I know that there is alot of truth about all of the toxins
we are subjected too.
With the food industry, I think they ought to try to put a little
"food in our poison".
Deneece Lamb <grneyes_55_2000@yahoo.com>
Valley Springs, ca USA - Sunday, April 01, 2001 at 10:48:55 (GMT)
I am writing to ask if anyone is on Section 8 housing
and needs accommodations by landlord for disability
and if those accommodations can be reimbursed to
landlord by the public housing authority. I have seen
web sites stating you can ask your local housing authority
to provide the accommodation instead of the landlord but
I have not seen anyone saying or a web site stating the
exact law governing this. Does anyone know? If and when
you are given an extra l20% rent allowance for the disabilty
to find housing is the difference paid by the low income
person or the housing authority to the landlord.
What do you do for pesticides coming into the home
when spraying is being done? I have windows closed
and clothes dryer closed vent taped shut but still get
in house and become very sick and almost paralized.
Any suggestions?
Thanks.
April
April <AprlJune572@netscape.net>
Toledo, Oh USA - Saturday, March 31, 2001 at 22:06:35 (GMT)
I was searching the web for enlightening information. Thank
you.
Cindy Barbeau <kcmmbobo@aol.com>
Everett, WA USA - Thursday, March 29, 2001 at 00:30:15 (GMT)
Alternate URL with typical Brain-PET from anamn. MCS-Pat. is
http://mcscfs.de/pet or http://mcsmed.de/pet
DGMCS
<DGMCS@neurotox.org>
Bayreuth, BY Germany - Wednesday, March 28, 2001 at 17:07:20 (GMT)
I have yet to look at you site.
Kathy Schmersahl <garreth41@hotmail.com>
van vleck, Texas USA - Tuesday, March 27, 2001 at 16:33:29 (GMT)
I was at my brother's house the other day and they had a
Glade plug-in in the kitchen where we were sitting. I
noticed the strong smell when I first got there. After
a while, I started feeling very tired and a little dizzy.
Then, my vision started getting blurry and I was seeing
shimmering "halos," and I was having trouble reading the
words in a book my brother was showing me. I had to leave
because my vision was getting worse. I opened the car windows while
I was driving home and after about 10 minutes
I felt better and my vision returned to normal.
Audrey Pettengill <apetteng@mtholyoke.edu>
Westfield, MA USA - Tuesday, March 27, 2001 at 02:25:20 (GMT)
We have a Slide from a typical anamn. MCS-Patient. Medical
PET-Group, from German Cancer Research Center, Heidelberg, URL:
http://mcsmed.de/pet.
DGMCS (German MCS-Ass.) <DGMCS@neurotox.org>
Bayreuth, BY Germany - Monday, March 26, 2001 at 09:36:22 (GMT)
It is great you have a site in which some one can drop in and
see how disabled persons maintain in their every day life Stop by
our on line discussion group some time!
A Brother In Disability
Bill
William Charles Tinker <wtinker@metrocast.net>
Northfield, NH USA - Thursday, March 22, 2001 at 22:32:38 (GMT)
(CAPS DUE TO VISUAL DISABILITY) WONDERFUL AND HELPFUL
INFORMATION TO SHOW THOSE WHO DO NOT UNDERSTAND CERTAIN EFFECTS OF
ODORS TO THE BRAIN. AFTER HAVING THREE BRAIN SURGERIES FOR
ASTROCYTOMA, I CANNOT TOLERATE MANY TYPES OF ODORS. THIS SITE HELPS
ME TO EXPLAIN THE SENSITIVITY LEVEL THAT MANY OF US HAVE TO DEAL
WITH ON A DAILY BASIS. THANK YOU, JUNE
JUNE L. DONOVAN <flewb4@earthlink.net>
MISSION VIEJO, CA USA - Thursday, March 22, 2001 at 19:26:06 (GMT)
Need to know of physicians who specialize in diagnosing
MCS.
Edwin Moyer <devtech@epix.net>
Terre Hill, PA USA - Wednesday, March 21, 2001 at 21:27:51 (GMT)
Love the sight and info I will be back. Thanks Cowboyup8521. I
will try to get more people to this sight.
Mary L. Moyle <cowboyup85217@aol.com>
Apache Jct., Az. USA - Wednesday, March 21, 2001 at 15:50:32 (GMT)
I am the only one I know of who has an allergy to chicken.I mean
the feathers make me cough, they are in pillows, blankets, coats.
When I eat chicken in any form it is like the worse flu ever..green
apple trots,headache,tired, exhausted, that's what I thought the
flu. Or that I was getting bad food. Everytime we ate out I was
sick for 3-5 days..anything fixed where chicken was made me
sick..no more french fries,fried cheese, chinese, etc..It was not
until I got a flue shot 3 yrs ago and got sick with in 5 minutes
and had to go to the doc., and he finally told me what I partly
knew..how about you????
Lemara <dizmays@flash.net>
USA - Tuesday, March 20, 2001 at 15:25:48 (GMT)
Very interesting imformation to me.
Sarah <sfb2023@aol.com>
Brewer, Me. USA - Sunday, March 18, 2001 at 18:43:28 (GMT)
Has anyone had experience with the Hallelujah diet? Did it help
and how long did it take to see improvement?
Diane <tdjohnson@click1.net>
Beech Bluff, TN USA - Sunday, March 18, 2001 at 16:51:25 (GMT)
I am glad that you guys have this website it means a lot to me I
know a person who has a disease caused from chemicals. I like
perfume but when Im around certain people I know I try to go
lightly on the perfume. I feel bad to know that there are people
out there that can't be around perfume at all,when they make
perfume they should use all natural ingredients like Vanilla,
Peach, and Apple. i use this perfume that smells like coconut and
one day my teacher read off some ingredients and while he was
reading them I looked at my perfume bottle and none of the
ingredients was on there but I know that doesn't necessarily mean
that my perfume is safe for everybody.
Andrea Youngblood <gbutterflies@hotmail.com>
Evansville, IN USA - Friday, March 16, 2001 at 02:53:42 (GMT)
I believe that any person who wants to wear perfume to smell
good should be aloud. I thought we were free
Andrea Youngblood <gbutterflies@hotmail.com>
Evansville, IN USA - Friday, March 16, 2001 at 02:40:27 (GMT)
Ever heard of a neurological challenge known as ADHD - Attention
Deficit Hyperactivity Disorder syndrome? Although it is termed ADHD
today, it has previously been known as ADD (Attention Deficit
Disorder), Hyperactivity, Hyperkinesis, Minimal Brain Dysfunction
and Minimal Brain Damage. A number of years ago with the help of my
doctor, Anita Uhl Brothers, M.D., of Berkeley, California it was
determined that I could detect some FDA approved food additives
which were present in some drugs and foods. In my own case, the
hidden food additives acted in me like undisclosed very powerful
drugs vs how they were presented by the manufacturers as simply
completely inert ingredients/food additives. Dr. Brothers, M.D.
called for full disclosure ingredient labeling so that the small
number of persons believed to be extremely chemically sensitive to
some food additives (such as the FDandC Yellow Food Color No. 5 -
tartrazine - and the artificial sweetener, sodium saccharin) would
be better informed and could choose to avoid them if they wanted.
Here are some educational websites:
http://homepages.msn.com/RightWay/c_thomas_wild
http://www.angelfire.com/biz/addsyndrome/index.html
http://www.merck.com/pubs/mmanual/section19/chapter262/262d.htm
As an adult with very mild ADHD - Inattentive type - I am today
(2001) helped with an FDA approved alerting agent/stimulant/special
caffeine compound (additive-free)which works better for me than
Ritalin and regularly and temporarily tends to reduce
distractibility and increase attention span for me. I can tell an
enormous difference between a medicine which works for me which is
additive-free vs one which is full of additives such as the
artificial yellow color FDandC Yellow No. 5 and contains an
artificial sweetener such as sodium saccharin. Both Dr. Brothers
and I feel that consumers have the right to full ingredient
disclosure which is an easy way of informing consumers so that
those who are extremely sensitive to some common food additives can
avoid them if they want.
Extreme reactions to some everyday chemicals is quite real for at
least a small group of persons. Your website helps get that message
out to the public and thereby helps people.
Thank you. Best wishes. CTW, Sacramento, CA
C. Thomas Wild <ctw1940@jps.net>
Sacramento, CA USA - Tuesday, March 13, 2001 at 21:54:21 (GMT)
My daughter gave me your internet address. We are both just
learning about chemical sensitivity we are grateful
for websites like yours.
Donna McRory <DonnaMcrry@aol.com>
Spokane, WA USA - Saturday, March 10, 2001 at 05:10:16 (GMT)
HI IM DOING A REPORT ON LEUKEMIA. I THINK THIS IS A GREAT IDEA
YOU ARE DOINGIM GLAD I CCOULD SIGN YOUR GEUST BOOK AND I HOPE ALL
THE PEOPLE WITH LEUKEMIA WILL SURVIV LOVE LESLIE
leslie patterson
coos bay, or USA - Friday, March 09, 2001 at 17:06:13 (GMT)
Hi,
I'm going to write a short one because I am not feeling too well. I
might be comming down with something serious. I don't know for
sure. I just wanted to say that I was surfing through the website
and came upon your site. I was looking up data for walking amonia
and it gave me alot of information. Thank god for computers! I
think you did a great job and that you should keep up the great
work! I got alot of information thanks to you. I'm going to go
surfing alittle more so I'll catch ya later! I am a 14 female
student and my e-mail is ashley1344@hotmail.com if you decide to
email me. E-mail me anytime!
Thanks
Ashley
Ashley <ashley1344@hotmail.com>
Philadelphia, PA USA - Friday, March 09, 2001 at 02:11:50 (GMT)
Your website is refreshing(in a non-scented fashion!)Chemical
inhalents have been the bane of my existence for five decades. I
suffer from MCS,CFIDS,acute migraine,severe neurological symptoms
and the whole ball of wax. I'm sure anyone interested enough to
come anywhere near this site knows the whole story. I've found
people to discuss almost every aspect of these problems except the
one that counts,inhalent chemical reactivity.This is undeniably and
unquestionably the trigger that precipitates my suffering. This
conviction is based upon 50yrs. of observation and scrutiny and a
focus that can only be brought to bare through an endlessly
repeating series of identical and painful episodes. Even healers
who acknowlage the problem universally minimize its severity,let
alone its prime canidacy as the PRIMARY CAUSE for these disorders.
Well, as I stated,I'm sure everyone visiting here is aware of the
problem, and of the lack of recognition and response that is
currently experienced. But, here I am venting to you who already
know,because you are the only ones listening. I did send an e-mail
supporting the petition to reclass CK's Eternity(thats how long it
takes to clear from my system) thanks to your site's suggestion. I
found you,by the way, by entering "perfume manufacturers" into my
search. I had just finished a LONG letter to National Geographic
berating them for including a sheet of MEN'S COLOGNE sample in my
"nature magazine". I cancelled and included a short primer on
enviornmental illness for their edification. I was searching for
perfume companies to harrass when I found your site, much better!
Now I can get all of them! Seriously,in spite of the pain they have
caused,I seek more to educate them than to harrass. Perhaps they
can yet avoid the path of the cigarette companies,which is to be
litigated and legislated out of existence,if they can limit
themselves to aiming their products at those who desire them rather
than cramming them down the faces of those who are doing everything
they can to avoid them. Keep up the good work,andfeel free to
publish my comments for anyone interested. I'll be writing the
fabric softener people next (those guys really get me downy) and
the govt. agencies about the related neurological complaints. I
welcome your suggestions as to what other actions or writings I
might undertake in this cause. My time,energy,typewriter,and
monetary contributions (limited as they all are) are at your
disposal. I am fed up with these stinkers being allowed to run
roughshod over the health of the nation without the hint of a whiff
of regulation or legislation. P.S. suggestion: since the American
Academy of Ear Nose and Throat Surgeons is the only association of
MD's I have seen to list perfumes and chemicals as a cause of
disease(in their letterhead and in their pamphlets) why not push
them to get up off it and practice what they preach? They have but
one tack to suggest for dealing with chemicals: avoidance. We all
Know this is now impossible,but now that a problem has been
admitted(to whatever extent) by at least part of the medical
establishment, wouldn't it be easier,or more practically
possible,for patients to carry out the Rx of avoidance if these MD
cowards would open their mouths to the public,the press,and in the
medical liturature about what they know and suspect in regard to
the dangers of inhalent chemicals and perfumes. I'm off to read the
rest of your site now. Please contact me, put me to work while I'm
still full of sympathy and anger for myself and the rest of the
afflicted. Sincerely, Bruce K. Illig
Bruce Illig <boneshakers@webtv.net>
Chicago, Illinois USA - Tuesday, March 06, 2001 at 15:38:12 (GMT)
Has anyone had experience with FOSAMAX for osteoporosis? Were
there side effects and, if so, what? Appreciate any information
anyone has. Thank you.
MHMiller <china@vtc.net>
Pearce, AZ USA - Sunday, March 04, 2001 at 01:56:15 (GMT)
Thank you so much!!!
This site helped me a lot in our symposium for chemistry.
Mwaah!
Khristine <joy3pooh@chickmail.com>
Las Pinas, Philippines - Wednesday, February 28, 2001 at 11:44:18
(GMT)
Greetings Everyone! I think this is an awesome site! It's the
only one on MCS that I've found that's given any helpful
suggestions on what products to use! Thanks for a great, helpful,
encouraging site!
I am wondering if anyone can help me. I've been sick for 14 years,
I'm 28, with other conditions and although I've only been diagnosed
with MCS for 1 1/2 years, I've had it for at least 12. I've gotten
no help at all from doctors. The past two years it's worsened and
now it's to the point I am completely homebound, my already
limited, organic, diet doesn't seem to be agreeing with me and my
skin is red and oozing from soaps and detergents burning my skin.
I've tried regular brands and natural brands of both and nothing
seems to help for more than a week. Then it's like they turn on me.
I am thrilled to read the suggestions of "no fragance" detergents
in the "Neighborhood Health Notice!", but I can't find the products
listed. Has anyone tried Allens Naturally Ultra Laundry Powder?
That's all I've been able to find in my area. I'd like to try
washing my clothes in baking soda, as suggested. Can anyone tell me
how much to use per load?
Also, does anyone know of a doctor who treats MCS patients in the
state of Minnesota and western Wisconsin? I've been around the
major hospitals and can't find anyone. My doctor sent me to the
Mayo Clinic for this and they were no help at all.
I would appreciate any ideas, help and suggestions anyone would
like to give me. I am pretty new to this all this. I used to be
able to just avoid certain triggers, but now it's very bad. I am
incredibly sick and uncomfortable and don't have any more ideas on
what else to try.
Thank You!
Tammy
Tammy <Tamaramatamtam1@aol.com>
MN USA - Wednesday, February 28, 2001 at 03:41:59 (GMT)
PEOPLE CAN SAY THY ARE VERY LUCKY THY CAN DRIVE THEM CARS AND
TRUCKS,A LOT OF POOR DISABLED AND HANDICAPED PEOPLE AND M.C.S.
ECT.... CAN NOT DRIVE, WHEN WE TRY TO WALK OUT-DOORS THEM DRIVEING
FUMES MESS U.S. UP. AND THEM TOO....THY TRY TO PUT US INN GROUP
HOMES., AND MENTAL WARD LOCK-UPS. AND USE US AS GUINEA-PIGS , AND
THATS VERY, VERY, VERY, WROUNG. BE CAUSE THERE WILL BE BURNING
TIMES FOR THEM PEOPLE MISTREAMENTING US. IT MIGHT BACKFIRE WHAT THY
DO TO THE DISABLED. BECAUSE THE IS ALLWAYS A WARNING BEFORE THE
TIMES OF TRUE JUSTIFCATIONS ON THIS OLD SMELLY DANGERUS
WORLD.....
mr. m.d.
GEORGIA, , GA. USA 301- - Monday, February 26, 2001 at 15:29:26
(GMT)
OOPS I guess I'm suffering from brainfog. The name of the book
is Brain Fog. Pardon me for not putting it in the last post. Oh
well those of us with MCS just gotta learn to laugh at our "dumb
attacks" sometimes. Thanks again for the site
Bruce Haney
<brainfogbook@yahoo.com>
Randle, WA USA - Monday, February 26, 2001 at 09:25:55 (GMT)
Thanks for what you are doing. I have been an MCS person since
1984 and set legal precident in federal court in 87. In 1991 I
earned a degree in Environmental Science with a speciality in
behavioral toxicology. After earning the degree I was asked, in
1994 by the US Senate Veteran's Affairs Committee to participate in
the investigation of Gulf War Illness and the following year wrote
a brief for the White House. By the way not many know that the vast
majority of us who worked for the Vets did so on a voluntary basis
with no pay. I have now written a book about my experience and
research. While the book is listed on Amazon .com, I will ship the
book at bookstore rates to those reading this page. Just contact me
at the e-mail listed and I'll get back to you. By the way this is a
really neat site blessings.
Bruce Haney
Bruce Haney
<brainfogbook@yahoo.com>
Randle, WA USA - Monday, February 26, 2001 at 09:15:03 (GMT)
I really enjoyed your site. I will bookmark it and come back
many times. I suffer from non-allergic rhinitis. It is very
frustrating trying to explain to people how I can have an allergic
reaction to something even though I do not have allergies. I can't
go to work, the grocery store, a movie, or even a basketball game
without being affected by someone's perfume! By the way, my
daughter & I visited your church last fall and enjoyed it very
much. Blessing on you both.
Roberta <bertsandy@hotmail.com>
Trenton, FL USA - Saturday, February 24, 2001 at 02:26:36 (GMT)
I LOVE CERTAIN PLANTS, AND TREES, AND FLOWERS. BUT SOME I FOUND
OUT WHEN I GOT SICK WITH M.C.S. ALLERGYS PUTS OUT THAT OLE PER-FUME
SMELLS.THY SAY WE THATS M.C.S. SUFFERING PEOPLE ARE JUST CRAZY.
NEED TO BE LOCKED UP. KILL US OFF IT SEEMS. BUT WHEN ARE THE POOR
DISABLED GOING TO GET OUT OF THIS SLAVERY.WHEN WE SPEAK OUT, WE GET
LOCKED UP, DRUGED UP, AND THY THAKE OUR LITTLE MONEY AWAY. ITS SO,
SO, SAD. THY SAY WE ARE JUST A FAB . ITS JUST LIKE BELL-BOTTOMS
PANTS THY ARE ALLMOST OUT OF STILE. BUT WHY ARE SO , MANY M.C.S.
ALLERGY SUFFERS HAVE SO MANY PHYSICAL HEALTH PROBLEMS. I GUSS THAT
MENTAL HEALTH PILL COMES FIRST BEFORE OUR LUNGS, SO, LET U.S. PRAY
TO A HIGHER POWER , THE OTHERS MY SEE THE LIGHTS.I HOPE ITS NOT A
FRIGHT....... A.L.Z. IN CAREING........A.L.Z.6/78.
mr. M.D.
GEORGIA,U.S.A., GA. USA - Friday, February 23, 2001 at 17:27:06
(GMT)
DESPERATE FOR HELP ON CHEMICAL AND DRUG RELATED ALLERGIES;
DAUGHTER HAS DANGEROUS ALLERGIES TO DRUGS THAT CONTAIN "DEPO",
WHITE PRESERVATIVE IN CERTAIN DRUGS. WHERE CAN I FIND RESOURCES.
THANKS.
WILLIE MATINPOUR <WMATINPOUR@YAHOO.COM>
MONTCALM, WV USA - Thursday, February 22, 2001 at 17:23:52 (GMT)
Do you know if there is such a thing as fragrance free mouse. I
have an reactions to certain fragrances. It certainly isn't for
me!! I have been looking and haven't come across such a thing. Can
you help?
Arlene Stoker <jastoker@home.com>
Brampton, Canda - Wednesday, February 21, 2001 at 01:30:22 (GMT)
Excellent website! I am a former Roman Catholic saved by the
grace of God. Keep on sharing the truth.
Numbers 6:24-26 "The Lord bless you and keep you; The Lord make His
face shine on you, and be gracious to you; The Lord lift up His
countenance to you, and give you peace." NASB
Jim
Sawchak <MinistriesKOTT@cs.com>
Dover, DE USA - Monday, February 19, 2001 at 03:15:23 (GMT)
WELL , I GUSS PEOPLE THINK WE ARE cRAZY, WE are just making it
up. that PER-FUMES AND OTHER STUFFS, CANT DO THAT TO NO ONE. BUT
THY ARE VERY, VERY, WRONG. PERFUMES ,AND OTHER CHEMICALS WELL THATS
CHEMIKILLS, TO M.C.S. PEOPLES SPELLS IT.ITS NICE FOR ME AND OTHERS
OUT THERE. I HAVE BEEN PHYCIAL SICK ALL MY LIFE, WITH ALLERGYS, AND
JUST 3 YEARS AGO, THOSE SMELLS REALY GOT TO ME.AND I WENT FOR OVER
A 1. YEAR. INN AND OUT OF THEM OLE HOSPITALS,GETTING SICKER. AND I
GOT THAT BOOK, AND WEB PAGES. IT WAS HEAVEN SENT.TO ME AND OTHERS.
PEOPLE BATTER UNDERSTAND WHAT WE ARE SEEING AND SAYING. IT MAY BEE
DOING THEM INN, BE FOR ALLERGY M.C.S.,I BELEAVE THAT THOSE
ELAMENTS, AND CHEMICALS, AND THAT OLE PER-FUMES...CAN BE LINKED TO
ALL KINDS OF DISORDERS.NOT JUST M.C.S. BECAUSE PEOPLE MURDER NOW IN
DIFFERNT WAYS. AS WE CAN SEE, AND SMELL NOW..... FUNGUS, AND,
MOLDS, AND MEWDEWS,AND SERENT FOODS, AND PILLS, MEDS.IS BAD.WHEN
ALL OF THAT OTHER STUFFS COBINED TO GEATHER.WE ARE TURNIG INTO
GOOSE FEATHERS. ITS NOT THAT FUNNY TO TURN IN TO THAT.... NOW I AM
A MAN WITH M.C.S. ALLERGYS. I WAS BORN WITH BIRTH DEFECTS. AND MY
TOWN I LIVE INN HAS ALL KINDS OF ELAMINTS. RIGHT UP MY ROAD. AND
THERE ARE MOORE CARZS AND TRUCKS INN MY TOWN THAN THERE ARE PEOPLE.
EVERY THING SEEMS THAT THINGS ARE ROTING IN THE FROUNT OF MY
EYES....MY TRUTH CAN GO ON. IN WRITEINGS. BUT YOU CAN SEE I CANT
SPELL THAT GOOD. P.S. WOULD SOME ON POST ANY GOOD BOOK OUT ON THIS
, OR ANY FILM THATS OUT THERE........ IT WOULD HELP US ALL
OUT............. THANKS, IN CAREING ,,,,,.
mr.M.D.
GEORGIA. U.S.A., GA. USA - Saturday, February 17, 2001 at 18:13:08
(GMT)
IT looks like the GOVERMINTS would have some kind of a device
that can detect those killing smells, and other stuffs thats in our
homes and workplaces and even the HOUSE OF WORSHIP.AND out-side.
and people can buy it and put it in like a smoke alarm is in. and
when there is an killing smells or an UN healthy thing . IT WOULD
GO OFF.......... THERE ARE SOME THINGS THAT DONT HAVE A BIG SMELL ,
OR IT MAY HAVE EVEN A SWEET SMELL OR EVEN TAST. CAN DO US ALL INN.
its up to our govermints to band things that are DANGERUS. AND
PLACES AND PEOPLE MAKEING IT.... SHOULD BE GIVEN THE FINAL
NOTICE.... AND THEN, PUT-OUT-OF-BUSSINESS. WHAT COMES FIRST OUR
HEALTH OR MONEY, EVERY ONE SHOULD KNOW THAT Q. BUT WE LOVE THAT
MONEY, BUT OUR GOD IN HEAVEN, OUR CREATOR , SAYS FOR THE LOVE OF
MONEY IS THE ROOT OF ALLS EVIL......WHEN ARE WE GOING TO HAVE
STANDERMINTS IN LIFE.WE ARE INDERURLIZED BY THE OLE DEVIL......
WITCH IS KILLING FILEDS OF
HOME..............................................
M.D.
GEORGIA, U.S.A/. , GA. USA - Thursday, February 15, 2001 at
17:09:26 (GMT)
I'm thrilled to find this site! Jacki's Story could be my story.
I've given up on finding help from the medical doctors. I've seen
counselors and psychiatrist too. They don't seem to have any idea
what is wrong with me; you see, I'm happier than I've ever been . .
. but, I still feel tired and suffer from chronic pain.
One female doctor told me that they hear these kinds of complaints
from women all the time, so they "don't pay much attention to
them." I wonder if it has ever crossed her mind that maybe women
suffer from these symptoms because they are ususally the ones using
all the toxic soaps and cleaners. I bet that as more and more men
start taking on more and more of the housework, we will see more
and more men coming down with the same symptoms.
I am now facing the task of getting rid of the toxins in my home.
I've talked to my husband about this, but, he doesn't seem to be
very enthusiastic. Any suggestions on how to throw out the
chemicals without causing total shock to the husband???
Janis <lilopatch@hotmail.com>
Gilbert, AZ USA - Monday, February 12, 2001 at 02:21:11 (GMT)
Hello, my name is Thomas. I'm from Erfurt Germany. I heared from
your page in a German Newspaper. I will visit you often now. It is
very intresting! Sorry, for my bad english- bat I'm learn it since
3 months.
Have a good time.
Thomas
Thomas Vogler <janathomas@web.de>
Erfurt, Th¸r. Germany - Sunday, February 11, 2001 at 19:17:27
(GMT)
well , there must not be a lot of people out there with M.C.S.
problems. but i am glad i found out what was wroung with me. it
took me just a year to found out. when those smells realy got to
me. thy keep puting me inn those white walls and halls do no good
hospiltals. and when i got out,. i went to the LIBRARY and got the
right books andtyped in the computers on M.C.S. ALLERGYS. and i had
the same problems, that the book and this web page discribed. BUT
THERE ARE MANY out there the hospitals and docters are not telling
these people the truth of whats wroung with them. thy are locked up
, druged up, and treated them well us to shut up..... so lets have
love from above , and care from below......., and stop putting out
that smelly fold.........
M.d.
georgia. , ga. USA - Saturday, February 10, 2001 at 18:48:49 (GMT)
Thank you very much for your site. It is one of the best I have
found on Chronic Fatiue. I learned a lot.
Joann
USA - Saturday, February 10, 2001 at 01:20:50 (GMT)
the BIBLE says we are the TEMPLE. and we should keep it holy.
but its so hard for people to keep our bodys holy when thoses
chemicals are every were. WE as M.C.S. suffers dont have any
self-defense...we can ware masks,or leave our househoulds if thy
dont belive us. but some times we are traped like a mouse inn our
house. thy smokeing those cigeRATS. buying those chemicals, and
PER-FUMES. and cooking up food its hard to eat... when you go
outdoors , that old DISAL trucks and carzs go by and make you pale
as a gost. and all that other stuff thats inn the air.will all the
people who have DISABILTYS have to have there own state.....when
are people going to understand. because YOUR HEALTH IS THE MOST
THING IN LIFE, NOT money or work.... like we here in the south says
U. R. WORKING YOUR SELFS TOO DEATH................ THANKS , IN
CAREING.
m.d.
the state of georgia., ga. USA - Monday, February 05, 2001 at
17:36:35 (GMT)
this site is very interessting!!!!!!!!!
alex <g@sympatico.com>
toronto, canada - Monday, February 05, 2001 at 00:36:20 (GMT)
I found this site very informative. I work with people who do
not understand MCS and they should benefit from reading the
articles here. Thank you.
Kelley Johnson <mkjohnson@quintenet.com>
Belleville, ON Canada - Sunday, February 04, 2001 at 01:58:02 (GMT)
I read so many chronic illnesses and I would like for all of you
to know that there is a product out there that will help you
rebuild your immune system. I have been taking it for almost 1 year
and feel so much better. I have a friend that has multiple chemical
sensitivities and she is feeling somwhat better. I can't get her to
take it on a regular basis so her improvment is not as fast as some
of the others. If interested, please contact me and I will tell you
more. Bonnie
Bonnie L. Sooy <kbsooy@yahoo.com>
Stanton, Mi USA - Saturday, February 03, 2001 at 14:27:27 (GMT)
This is a very good web site. I will be happy to be updated
about it .
Thanks joan
Joan agius <joanagius@mail.global.net.mt>
Zejtun, Malta - Wednesday, January 31, 2001 at 21:21:21 (GMT)
Thanks for your fast answer!
Soory my English is probably to poor. I thought a "personal ait
purifier" would be something to carry around with you.
What I am looking for is what I have seen some severly allergic
people using: a acrilglas or glas helmet which is supplied with
activated charcol filtered air. Do have any idea if somethinmh like
this is on the market?
Thanks for your help.
Second: I do all this typing, because my wife gets sick working on
a PC , a modern flat screen didn¥t help her either - how have
you solved the problem? Does a lapto in a aluminum case emit
less.
Thanks for reading- answering. Martin
Martin Kaiser <martin.kaiser@dgn.de>
Germany - Tuesday, January 30, 2001 at 15:23:48 (GMT)
well i went out to day, i seen a christan church in our town
this morning sprying that CHEM-LAWN on there lawn. i walked by and
said some people dont like that kind of stuffs. and he said them
people are crazy. well i told him its spelled with a K its KRAZY.
and the thing you doning is CRAZY. and he said i have been doing
this for over 25 years, and it havent done me in yet . well i said
it has me. and allso baby john doe too. this elamints are strong
out there.are we becomeing BEAST OF THE FILED.......
m.d.
georgia, usa., ga. USA - Monday, January 29, 2001 at 16:14:43 (GMT)
Thank you so much for your personal and valid information.
I Germany there is very little information available, most
Doc¥s (I am one too consider MCS as a psychosomatic disorder.
My wife suffers from MCS too, You site has helped me to make the
diagnosis. she racts on organophosphates, parfumes, shoe polish,
deoderants. 90 minutes after exposure she becomes red eyes, tehn a
disturbed vision,
she becomes clumpsy, finds it hard to think and concentrate and is
without any drive, The condition last for 6-9 days, is greatly
aleviated by Ca++-antogonists like e.g. nitrendipin.
Could you please supply us some information on your personal air
purifier (e-mail address of the producing or delivering
company).
Thank you very much for all your effort, it helps to feel you are
not alone with probleme that truely chances your life.
Greetings Martin Kaiser
Dr.med. Martin Kaiser <martin.kaiser@dgn.de>
D-72175 Dornhan, Germany - Thursday, January 25, 2001 at 10:05:54
(GMT)
does anyone out thereknow what chemicals are contained in glade
plug it in"s....these can't be safe...any info helpful...thanks
jon
jon <jonsan720@aol.com>
nj USA - Thursday, January 25, 2001 at 03:41:22 (GMT)
If possible, I would like to be contacted by an attorney that
would represent a few people in western Wa. against Boeing for
chemical poisoning. I only have a few days to find someone until my
lawsuit [only for me alone] will be dismissed. There are however,
several of us that have MCS, that would like to file suite against
Boeing, the State, and our self insured company, Crawford and
Comp., Labor and industries, and the Machinists Union. I was
poisoned four years ago. I was sick with chronic bronchitis and
Asthma for 3+ years when they sent me to work in the aluminum
Cleanline area. This room is huge and contains several vats full of
five different kinds of toxic solvents. The parts were loaded in
overhead baskets, which is attached to a crane. There was no open
windows or doors, or anyother type of ventilation. We could not use
any type of respirater, or other protection. When I repeatedly
became ill, I had an idea it was the chemicals in there or the
paint odor coming from the paint room next door. In 1995, when we
went on strike, I got 100% better. We returned to work three months
later, and started getting bronchitis again. I knew then for sure
it was something in that building making me ill. My Doctor wrote a
letter to my supervision explaining this, and to tell them I needed
to be off work to get healthy again. My superviser threw it in the
garbage after I asked him to please take it to medical. I worked
for Boeing for almost 20 years at that time. I asked the superviser
to please move me out of that building. They fired me a few days
later!!! I am now homeless. I have lost my home, all my savings. my
health, and I can no longer work. I have tried to end my life
several times. There have been several Boeing workers that have
gone through the same thing that have succeded in ending theirs.
THIS IS WHAT THE BIG BUISNESS AND THE POLITIONS DO FOR US IN THIS
STATE!!!
Carol Manuel <cmanuel1@msn.com>
Tacoma, Wa USA - Thursday, January 18, 2001 at 21:13:10 (GMT)
Thank you Jackie for creating this informative website.
Mary <mtelcy440@aol.com>
Chagrin Falls, OH USA - Wednesday, January 17, 2001 at 17:27:48
(GMT)
Com
