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Older Visitor Remarks - Page 1

flower vine

 


your strength is beautiful.
psaluka <psaluka@yahoo.com>
ny USA - Monday, July 03, 2000 at 22:55:07 (GMT)
I wanted to thank you for taking the time to get this information out to the public. I also wanted to let your visitors know of another alternative as far as detoxifying the system. Shaklee offers a wide range of supplements, cleansing products, and non-toxic household cleaners. None of our supplements contain artificial ingredients. One of our newest products is a prebiotic/probiotic system (called Optiflora) that GUARANTEES live delivery of 500 million friendly bacteria. No other bacteria produc t can make that guarantee. Regardless of the quality of the bacteria when swallowed, a large amount of it is destroyed by stomach acids, etc, on its way to the colon. Shaklee has a patented process to encapsulate the bacteria so that it doesn't get destroyed on its way to the colon. People are getting outstanding results as their system is detoxified by our DTX, Herb Lax, and Alfalfa and their immune system is strengthened by Optiflora. We back up our products with double-blind clinical studies. Dr. Doris Rapp recommends using Shaklee's cleaners for a non-toxic home environment. If anyone would like more information, please contact me at donnawkr@earthlink.net.
Donna Walker <donnawkr@earthlink.net>
San Bernardino, CA USA - Monday, July 03, 2000 at 13:37:55 (GMT)
After leaving my last 5 jobs.. I now have a o2 machine at my work and have gotten my career back!!!! When a co-worker comes by and blasts me with a chemical cloud of perfume..I attach my nose piece and flip my o2 switch. My lungs INSTANTLY relax and I stay on it until the cloud dissapates and the colognes soak into the people's skin. It is the ONLY thing that has worked well. Nasonex, disability rating fighting, talking to my co-workers has not solved my problem...this has. However, a DOCTOR must prescribe the O2 as far as I am aware. People should be MONITORED by a Doc while on it to check o2 amounts in the blood!! This has been the GREATEST blessing for me.. perhaps EVER. Please feel free to write. I have suffered for years... but now I have been given hope and my life back. I hope this helps someone.
Suzi <ironmac2@aol.com>
Las Vegas, NV USA - Saturday, July 01, 2000 at 22:20:08 (GMT)
I read with interest your pages concerning non-toxic living. Are you aware of Shaklee's non-toxic, biodegradable cleaners? I would welcome the opportunity to get you information if you would like. It would be a good addition to your list(s). Email me your address and phone number and I can contact you--or you can call me at (909) 886-3420. The Jacques Cousteau Society uses Shaklee cleaners on their research vessels (at least they did last I knew). Our products break down well within the European s tandard. They do not pollute the home or the environment. I look forward to hearing from you. I also have a question. A friend of ours has multiple chemical sensitivities. We want to send them a computer but the out-gassing of the plastic casing, etc. affects her. Are you aware of any covers, etc. that are available to help shield her from the outgassing? We wondered about some sort of covering for the CPU, keyboard, etc. I would appreciate any leads you could give me. Thank you. Donna
Donna Walker <donnawkr@earthlink.net>
San Bernardino, CA USA - Friday, June 30, 2000 at 23:26:01 (GMT)
I am so glad I came across your web site... I suffer from Autoimmune Hepatitis and know it is cause from toxins.... Your site has been very informative. I would love for you to visit my site cause I discuss a lot of the same information. It would be nice to see a webring formulated on this very issue... Thanks for being here Love and Light Dixie aka Weave Woman
Dixie Lewellyn aka Weave Woman <dxzweave@swbell.net>
Houston, TX USA - Friday, June 30, 2000 at 15:28:28 (GMT)
I respect what you're doing to inform the public of the chemicals and toxins in our foods and environment. Sadly enough it is the foods we eat that cause sicknesses and are hastening our demise. Eat less and detox regularly. Take Blue mountain tonics and herbal bitters daily to accomplish this. (Visit our web-site for info) Your body must expel waste as soon as it is produced. Cells must not be given the opportunity to re-absorb toxins and fecal waste, infested with parasites. Herein lies the root cause of dis-eases. Only live foods can promote life dead foods cannot.
Shuba Sadiki <bmherbals@aol.com>
bronx, ny USA - Wednesday, June 28, 2000 at 11:18:17 (GMT)
Your web site is great. We need to educate our society and you sure help by giving out this information.
Silvia Casasola
santa ana, ca USA - Saturday, June 24, 2000 at 13:05:49 (GMT)
Dear Jacki, I am a Deacon with Faith Baptist Chruch in Waseca, MN. We have three members who have MCS. I am one of them. You WEB page has been a great help to all three of us during the last year. One thing me are still having a great deal of difficulty with is the environment at Church. Our pastor is finally coming to understand that we are not being demon oppressed, but the environment is such that we need to choose between going to church and living the rest of our lives. After attending church it takes us from 5 to 30 days to get back to normal again, depending on what we have been exposed to. We have a fragence free policy, which is not supported very well by the membership. If you or anyone reading this, could help with information in this area or workable solutions, it would be greatly apprecated. May God continue to bless this ministry, Merlin E. Williams
Merlin Williams <mewai@clear.lakes.com>
Waseca, MN USA - Friday, June 23, 2000 at 10:25:50 (GMT)
Does anyone know of a sun screen product for little children which could be tolerated by an EI? My daugher used Springbrook Waterproof Sun Block, PABA free, and suffered a terrible headache for the next 12 hours. Thanks.
M.H. Miller <china@vtc.net>
Pearce, AZ USA - Wednesday, June 21, 2000 at 21:08:30 (GMT)
I would like to thank the number of people who email me wanting info - on Toxic Chemical free cleaning products, which includes, Laundry Det. Household cleaners, Cream cleaners, Spot and stain and Odour Eliminator (non-aerosol and alcohol free) People requiring the website to check out the products, just get in touch.
Frances Newman <frances@newvigor.com>
Ashcroft, B.C. Can., USA - Tuesday, June 20, 2000 at 19:21:18 (GMT)
For some reason, I made a hash out of my guestbook entry. It's an editorial nightmare - plus it looks damn silly. Yes, I meant 'chemical' when I typed 'cemical'. Sorry about that - but I do hope people will look into the possibility that earth moving activity near where they live could make airbourne mould a real health hazzard. It isn't the usual garden variety stuff; this mould has lain dormant for hundreds...possibly thousands of years. Our immune systems aren't equipped to deal with it. Please co ntact your local environmental watchdog group for any information they might have on this subject - and if they don't know what you're talking about, motivate them to learn through lots and lots of phone inqueries. Keep up the great work on this web site - many thanks.
Shari <Uprslbovia@aol.com>
Laguna Hills, CA USA - Sunday, June 18, 2000 at 08:34:42 (GMT)
This is an enlightening site...now I have more clues as to what might be going on with my health - or lack threof! After ploughing through a year's worth of your guestbook comments, I noticed the absence of a particular eco-hazzard, one which people living in areas of ongoing relentless development might be unaware of. When the topsoil is removed and tons of earth are displaced, moulds and other microbes which normally lie dormant under the soil, get released into the air. I suspect this is why I am reacting so badly to everything else this year...from feathers to cemical this-n-thats in all that we touch, eat and breath...this year is definitely 'The Worst'. I've been disabled with constant headaches, muscle pains, severe sinusitis, and a loss of physical energy that borders on collapse. I am in my forties, so it isn't impossible that menopause might be playing a contributing role in all this too. But I think it much more likely that our constant companions...environmental toxins...cause the overall debilitating effect on our bodies and processes, rather than laying most of the blame on 'the Change'...it gets enough bad press already. Again, a cautionary note to those who live near lots of heavy, ongoing landmoving and construction - check the mould counts for your area and contact - pester - your nearest environmental watchdog group. I hope this will be helpful. If, like me, you are in the Irvine/Laguna Hills area of South Orange County - this is definitely worth investigating!
Shari <Uprslbovia@aol.com>
Laguna Hills, CA USA - Sunday, June 18, 2000 at 07:30:39 (GMT)
WELL JACKI MY ASSOCIATE AND I BOTH WORK FOR CALVIN KLEIN PERFUME DIVISION. WE HAVE DONE EXTENSIVE TESTS ON OUR FINE PRODUCTS AND THEY ARE NOT TOXIC!!!!!!!!!! WE DO NOT APPRECIATE YOU SPREADING RUMOURS ABOUT OUR FINE PRODUCTS JUST TO GET YOUR NAME ON A WEB PAGE!!!!!!!!!!!!!!!!!!!!!! PERFUME WAS CREATED TO COVER UP ODOURS NOT TO MAKE PEOPLE SICK. WE DO KNOW THAT SOME PEOPLE ARE ALLERGIC TO PERFUME BUT IT ISNT TOXIC. YOURS TRULY, GWEN ROSE AND DR. IAN PETER FREELY
Gwen Rose and Dr. Ian Peter Freely
Madagascar - Saturday, June 17, 2000 at 21:58:10 (GMT)

(Jacki's Comments: What would we expect 2 people from the perfume industry to say?!! If these products are truly not toxic, why don't they put ALL the ingredients on the labels so people can decide for themselves?!)


So Jacki met Dr. Robbins me too from a chemicals exposure accident im the same in symptoms as Jacki and I must say its hard to live like this Bill
William Hanna <williamhanna@email.msn.com>
Port st. Lucie, FL USA - Friday, June 16, 2000 at 15:09:26 (GMT)
Thank you for setting up this beautiful site. My daughter, new mother and midwife has just realized she has guite bad sensitivities and is cleaning their home so she can start to get better.
Lydia Travers <ltravers@home.com>
Vancouver, Canada - Tuesday, June 13, 2000 at 17:40:04 (GMT)
Was just checking out your website, interested in what it had, especially centered around Christ.
Miriam Reyes <MIREYES@juno.com>
N Ridgeville, OH USA - Monday, June 12, 2000 at 12:47:34 (GMT)
Thank you so much for your web site. I have suffered with this condition most of my life, I am now 44 yrs old. I also have so many other illnesses that I guess tend to go along with this disease. And of course I've been through all the doctors, testing, and not much help or knowledge for many years in my quest to find something to help me feel better. So I appreciate the information I can gather on the web. Maybe someday I will find a doctor that can help me. Thanks again, Teri Disney
Teri Disney <hoffnbabes@sierratel.com>
madera, ca USA - Sunday, June 11, 2000 at 22:10:58 (GMT)
I wish to thank you for your information on MCS. . Six years ago I was exposed to helicopter fumes in the work place. I have since become very informed about our toxic environment. Last year I was introduced to a product which helped me tremendously. It has made a significant difference in my life.
Augustina M. Schwartz, RN <schwarpj@tir.com>
Birghton, MI USA - Wednesday, June 07, 2000 at 13:40:26 (GMT)
I have a sister with enviromental allergies. she has been forced to live outdoors. please help
caroline schukraft <ssistersix@aol.com>
angola , ny USA - Wednesday, June 07, 2000 at 11:45:33 (GMT)
Jacki, I was so blessed to discover your web site. My mom has been suffering from MCS for almost 2 years now. It has totally changed all our lives and awareness to the environment. Not only did she have to quit work (she was an RN is a large hospital) but she was told she was crazy by almost every doctor she has seen. To this day, she is almost entirely confined to her house and has not found any sympathic ears. I hope to get her online very soon so she can meet other Christian women like you who have such a beautiful and positive outlook on life. God bles you in this great work you are doing by sharing your story for the nameless others out there suffering silently. Emily
Emily Frazier <johnsonfrazier@hotmail.com>
USA - Tuesday, June 06, 2000 at 20:54:12 (GMT)
THANKS FOR A INFOMATANAL WEB PAGE. THE DEVIL HAS PLANTED FASE FLOWERS OF OUR TIME . I THINK THESE CHEMIKILLS.NEED TO BE STOPED.WHITH ALL MIGHT.THE TREE OF GOOD AND EVIL IS PUTTING OUT A WARINGING.TO US ALL. AND THE TREE OF LIFE IS ALLMOST BEEN KILLED WHIH MAN MADE HANDS. THANKS ,MICHAEL DENNEY FROM; CARROLL COUNTY, GEORGIA/. IN GOD WE TRUST.....
michael denney i have allergy m.c.s. i am 29 years old.
carrollton , GA. U.S.A. 30117 - Tuesday, June 06, 2000 at 14:29:10 (GMT)
Thanks for the info...simple to understand and to help explain to family members what MCS is all about and how they can help when they are around me and of course to help my grandbabies not suffer so much...in silence and ignorance of their parents. Many Many Thanks, shirley
shirley andrew <s_k_andrew@yahoo.com>
dallas, tx USA - Tuesday, June 06, 2000 at 14:11:09 (GMT)
new to chemical sensitivity. been suffering for a long time and finally found an answer. enjoyed your site. god bless!Gail milholland
gail milholland <aspen@conninc.com>
lincolnton, nc USA - Monday, June 05, 2000 at 19:12:26 (GMT)
I have had 2 responses to my inquiry dated May22, which result is most satisfactory. I now have the newspaper article which appeared March 19, 2000, in the AZ Republic. This was sent to me from a contact in Finland. I then received a request from Alaska for the article and have been able to forward. Other contact from Florida most heartening. Thank you all for your CARING. Mary-Helen
M. H. Miller <china@vtc.net>
Pearce, AZ USA - Saturday, June 03, 2000 at 21:37:01 (GMT)
Wow! I have just begun to research MCS and your site has just about EVERYTHING I was looking for. I wish I had stumbled across this one before I went through countless others on MCS that didn't provide near the info. or resourses. Thank you sooo much for doing this to educate others and help them get through what you have dealt with for years.
Crystal <cfitz@home.com>
KY USA - Friday, June 02, 2000 at 00:14:32 (GMT)
hi there again. Thought I would drop by and see the newer entries. Seems ages since I have dropped by. So much is happening all over the world on the MCS/CI/EI front. Late last year I was fortunate to have my workcare case for chemical injury upheld by our courts here, such a relief after a 5 year battle with the system . Unfortunately there has been a lot of negative press recently fuelled by a radio talkback personality- he has just got wind of the Halifax Canadian issues. So he will undo so mu ch hard work from so many. Anyway keep up the good work, your pages are always such a good reference point for so many. may God continue to bless you and yours.....Anne
Anne <litjens@primus.com.au>
Australia - Wednesday, May 31, 2000 at 01:54:16 (GMT)
Churches are a place where people wear perfume. People should ask their church to promote a safer environment. I left my last job because of strong perfume. I am glad that California is going after the FDA.
Linda S Cresswell <cresswell_linda@hotmail.com>
USA - Tuesday, May 30, 2000 at 15:33:46 (GMT)
great site- thanks for the information. I am just becoming aware of just how toxic my environment is and products are. I am going to try to make some changes so thanks for the tips on safe alternatives.
Lori
USA - Monday, May 29, 2000 at 18:57:26 (GMT)
Hi, Thank you for all the information. My wife, Jean, and I teach health seminars...eating from God's plan to stay well or to get well. I was not really aware of multiple chemical sensitivities but am looking forward to studying from your extensive collection of information. I am sure it will be a future presentation in our "Foundations For Health" series. Your hard work will certainly make getting up to speed on this subject much easier. We are both 54 years old and became Christians nine years ago. Before that we were also mired in religion as members of the Episcopal church...steeped in similar traditions as Catholocism. Praise the Lord for his saving grace, pulling us out of the darkness and leading us into His marvelous light. So we can appreciate as you both can being surrounded by the trappings of Christianity but blinded from the truth. My daughter has recently begun a career developing web sites and will be setting one up for our health ministry. Will send you our address when it is up and running (will be a few months). The Lord bless you. John and Jean Metzger
John Metzger <drjohn@rainbowtel.net>
Hiawatha, KS USA - Sunday, May 28, 2000 at 21:56:40 (GMT)
Hi Jacki! Neat pictures of Taylor! I need to give you a better picture of me though! Well I'll talk to ya later.
Marcia Waller
Tallahassee, Fl USA - Thursday, May 25, 2000 at 11:33:07 (GMT)
Hi Jackie and Gorden, I've experienced problems with a fragrance user in my workplace and using the info on your website have (hopefully) been able both to identify the major cause and to resolve the situation. I wanted to say thankyou. If you want the details send me an email Dave.
Dave Roberts <dlr@talk21.com>
London, England - Wednesday, May 24, 2000 at 18:22:34 (GMT)
what a pleasure to have this website to share our thoughts and information. Thank you for all the work and effort you have put into this website.
Myra <mashea7@cs.com>
waldorf, md USA - Tuesday, May 23, 2000 at 10:38:35 (GMT)
Does anyone know who the young woman is who appeared on one of those TV shows (Dateline, 20/20, etc/) recently who lives in a tent in the Arizona desert with only her dog for companionship? I missed the program but am told by a friend who saw the program. Living in southern AZ would like to know if she is near. My daughter is MCS and lives close to me. WONDERFUL SITE!!!! Many thanks.
M. H. Miller <china@vtc.net>
pearce, az USA - Monday, May 22, 2000 at 23:55:32 (GMT)
Very informative.
chai yee siang <cys0912@yahoo.com>
Kuala Lumpur, Fed.Terr. Malaysia - Thursday, May 18, 2000 at 01:17:40 (GMT)
I enjoyed your website. I have mcs also and I am improving daily.
Myra A. Shea <mashea7>
Waldorf, Md USA - Wednesday, May 17, 2000 at 19:43:18 (GMT)
THIS SITE IS THE BEST,THE FDA IS WRONG !!!!! PLEASE GIVE ME A CALL WHEN WE CAN TALK, WE HAVE TO BRING THIS TO OUR CONGRESSMAN, I'M READY TO GO FORWARD! THANKS ED 1-781-321-3161 ANYTIME!!!!!!!!!
EDWARD J. BRYAN <EDBRYAN@EMAIL.COM>
MALDEN, MA USA - Saturday, May 13, 2000 at 22:37:55 (GMT)
My wife, Jill and I just got our judge's ruling in our carpet case regarding the carpet company's attempt to have our case dismissed based on Daubert criteria. This was a critical juncture, but the judge ruled that we should have our day in court! He did rule that MCS as a condition is not admissable, however he made the significant finding that this does not rule out individual symptoms from being considered to be possibly causally related to our exposure to our carpeting. We feel that this ruling is significant, and so we have scanned in the entire document and would be happy to send it to you. Please feel free to share it with anyone who might benefit from it. It is now a matter of public record. If you would like a copy of this document, send us an email address to send it to. We send our best wishes, Dennis Anello d_anello@yahoo.com
Dennis Anello <d_anello@yahoo.com>
Shelburne Falls, MA USA - Wednesday, May 10, 2000 at 09:36:09 (GMT)
Thank Goodness for this site and others. I have at the age of 48 been recently diag. with Porphyria , and MCS . I have known for 20 yrs. of my sensitivity to chemicals , man made enviromental poisions , many medicines , and food additives.I find the majority of people have little or no understanding of this sensitivity. I have to admit...i'm sure we look and sound bizare , but to the person that suffers it is as real as day and night. Not sure about others , but I sure feel isolated even living in a huge big city. Please feel free to write...I am very understanding to this dilema of life.I know there are support groups here but as i also suffer from anxiety disorders it makes it so difficult to attend. Kurt Nelson
Kurt Nelson <winky10@juno.com>
Beaverton, Or. USA - Wednesday, May 10, 2000 at 02:02:03 (GMT)
I thank God you put this site together. Four months ago my little girl was diagnosed with Tourettes. It was not til recently, after gobs of surfing and research, that I found your site and the latitudes site. I began journaling my daughters vocal tics and what she was in contact with when they were at their worst. bright green watermelon gum, my husband's deoderant, strawberries (I believe may have been the pesticide), Barbie toothpaste, small bottle of perfume. After thinking for months that there was nothing I could do to help her, I am so relieved to know maybe I can! I believe her sensitivity to chemicals, parfumes, and dyes, may be causing her to have tics. Shame on neurologists for not sharing this info with parents and kids in agony!!! I will have her tested for environmental allergies as suggested by Doris Rapp and Dr. Robbins. I believe the Lord sent you as the answer to my prayers. I commit myself to spreading the info on your site so I might help others with "tourettes". GOD BLESS Y OU
Candace <jamarik@rectec.net>
USA - Tuesday, May 09, 2000 at 13:42:55 (GMT)
We enjoyed your easy to read summary of MCS. There is no doubt that we are vunerable to many unknown chemicals with the biggest problem being that most doctors are unaware of the impact and solutions.
Paul & Christine Fournier <lmcsubway1@aol>
Oakland Park, FL USA - Tuesday, May 09, 2000 at 13:40:42 (GMT)
Perfumes bother me and two of my daughters, Runny nose Runny eyes
Howard McGowan
Charles Town, WV USA - Monday, May 08, 2000 at 08:41:37 (GMT)
What a well organized web site especially appreciated by dizzy-headed MCS sufferers like myself. I have had MCS ever since I can remember. I am 41 years old and the more I think about my exposures to chemicals in my past, the more incidents I can blame for my long term exposures. The landscaping jobs, floral designer jobs, office jobs, interior plantscaping, restaurants, retail clothing, all just loaded with wonderful chemicals that have invaded my body throughout the years and settled in for a long winter's nap. I applied for disability from the SSA in 1998 and after two long years of not working, I was awarded my benefits. I spent 16 years raising my two daughters on my own and probably held 25 jobs. I kept finding great jobs full of training, responsibility, and advancement and meant to keep every job and my employer's were very pleased with my enthusiasm and performance. Due to printing inks, perfume, spray paint, cigarette smoke, pesticides, deodorizers, improper ventilation, etc., I was fo rced to end each job either from absenteeism, lack of coworker's empathy, or my refusal to endure the 24-7 migraines I was suffering. I had been conditioned to endure the numbing pain on the job, but having to throw up from the pain every 20 minutes made it impossible to function at any business. When my girls were 12 and 14, I was not able to function with the simple everyday tasks much less a job so I relenquished custody of them to their father. The subsequent two nervous breakdowns I suffered gave m e my last plunge into despair and hopelessness. All who I was or tried to be was no longer a posssibilty. My sister read an article on MCS during this time and and "eureka", they were talking about me! I have been making every effort to detoxify my world. I took my SSA settlement and moved to a small coastal town that I grew up in. I watch my foods, have an air filter, drink lots of water and stay away from every harmful chemical be it in my food water or air, and try to aerobic exercise when I feel g ood and walking when I don't. Oxygen is very important in stimulating your body to function properly. Since I don't work, I volunteer when I can. Behind the lines volunteering is the best because it usually does not involve public exposure and you can do things at your own speed and capability. The reward is that contributed positively to your environment, which helps self image and restores control in your life. Find a good doctor, get counselling to help you adjust, and get on a schedule. Stick to t hat schedule as if nothing else matters, and keep those toxins at bay including the people in your life that are toxic to your recovery and regaining control of your life. As for everlasting life, look to the Lord Jehovah and take in knowledge of Him, and look to Him only for your life's blessings. If you operate your life looking to His instruction everything else will be rewarded ten-fold. This is essential for full recovery from this sick world we live in. Read the Bible for news of a soon-coming e arth paradise that we will all have a chance to live in forever. That's forever, babies. This will all be but a whisper, my friends. No suffering, crying, dying, or dispair. Every day we will feel happy and joyful and healthy, I can't wait to have a good day! Anybody that wants to E-mail me feel free, I want to help if I can.Don't give up, YOU ARE WORTH IT!!!
Susan Miley Adams <thinn@coastalnet.com>
Edenton, NC USA - Wednesday, May 03, 2000 at 16:13:57 (GMT)
FANTASTIC!!!!!!!HOW DO I SEND THIS IMFORMATION TO EVERYONE I KNOW.......I'M A REAL ROOKIE AT COMPUTING. THANKS. D.
Danette Pugh <Danipugh@aol.com>
Spokane, Wa. USA - Tuesday, May 02, 2000 at 08:34:11 (GMT)
help i have mcs real bad .hopefully i can find help.thanks
Susan I Myrick <myrick1411@aol.com>
Midvale, UT USA - Saturday, April 29, 2000 at 21:33:37 (GMT)
MCS Awareness Week is May 7 through 13, from Chemical Injury Information Network's March publication of "Our Toxic Times." (http://ciin.org) Thank you CIIN for this info.
Priscilla Farrell <jack.jane@juno.com>
Rogers, AR USA - Saturday, April 29, 2000 at 15:43:18 (GMT)
Hi- thanks so much for the pertinent info...what about essential oils? are they bad also?
fran brandmark <fran_bran@hotmail.com>
miami beach, FL USA - Tuesday, April 25, 2000 at 13:35:59 (GMT)
great site, very helpfull
Patricia J. Taylor-Romero <opattyj@excite.com>
Milwaukee, WI USA - Tuesday, April 25, 2000 at 12:39:33 (GMT)
I HAVE BEEN SICK WITH MCS AND FIBROMAYAGLIA FOR YEARS. I AM MOST SENSITIVE TO PERFUME AND CANNOT GET ANY CO-OPERATION AT WORK. I NEVER HAD THIS BEFORE I WORKED HERE AND WAS CONSTANTLY EXPOSED TO ONE WOMEN WHO SMELLED ALL DAY LONG FROM PERFUME PUT ON IN THE AM. ASTHMA TRIGGER IS PERFUME WITH ME. DOES ANYONE KNOW OF ANY GOVERNEMENT AGENCY THAT WILL HELP US GET OUR WORKPLACES SAFER FOR US?? THIS WEB SITE IS A GODSEND. THANK YOU!
NANCY BUFORD <NLBUFORD@PRODIGY.NET>
ADDISON, IL USA - Sunday, April 23, 2000 at 19:46:12 (GMT)
Thank you for this wonderful web-site. I am new to both computers and MCS. I have been to neurologists, allergists, and finally a naturopath who diagnosed MCS. I especially appreciate the tips for detoxifying products. Again, many thanks and God Bless.
Debi <skye2000@gte.net>
Richland, WA USA - Sunday, April 23, 2000 at 13:37:33 (GMT)
This is a very informative site...very useful. I'll be back again for sure.
Daniel
Orange, NJ USA - Saturday, April 22, 2000 at 12:40:56 (GMT)
This is so interesting! Although I have no problems with my health, I intend to change my living conditions and live far more healthier. Thank you for the info.!!!
Ali
USA - Friday, April 21, 2000 at 20:03:59 (GMT)
I am a devoted Christian and am going to school to a nutrition consultant using a holistic approach. Chemical sensitivities is among the many health issues I am being trained in to help others. It is so encouraging to know there are other Christians out there who are seeking alternative forms of health care! Keep up the great work...for His glory alone!!!
Angie Harrison <Harrison@firedept.net>
Ca USA - Friday, April 21, 2000 at 16:08:51 (GMT)
I was really happy and surprised to find your website. I have learned a lot! It is very informative and well written. Thank you!
Jo Ann <joannb33063@hotmail.com>
Margate, FL USA - Friday, April 21, 2000 at 13:35:20 (GMT)
I have had MCS since 1988. I was very fortunate in the beginning because, unlike many others, I had very good doctors. If they didn't know they didn't stop until they found out. I had been homebound and on SSDI since 1990. My doctor was able to find me a portable air filter system that I wear around my waist so I could at least get out. I look like a space man but i've gotten used to it. I just got a PC last week and I have been thrilled by all it has opened up for me. As most of you know, life with M CS can get very lonely. God Bless you for being there. I am not so alone.
mona broberg <monabro@aol.com>
mora, mn USA - Wednesday, April 19, 2000 at 21:19:37 (GMT)
Great web site!!! We are christians too...
Douglas E. Renz <doug_renz@Juno.com>
Avon, NY USA - Wednesday, April 19, 2000 at 12:43:39 (GMT)
I have been MCS for 7 years. I have been doing pretty good for the last 3. I did not have a computer when I first realized I had MCS,this would have saved me a lot of trouble. We have just found out my nephews wife might be MCS, I have sent this sight to her along with everything that I have learned.
Jackie DeGayner <jacdeg@aol.com>
Swartz Creek, Mi USA - Wednesday, April 19, 2000 at 00:04:08 (GMT)
I found your site really informative, I will be using it for future references. I also enjoyed the spiritual parts as well........I don't have time now to explore it all but will be back I pray that you return to health and are able to keep up this beautiful site Love Wes
Wes Steinbrecker <stein@oanet.com>
Calgary, AB Canda - Tuesday, April 18, 2000 at 00:38:11 (GMT)
This is a wonderful and informative website. It is unbelievable of what chemicals are doing to our health. Thanks for all the research given to this site and keep up the good work.
B Sluss <bsluss@mounet.com>
VA USA - Monday, April 17, 2000 at 02:45:17 (GMT)
When is MCS Awareness Week?? I didn't realize that there was one. How about press releases to the local newspapers from the large EI groups (CIIN, HEAL, ShareCarePrayer, ..) that local people could send in? Maybe an interview with the local paper. This would be a great opportunity.
Priscilla Farrell <jack.jane@juno.com>
Rogers, AR USA - Friday, April 14, 2000 at 00:31:47 (GMT)
I have had mcs, ibs, and fibrom, for years and years. It'a a stuggle. Daily. I have info on videos if anyone is intersted. I also belong to a suppport group ( little help personally, but gets the word out). I'm 45 with a 21 year old daughter with the same problems. Is any one doing anything for mcs awareness week in May?
jennifer Millett <beapig@yahoo.com>
valatie, ny USA - Wednesday, April 12, 2000 at 13:34:13 (GMT)
Finding a site like this one really convinced me more there is a lot of valuable info. to learn about Toxic Chemicals and their relation to our health concerns. Well I started using NON-TOXIC, environment -friendly household cleaners just over four ago, and found out there is nothing in the market place that is comparable to what I use....and best of all, the cleaners are available world wide. I hope I have shed some light that there are excellent products out there and anyone can purchase them and e njoy better health.
Frances Newman <frances@newvigor.com>
Ashcroft, B.C. Canada - Wednesday, April 12, 2000 at 05:22:13 (GMT)
Great "little place" you have here. Lots of useful information. I never knew that about Eternety fragrance. Thanks. I have a MIDI site that is pretty popular. If want I can post some of your sequences on it. I credit and link all of the songs I use there. It might get you a little more traffic since each song would have a link by it. I also am the manager for a cartoonist that is a devout Christian, and know several others if you want to add some automatically updating cartoons to your site. Well, I am going back to look around your site some more. Keep up the great work, your causes are worth fighting for. :o)
Dan Meyer <IMZQT4U@aol.com>
Woodland Hills, CA USA - Monday, April 10, 2000 at 00:42:32 (GMT)
After two years of visiting one specialist after another I was finally diagnosed with "allergic dermatitis" caused by a severe sensitivity to fragrance. I have always suffered from many allergies, but had never had such bizzare symptoms. I left the doctor's office with some handouts on how to avoid fragrance in my personal care products and a prescription for Claritin. It took another year to - thru trial and error- eliminate as much fragrance as I could from my household. I bath myself and my daugh ter in specially ordered fragrance-free products. I make my own household cleaners. I have sought out and found a frangrance-free alternative to as many products as possible. As I said, I did all of this on my own without any useful guidance from the medical community. I found that it was not so much that they did not want to help me, just that they had absolutely no idea how to answer my questions about household cleaners, shampoos, sunscreens, etc. I desperately wanted to find someone who had this s ame type of allegy. Finding your site was a God-send. Although my symptoms are not nearly as severe as others I have read about on your website, it comforts me to know that I am not the medical abnormality I was beginning to believe I was. The information on your website is just what I have been praying for. I have found the information on Neutralizing Therapy particulary interesting since I have recently developed complications with the oral allergy medicines I have been prescribed to suppress my all ergic reactions. Thank you so very much for creating this website.
K. Larose <allarose@mediaone.net>
Dracut, MA USA - Sunday, April 09, 2000 at 23:37:32 (GMT)
Jennifer Ross of Germany reminds me of myself about 30 years ago when my dear Dad asked me to refrain from smoking in his presence. He said the cigarette smoke made his eyes burn. Now I had never heard of a thing like THAT before! It seemed to me that he just wanted to impose his will on me. Alot of people smoked. The government didn't seem to think that it was a problem. (This was years before the warnings were put on cigarettes by the surgeon general.)As I think back on that scene with my Dad, I don't recall what I did, except be irritated at him. It makes me sad, now many years later because I know now that his suffering was real. Needless to say the government finally woke up to the hazards of cigarette smoke also. And so it goes, with all the chemical pollution that surrounds us, perfumes being only one part of it. When will the government see? When will people believe us?
Priscilla Farrell <jack.jane@juno.com>
Rogers, AR USA - Friday, April 07, 2000 at 22:15:16 (GMT)
I do not know what that lemon scented smell is but it had poisoned me too a few times over the last coule of years. I recommend that Mary G asks someone else to use very hot water and vinegar to wash the furniture, then leave the window open to off gas the sulphur in the vinegar. One application should be enough, but if it still smells another washing should make it safe.. Priscilla's bed is another story: fabrics hold products based on petrochemicals for ages. I am afraid that an ozone machine is not suitable, an air cleaner with a filter for organic solvents [and NO fragrance crystals] would help more. I think that the best thing to do would be to ask someone to remove the materials from the bed base and wash them in washing soda, then give them time on a washing line to off gas before replacing them.
Sandy Perceval <sandy@templehouse.ie>
Sligo, Ireland - Thursday, April 06, 2000 at 23:42:14 (GMT)
In response to Mary G.'s question about removing lemon scented polish from a large piece of furniture...I would suggest that you first get it out of your living quarters so you don't get sicker. Do you have a garage or a storage unit? Then an ozone machine will probably reduce the odor. This was the case with a used bed that I tried to get perfume/fabric softener odors out of. It helped.(I have a source for a good ozone machine, if you are interested.) But I never could make the bed tolerable. An d what happened is that I got more sensitized trying to keep the bed in the house. I found that even when it was in the opposite end of the house from my bedroom, the chemicals (even when I could not smell them) circulated throughout the house and I started reacting. Sometimes it took a few days or a week. I finally had to go with what an EI friend had told me...you CANNOT get perfume odors/chemicals out of stuff. I know that this is not what you wanted to hear. But this was my experience. Good Luck to you. Priscilla, Arkansas
Priscilla Farrell <jack.jane@juno.com>
Rogers, AR USA - Thursday, April 06, 2000 at 22:06:18 (GMT)
Very interesting. Thank you for the time and effort put forth developing this page for public good.
Don Walaconis <dwalaconis@aol.com>
AZ USA - Thursday, April 06, 2000 at 04:39:47 (GMT)
Hi, Please -- very important -- How can I remove lemon-scented oil polish from a large piece of furniture? The fumes make me sick. Thank you very much!! Mary G
Mary G <mayedg@sanctum.com>
USA - Thursday, April 06, 2000 at 02:27:23 (GMT)
Does anyone out there know of safe walltreatments. We need to replace our very old wall paper. We have John Bower's Healthy House book printed in 1993 but wall papers at that time were toxic for people with MCS. Appreciated your help.
Susan <SWLKrueger@aol.com>
Honolulu, Hi USA - Thursday, April 06, 2000 at 01:44:39 (GMT)
THANK YOU VERY MUCH FOR THIS WEB SITE. IT HAS BEEN VERY INFORMATIVE FOR ME. UNFORTUNATELY, I HAVE FOUND THAT THE TRIAL AND ERROR SYSTEM THAT I HAVE HAD TO PREVIOUSLY USE IS A LITTLE ROUGH ON THE BODY AND THE SPIRIT. I HAVE ANAPHYLACTIC REACTIONS TO QUARTERNIUM 15, FORMALDEHYE, LATEX, CAT DANDER, MOLD, DUST, AND DUST MITES. I LIVE IN LOUISIANA. DUST AND MOLD ARE A WAY OF LIFE HERE. I HAVE TO START MY OWN IV LINES AND ADMINISTER MY OWN EMERGENCY DRUGS(EVERY 5-10 DAYS). LUCKILY FOR ME, MY SISTER HAS BEEN AN ANGEL. SHE HAS HELPED ME ADMINISTER MY DRUGS AND BEEN SUPPORTIVE FOR ME. QUARTERNIUM 15 AND FORMALDEHYE ARE IN JUST ABOUT EVERYTHING, FROM ANY TYPE OF SMOKE TO MAKE UP. BUT, AFTER READING YOUR WEB PAGE, I AM HOPING TO ELIMINATE SOME OF THE TOXINS FROM MY HOME. I HAVE BEEN TO NATIONAL JEWISH RESEARCH AND MEDICAL CENTER IN DENVER, CO. FOR TWO WEEKS. THIER RESPONSE WAS THAT, YES YOU HAVE ANAPHYLACTIC REATIONS TO THESE CHEMICALS AND WE CAN'T HELP YOU. I HAVE HAD SEVERAL LOCAL DOCTORS RECENTLY TELL ME THE SAME THING. I NOW HAVE TO FIND ANOTHER DOCTOR TO TRY TO HELP ME. YOUR STORY HAS GIVEN ME HOPE. AGAIN, THANK YOU. LAURIE
LAURIE <LHILLBILLY87@AOL.COM>
PRAIRIEVILLE, LA USA - Tuesday, April 04, 2000 at 21:00:46 (GMT)
Are you some kind of perfume nut!!!!!! Why are you against perfume products? If they were proven dangerous the government wouldn't allow them. Since they aren't banned we can safely say that perfumed products aren't dangerous. So I'm asking you why do you make it seem like they are?!!???!?!?
Jennifer Ross
Germany - Tuesday, April 04, 2000 at 20:30:01 (GMT)
Dear Jacki, I just discovered your website and I commend you on the wonderful job! I want to comment on your story, where you express the desire to get a 100% organic cotton mattress. USE CAUTION! PROCEED WITH CARE! In the course of 13 months attempting to acquire what I hoped would be a safer bed for me...an MCS sufferer...I may have made myself sicker. Fortunately, I never went the $1000 +/- to buy an organic mattress, so I haven't gone broke yet. Janices sent me a $35 pillow made of the stuff they stuff thei r mattresses with as a test. I couldn't tolerate it. Which means that my husband can't use it either, because it will be too close to my nose. I know people who find organic cotton to be too odorous, including myself with a sauna cover from Safe Reading Box Co...who make portable saunas. But the organic cotton cover was toxic for me...I became sensitized to it after about 6 weeks trying to ignore the odor (organic is supposed to be better, right?). When I first went to Dr Rea's in Dallas, the doctors asked me if I was able to sleep. I had NO IDEA how lucky I was when I said "Yes." Two years later my answer is "Sometimes". In other ways I seem to be more tolerant of many different situations and seem to function almost like a normal person. But for now, I wanted to advise strict caution in replacing a bed that you are able to sleep on and wake up rested in the morning. Til later, Priscilla
Priscilla Farrell <jack.jane@juno.com>
Rogers, AR USA - Monday, April 03, 2000 at 22:34:03 (GMT)
About 12 years ago,neighbors sprayed soybeans by air with Lorsban.After that insecticide made me dizzy,followed by brain fog.Every year i find more things that I'm sensitive to. Exercise and sweating helps.
Ralph <Wernn@webtv.net>
Strawberry Point, IaAbout 1 USA - Monday, April 03, 2000 at 03:39:48 (GMT)
Thought I'd register before viewing,being polite. Faith and a sense of humor have helped me survive 10 years with this MCS. The struggle continues. Thankyou!
Michael D. Kane <kanesmaine@gateway.net>
Cumberland , Me USA - Monday, April 03, 2000 at 00:25:44 (GMT)
I love your "little place". You really put in some hard work and it shows. God is smiling!
Diane Layfield <DLAY653@aol.com>
Tallahassee, FL USA - Thursday, March 30, 2000 at 03:26:44 (GMT)
Great Page email me when you can
Pauline <emt566@yahoo.com>
USA - Wednesday, March 29, 2000 at 03:48:57 (GMT)
Delighted to find your website. I have had numerous allergies develop over a period of a few years and now have asthma. I find it amazing that even though my coworkers know how sensitive I am to perfumes, most marinate in it constantly at work, even knowing I've had to increase my medications to compensate. The company does nothing. More public education on environmental sensitivities is vital, but blocked by big money interests. Will return to this page for more information on detoxing, etc.
Pam <pamjanas@g2a.net>
USA - Tuesday, March 28, 2000 at 12:14:07 (GMT)
This is a great page, other pages cant hold you a light. People need a page like this to go to with any illness because people that are not ill do not understand the pain and suffering that people with certain health problems must live with. I have had two back surgerys which makes it hard for me to do the things that I used to do. I still work and try to keep my place up but it is pretty hard sometimes.I also have a ruptured disc in my neck that needs surgery but God has helped me through without surg ery. I think God led me to this page for a reason, because I think I may be able to help some other people because I know of a really good company that makes non-toxic cleaners that might help people with MCS. If I can help please e-mail me lajyeager@aol.com or call me 606-528-7214 thank you.
Larry Yeager <lajyeager@aol.com>
Corbin, Ky USA - Saturday, March 25, 2000 at 05:58:46 (GMT)

Jacki...I did so enjoy your site. Thanks for being a special person and for taking the time to show us all how dangerous perfumed products are. Ihave often told friends that I felt that those scent things that one sticks in the sockets are not good for them, ..you have convinced me even more that we need to stop trying to >cover> everything up with perfume. Hugs and keep your chin up!
Renate <arconst@cyberus.ca>
Canada - Thursday, March 23, 2000 at 12:36:48 (EST)


I want to *complain* - being a CHOCOLATE*HATER* - I am very disaaaponted with Gorden's link tp HERSHEYS - ohhhhhh - it' DANGEROUS ahhahahahaha - Things like that should be PROHIBITED !!!!! - well, I survived, but what about dearest Mikael ? he *hates* chocolate too - and all those recepies - ohhh Jacki - what have you done -grin- Love and hugs Helle
Helle Kongevang <mcscphdk@mail.dk>
Copenhagen, DENMARK - Tuesday, March 21, 2000 at 12:52:40 (EST)
Thankyou! Thankyou! Thankyou! Your site is informative and educational. It feels as though you are talking about me! You have given me the gift of feeling validated. Thankyou again.
Mary Jane McGinley <dandj@nbnet.nb.ca>
Fredericton, NB Canada - Monday, March 20, 2000 at 18:04:49 (EST)
May the Lord continue to bless you as you faithfully serve Him.
Ann Ellis <ixoye@alliedhi.net>
Haleiwa, HI USA - Monday, March 20, 2000 at 17:51:18 (EST)
WOW, what a wonderful site. I've been fighting sinus and other problems for years and knew perfumes were a major factor.I have mulitple symptoms and doctors finally said it's all emotional, but I've never been convienced of that. I'm on several meds for emotional problems as they can't find anything wrong to explain symptoms. I could relate to one part of this site about having to hold your breath when walking down laundry asile in grocery store, that's me. I have a small business and I get sick when someone walks in my office with perfume on. I also hold my breath when walking in post office hear in town. I will not walk into the local bank as all 4 lady's are soaked in the purfume. I have recent had to stop attending my local church services due to heavy perfume in the air which saddens me as I'm one of the elders and am suppose to run the sound system. But I get headaches really bad when I do attend. I also enjoyed reading your faith page, wonderful testimomy. God Bless your for this web site and my the lord continue help you with this project to inform the public of this problem of MCS. Steve Monroe
Steve Monroe <radioman@jupitercity.com>
Quilcene, Wa. USA - Monday, February 21, 2000 at 03:26:10 (EST)
Have read this site multiple times now since finding out I have MCS. My symptoms are mostly burning nose/mouth and body at this point and I hope do not get into the other problems that others seem to suffer. I am changing mostly everything in my house to be non-fragrant and w/o any petro chemicals. I find so far that the cost to do this is has not been too bad. I am a mother of 2 young children and I pray that they never come down w/this problem and that I can help make their lives better. I have always been very sensitive to many things like perfume, smoke, gasoline and cleaning supplies. I have never been a big perfume wearer and always cleaned my house w/o using gloves. I have had my carpets cleaned and scotchguarded and used many fruit scented candles in the last year. I wonder how much of this has contributed to my problem. Reading this site helps me that there are others out there but, I still have to wonder if at such a young age w/young children how to get by day to day w/o being able to run here and there to do all the things a mother needs to do. When I worked full time I had problems - annoyance basically - w/smells in the workplace. Fortunately, 1 1/2 years ago I was able to quite and stay home w/my children. Since then, I am worse. This also makes me wonder what is going on. Hoping to make my way thru this problem in the best way by changing how and what I do and lots of hopes and prayers. I am seeing an environmental doctor and taking lots of Vit c and other nutrients. Is there anyone out there that has also done this and seen improvement - maybe if no dissappearance of symptoms at least greatly lessing of symptoms? Have also heard of NAET but wonder if anyone has done it and it has truly worked. Interested in corresponding w/anyone regarding MCS and these issues.
donna foster <dmkfoster@aol.com>
Doylestown, PA USA - Saturday, February 19, 2000 at 20:07:35 (EST)
I am a 46 year old female with severe allergic asthma. even though I have not been diagnosed with chemical sensitivty by a dr.I am sure this is what I have.I can't clean my house or be around any type of strong odors without getting very sick.I have an hmo & I feel like that is why I have not got the proper treatment. I stay sick all the time and stay on antibiotics for constant sinus & asthma infections.I was in search of information when I found your web site and was very impressed.It makes me feel better to hear that other people are going through the same things I have been.I am a customer serv.rep in insurance field and constantly around fax paper & other chemicals that bother me.I would like to find a friend with the same situation to correspond with.I also love your christian page.I am also a christian & I believe this is what has carried me through this. thank you for being there. chris e.
Chris Edwards <perrycris@altavista.net>
nashville, tn USA - Saturday, February 19, 2000 at 11:42:18 (EST)
I thank you both and I thank God for the gift of knowledge. I found your sight very informative. I myself suffer from MCS, and have found some relief when I spend extended time on my favorite arid Carribean island, St. Barthelemy... minimal polution and lots of fresh ocean breezes. I pray for us all, that one day soon those who refuse to know the truth will have the eyes, ears and heart to hear. Merci Beaucoup & Jah Bless!
Janice Luft
French West Indies - Friday, February 18, 2000 at 15:39:29 (EST)
I think a group at immune@best.org can answer several questions asked by people here in the past two months. I just got into it today and already found they answer a lot of questions on MCE EI FM CF and more Connie
connie <kcoberholser@webtv.net>
USA - Wednesday, February 16, 2000 at 12:38:06 (EST)
A GREAT SITE FOR BOTH THE INFORMED AND THE MIS-INFORMED! WHAT YOU DON'T SEE...COULD KILL YOU!!!
KATHLEEN HOUGHTON <GANDK@ALASKA.NET>
ANCHORAGE, AK USA - Tuesday, February 15, 2000 at 08:47:55 (EST)
I have MCS & an abscessed tooth which needs to be removed. Dr. will give me an anesthetic injection, which is concerning me greatly because I'm so sensitive to chemicals. Please let me know quickly whether you've had any experience or knowledge re. anesthetics for dental work. Thank you very much. Mary G
Mary G <mayedg@sanctum.com>
FL USA - Sunday, February 13, 2000 at 15:12:15 (EST)
I saw your website address in our e-mail, and logged on. Members of my husband's family (his father, brother, and himself) have all suffered from mild Tourette's, so was curious. I particularly noticed your Christian faith,as we also love our mutual Lord Jesus very much. My husband and I have been Christians for many years. I am a "striver", so very much enjoyed your testimony about the bug letting go. Yes, it is true. Seems we need to be worn down in order to "let go", only to discover that God is indeed in control, and only has our good in mind. Then, that indeed is true, "that God causes all things to work together for good, to those who love God,to those who have been called according to His purpose." And, that the working together for good, for us, His creatures, does not mean that the 'causing' is good, but the result, which causes us to turn to Him in a deep way is "working together for good" Thank you for your dear testimony. May I share one of mine? It is in the same vein as yours. On PBS, (Channel 2 - Edu., Program on Nature), I was watching a pride of lions approaching, and singling out from the herd, a baby antelope. The narrator said of this particular antelope, that whenever an attack like this takes place, that the herd goes back to chase away the predator/s with their long horns, and then forms a wall surrounding the one, i.e. baby being attacked, and becomes a fortress or buttress protecting that one. It was such a vivid picture to me of the Body of Christ in such a practical way! This is how our Jesus cares for us. I was reminded of that verse in Ephesians 6:10, ll: "Finally, be empowered in the Lord and in the might of His strength. V.ll: "Put on the whole armor of God that you may be able to stand against the stratagems of the devil,". There is an accompanying footnote, which is also encouraging. I'll just quote a bit of it. "the church (brothers and sisters, not a building)is seen here as a warrior for the defeating of God's enemy, the devil. To defeat God's enemy, we need to put on the whole armor of God. "Put on" is an imperative, a command. God has provided the armor for us, but He does not put it on for us. Rather, we ourselves must put it on, exercising our will to cooperate with Him." "The church is a corporate warrior, and the believers are parts of this unique warrior. We must fight the spiritual warfare in the Body." Anyway, it seems I have found someone who appreciates the lessons learned in nature also. I have always loved and enjoyed the beauty of God's wonderful creation, and am learning to appreciate His creatures in so many other ways also, i.e. us. We have so many frailties, and yet, there is the "treasure" IN the "earthen vessel". Thank you again for sharing the story of the little bug. E-mail is a wonderful way to share so many things. In His keeping grace, Joan Mauzy PS. Have been married to my husband for 27 years, 4 children; Michael, 25 years, Rebecca 24 years, James 22 years (special needs) and Christopher 12 years. Hope this is not too long, but probably is.
Joan Marie Baer Mauzy <kjmauzy@aol.com>
Newton, MA USA - Sunday, February 13, 2000 at 11:47:47 (EST)
Has anyone had O2 therapy for arteriel blood gasses? Has anyone taken drops for chemical sensitivity? Would like to chat?
Connie <kcoberholser@webtv.net>
pa USA - Friday, February 11, 2000 at 12:41:41 (EST)
I suffer from asthma from exposure to chemicals in the workplace. My office has tried to make reasonable accommodations by giving me a private office,HEPA filter, etc., but some of my co-workers continue to wear colognes. They just don't understand that this is life-threatening. Do you have any suggestions? Talking to them, and trying to educate them on the subject, did not work.
Janice Mitchell <janicemitchell@worldnet.att.net>
Charleston, WV USA - Thursday, February 10, 2000 at 15:15:30 (EST)
Thank you so much for being there! I thought I was all alone out here.
Catherine Ann Jurs <owlover7@aol.com>
Montgomery, IL USA - Thursday, February 10, 2000 at 10:29:19 (EST)
Hope has two lovely daughters, Anger and Courage. Anger at the way things are and the Courage to change them.
Sheri <naturesinspiration@sierratel.com>
Coarsegold, Ca USA - Thursday, February 10, 2000 at 01:23:47 (EST)
My mom suffers from mcs and this was a very helpful website.
Linda manco <lfmanco@aol.com>
slingerlands, ny USA - Wednesday, February 09, 2000 at 12:32:34 (EST)
the topics that i've gather here are very useful. Thanks.
alet fernandez <alet_fernandez@eudoramail.com>
Bacolod city, Philippines - Wednesday, February 09, 2000 at 05:06:29 (EST)
I AM VERRY CONSCIOUS OF MY ENVIRONMENT AND OF THE EFFECTS OF EVERYDAY CLEANING PRODUCTS,THAT IS WHY I AM LOOKING THROUGH SITES LIKE THIS.MOST PEOPLE DO NOT KNOW WHAT IS IN THE PRODUCTS THAT THEY USE ON A DAILY BASIS THAT IS HARMFUL TO THEMSELVES AND THE ENVIRONMENT. ALSO WHAT IS SAFE FOR THE ENVIRONMENT IS NOT ALWAYS SAFE FOR HUMANS. I HAVE FOUND SOME PRODUCTS THAT CLEAN AS WELL OR BETTER THAN MOST BRANDS AT THE STORE AND ARE SAFE AND COMPARABLE AND SOMETIMES LESS EXPENSIVE.THESE PRODUCTS ARE NOT ONLY AVAIBLE FOR INDUSTRY THEY ARE ALSO AVAIABLE FOR THE HOME. YOU CAN CONTACT ME AT LAJYEAGER@AOL.COM FOR MORE INFO.
LARRY YEAGER <LAJYEAGER@AOL.COM>
CORBIN, KY USA - Tuesday, February 08, 2000 at 12:06:39 (EST)
AWESOME -- AND PRAISE GOD -- WE ARE CHRISTIANS AND I AM AN ADMINISTRATION ASSISTANT AND CHILDREN'S MINISTRY DIRECTOR AT OUR CHURCH. GRACE CHRISTIAN FELLOWSHIP. PRAISE GOD. AND A APPLE USER TOO. THE BLUE G-3 I WAS FORWARED YOUR ADDESSES IN LOOKING FOR ANSWERS TO QUESTIONS FROM LINDA JACOBS ON CHEMICALS THIS WAS THE QUESTION -- MY HUSBAND HAS COPD AND WAS IN THE U.S.M.C. LOOKING FOR WHAT CHEMICALS THAT CAUSED THIS. WE KNOW IT IS FROM CHEMICALS AND FUMES AND AIR POLLUTION AND SMOKING THEY ALL SAY BUT NO WHERE WILL IT SAY WHAT CHEMICALS HE WORKED WITH MANY CHEMICALS IN THE SERVICE AND WE NEED THE NAMES OF SOME TO BE ABLE TO WRITE DONE FOR THE VA BENIFITS OFFICE. WE APPLIED A YEAR AGO AND NOW THE VETERAN HAS TO DO THE LEG WORK CONNECTING C O P D WITH MILITARY SERVICE. HE WAS IN VIETNAM TWICE WITH HIS TOURS. AGENT ORANGE WAS SO INVOLVED. LOOKING FOR SOME ANSWERS AND PRAYING YOUR SIGHT IS ABLE TO HELP. THANKS SANDI
SANDI L. MARTIN <SANDI M 96@AOL.COM>
CLEARWATER, FL USA - Tuesday, February 08, 2000 at 03:11:03 (EST)
FOR YEARS I IMAGINED CHATTING WITH OTHERS WITH MCS OR FOOD SENSITIVITIES BUT HAD NO IDEA SUCH REALLY EXISTED. MY CHILDREN GOT ME THE WEBTV TWO WEEKS AGO AND IT HAS BEEN WONDERFUL. A CHRISTIAN WEB SITE FOR EI! WOW AND THANKS. GOD LED ME TO YOUR SITE EARLY AND YOU EVEN CARRIED SP@C WHICH I HAVE GOTTEN MATERIALS FROM SINCE 1983. YOUR INTRODUCING US TO THE CHAT ON-LINE WAS SO WONDERFUL SINCE I CAN'T FIND MY WAY WELL YET. GOD HAS CERTAINLY USED SO MANY OF YOU BY YOUR SHARING. YOUR ENTIRE SITE HAS BEEN SO INSPRIATIONAL. I HOPE I CAN CONTRIBUTE SOMETHING HELPFUL IN THE NEAR FUTURE. I WILL INTRODUCE MYSELF ON THE MCS-SIE AS I GET MY THOUGHTS TOGETHER. LOVE IN CHRIST, CONNIE PS THE KC STANDS FOR KARL AND CONNIE
CONNIE <KCOBERHOLSER@WEBTV.NET>
USA - Sunday, February 06, 2000 at 15:29:14 (EST)
I have hives on my body when I first get up in the mornings. very low energy level, I have food allergies, but lately I have noticed a clean gown and where I touched my body was where I was so broken out. I have a lot of chemical allergies, like sprays, cleaners etc. I think it may be fabric softener or detergent. Also, very bad allergy to smoke.
judy <harrysr@planetc.com>
USA - Saturday, February 05, 2000 at 19:36:41 (EST)
Appreciate your site immensely. Always had sensitivity to perfumes and chemicals, but after moving to Florida 3 yrs ago its gotten much worse. I get a symptom I can't find in any literature, as well as the usual ones such as fatigue etc. It consists of rapid development of upper GI gas and associated pains and discomfort when exposed to the smells of pesticides and chemicals in air here. People treat their lawns, grounds and homes constantly for insects and weeds. The air reeks of these odors all year long. My home was a refuge at the beginning but now with me getting more sensitive and the house getting more infiltrated with the chemicals of everyday living, it is less satisfactory even in the house. I am more sensitive than others, no doubt, but when I perused your site I realized that others suffer even more than I and felt fortunate. The most sickening aspect of this all, is that the medical profession has done very little to understand this problem. Most often, a person presenting with environmental illnesses is viewed by a physician as psychosomatic or they will try unneeded drugs or tests that have no effect in solving environmentally caused problems, and possibly do more damage to a weakened system. Like medical education, that provides virtually no emphasis on nutrition, they also forget about the chemical-laden environment we are forced to live in.
George <gmmail@altavista.com>
Palm Coast, FL USA - Saturday, February 05, 2000 at 12:00:38 (EST)
I love your homepage, photos and MCS information pages. Very informative!
Bonita Poulin <poulin@recorder.ca>
Brockville, On Canada - Thursday, February 03, 2000 at 16:00:29 (EST)
Any bode knows anything about deseases from amonia in the water ? Thanks for help.
Mohandas Hora <mohandas@as400.itec.com.br>
Sao Paulo, SP Brazil - Wednesday, February 02, 2000 at 15:36:45 (EST)
It's great to see a couple survive the trails that you have been through. Your courage and belief in God shine to the world. I have been in the clogging world for about 15 years and wish you could have enjoyed many more years, through my 2 daughters I have remained. Praise HIm : Barbara
Barbara <bj2773>
Augusta, GA USA - Friday, January 28, 2000 at 16:41:47 (EST)
My sister has MCS and I am very concerned about the problem of chemicals in our environment.
Ray Des Roches <Rrmarshvu@aol.com>
Pocasset, Massachusetts USA - Friday, January 28, 2000 at 13:59:16 (EST)
Please send any information you may have on this topic. I am very much interested. Thank you!
Hilda Lacayo <Hildalacayo@aol.com>
Miami, FL USA - Thursday, January 27, 2000 at 09:41:51 (EST)
This web site is wonderfully informative and has been quite helpful. I get migraines (35 years) when I am exposed to perfumed products, even candles and potpourri, and only Imitrex (for migraines) will take the headache away. Is there anything an allergist can do for me? I have read the web sites and it looks like there might be some hope. CAN an allergist give me shots to stop my sensitivity to perfumed products? I have been told that they cannot help problems caused by environmental odors. Does anyone know?
Barbara Christmann
USA - Wednesday, January 26, 2000 at 13:51:39 (EST)
i suffer greatly from MCS, my coworkers and employer do not understand and make my life hell.
sheila macdonald <sheial.macdonald@css.gov.on.ca>
stroud, on canada - Wednesday, January 26, 2000 at 13:33:38 (EST)
Thank you God for directing me to this site. There is a name to my illness and I am not crazy! You are a faithful God and I thank you for your faithfulness and provisions. Is there anyone in north central Ct or Western MA who has MCS who would like to chat?
Judee <dixj@usa.net>
CT USA - Monday, January 24, 2000 at 20:36:02 (EST)
I'm looking for a mother that has MCS and had to leave her work place in a office, because of poor air, or carbon paper etc. This mom will have to have children at home, and has left her job within the past year in a half, because she can no longer deal with it.. This is for a magazine. We need to get the word out , and this is a blessing. Email me at Faithful@tez.net Thanks for helping, we also should start writing letters to our congressman, Gov. in each state to have MCS day. Lets all do are part to help the next generation with this lonely disease. May God Blessing be with you all.
Faith <Faithful@tez.net>
VA USA - Sunday, January 23, 2000 at 12:50:33 (EST)
I AM 28 YEARS OLD MAIL. I THINK I HAVE M.C.S. I WAS TESTED FOR ALLERGYS IN THE SUMMER OF `1999. IT WAS ACTIVE. LOTS. I HAD A LOT OF THING HAPPEND TO ME I WAS BORN WITH CROSSED EYES , A HEART MURRMER, BELLY HIRNA. I AM ON DISABILTYS INCOME.WITCH IS NOT MUCH I DONT DRIVE. MY DAD DIED WHEN I WAS 9 MONS. OLD. MY MOM IS VERY SICK. AND I EXSPOSED TO 2ND HAND SMOKE. AND CHEMICALS . IS THERE ANY HELP. GOVT.
MICHAEL DENNEY
WESTERN GEORGIA, GA. GA. USA - Friday, January 21, 2000 at 16:19:02 (EST)
I think we'd be foolish to think there is no relation between the increased toxins/chemicals and the increase in illnesses. While continued and further study is needed, we do need to think about what we are doing to our bodies, and our enviroment. Believe me, I'm NOT GREEN...but I sure seem to be thinking more along those lines. Education is the key - NOT name calling. Everyone needs to read, learn and teach. Thank you for putting so much information in one place!
Mig Williams <alw3@bellsouth.net>
Memphis, TN USA - Wednesday, January 19, 2000 at 15:02:58 (EST)
I have really enjoyed your site.
Lita Trace <ltrace@knology.net>
Augusta , GA USA - Wednesday, January 19, 2000 at 10:54:34 (EST)
Where I live the people are like animals and must mark their teritory with perfume. It is killing me. I can't shop for groceries or cloths. In the work place I have non-breathing moments and have even been taken to the hospital by rescue squad. My employer thinks I have a personal problem with the people I work with not perfumes. NOT SO. I get along well with everyone. I have even taken notes from my doctor to my employer and consideration is not being given for this condition. I do have fibromyalgia. This is like speaking a different language to them. I have tried to inform everyone I work with and around that I am not upset with them but I can not breathe with the perfume so strong. So far No good. Any suggestions?
Anna Markham <annamarkham@hotmail.com>
Smithville, TN USA - Monday, January 17, 2000 at 13:16:32 (EST)
Dear Jackie, I'am presently suffering from a chemical illness caused by riding my camel. I live in EGYPT and my camel's name is LUMPY. HE is SUCH a CUTIE. The problem arises when a ride him. I go into convolsions and break out with small red spots. Would you by any chance understand this strange condition? I know your not a doctor but what is happening chemically? I think I might be having baby camels any day soon.
Allison Cubert
Egypt - Saturday, January 15, 2000 at 17:18:46 (EST)
Dear madam/sir, I need information about a self-help group for people suffering with MCS. Perhaps you know sometthing about a group in germany??? We didn´t find them in the www but we know about its existence. Please write soon, kindest regards, Anna Blumert
Anna Blumert <a.blumert@kostal.com>
Lüdenscheid, Germany - Thursday, January 13, 2000 at 15:11:52 (EST)
Dear Jacki & Gordon, God bless you for your wonderful information pages. It is great to see such an informative web site. My wife has severe chemical sensitivities, and this will be a boon to her. Thank you so much.
Michael Boggia <Mbo4485238@aol.com>
Tucson, AZ USA - Thursday, January 13, 2000 at 09:39:22 (EST)
>Subject: Chemical damage caused by Disulfton > >Comments: In 1984 I was hurt in an insecticide accident and was treated by Dr. Rae in Dallas. Two things have helped me: 1. By using magnets I have finally gotten to walking fairly normal. 2. The formula Cell Forte with IP-6, Enzymatic Therapy, Green Bay, Wi. has helped me tolerate food again. I have developed fatty tumors in my gut and nothing else has helped. The dosage was four capsules daily. I couldn't tolerate this, and after a bleeding from my stomache, I cut down to a half capsule twice a day. Now I am up to one or two capsules. Note: Do not use magnets if you are wearing any kind of electrical aid such as a pace maker. At first when I used full doseage of IP6, I had enternal bleeding from probably a pouch in the gut. You should talk it over with your physican before using any treatment)
Luther Butler <lbutler@erath.net>
USA - Wednesday, January 12, 2000 at 23:48:50 (EST)
Please provide me with any information or late breaking news that you may have relative to Multiple Chemical Sensitivities. thank you for your efforts and the enlightenment.
Wilma Tichauer <Glamr@webtv.net>
palm beach gardens, Fl USA - Wednesday, January 12, 2000 at 22:06:25 (EST)
I thank you for your data on MCS and the effects of prefumes. I will be ordering the pamphlet to distribute to my other faculty members. I do have one comment to make and I hope it won't offend you. Many times I am viewed as eccentric or worse because of my strong objection to scents. In viewing you site( and this may be the offensive part) I find that the religious reference lessens your credibility somewhat. It may cause people to say "well, there you go!" I understand your commitment, but I feel that the focus should remain at the "scientific" level to convince sceptics. Please son't take offence. Yours truely Cathy Murphy
Cathy Murphy <murphcat32@aol.com>
Teaneck, N.J. USA - Wednesday, January 12, 2000 at 11:55:45 (EST)
Just a thought on the latest entry concerning mercury filling extraction. I have known many people who have had their fillings removed only to react adversly to all replacement materials. They are generally toothless or nearly so. Also, the pain from the procedures can be too much for very sensitive people, especially those who are extremely ill. One young lady I knew ended up committing suicide after her fillings were removed by one of the EI dentists. I can tolerate no dental materials well, and have months of pain from the least toxic filling material. It is something I just have to weather through, I only wish my friend could have stuck it out. Please be careful and use your best judgement prior to jumping on the amalgum removal bandwagen; it does not work for everyone. Actually I do not know any very sensitive person that it has really been a success or helped their health at all.
Marcia
USA - Wednesday, January 12, 2000 at 09:57:00 (EST)
I also have MCS and enjoyed your web site very much. I invite you to visit the National Coalition for the Chemically Injured web site: www.rtk.net/ncci . I hope you will find it as rewarding and informative as I have found yours. Stan
Stan Scarano <sscarano@netkonnect.net>
Arlington, VA USA - Tuesday, January 11, 2000 at 20:18:27 (EST)
One of the best sites of the web. I am thrilled to see a site dedicated for God. God Bless !
Vijai Kingston <vijai@earthlink.net>
Eden Prairie, MN USA - Tuesday, January 11, 2000 at 17:31:49 (EST)
David Doi,DDS on the Big Island has been trained by the Huggins method in removing mercury from the teeth. Dr. Huggins has written a book called "It's All In Your Head". In the back of his book one can call his 800 number and find out where dentists are in your area who have been trained by his method. Dr. Doi also sent me to a lab where I gave a blood sample to be sent to a lab in Colorado Springs. The blood test was used by my Dentist to determine which dental materials where not toxic to my system. In Dr. Doi's office he does not allow any of his workers to use any scented products and he has the state of the art dental equipment to keep the dental materials from floating in the air. Dr. Doi is located in the Waimea Professional Center (808) 885-7144
Susan <SWLKrueger@aol.com>
Honolulu, HI USA - Tuesday, January 11, 2000 at 14:06:03 (EST)
Thanks for an excellent and helpful website. I have sewer worker's rash and asthma from exposure to Hydrogen Sulfide (sewer gas) where I was a teacher. It has escalated so I have other chemical sensitivities.
Ginny Marsh <gmarsh@aye.net>
Borden, IN USA - Tuesday, January 11, 2000 at 13:33:13 (EST)
regarding purchasing an air filter, from a dental lab technician....interesting. "We went to Home Depot to purchase ours. Since each room in our lab has one I find I can breathe easier but what is interesting is what made us buy them in the first place. One of our technicians started breaking out in hive like welts only on her legs, only after she arrived at work and only on the portion of her leg that was exposed. If she wore shorts they went all the way up her leg, if she wore jeans with no socks then only her ankles. We tried vacuuming, scrubbing her work station, changing her work station but it did no good. Her hands/arms/face did not break out (which I thought was odd). The first day we used the filters she did not get the hives and hasn't since."
Kelly
USA - Tuesday, January 11, 2000 at 00:03:43 (EST)
OSHA has an online site where you can leave electronic feedback. Anyone concerned with MCS in the workplace may want to view this site and leave feedback. OSHA proposed ergonomic standards http://www.osap.org/newsflash.php3
Kelly Eldridge
USA - Monday, January 10, 2000 at 23:28:28 (EST)
, let's not forget that breathing plaster dust is also hazardous, as is breathing porcelain dust, acrylic filings and resin dust. While we are at it, the dust generated in my partial denture department probably wouldn't help you run a faster mile, and the stuff that sticks to your lab coat while you're polishing a gold crown can't be all that healthy either. Let's talk about other fumes and aerosals. Do you spray opaque? Use monomer or accelerator on you CA cements? Beryllium is only part of the exposure you need to think about. Do your kids ever come visit the lab and watch you work? Your spouse or other guests? do they wear a mask while they sit and visit? If you work at home, think about what you track into the carpet and then later put into the air when you vacuum. Dental laboratories generate plenty of hazardous material, usually of the airborne type and good vacuum systems, air purifiers and masks are as important as any other tool or equipment. And NOT just while metal finishing.
For Lab Techs. etc.....Be aware
USA - Monday, January 10, 2000 at 21:12:45 (EST)
I heard recently that some people are alergic to dentures(the plastic?) Amongst 40 other common foods and chemicals, I am alergic to dental wax and bee's wax.(commonly used in orthodotics...kids braces. I personally think dentists should have to have some knowledge of MCS. Maybe if a few of us suffering contact the American Dental Society, Or Harvard Dental Lab, maybe there will be some understanding and research done. Harvard encourages their students to do research. They have a website online, by the way. ...just a thought. Everyone does not have MCS, it is up to the few of us suffering to make out symptoms known. And hopefully educate other..and spare them suffering. Thank you again, Jacki for your site....you will probably save people from much unnecessary suffering, surgery, and death. I believe food and chemical avoidence can cure many illnesses that attack the vital organs. I agree with the NAET theory, but not necessarily the treatment proposed. Good luck to all suffering. Enid Rylee
Enid Rylee
USA - Monday, January 10, 2000 at 18:07:50 (EST)
Aloha, I come back to your site again and again...so many great links! Mahalo Nui Loa (thank you very much) I moved to Hawaii to get away from a polluted city area...it has been wonderful and my health is almost back to what is was when I was a child! Good air, water and absence of pollution make a BIG difference! If anyone reads this, maybe you can help me find a web site where I could search for a dentist that is at least "MCS aware", would prefer in Hawaii, but would travel to CA or WA, if needed. Mahalo!
Kimberly <Kimberly@underahulamoon.com>
HI USA - Sunday, January 09, 2000 at 21:32:46 (EST)
In coming to your Web site I feel as if I found a friend. Thank you for your ministry.
Thea Pollock <addison@scruznet.com>
Santa Cruz, CA USA - Sunday, January 09, 2000 at 12:52:45 (EST)
I wonder if anyone knows of a web site for safe guest houses for MCS people like us? Ours is the only fragrance and aerosol free guest house I know in Ireland.I would be glad to provide a link to others in other countries.
Sandy Perceval <sandy@templehouse.ie>
Sligo, Ireland - Thursday, January 06, 2000 at 13:43:13 (EST)
enjoyed your site and wanted to let you know about our ministry for people who live with chronic illness or pain, Rest Ministries. I have rheumatoid arthritis and fibromyalgia. God bless!
Lisa Copen <rest@restministries.org>
San Diego, ca USA - Thursday, January 06, 2000 at 02:14:31 (EST)
just happen to come across this site. what a gem!! thank you
spockette <spockette@email.com>
salinas, ca USA - Thursday, January 06, 2000 at 01:15:45 (EST)
I have had this problem MCS since 1991. Now my life is entirely dictated by it.I'm a visiting nurse right now and most of the patients I see smoke which makes me sick literally. I've asked that I not have smokers bbut many times the person making the scedule doesn't know who smokes and who doesn't. So I suffer. The VA doesn't aknowledge this condition. I'm worried about where I'm going to work when I finish the BSN. That's a whole other nightmare. We're going to be RNs in a few months. The other 87 students have been asked repeatedly by me and by disability services to not wera perfume on the days of class that I'm in with them. I stood up in front of them and described the condition, gave them printed material explaining it, the nursing instructor read a letter to them every semester saying the same thing. There's a student with MCS in the class, they have a reaction to all scented products(there's a list read to them), and it asked that they refrain from wearing these products on the day of the class. Guess what...they still wore perfume and cologne.I told them about the problem specifically because they will be in the healthcare field. Let me say this. I'm an LPN right now and one of the first things I was taught was healthcare professionals can not wear any scented products-it makes patients who are allready nauseas sicker. My instructors would send people who wore perfume home to shower and made them make up the clinical time.(the student had to pay the instructor $22.00 per hr for the makeup time) So, it took only one person "forgetting" and wearing perfume. After everyone heard she had to work on Sat. and pay that kind of money-nobody else ever "forgot" and wore perfume. I have to say that the only reason anything was said to the RN students was because of me. Even after seeing me flee from the toxic environment of the classroom vomiting-a nursing instuctor continued wearing perfume. She finally got it when we were in a small seminar group and I started dry heaving because of her perfume. Now she's a perfume free crusader-she tells everybody they shouldn't be wearing it. Of course, they still do. I know because I have to hold my breath to walk by them in the quad. In clinical, I had to avoid certain areas that the other students were in because they still were wearing perfume.It's not just the perfume. They put new rugs in the building where all of the nursing classes are. I couldn't even walk in the door without getting a migraine headache.Now if I get behind a diesel truck I get sick. If I get behhind a car with a smoker, I get sick. Oh and I love this one. My best friend who is a nursing student also and is extremely understanding about this problem, gave me a christmas present. It's a cd cabinet with pretty flowers and hummingbirds painted on it. Guess what, it made me sick. I'm typing this using one eye because I now have a migraine and the light makes it worse. This is ridiculous.I have to clean my house with vinegar because everything else makes me sick. I can't do the laudry for two reasons-we have oil heat and the fumes of the burner makes me violently ill, and the detergents make me sick. Numerous doctors told me I was in so many words crazy. 3 told me I had vasomotor rhinitis and that I may have environmental triggers for the migraines. MAY HAVE? The Dr. who finally diagnosed MCS said-they give that diagnosis when they don't know what the hell's wrong with you.Interesting. His son also had that diagnosis and I gathered that he didn't agree with it. Anyway, I'm becoming more and more of a recluse. People just don't understand. With the billion dollar scent industry convincing everyone they must smell like an artificial raspberry to be desireable-people with this problem aren't going to make a dent in public opinion. I have a request, though. Next time you see someone in healthcare for a doctor's appt. or whatever...and you smell the nurse,CNA,HHA,NP,PA,DR,or PCA you tell them that they should not be wearing it and you just wanted them to be aware that it makes some people sick. You never know who it affects, so you shouldn't ever put it on.This was in one of my nursing books-that I don't have any more.Just one more aside. Most hospitals or healthcare agencies have a policy regarding wearing scented products. Maybe what it will take to make people aware is to complain. In my last two clinical rotations I explained to the nurse I went out with that I had this probblem. One in a schhool nursing position and one in the visiting nurse association. Both continued to wear perfume, even after seeing me get sick. The next day, they both told me the same thing. They both were employed by the VNA. They told me that the VNA had a strict policy against the wearing of any scented products. My question is, then why did they keep wearing them? Especially after seeing what it does to me. I just don't get it. Tara Fetterly
Tara Fetterly <fetterlytara@netscape.net>
Fitchburg, MA USA - Thursday, January 06, 2000 at 00:57:03 (EST)
I found the information on Air Fresheners very informative. My Grandmother is a compulsive Air Freshener user and I hope that that information will help to stop using Air Fresheners. Thanks
Cheryl
Brampton, ON Canada - Thursday, January 06, 2000 at 00:41:25 (EST)
I'm a Persian Gulf Veteran with Multiple chemical sensitivity. I have had it since my return to the states in 1991. I just found a doctor who would write the diagnosis down. Of course he's a civilian doctor. The VA doctor says that there are no treatment sites available. I heard that there's one in Texas and don't know how to find out for sure.Anyone know for sure?
Tara Fetterly <fetterlytara@netscape.net>
USA - Wednesday, January 05, 2000 at 23:04:54 (EST)
I'm just diagnosted mcs
Annie Louise Hansen <egon.hansen@mail.tele.dk>
4873 Væggerløse, Denmark - Tuesday, January 04, 2000 at 10:13:54 (EST)
Dear Jacki & Gorden and other surfers - first of all a happy new year to you all, and many thanks (again) for your pages which have introduced me to a couple of very nice people. I just wanted to ask if anyone knows or has experience of Kiehls products which are marketed here as 'expensive because they contain ONLY the best ingredients' ! (Of course ha ha what other reason could there be ). I don't discount EVERYTHING I read in the glossies because after all that was how I got to know about Aveda and I am a devoted fan of their 'sensitive' range. I got a Kiehls shampoo and notice that it doesn't contain this Lauryl/Laureth ? Sulfate that people go on about. If any one has any info I would be interested to hear. Sadly 2 companies which might have had suitable products are not available here (kiss my face and aubrey organics) and after my disastrous first attempt will not be making any more - sorry attempting anymore - internet purchases. Kiehls have just started being sold here in a couple of the more 'posh' shops so would be interested to hear of experiences. Very best wishes to all - Katherine xx
Katherine Phillips <phillipskatherin@hotmail.com>
London, UK - Monday, January 03, 2000 at 17:59:53 (EST)
Thank you for the informative website. It is encouraging (for support factors) & yet saddening that there are so many of us injured in some way by our chemical environment.
Carla Atkinson <ceatkinson@netzero.net>
Marion, IA USA - Monday, January 03, 2000 at 17:28:24 (EST)
I found your website to be very informative. I'm very interested in harmful ingredients found in mainstream products on the market. Dr. Samuel Epstein inspired me initially. Now it's actually one of my hobbies!
LaVonna Jones, R.N. <lifebalance@gateway.net>
Indianapolis, IN USA - Monday, January 03, 2000 at 10:53:41 (EST)
I enjoyed your website very much. I found guidelines to Non-toxic living very informitave. I have alot of changes to make and any help is really appreciated.
Patricia Campbell <Patcam777@aol.com>
N. Wilkesboro, NC USA - Monday, January 03, 2000 at 01:08:51 (EST)
I am interested in finding out more information about sick building syndrome for my friend Eric.
Marilyn Jane <mmootsey@hotmail.com>
redford, mi USA - Monday, January 03, 2000 at 00:24:43 (EST)
I found your pages while looking for some fragrance free products. Your brochure is so well written. I plan on ordering some soon. I sent the link to another unscented friend. I really understand illness. I've had bad allergies all my life. I now have three neighbors that use heavily scented fabric softeners that keep me in doors when they are doing laundry. I occasionally receive a magazine that has touched one with a perfume ad somewhere in rout which ruins it for me. I can't sit with a large group of people either such as the church sanctuary.
Frances <oconnor@iwvisp.com>
CA USA - Sunday, January 02, 2000 at 18:37:18 (EST)
Thank you for your wonderful website. I've been interested in cleaning up my family's environment for quite some time. (I can't always afford to do what I would like, but I try to do what I can. Hopefully, I'll be able to do more in 2000.) I'd recently been going through a confused, busy, & scattered time spiritually, mentally, & emotionally, and your testimonies, etc. have helped me to refocus. Thank you so very much. In Him!
Marilyn Buchanan
USA - Saturday, January 01, 2000 at 03:56:58 (EST)
Outstanding information. I just wish I knew how to get our building to be a "Perfume Free" building. Thanks - Desi
Desi de la Garza <desi@co.bexar.tx.us>
San Antonio, USA - Thursday, December 30, 1999 at 17:28:36 (EST)
I read your story after my husband called me from work and told me he had run across it. He seemed convinced that it was something I should consider since my symptoms are practically the same and even moreso. I still haven't had a diagnosis and have just about given up. I think that everyone who knows what I have described for years (and with those years - increased symptoms)thinks that I am overly concerned about my physical health and maybe there isn't anything wrong at all. Your story with interesting because it contained some of the symptoms that were missing with other similar diseases (i.e. lupus, rhuematoid arthritis, lymes, fibromyalgia, etc.)I feel I fit into every category yet still no answers. Thanks for your article... maybe I am a step closer to finding out!
Rose Briggs <celticrose65@juno.com>
Waldorf, MD USA - Wednesday, December 29, 1999 at 21:47:25 (EST)
I am interested in the multiple environment section.
V Uber
Hamilton, OH USA - Tuesday, December 28, 1999 at 23:35:39 (EST)
I have a friend who has environmental illness. I wonder if I have a little of it. I have a lot of headaches and I am a very peppie person. I am tired all the time and I can't do like it would like to do. I know I have a big problem with mold. It really makes me sick. We live in a old house and have a old basement that stays wet. I am not losing weight or any thing like my friend. She just wondered if I might have a little or the start of it.
Beverly Grant <glgrant@clarksdale.com>
clarksdale, me coahoma - Friday, December 24, 1999 at 08:04:38 (EST)
update on dental wax...apparently my alergy is due to something inherant to the actual wax itself. Did an analysis and discovered I am alergic to natural bees' wax, so some hidden ingredient in the dental/orthodontics wax was not the culprit. (not a big surprize, because I am alergic to honey as well...and over 50 other common foods due to MCS) Go figure that one. But none-the-less, avoiding all triggers I stay well so wanted to share with others of you suffering... Warning: SUSPECT....well...EVERYTHING! Thats the only way to weed out the bad and get well. When you regain your health due to proper elimination it is well worth it. Good Health is always the better trade off. ....holding my breath at the gas station these days. Enid Rylee
Enid Rylee
USA - Wednesday, December 22, 1999 at 02:25:57 (EST)
Jacki, You're site is helping so many people. We must help ourselves with elimination first. Thank you for sharing what you know with fellow mcs sufferers. Every little bit helps. I am going to share two unsuspected products I reacted to. I am a young healthy person as long as I avoid the triggers that offend me. Recently my ankles bloated up for 3 days due to a deoderant on the market. Starts with an M..but don't want to name names. Please analyze if the same happens to you post-usage. Also, for others with braces and using dental wax BEWARE. I get a very sick reaction. Possible ingredient "alum" which is aluminum potassium sulfate. Children wearing braces should be warned of a potential alergic reaction. Who would ever suspect dental wax?! This mcs has a surprize around every corner doesn't it. Stay Well. Enid
Enid Rylee
USA - Saturday, December 18, 1999 at 16:37:39 (EST)
This is an excellent site. It has more understandable information than on it/links from it than any other I have encountered. I am needing information to try to get our L.R. Master Chorale to become officially and absolutely perfume-free (how can you spin out that beautiful tone when a passing wave of air makes you gag or cough audibly into that sensitive musical phrase?) Another choir member had a respiratory seizing-up during another concert. It just isn't right that the few persistant killer choir members can sabotage the performance which all have worked toward--or can send a fellow singer to the hospital. Thank you for this immensely useful information.
gail k demirtas <gkdem@yahoo.com>
thousand oaks, CA USA - Saturday, December 18, 1999 at 01:01:57 (EST)
Hi, what a terrific site! I am a Christian wife, mom of two andRN. I suffered with severe allergies for over 30 years and also CFS for 11.5 years. Those years taught us much but I thank the Lord for a friend who shared a solution that worked It is well documented, nontoxic, environmentally safe, doesn't cost any new money and 100% guaranteed I would be glad to take time and explain what was shared with me almost 5 years ago and gave me back my life and my husband his wife and my kids their mom! I know not all things work for everyone, but I also believe we can be used of God to help someone else, so maybe I will be helping someone by offering to share. God bless and Merry Christmas! Jer 29 vs 11-14
Tracey Horne <hornerugby@aol.com>
ON Canada - Friday, December 17, 1999 at 21:50:26 (EST)
I found your site accidently while searching for a perfume,no less,for my wife-one she can no longer find locally.I believe all I've read at your site for I believe I have MCS.Once or twice a year I become very sensitive to my own after shave(Old Spice) and dish washing liquids,liquid laundry detergent and many other items.The effect lasts several days then I recover from it but usually wind up discarding many household products and try to replace them with "unscented" ones.I will spend more time at this site soon and will recommend it to many family members and friends.Thank you.
Manton B Bruce <mjmbruce@webtv.net>
Marstons Mills , MA USA - Tuesday, December 14, 1999 at 20:20:23 (EST)
Your Page is really good for school essays!
Rebecca
St.Johns, NF Canda - Tuesday, December 14, 1999 at 18:59:18 (EST)
Thanks for the wonderful info and testimonials. I too have multiple allergies that sometimes overwhelm my immune system. Keep the faith and good news online. GOD's PEACE B 2 U . When will the world see that WE NEED JESUS ???
P. K. Baker
Mabelvale, Ar USA - Saturday, December 11, 1999 at 02:47:25 (EST)
I have bookmarked your web page - thanks for the info!
G. Todd Giles <tnsgiles@pacbell.net>
San Diego, CA USA - Wednesday, December 08, 1999 at 13:52:56 (EST)
i have been looking for a web site like this for ages, fantastic, people dont believe you when you get sick from all the chemicals we ingest and absorb. now i have the evidence to backup the claim. keep pu the good work, regards annette and rob
rob <bonzo2@bigpond.com.au>
cairns, qld australia - Wednesday, December 08, 1999 at 06:14:16 (EST)
I have found this to be A very valuable and practical web site dealing with Environmental Illness. I copied your detox bath page. While I am not as sick as some, and better than last year, I still need all the help I can get. Thank you. Yours, sharing the love of Jesus: Dave.
David Watkins
Edgewater,, Fla. USA - Monday, December 06, 1999 at 00:18:20 (EST)
Very informative and helpful web site!! Thank you for all your time putting it together!!
Kimberly Shaw <KLShaw@rocketmail.com>
Kaneohe, HI USA - Friday, December 03, 1999 at 22:19:28 (EST)
It will be great if the testimony include the reference from the Bible.
maurice <mauriceyu@hotmail.com>
USA - Friday, December 03, 1999 at 00:56:58 (EST)
Hey! I am a member of the weigh down robin and I saw the link to your page. Needless to say, my time was very worthwhile-spent. You have an awesome web page, Good luck as you (and I) continue to journy through the desert! Phil. 4:13
Abby Spruill <steadfastfarms@mindspring.com>
Hoschton, GA USA - Thursday, December 02, 1999 at 21:06:02 (EST)
I have visited your website so many times and have given out printouts to friends and family on how to live toxic-free lives. I'm 23 years old and I am so glad to have come this realization at this time in my life. I'm going to give a speech to my class on Friday on this topic and hopefully I can help make a difference in someone else's life as you have helped me. Thank you so much.
Jeannette Monsivais <monsivais@utep.edu>
El Paso, TX USA - Thursday, December 02, 1999 at 00:56:48 (EST)
I Have MCS and am interested in learning more about NAET therapy. I heard that it can clear you of all your sensitivities 100% forever. Has anyone gone through this process? Does it work? Any side effects? Any information would be greatly appreciated. Also I have changed all my houseold and personal care products to all natural ones that really work, if you would like to know which ones e-mail me. Thanks Kim
">Kim Emmons <jemmons007@aol.com>
Maple Valley, WA USA - Monday, November 29, 1999 at 16:57:00 (EST)
Does anyone visiting this website live in a city with air pollution that you can visibly see? I am thinking of relocating to the West Coast, maybe Las Vegas, Phoenix, LA. But have just come back from a trip from Las Vegas and I couldn't believe the gross air pollution. Because I am sensitive to fragrance and tobacco smoke.. I am wondering if anyone here is affected adversely in these cities.. obviously it can't be good for us... but does it affect your ability to enjoy the outdoors? Do people with respitory problems get worse living in a city with smog? Any stories or info would be greatly appreciated.
Susan <circlebcas@aol.com>
IA USA - Monday, November 29, 1999 at 13:32:07 (EST)
It's nice to find a web site on natural living that is Christian based and not New Age. After all, it was God's plan to begin with. We try and live as natural as possible and have recently begun making our own soap. It's totally natural with no added fragrances. I could never use store bought soaps, the scent gives me a headache. For those who need all natural, gentle skin cleansers handmade soap is the best. There are many people who make and sell it (including us, we're Soap Wagon) and it is easy to make, look for books at your library.
Christi Sloper <JASloper@Juno.com>
Colorado Springs, CO USA - Friday, November 26, 1999 at 13:52:59 (EST)
YOU HAVE SUCH A COOL WEBSITE!!!!!!!!!!!!!
Yasi Zia <yasiz@yahoo.com>
Vienna, VA USA - Wednesday, November 24, 1999 at 20:20:28 (EST)
looking for as much information on MCS and Angioedema as I can find. Also looking for detox methods that work. Thirdly, looking for as much information on sick buildings as I can find. Thanks, Phyl P.S. Does anybody out there know about PCB's or PCV's in the blood? I need information ASAP. thanks
Phyllis M. Quigg <pquigg@uswest.com and pquigg@uswest.net>
Phoenix, AZ USA - Tuesday, November 23, 1999 at 09:35:23 (EST)
My sister in law (Lori) has been diagonised with CFS and Environmental Illness. It is very frustrating on her. She has been sick for over 2 years and isn't getting much better. She's very depressed, sometimes even suicidal. Any advice that you can give us would be greatly appreciated. Your story is very encouraging. I hope that some day, she will get a little better.
Susan Critch <scritch@mail.gov.nf.ca>
St. John's, NF Canada - Friday, November 19, 1999 at 14:06:23 (EST)
This web page was very informative and beautifully written. Keep up the great work!!
Sandy <Oxygenaire@aol.com>
SI, NY USA - Thursday, November 18, 1999 at 19:37:03 (EST)
Read an article about mcs in a magazine in the doctors office and wanted to get further infomration. I didn't have allergies, ashtsma or sinsus trouble until Jan of '98.
Brenda T. Simmons <bsimmons@mountain.org>
Circleville, WV USA - Thursday, November 18, 1999 at 08:23:43 (EST)
I am a christian mom who came upon your website as I was doing some research regarding my son Jalen. He was recently diagnosed with autism. It is so great to meet christians who share love for our great Lord and Savior. God bless you.
michele davis <coupie@prodigy.net>
buena park, ca USA - Wednesday, November 17, 1999 at 17:09:14 (EST)
I would like to know what kind of hair shampoos people with MCS can use. I have tried baby shampoos, pine tar shampoos etc. and still to no avail. I definitely react to soaps and fragrances. I seem to tolerate dandruff shampoos with anti-itch ingredients, but the one I could use was discontinued.(I hate when that happens!!) My only alternative is baking soda which does not sound so thrilling. Any help would be greatly appreciated. Thanks, Sheri
Sheri <naturesinspiration@sierratel.com>
Coarsegold, Ca USA - Wednesday, November 17, 1999 at 00:54:50 (EST)
I am a chemically intollerant person who was injured in a single event and since have had epilepsy and small strokes. I would appreciate hearing from people with these symptoms and how they treat them. I am most interested in possible herbal remedies that help. Thanks for this site forum.
Marcia <Sunsetjt@infomagic.com>
Flagstaff, Az USA - Tuesday, November 16, 1999 at 09:37:19 (EST)
You have such an informative site. I have had reactions to chemicals for several years now and have seen many doctors. Through trial and error, I became aware that I need to avoid fragrance--not necessarily smells, but the word "fragrance" on ingredient lists. After using someone else's shampoo last week and breaking out again, I got disgusted and decided to find out what about "fragrance" makes me sick. The information on your web page will make my life infinitely easier. I'm to the point that I can't even clean my house or be at home when someone else cleans it. It's good to know there are alternative products that will enable me to feel at least slightly useful again. Thanks for the info.
Deanna
IA USA - Monday, November 15, 1999 at 23:32:48 (EST)
what great info
DEbra <antonuci@flash.net>
sugarland, tx USA - Monday, November 15, 1999 at 20:51:18 (EST)
I am a concerned member of the following North Bay groups (I live just north of San Francisco): Environmental Health Network, Marin Beyond Pesticides, and the Health COuncil of Marin. I am very scared of our current lifestyle and the total denial of the evil in the products shoved down our throats by advertising. I work as a Home Health Aide, and the health professions are considered the most likely to be impacted by the chemicals used to "disinfect" the home and hospital room. thak you for your site, carol S
Carol Sterritt <cjsterritt@angelfire.com>
Sausalito, CA USA - Sunday, November 14, 1999 at 10:52:30 (EST)
my sister susan, has mcs--i am searching for assistance or help concerning safe housing, employment, support group, and a physician in her area. She has been living with this for about 2 years and we didn't know what was happening to her or even know about mcs until we found this website. she is having difficulity at work and fears she is going to loose her job. Also, we are trying to find her a place to live, she lives on second floor apartment and is having difficulty with other tenants perfume, fabric softeners and candles, ect. please help!!!!
michelle valatka <meich@epix.net>
dallas, pa USA - Saturday, November 13, 1999 at 16:26:30 (EST)
In the last year, this has become a real problem for me. It is effecting my job and career. I work with the public and it is becoming more and more difficult. Any scent now will set me off.
Renee Cordray <rencordray@prodigy.net>
Fort Worth, TX USA - Sunday, November 07, 1999 at 22:35:56 (EST)
An article in the NY NEWSDAY Newspaper of September 12, 1999 on pages H17 & 18 tells the story of the store Victoria's Secret and how they are putting perfume into the ventilators to be sent into the air when you shop. Sounds like when the Jews were put in chambers and they the poison was sprayed to kill them. America used to have free air. I will never go into a Victoria's Secret Store again. The air could kill you.
Kay <Ednanona@aol.com>
Huntington, NY USA - Sunday, November 07, 1999 at 02:43:06 (EST)
Greetings in Christ Jesus Thank you for your web site. Fourteen years ago I was told that I suffered from MCS. It has been a battle because most of the people I live around just do not understand what it is I suffer. Yet I went through all the testing, allergy shots, trying to clean up my environment and going on supplements. The supplements and additional health additives amounted to a stagering $200 a month. On one income we came close to banckupcy. It cost to live better. Some say well it's better than living sick. Well praise the Lord our God has a better alternative. After 12 years of doing it the way Doctors suggested and going broke I fell before my knees to God. He knows just what we are going through. It has only been by faith in Him that I am able to go shopping for our "needs". We live in a poluted world. Even the computers (we can not seem to live without) give off toxic fumes. We can not avoid polution all together. There is a verse in the Bible that tell us we will be exposed to poisen and not be harmed. We must do what the Bible does speak of. There is a verse that said we are not to mix fabric (cotton/& whatever). I just do not know where these verses are off hand, if you are interested look them up for yourself. God does intend for us to live as close to pure in spirit, soul and body as we can. We Christians are partily to blame for the environment, because we have not learned, nor taught our children the improtance of being good stewarts of the earth. Our God commanded us to take care of this planet. It is now up to us to turn the tide and take the God given responsibility to clean it up. I will not live in fear of polution for our God is greater. I know I have a lot to learn on just what it take to clean up my corner. So I am greatful for your information. Please pray that the others in my home will not only understand, but help also in the clean up. Thank you. Eileen Jennings
Eileen Jennings <hygbear@elpaso.net>
El paso, IL USA - Friday, November 05, 1999 at 08:55:35 (EST)
I am so happy I found your site! I too am frightened by the chemicals we all are exposed to daily and in fact I hope to write a book about it. Please add me to your mailing list. Thank you for the great work!!!!
cindi gortner <cggortner@hotmail.com>
Oak Park , CA USA - Friday, November 05, 1999 at 01:09:28 (EST)
Wow! I think the wife will want to look at this. :)
Paul Mahaney <vjames@ca-connection.com>
tehachapi, ca USA - Wednesday, November 03, 1999 at 18:50:02 (EST)
I also suffer from MCS
Cindy Shore <cshore@supernet.com>
Fayetteville, PA USA - Tuesday, November 02, 1999 at 06:30:11 (EST)
Thank you so much for sharing your MCS experience and so much information. I didn't realize that this was a diagnosed problem. When I explained the perfume induced headaches to my doctor, she told me not to eat cheese! I finally made this search with the onset of a particularly nasty headache. I feel insane when I tell people I can taste their perfume!
Cree <cree2k@yahoo.com>
KS USA - Monday, November 01, 1999 at 17:22:08 (EST)
My allergies to perfume have had a great impact on my work location. I think that the government must start laws to protect the environment from perfume hazards. When health is affected, the EPA must enforce a safer environment.
Linda <cresswell_linda@hotmail.com>
USA - Sunday, October 31, 1999 at 01:50:41 (EST)
I've spent the last 25 years of my life (I'm 40) walking through life as if I'm dodging a mine field. Holding my breath passing a smoker on the street, or crossing the street to avoid them. Being subjected to rude smokers in the car in front of me, who don't have the decency to keep their windows rolled up so they can breath their own toxic air, but instead hold their arm out the window as far from their nose, throat and eyes as possible, while the filthy stream of smoke makes a beeline to me in my car. I plan to see movies at off times so there are less people around so I can find a nice, cozy perfume free spot in the corner. Inevitably, with an entire theatre empty, a stink-scented person will sit near me, and I have to search for another space. A movie is somewhat easy, but when one has assigned seating venue tickets - I'm stuck "half-breathing" all night, not being able to fully enjoy. I practice yoga and even though there is a sign posted about not wearing any scented products, people walk in and permeate the studio. This is really tough to "breath deep," in a pose while not being able to take a full complete breath. Yoga is about nourishing the organs and nervous system... hard to do under those circumstances. I have to leave early, usually with a mild headache and nausea. I've finally started telling these people to please move since their scented product is making me sick. I'm going to print out some of the articles on this web sight and post them on the yoga studio bulletin board. I rent, and even though I have pleaded with the landlords to tell me in advance of any painting/repairing/spraying that they will do, they don't. Non MCSers just don't take it seriously. In the last 10 years I've pretty much had to shy away from public life as much as possible. I'd rather spend my days hiking in nature, wholesome and natural, then a nausea producing department store anyway. Speaking of department stores, 1 hour maximum, and then I am out of there, otherwise, I end up with a headache. As it is, after 10 minutes I get stomach-sick. 8 years ago I asked my doctor to write me a letter to give to my employer. It simply states that I am sensitive to scented and or toxic products, and bright light. Exposure will cause severe migraine headaches. This is great to have, although it still causes unenlightened people to be annoyed, especially if they have to make a change. I've been ridiculed so often for being "too sensitive" it's really sad. I can smell a fire, hundreds of miles away, when others cannot. I can smell chemicals upon immediate exposure, while the average person doesn't. When I'm teased I tell these ignorant people that I am actually stronger than them. While my body will get sick from exposure, it is also an advanced warning system. I shy away and run from toxic exposure, while the average person is breathing this stuff in, poisoning their body and not even knowing it. G-D did not create chemicals and I believe that even though it is awful to have this condition, I try to stay positive and look at it as a blessing. My intake of toxins is limited because my body says NO! I also have "outside" clothes and "inside" clothes. This way, any junk I've picked up from being outside, won't be transmitted on any of my belongings indoors. I don't wear shoes in the house.. you get the picture. Having MCS is a lifestyle. I think the hardest part is when I'm with other people. It's one thing to negotiate the mine field solo, but when others are with me, they get dragged along. I now just tell my friends, "when you are with me, my illness is your illness." I've lost friends because of this illness. They just couldn't put down that cigarette, or got embarrassed one to many times by my direct and outspoken combat in dreadful situations. I can remember when there were no "no smoking" laws and people smoked on airplanes. Once I was seated in the last row before the "first row" of smoking. I refused to be seated and told the flight attendent, if they didn't want to have an ambulance pick me up in Texas, they'd better move my seat. They didn't want to do it, but I stood my ground, causing the plane to be delayed by 10 minutes. That is one small sampling of what I and I'm sure the rest of us MCS sufferers go through. Always "fighting for health." Thank you for having this web page,it's comforting to hear other people's stories and to know we are not alone.
Susan <ddrinkmilk@aol.com>
Fairfax, CA USA - Sunday, October 31, 1999 at 01:53:10 (EDT)
I need help!! I have severe sensitivity to chemicals, perfumes and smoke. I am interested in knowing how to filter supply air into my 9 x 9 positive pressure office at work. I have 240 cfm inflow. I have a t-bar ceiling with supply and the return air is pulled from beneath the door giving me positive pressure and reducing the inflow of contaminated air. A 7" HEPA filter restricts air flow too much. What type of filter, including qualification of carbon and/or charcoal and HEPA filtration that will minimally reduce air flow.
Linda Risk <shasroad@snowcrest.net>
Redding, CA USA - Friday, October 29, 1999 at 16:20:19 (EDT)
Dear Jacki: Thanks for your story. It is so encouraging to know that you are getting stronger, especially since God is your source of strength. I am a believer also. I can relate to your story as well. I am recovering from being poisoned by intravenous steroids my doctor gave me because he thought I had Multiple Sclerosis. The steroids poisoned my body and blew out my thyroid. They wanted to give me radio-active iodine to kill my thyroid and put me on a drug called thyroxin for the rest of my life. I now know that what I was suffering from was an epidural gone bad during the birth delivery of my son in June of 1998. The epidural produced a lot of neurological dysfunction that symptoms of MS would produce. I told the doctors that I was not going to take the radio-active iodine and that I would heal my thyroid naturally. He just laughed and said that my case was the worst he has ever seen and that I would be the first to heal my thyroid. Well after 8 months my thyroid is almost completely healed due to a number of treatments that might help your disorder. My treatment included, acupuncture, chiropractic, homeopathy, and "engergy work or rebalancing", and chelation therapy. All these treatments brought me back from the grave and radically changed my immune system. If you are interested in understanding more about any of these treatments, e-mail me at my husbands address and I will write back to you. In His Care, Paula R.
Paula Reinhardt <ericr@spade.net>
CV, CA USA - Friday, October 29, 1999 at 04:08:42 (EDT)
My oldest daughter suffers from MCS, and is a patient of Dr. Doris Rapp, Scottsdale, AZ. Dr. Rapp has published some wonderful, informative books...("Is This Your Child's World?" and "Is This Your Child?") My daughter's allergies have turned her world (as well as ours) upside down. It is a very REAL problem, and it needs to be recognized as such. People are very quick to disregard anything they don't understand, and to label people negatively who suffer with MCS. It is sad to think that people need to have something like this hit home in order to accept that MCS really does exist. It is a devastating illness....I know...I have seen it first hand. God Bless the canary in the coal mine...it could be you.....
Kim <joekim88@postoffice.ptd.net>
PA USA - Thursday, October 28, 1999 at 20:10:16 (EDT)
A truly insprational page, made me realize I need to put my trust back in Our God Almighty.
Jennifer <CoBen1330@aol.com>
LaBelle, FL USA - Wednesday, October 27, 1999 at 22:59:04 (EDT)
Great site, well put together. Thanks for the wonderfule information. :)
Francine Day <dayf@nbnet.nb.ca>
Moncton, NB Canada - Sunday, October 24, 1999 at 17:35:12 (EDT)
Fantastic page
James Boone <jbbonaire@aol.com>
Bonaire, GA USA - Saturday, October 23, 1999 at 20:15:01 (EDT)
Your site is fascinating. I've known now for 2 years that I suffer from MCS but in my region it is not recognized and no one seems to know much about the disease and even less the medical staff in our city. Do you know any association in Canada that has info on enviromental diseases or how can I inform the population of the risks they are at, etc... How to get proper treatment, etc. Thanks for your help? And again, congratulations on your site. It is very informative and helpful. Line
Line Deshaies <a.p.q@sympatico.ca>
Rouyn-Noranda, Canda - Wednesday, October 20, 1999 at 12:26:46 (EDT)
QUESTION: What is the problem with jute backing in area rugs? Debra's book says that jute is not desireable. Is it a structural problem or a chemical/toxic problem? My wife and I need to know in order to make an informed purchase. Thanks.
Roger Fjerstad <rlf@rosenblum.com>
Sunnyvale, ca USA - Tuesday, October 19, 1999 at 15:29:18 (EDT)
Thank you, thank you! What a comfort to know of other sufferers and know that I am not just overreacting! If anyone out there knows where I can turn to get excused from Jury Duty, please let me know. My doctor will not support me in this and the last time I was called, I became so ill around my well-scented co-jurors that I could not even walk back to my car! Thanks again. Jocelyn
Jocelyn Chaparro-Mikolka <JrHarpy@aol.com>
Gloucester, MA USA - Monday, October 18, 1999 at 19:03:44 (EDT)
In response to knowledge of a fragrance free workplace. I know and have heard of only one and am glad to tell about the wonderful people who support their fellow employee. It is a non-profit organization called the Grand Canyon Trust. There are 30+ employees and 1 chemically sensitive person. The people I have spoken with are very supportive and understanding. It is an environmentally concerned group and I commend them all. I do not work for them but wish I was able. I also wish people who are connected to the petrochemical industry would stop interjecting their propoganda into environmentally concerned websites. It is discusting and hurtful. Thanks again for your wonderful website.
Marcia <sunsetjt@infomagic.com>
Flagstaff, Az USA - Monday, October 18, 1999 at 10:02:57 (EDT)
I just wanted to say that I'm extremely impressed both with the amount of researched fact presented on your page and with the way the people presenting their stories persevered in finding the true cause of their illness. It's scary--I read your page and noticed that I suffer from MANY of the symptoms of MCS...I shall have to do more research. Please, keep informing people about the dangers of perfumes...as an organic chemistry major at Bennington College, I can tell you that I work very closely with ethanol, benzophenone-2, and acetone, all of which can be found in perfumes by Calvin Klein, Armani, Versace, and the Gap, to name a few. I would like to recommend that you look into one company: Aveda. Aveda claims that its fragrances are entirely plant-derived, are never animal tested, and are biodegradable. See them at www.aveda.com (no, I'm not a salesperson for Aveda, but I find that it's very easy and enjoyable for me to use their products). Take care, and thank you! Regards, Abby Summar
Abby Summar <asummar@bennington.edu>
Bennington, VT USA - Monday, October 18, 1999 at 03:05:34 (EDT)
Thank you for this wonderful site explaining Multiple Chemical Sensitivity, Alice
Alice Wells <canaryalice1112@hotmail.com>
San Angelo, TX USA - Monday, October 18, 1999 at 00:30:53 (EDT)
I came across this site while looking for a water treatment system and air filtration system for my home. If anyone has information regarding either, please E-mail me at HEOtto@aol.com. The information this site provides only confirms my suspicions regarding the connection between environmental conditions and overall health. Thank You.
Heidi Otto <HEOtto@aol.com>
Clifton Park, NY USA - Sunday, October 17, 1999 at 14:53:05 (EDT)
Please forward this message to those on your lists and address books who might be interested in avoiding radiation hazards due to possible y2k computer/human errors. We MUST act now -- We CAN make a difference (through cyber-democracy!) There is power in numbers. Go to website dedicated to y2k nuclear risks, containing back-up information AND quick ACTIONS, w/easy-follow directions to email petition to governors in each state, sign onto the World Atomic Safety Holiday (WASH) petition, send emails to ALL elected representatives in seconds, and/or world leaders. Very important to get this out to as many as possible and as quickly as possible. http://www.mothersalert.org/
Mothers Alert Org. <mothersalert@yahoo.com>
ny, ny USA - Saturday, October 16, 1999 at 16:35:46 (EDT)
Check out this site. http://sites.netscape.net/hound3usa/health
N/A
n///// USA - Saturday, October 16, 1999 at 05:25:26 (EDT)
I feel for everyone and would like to say that this site is a good one. I would also like to say that there are companies out there that make green products (toxic free and 100% ready to return to nature. Email me and I'd love to help you out and send you information.
Ryan <houndL_2@yahoo.com>
Alexandria, Mn USA - Friday, October 15, 1999 at 14:43:57 (EDT)
I've suffered from MCS for a number of years, but was unable to locate any information until I began researching fibromyalgia which I was just diagnosed with this week. I am so happy and blessed to finally find a source that can provide me with the necessary information to help clean up my environment. I've been removing a number of toxins from my home, but through your site have learned a number of new ways to help protect myself and family from these dangerous and deadly products. Also, I loved your reference to the miners using canaries in the coal mines because, for years, I've told people, "I'm your canary. You better pay attention to what's happening to me because you're headed down this road, too." God bless you!
Marti Robbins <mrobbins@oecadvantage.net>
Noble, OK USA - Friday, October 15, 1999 at 11:12:42 (EDT)
I would also like to be informed if anyone knows of a fragrance free workplace. I became super sensitive to chemicals, perfumes and smoke after I was exposed to a toxic chemical seven years ago. shasroad@snowcrest.net
Linda <shasroad@snowcrest.net>
Redding, CA USA - Wednesday, October 13, 1999 at 13:48:01 (EDT)
Does anyone have any information on fragrance free workplaces? I am interested in finding one to work for, I am even willing to relocate to find an office setting that demands clean air and no fragrances from it's employees? Thank you for any info anyone has!!!!
Susan <ironmac2@aol.com>
ia usa - Wednesday, October 13, 1999 at 13:32:28 (EDT)
Very pleased with the information I have just read on your website. I too faced serious health problems, but found some products that not only cleaned the air around me, but cleaned out the chemicals inside my body with all natural, organic supplements. I started a detox program that changed my life in a week. I would love to share these products with other people who need help with their medical conditions. I praise the Lord daily for bringing these products to my attention. I love to share them with others!
Christi Bovee <jonbo@ligtel.com>
Shipshewana, IN USA - Wednesday, October 13, 1999 at 10:11:10 (EDT)
Hi, I would just like to tell you that chlorophyll is not toxic. Chlorophyll comes from chloroplasts, witch is what gives plants their green colour and allows plants to carry out photosynthises. Chlorophyll is actually good for us! I just thought I would clear that up for everyone.
Steph <anmbia@yahoo.com>
Toronto, ON Canada - Tuesday, October 12, 1999 at 18:57:45 (EDT)
You are an answer to prayer...with wisdom from the Lord! Thanks for helping me.....SO MUCH! I'm developing a new philosophy...."if the Lord made it, I can receive it and pray over it with thanksgiving. If man has monkeyed with it, watch out!"
Jeannie Poole <poolej@mdot.state.mi.us>
Charlotte, MI USA - Tuesday, October 12, 1999 at 09:18:05 (EDT)
I have a cock-a-poo 16 weeks old, his name is Benny. He is 15 pounds already. We think he will be bigger than anticipated. You have a great web page thanks.
Susan
Burlignton, Ontario Canada - Monday, October 11, 1999 at 11:03:56 (EDT)
Dear Gordon and Jackie, I have used your website as a source for my economic research paper. It was the main source for my paper. I really love your website!! All those great ideas to help save the environment are great!! I love the one with the lemons as an air freshener. The only problem I really ad with this particular source was the bibliography part. But I'll figure that one out. Thanks again and keep up the excellent work!!
Kate <Absolut105@aol.com>
NY USA - Thursday, October 07, 1999 at 22:10:37 (EDT)
My boyfriend has many of the symptoms of MCS. The symptoms control his life. I try to help but there is only so much I can do. Is there any way to get tested for this? Whenever he goes to see a doctor, he is prescribed allergy medicine that doesn't seem to help. The doctors seem to think he is crazy. I would like help finding a doctor in the southern California area that can help us. Thanks!
Karen <kplorax@aol.com>
San Diego, CA USA - Thursday, October 07, 1999 at 17:18:55 (EDT)
I would very much like to hear from other MCS sufferers, as I don't have the correct, browser I can't get in alot of chat rooms, I really am sick and I need a doctor in Northern California, its life or death, believe me.
Lupe Herrera <lupeh@inreach.com>
Manteca, Ca USA - Thursday, October 07, 1999 at 01:09:30 (EDT)

Has anyone had any dealings with Abba Terr, I heard he goes around the country attacking people with MCS, he says it's in our head!
Lisa <westie43@hotmail.com>
LA USA - Wednesday, October 06, 1999 at 23:03:40 (EDT)


Thanks for the info. your site provides. I'm another "canary" who is largely home bound because of MCS. While I wouldn't wish MCS on anyone it helps to know there are others who struggle with the many bewildering symtoms of this man-made disease.
Patrick Hooker <pat_hooker@hotmail.com>
Wasilla, AK USA - Wednesday, October 06, 1999 at 20:43:07 (EDT)
Can anybody out there please help me?? Would you know where I could get information on defective gasoline nozzles or who would keep data on toxic exposures involving gasoline nozzles? I have been told that this type of accident doesn't happen very often, but with God as my witness, I know it happened. I was told that the safety lever on the nozzle probably malfunctioned but proving it is something else!! It was a Emco Wheaton nozzle and the accident happened here in California in 1994. What happened was I put the nozzle in my car and put it on automatic fill. I then stood back a couple of feet so it could fill. When it was finished, instead of shutting off like it was suppose to, it popped out of my car and like a loose water hose, soaked me in gasoline. I had to go over and manually shut the machine off as gasoline was going all over. I burped up gasoline fumes for weeks and this exposure left me a toxic nightmare. As a direct result of that exposure, I have a full blown case of MCS. I have been told I have to prove that the nozzle malfunctioned in order to prevail in court. Does anybody know where I might find this information out?? Any help on this would be greatly appreciated. Thank you
Sheri <naturesinspiration@sierratel.com>
Coarsegold, Ca USA - Wednesday, October 06, 1999 at 17:33:20 (EDT)
I tried to send an e-mail via your homepage after reading Jackie's story as it sounds a lot like me but don't think it worked. Would like to talk to someone like Jackie as I after being diagnosed with CFS and Fibro now have seen a doctor who says MCS and has me on a rice and veg/fruit diet and I'm really sick on it. Need help.
Blakely <bamidon@prodigy.net>
USA - Tuesday, October 05, 1999 at 12:11:23 (EDT)
I suffer from MCS and it is soooo comforting to know there are others out there like me. I believe it has to be one of the most misunderstood medical conditions of the 90's. But, we are not alone and our numbers are growing. As more and more chemicals and chemical products are introduced into our environment, "they" will become us, and then "they" will understand what we have been trying to tell "them!!" Until that time comes, it is up to "us" to scream, shout, call, write, or whatever it takes, to make "them" realize, we are for real, we are sick, and we are NOT GOING AWAY!!! Awesome web site, I feel like I found HOME!!!
Sheri <naturesinspiration@sierratel.com>
Coarsegold, Ca USA - Tuesday, October 05, 1999 at 02:34:24 (EDT)
I have turned the problem of going to church over to God. So far the Chapel that my husband and I belong to just kind of laughs at the problem of perfume causing my asthma attacks. It will work out. In the mean time I know how to read my bible and watch church shows on the television and now I feel God has led me to the web. Thank You Mickey
Mickey <luellal@prodigy>
Red Feather, Co. USA - Monday, October 04, 1999 at 21:23:01 (EDT)
Dear all, I found it very strengthening to read about so many other people who suffer from similar problems to myself. I have had fragrance sensitivity for about 5 years now and as many of the correspondents have found have had to completely re-organise my life. Hopefully though my bath is less than sparkling my eyes are more so since they aren't puffed up, red and itchy. I would be happy to contact anyone in the UK (or elsewhere of course) particularly so that I can pass on to any other women some of the products available here that I have found out through trial and error are suitable for my skin. Though not of any particular faith, I find inspiration in aspects of many religions, I quite like the phrase that Irish commedien Dave Allen would use at the end of his programme "...may your God go with you" love Katherine.
Katherine <phillipskatherin@hotmail.com>
London, UK - Monday, October 04, 1999 at 19:17:16 (EDT)
I wanted to thank you very much for you very informative website on CMS.. I KNOW without testing I do have these allergies, and almost everything written in your site have confirmed this. I have taken cleaning products, beauty products out of our home by my own instinct, since I have allergice reactions to these, and over the years have gotten rid of the majority, but now with your help, we can use alternative, safer products to clean our home, and for our beauty needs. I have food allergies as well, hay fever,and am miserable too often.. it can really get depressing if you don't know what to do to make things better. Thanks so much for your input. We are a Christian family as well, so I know God has led me to your site on purpose! I really needed to find it at this time in my life.
Lynn <HC220@aol.com>
IL USA - Sunday, October 03, 1999 at 14:02:47 (EDT)
great stuff...
Simony <cleannatural@aol.com>
daly city, ca USA - Sunday, October 03, 1999 at 00:14:29 (EDT)
THANK YOU THANK YOU FOR THIS WONDERFUL WEBSITE. PEOPLE THINK I AM CRAZY AS A CONSTANTLY HAVE TO DODGE ALL THERE POLUTENTS. NOW I HAVE SOME PROOF FOR THEM. KEEP UP THE GOOD WORK - WE NEED PEOPLE LIKE YOU. I WILL PASS THIS INFORMATION ON AND TRY TO KEEP EDUCATING PEOPLE. GOD BLESS YOU BOTH. SHERRI
SHERRI WALDECK <WALDECK222@aol.com>
DELAFIELD, WI USA - Wednesday, September 29, 1999 at 15:50:45 (EDT)
Wanted to thank you for a great web-site. I have found that Vasomotor Rhinitis is possibly some people's reaction to things on your site. There are nasal steriods that reduce the symptoms to the exposure to perfume. NASONEX is an EXCELLENT prescription that really helps cut down on the syptoms. I want to spread the word.... hope this might help someone. Thanks Susan
Susan <ironmac2aol.com>
IA USA - Wednesday, September 29, 1999 at 13:19:26 (EDT)
Howdy! I can't thank you enough for this web-based ministry! I don't know if you view it that way, but I sure do! I just printed out Roberta's article and am planning to send in for copies! I have ADD, asthma, MCS, irritable bowel syndrome & osteoarthritis and am in the beginning stages of MS and Parkinson's disease. I'm 46 and I work in a large, open office building. I have friends in their 90s who are in better shape than I am, and my doctor says that I have environmental pollutants to thank for at least most of my current health problems. When I have gone to my supervisors they have told me that they "can't ask people not to wear perfume"; at the same time, they "asked" me not to meet a couple of friends in the lunchroom for Bible study during our lunchbreak! It seems that it "annoys" some people! (I'll bet it won't kill them, no matter how long they're exposed. Could they claim the same for perfume?) I'm just so glad (well, not exactly glad at others' misfortune, mind you) to discover that I'm not alone--there is a name for what I have, other people have it too, and someone out there is advocating for our interests! God bless you, Jackie! God bless you all!
Michael P. King <michaelpking@hotmail.com>
Spring Valley, CA USA - Wednesday, September 29, 1999 at 01:06:36 (EDT)
A very inspiring site. Thanks.
James Morrison <JMorr14901@aol.com>
louisville, Ky USA - Tuesday, September 28, 1999 at 10:55:49 (EDT)
I have just spend the last few hours absorbing the information in your website. I am a elementary school teacher and have a child in my class who suffers from MCS. Your site has given me much insight to her condition and this is much appreciated.
Jessica <jess_ica26@hotmail.com>
Cobden, ON Canada - Monday, September 27, 1999 at 23:59:22 (EDT)
found site very helpful. one of the few resources available on scents and health
peggy chipman <r52plc.morgan.ucs.mun.ca>
spaniard's bay, nf canada - Monday, September 27, 1999 at 18:42:17 (EDT)
I want to be active in getting laws passed - and in also forbidding open leaking fragrances from being sent in the mail and in magazines etc. Please contact me. I can get MANY people to write letters etc.
Sherry Cooper <Truthseekermiami@Yahoo.com>
Miami, FL USA - Saturday, September 25, 1999 at 14:59:03 (EDT)
Thank you for the helpful information! My prayers are with you regarding your health and efforts to educate others.
Teresa Green <TeriVonne>
Spring, TX USA - Saturday, September 25, 1999 at 14:51:07 (EDT)
Your websight is so informative and incredible wonderful. I have been suffering from asthma and have been searching for answers to make myself healthy. Through this websight I have learned things I did not know. I want to change my way of living, and I'm sure this change will help me to becoming healthier and being able to breath better. Thanks so much.
Joyce <joyvia@aol.com>
Santa Fe, NM USA - Wednesday, September 22, 1999 at 23:15:19 (EDT)
I found this site through Oprah.com and was very interested in MCS. I had never heard of it before. I am already making changes in my home to get out alot of the toxins . Thank you for this eye-opener!! Hopefully it will help with the allergies and sinus problems my family and I deal with all the time.
Diane
USA - Wednesday, September 22, 1999 at 13:32:00 (EDT)
I have always been sensitive to lotions, sunscreens,cosmet- ics, and perfumes. I have found some products that agree with me. Please contact me if interested. 1-888-373-8656, toll free, or skymandarous@cs.com.
Dawn L. Drue <skymandarous@cs.com>
Social Circle, GA USA - Wednesday, September 22, 1999 at 10:07:41 (EDT)
I have had MCS for ages but was not diagnosed until a few years ago and then by a lawyer! I also have CFIDS and wonder if they are not the same disease. I used to be able to go to beauty shops and would tellthem not to use hair spray on me but they would never listen. Thanks for this site, Alice
Alice Wells <canaryalic@aol.com>
San Angelo, TX USA - Tuesday, September 21, 1999 at 02:31:39 (EDT)
Jason Rush and unthinking doctors like his mentor Stephen Barrett, M.D. may cause much pain in many people like me. Sadly there is a fast growing number of sick people all over the world who are allergic to pesticides, perfumes and other petrochemicals... It is difficult for us to enable our immune system to recover without avoiding them. Sadly I often find that many of these detractors are largely funded by companies whose products poisoned us and now make us ill when we encounter them.
Sandy Perceval <sandy@templehouse.ie>
Sligo, Ireland - Saturday, September 18, 1999 at 15:25:12 (EDT)
Seldom have I seen a website so credulous, and yet so condescending, as yours:

"This brochure is written with your situation in mind. It's understandable that you may feel puzzled, annoyed, hurt, intimidated, or even vaguely insulted by a request to leave off the scented stuff when you're going to be around a certain person or going to be in a certain space. How are you supposed to understand this request when you've never had it explained to you before? Here's your chance to understand--and to protect your own health at the same time."

Here's a page you will like. NOT. Scroll down and click on "Multiple Chemical Sensitivity":

Fad diagnoses
Jason Rush <rush@citylinq.com>
Seattle, WA USA - Friday, September 17, 1999 at 20:25:46 (EDT)


Hi! I have fibromyalgia, osteoporosis, osteoarthritis, carpal tunnel. I took an early retirement from my job as administrative assistant at the local college in January. I had surgery for cervical radiculopathy in June. I'm just beginning the Hallejuliah Diet. It's hard to get fresh produce here in Glendive, and I've stopped eating acidic fruits because of cold sores. Sometimes it's hard to have enough fresh fruits and vegetables to feel satisfied. I do feel clearer in my body and mind; and, perhaps even more energy! I plan to hang in there until I get it figured out. I'm afraid to drop the calcium supplements and Ambien (for sleep). I was able to go off Prozac little by little by the use of Blue-Green Algae this year, but it took a reduction six months and complete six more months. I appreciate this opportunity to get better and get my body in line with my soul and spirit. I'm also reading, "Shattering Your Strongholds" and "Breaking the Power" by Liberty Savard to get my soul set free! May the Lord's saving grace touch all of the lives writing in.
Sharon Snell <slsnell@mcn.net>
Glendive, MT USA - Thursday, September 16, 1999 at 16:31:07 (EDT)
thanks,i need any input anyone has regarding TCE,triclorethylene(sp)
s.alden <saldenocw@yahoo.com>
bremerton, wa USA - Wednesday, September 15, 1999 at 23:59:02 (EDT)
I see that no entries have been entered since Apr 1999, I assume it is just behind. Here goes anyway. I am new to the internet and have looked forward to communicating with others who are similarily afflicted. I've been ill since 1991 from a single toxic exposure on the job. Big education. At this point I would like to share information and interaction. It is good to find such a site on the internet. I did see an entry from Belle concerning bladder pain and bloting pressure--I have found eliminating hormone impregnated meats and staying strictly with organic fruits and vegies most helpful. thanks to the site manager.
Marcia <sunsetjt@infomagic.com>
Flagstaff, Az USA - Wednesday, September 15, 1999 at 16:51:20 (EDT)
I have extreme sensitivity to chemicals, smoke, perfume and any other scented materials. My life changed 7 years ago when I was exposed to a toxic chemical at work and it has been a nightmare every since. I've learned lots of things on my own because I didn't know there was all this help out there.
Linda Risk <shasroad@snowcrest.net>
Redding, CA USA - Wednesday, September 15, 1999 at 13:58:08 (EDT)
I have recently been diagnosed with chronic fatigue syndrome, a metabolic disorder and many allergies. I was just doing a web search to find out more info on these and I came across your site. I am also a Christian and found it a pleasant surprise with the two combined!
Michelle
USA - Wednesday, September 15, 1999 at 04:27:03 (EDT)
Thank you for your information about the toxins in our lives. I am one who is spreading the word. Your information will help me to help others.
Penny <pensw@hotmail.com>
Albany, wa Australia - Wednesday, September 15, 1999 at 04:20:46 (EDT)
Very interesting page ! We are a supplier for hypoallergenic products specially for personal care and pharmalogical syndet soaps in Germany. Best regards Guido Appl - Marketing Manager Impag GmbH Fritz-Remy-Str.25 Germany 63071 Offenbach/Frankfurt
Guido Appl (Impag GmbH) <appl@impag.de>
Offenbach, Germany - Monday, September 13, 1999 at 05:50:22 (EDT)
After an episode with bleach,i have sensitivity to so many diff. things now. The only good thing is that now i can smell things about 5 min. before everyone else!I wish you could take a deep breath & smell nice, fresh air!I realize it isn't gonna happen anytime soon!The worst is in summer=all of the fertilizers on lawns=you ask me=i think the grass was greener before all the junk they put in their lawns=It's nice to know i'm not alone & i'm not crazy! thanks for the opportunity to share my feelings=
Dee <deehezv@yahoo.com>
Cleveland, Oh USA - Sunday, September 12, 1999 at 02:47:24 (EDT)
May the Lord bless all of you responsible for this wonderful site. I suffer from multiple chemical sensitivity. If anyone can recommend me a Dr. specializing in chemical sensitivity near Simi Valley, CA, I would appreciate it.
Angel Garcia <Lourdes45@aol.com>
Simi Valley, CA USA - Saturday, September 11, 1999 at 02:42:27 (EDT)
A very informative and interesting page. My Mom, sister and I have all been diagnosed with EI. It has been a long, exhausting process for us. Our symptoms vary between us. Our families have been very understanding and patient with us ( at least most of the time). It was difficult admitting I had such an illness. Only after observing my sister for some time and listening to her discribe me(when she talked about herself) did I realize it was time for a lifestyle change. That has been six months ago and the difference in myself is amazing. I am no longer tired, my migraines are fewer, I have tons of energy, my back pain has gone, and my knees no longer swell unless I enter a mall (formaldehyde)yuck! Praise God for opening my eyes. Keep up the good work and ignore the negative comments. They are only out of ignorance. God Bless!
Bernice
Miramchi, NB Canada - Thursday, September 09, 1999 at 15:37:21 (EDT)
I have MCS among other health problems due to expose to Dursban. Does anyone know of any support groups located in the Lafayette, Louisiana area?
Lisa <Lisa9454@aol.com>
Lafayette, LA USA - Wednesday, September 08, 1999 at 18:57:31 (EDT)
I really enjoyed your site. I found out information that I did not even know. I am a founder of a support group in my rural area. I was looking for information on chemical sensitivity; and guess what I got your site. Very impressive. Also I would like to know if I can include your URL onto my site. Please let me know. I think this will be very informative for my support group or anyone who decided to surf the net. One of our symptoms for Fibromyalgia is chemical sensitivity, toxics, and perhaps aluminum. Thank you. Susan
Susan <ladyisis@videotron.ca>
Montreal, PQ Canada - Tuesday, September 07, 1999 at 17:49:50 (EDT)
Thank you so much for sharing your story, but more for providing the wealth of information you've accumulated. I have made some progress in fixing my home environment, but was having a dreadful time at work with one lady who just "had" to wear perfume -- because she smokes! That made two reasons I couldn't get anywhere near her, and it's such a shame, for I am missing out on knowing a coworker who is also a Christian. God bless you in your recovery.
Pat Ockrassa <pattyo@ctaz.com>
Kingman, AZ USA - Monday, September 06, 1999 at 02:15:59 (EDT)
My mother has lived with MCS since 1988 due to pesticide posioning confirmed by EPA.
dragonette2
USA - Wednesday, September 01, 1999 at 20:03:09 (EDT)
I really never had problems with any allergies till my husband wanted to live close to his parents. The city we moved in has a large paper mill and appx. 40 percent of the city and surrounding cities work for this company. My problem is some days my face is bad when they clean the filters and last 4 years allergic to any kind of chemiacals. I have to air circulating when i use any chemicals at home or work. My husband had always been allergic to powdwers and perfumes. So when cleaning needs to be done he does it for me. You never find a husband who will do that for you. Would like to get any info if anyone can suggest any body who sells some products so i can take over. Because in 3 months i am going to work part time instead of full time like i was . And house cleaning is going to be my duty when i start. Because he was a home daddy he did the cooking, cleaning and more more.so he was full time and now its my turn to work part time and take over.... Also with this paper mill know matter what people say you can not get the smell out of your house .... Does any one have any suggestions because i have to watch what i use because it takes my breath away or my husband gets head aches or clogs up....... Thanks for any support or info who i can write to.
marcele branigan <marcele@charternet>
bogalusa, la USA - Tuesday, August 31, 1999 at 11:55:06 (EDT)
Thanks for the very healthy tips and information. Sincerely, Barbara Reilly
Barbara Reilly <BRPekes@hotmail.com>
Tequesta, FL USA - Tuesday, August 31, 1999 at 10:02:55 (EDT)
Hello. I work at HUD in FHEO. I had a call from a woman who is living in Santa Fe, NM. She has Multiple Chemical Sensitivity. I told her I would look on the internet for some help for her in finding housing in Santa Fe. Is there any information you could share with me? My phone number in Ft Worth is 1-888-560-8913. Thanks, Judy Walsh
judy walsh <judy_walsh@hud.gov>
ft worth, tx USA - Tuesday, August 31, 1999 at 09:03:52 (EDT)
Hope that I am able to get into a support group as I am feeling very isolated with this mcs illness.
Jean F. <4jc@landmarknet.net>
E. Wakefield, NH USA - Monday, August 30, 1999 at 23:32:10 (EDT)
What a surprise for my first web experience. I am in the process of reading all comments of those who care and are concerned about anyone who has the multifacited reactions and symptions of MCS and Environmental Illness. I have the "EI" illness and have had an extraordinary amount of help from my devoted mother but also friends. This help would cover every area of my life. Doctors, nutritionsits, stores,biochemists,owners and makers of bedding, clothing,etc.also carpenters,intallation workers(all had to be "chemically free just to enter the home.... porches,floors,cabinets, some part of walls had to be covered with a special tinfoil vapor barrier...even the tape had to be outgased. The special unsprayed food goes without saying..I haven't had the luxury of a mattress or pillow for years. And it was this year that I was able to find and use a wool blanket that is washable...a real joy. Then of course there were the concerns with new telephone wiring or the PVC emissions from all plastic...so everything had to be purchased second and thirdhand...a joy again once the item is found safe and useable. A television or VCR or normal things of this nature were out of the question. Shampoo and soap that was said to be environmentally safe and non- toxic was not safe for me. Friends came outside to visit clad in showercaps big hats sometimes a special sheet known as barrier cloth that was specially made for me with a special thickness...I would alwlays take pictures with laughter and smiles because my friends(there are only a few "treasured") were willing to let their pride stay home and the sacrifices were made - just to be with me---and usually I was not alert mentally but I pushed my personality to the limits to be enthusiastic, tolerant, optomistic and grateful. These are memorable times for me as well as my friends. They tell "nancy" stories with laughter and genuine concern as well. Now I want to tell you this giving was not the same for any of my immediate family as is often the case with all of us. My father who passed away last year with cancer of the heart and lung could not give up smoking and I was only able to see my father who lived 45 minutes away perhaps once a year and then only for a few minutes. The last time I saw him, I was crossing the street from a memorial service of my aunt (the entire immediate and extended family all had to give up perfume, hairspray,deodorant,etc just so I could risk attending the service..which I needed so much to be a part of)..anyway, there was my father coming out of his apartment building going to his car. How I wanted to hug him,but couldn't because of the scents,etc. These are the heartbreaking truths of our lifestyle and effects of the disease discriminating against none. The ills of the disease...the suffering, the isolation...the judging and abuse of Doctors and laymen is overwhelming. Yet there is hope for everyone..each individual will find with the help of others(those who are fortunate to have a Care-provider) or those who can gently share,care and pray with those who are not-so-fortunate...we together can offer what we can when it may be helpful to others. Fear is real for many. Attacks,episodes,reactions...they are real. Support can come in many ways. There are organizations that will have people write chemically-free cards (in pencil) of ecouragement, some will pray if you desire them to. Others, will send you cassettes and videos free of charge relating to this illness = still others will send entertainment videos or books on tape whatever one desires ==free for the asking. There are pamphlets to be given to Doctors, lay people and churches. These are put together by Care,Prayer and Share out in California by those who have the disease...also for those with Chronic Fatigue, Epstein Barr( a true virus acknowledged by doctors when you confront them),etc... Most often,one of us somewhere has been through something similar.. Just for info...I have tried many different treatment modalities and had times of great encouragement and energy success physically. We're individuals. I don't really recommned treatments..but I do share soures for information if I know of anything that may be helpful so one can make their own choices. Anyone desiring to share who is supportive of illness, feel free to e-mail me. I do not entertain or accept those critically accusing those who are suffering in any way. I don't even read the mail--I just discard. All the best to everyone seeking help......Yours, sincerely....Sunnysideup2... I forgot I wanted to add that I was a Tour Director when the symptoms became debilitating. I was exposed constantly to new rugs, paints,bug sparys,construction in hotels,etc.I had no idea what was wrong with me. Giving up something I loved that I felt was rewarding and joyful for others was quite painful. It was determined that in my case I had problems that were Candida- related. When I was younger and took antibiotics as a teenager, it exacerbated my condition in later years when I unknowingly ate things like sugar and carbohydrates which the candida thrives on..This was my underlying condition which caused my immune system to weaken over the years...making me more susceptible to the adverse reactions of man-made chemicals...Such as is common with the constant exposure to bug sprays, paints,chemicals in new rugs...etc. My system could not protcect itself from the onsloght and thus began to break down to a noticealbe degree. This is when I began to seek for help. At that time "nutrition" was an up-and-coming interest for so many of us..I started making phone calls to Doctors presenting my concern for "nutritional" help. I was quite fortunate to get help for a Doctor in Westport, CT who had a Phd in Nutrition and had spoken at the UN,etc.. He also helped me with vitamins,minerals etc... When one company brand caused a reaction,he would help me with another. I benefited from his knowledge where he was skilled and went on to others when I hit the roadblocks and intolerance due to ignorance, imaptience,prejudice,pride and doudbt. I moved on one step at a time..even when a piece of my heart was broken or shattered as those I respected for their knowledge rejected me for mine. I read all of Sherry Rogers' books ("Tired or Toxic" "Twentith Century Disease (Environmental Illness" - and her others..) I read everything on Candida...perhaps then about 20 books...I had research Librarians in different libraries help me with obtaining medical journals and had them help compile data. I moved to Florida and hooked up without another nutritionist who had a PHD who suggested that I might have the EI Syndrome. I was by now wary of any suggestions and decided to just make 1-hour appointments with her to have her talk to me --based on my blood tests non-functioning thyroid(I had the operation at Columbia Presbyterian in NY) and I tape recorded her sessions. Then I went to lectures and bought audio cassettess of Jeffery Bland who is excellent for bio-chemical info..Then I went to a chiropractor and message therapist when I started to de=tox...and those methods vary....I tried many and tried to develop a good working relationship with each caring professional I was in contact with. It was not easy and they were frustrated with me when I didn't want to go their route..but I held firm. I did the "juicing" used "plant enzymes" to help begin the process of breaking down my food before my body-enzymes did what they were suppossed to (this helped take the pressure off my digestive sysstem which was in need of serious help due to the candida=related problems). The nutritionist helped plan food menus and even cooked many parts of meals for me on a regular basis as she came near my home on her way to her part-time job in the Intensive Care Unit at the local hospital where she would pass along her knowledge of EI,etc and then give me names of those who were positive. It was a "God-send" and our family is forever grateful to this individual. When she moved to Nevada, I came back to NY and went into shock at the prejudice against MCS individuals. I'll end for now. Just wanted you to know it takes perseverance no matter what. Blessings..... Bye now....
Nancy <Sunnysideup2>
Somers , NY USAjsj - Monday, August 30, 1999 at 12:47:44 (EDT)
I am sorry that you have negative comments in your guestbook. MCS is an illness and not to be taken lightly. You have done a great job in trying to reach people about this problem. I am dedicated to the mission of improving inner and outer health. Meaning get rid of the toxins in the home!!! Please visit my web site and see what I have to offer. http://www.naturalshoppe.com Take care, Kim
Kim <ltskimh@aol.com>
Milwaukee, WI USA - Sunday, August 29, 1999 at 17:20:01 (EDT)
I agree your critical reaction to the use of parfums, etc...... Alsoo I m sure that the use of parfums must be limited Every day I must to live with an air the others do smell me. When I or another one says that parfums disturbs, the other person don't listen or says we are too critical. I thing in a good relationship the natural air is very important. Then you can say in reality: I can or I cannot smell the other. But to finish would I say that the respect for the natural air, also in the free nature is very important.
DAEL Godfried <gth.dael @planetinternet.be.>
Poperinge, Belgium. - Sunday, August 29, 1999 at 15:19:54 (EDT)
I stumbled on your site while looking for unscented hairspray--I'm not a fan of scented products--and while I subscribe partially to such ideas as moderation in personal grooming products, I disagree with some of the information on your site. As a rationale for avoiding products you stress their extreme toxicity and the number of chemicals in them. I think that this may be a misemphasis. "Chemicals" are not something foreign to mother nature. Every plant makes its own set of millions of chemicals, some quite toxic to humans. In fact many of the chemicals we talk about as pollution are also made naturally. In my mind the issue is a need for moderation rather than prohibition...one man's opinion...
Eric Nelson <nelsone@purdue.edu>
West Lafayette, IN USA - Saturday, August 28, 1999 at 09:56:42 (EDT)
sometimes in order to become more informed,folks will only need to "peek under the blanket"
marvin e miller II <starvin@gateway.net>
santa maria, ca USA - Friday, August 27, 1999 at 10:20:53 (EDT)
Here is a tip to all of you suffering from allergies and MCS and what have you; why don't you all move down to Africa where Nature rules?
Carla
Houston , TX USA - Wednesday, August 25, 1999 at 04:52:00 (EDT)
I found this website very interesting. Thank you
Keith Bates <kbates@accglobal.net>
Stoney Creek, Ont Canada - Tuesday, August 24, 1999 at 20:27:00 (EDT)
I don't care what you think is wrong with you, there's never an excuse for "poetry" that poor in quality.
sandy <alxndra13@aol.com>
USA - Wednesday, August 18, 1999 at 20:54:44 (EDT)
I have been sick for many years with allergies. I also knew I was allergic to chemicals, perfumes etc.. which is getting worse. My allergist just won't acknowledge that I have a problem with chemicals. I get many of the symptoms described on this site, especially depression, nervous system problems, flu-like symptoms etc.etc.. I had a job convincing my own family that chemicals make me sick - fortunately they understand now that I have shown them this page. I only found out about MCS from a small item they had on one of the news stations. That's when I looked up this site. Thank-you, you don't know how much of a help this web page has been to me. Finally I have found out the reason for the way I feel.
Mike Weekes <m-weekes@ti.com>
Plano, Tx USA - Tuesday, August 17, 1999 at 12:52:17 (EDT)
Just to let you know, I am one of those Heartless Bitches, and even though I highly doubt the presence of "mulitple chemical sensitivity" (but what the heck, at least you're not saying you're not something truly horrid like a VEGAN...God created certain animals for our nutrition *g*), I do like the layout of this website. And at least you're not promoting some sort of self-serving lecherous deal. Kudos to you for at least doing that. Oh yeah, and don't beat up on me because I don't believe this is a real condition. Most of you seem to me to be otherwise nice people with good intentions.
Diane
Nowheresville (although place where a number of other guestbook signers come from), TX USA - Monday, August 16, 1999 at 19:06:12 (EDT)
Great Site Jacki, ECHO has a link to your site, would you consider a link to ECHO? Thanks very much, Elaine Tomko Executive Director of ECHO
Elaine Tomko,Executive Director- ECHO <ECHOMCSCT@aol.com>
Hebron, CT USA - Saturday, August 14, 1999 at 15:25:10 (EDT)
My wife has suffered sensitivity to perfumes, fabric softeners, and other scented products for years, and the problem seems to be getting worse over time. One of the major frustrations about her condition is the difficulty we experience in getting other people to take it seriously. She has had to give up going to church, the mall, the theatre, and even visiting other people's homes becausee these places insist on using scented products such as candles, potpoourri and air fresheners. When we ask nicely that they stop using such items in consideration for people with "smell sensitivity", people look at us as if we were Martians and accuse US of insensitivity. No one wants to believe that scented products give my wife migraine headachess and make it difficult for her to breathe. They accuse her of exaggerating her allergies. She often feels very alone. I think it would help her if she could find a support group or get a newsletter about other people with similar difficulties, so she could prove to the skeptics that it isn't all in her head. Thank you.
Anonymous
USA - Friday, August 13, 1999 at 16:52:03 (EDT)
Tuned into the guestbook to catch up on what is happening, have not dropped in for a while.Very upset, and anoyed that such negative, below the belt, completly ignorant statements are still popping up in the guestbook. This site has been a God send for me, ( and many others)over the last year. Full of intelligent, meaningful enquiries. Such a pity, when one of the places we have to share information and make and meet others in the same predicament, has those who presume to have a full understanding of MCS/EI, Fibromyalgia etc, trying to bring down those who are struggling some days to even get through a 'normal' day. Please, before denegrating those you don't even know, think before you 'speak out'. Who knows you may be one of the next to suffer, and will need the support of those who write in to these pages. Keep up the good work on this page. It is so important to have a place to go that gives us the vital information and the understanding of others in the 'same boat'. Anne....
Anne Litjens <litjens@primus.com.au>
MT MARTHA, Vic Australia - Thursday, August 12, 1999 at 21:42:17 (EDT)
Thank you so much! I just lost another job due to perfume contamination that triggers asthma. It seems impossible to find a work place that is aware or caring about this issue. I have been working as a temporary legal secretary because I have not yet found a place where I can breathe. Your website has given me validation and much empathy for the others with this problem and the consequences of our ignorant use of seemingly safe products. If anyone is instigating any kind of reform in our society to ban perfumes and/or other polluters, I would like to join the band wagon. My heart goes out to all of you. I applaud your courage and strength in finding solutions. Teresa Smith in Houston, Texas regg@hol-pc.org
Teresa Smith <regg@hol-pc.org>
Houston, TX USA - Wednesday, August 11, 1999 at 22:19:13 (EDT)
Very good section!!! What I can learn from you as health solutions!!!! Thanks.
Debbie
AR USA - Wednesday, August 11, 1999 at 19:29:29 (EDT)
Thank you so very much. This gives me such relief to know that I am not imagining my symptoms. I feel that the medical profession is not finding the answer to my problems. Maybe this info will help.
Trish Davis <Proform@Bigpond.mail.com.au>
Melbourne, vic Australia - Wednesday, August 11, 1999 at 08:19:43 (EDT)
HI! I have FMS/CMS and have had it a very long time. The time has come for me to fine a clinic that can help me clean by body of all the negitived things I have on my own free will put into my own boby. If you know of a clinic that speciallizes in FMS/CMS I'd love to get a pphone number so I can make the necessary arrangements to take that first step. I am running for President of the USA 2000 and need to clean this body so, I'll be able to RUN THE RACE TO THE BITTER IN.
Ruth I. Bedwell <iamnoah2@ptialaska.net>
Naptown-Sterling, AK USA - Wednesday, August 11, 1999 at 01:45:18 (EDT)
great info!
ruben yanez jr <Masa-vindalou@webtv.net>
san bernardino, ca USA - Wednesday, August 11, 1999 at 00:49:12 (EDT)
P.E. I have just read your insulting letter to Jacki's guests book. It is a pity that your are such a narrow minded pontificating fool. MCS is real and is usually simply an allergy to petrochemicals... It is difficult for us to recover without avoiding them.
Sandy Perceval <sandy@templehouse.ie>
Ireland - Tuesday, August 10, 1999 at 01:25:57 (EDT)
excellent & comprehensive
joe lyons <JoeandAlda@cs.com>
quincy, ma USA - Monday, August 09, 1999 at 09:32:01 (EDT)
I really enjoyed this lesson on perfume since I am highly allergic to eternity perfume
Linda Stephenson <wlstep@zoomnet.net>
Ironton, Ohio USA - Sunday, August 08, 1999 at 19:45:13 (EDT)
we need help find a supplier for unscented and fragrance free products
LaMont J. Schaefer <ljslms@hotmail.com>
Waukesha, WI USA - Saturday, August 07, 1999 at 17:12:38 (EDT)
This web site helps me feel normal, that there are others out there like me. I find it difficult for people to understand my situation, especially land lords when I have to move because of a toxic environment. I have moved five times in one year and land lords are not aware of what I'm talking about. Lose alot of secuity deposits that way. Moving again next week and I am scared to death to do so. What if I get sick again and have to break the lease will they understand? I have stayed and suffered many times because I didn't know where to go. Rain after a long dry spell seems to bring on those pesticide headaches. Any suggestions?
Mary Masser <rsnj@icanect.net>
Miami, Fl USA - Friday, August 06, 1999 at 14:31:09 (EDT)
Hi; We too are born again believers.Your site is very interesting with regards to TOXIC ENVIRONMENT. You have strongly expressed the need for all to reduce their exposure to toxins. I would like to share what has greatly improved the lives of some of my family members. A company called Mannatech has developed and patented a product called Ambrotose.This is a food supplement ,among some others Mannatech offers ,that contain amounts of ambrotose ,which have been scientifically proven to help the human body detoxify. The wonderful result of detoxification is that the body can heal itself of a host of major sickness when it is properly nourished. Two of my sisters suffered from fibermialga and are now well, I suffered from symptoms of CFS and poor distance vision and these too have cleared up ,all due to proper nourishment. Also some friends have reversed the effects of ADHD in their children with proper nutrition and not the medically prescribed DRUG that so many children are taking. We are very excited about this company and these products and I felt by reading your page that you would be interested. The corporate web site is www.mannatech-inc.com Please contact us if you have any questions. Sincerely John & Heather Appleton
JOHN & HEATHER APPLETON <healthy.alternative@sympatico.ca>
LONDON, ON CANADA - Friday, August 06, 1999 at 00:41:44 (EDT)
Multiple chemical exposure plus ionizing radiation military Nuclear Weapons Technician. Suffering from Lung Disease and Peripheral Neurophy. Any one out there with 10 years exposure to same please contact me.
Everett Chipley <chip @ 281. com>
Burnet , TX USA - Thursday, August 05, 1999 at 17:39:51 (EDT)
I thank you for this website as my daughter and I try to figure out where to turn during this terrible time.
Jeanne <sjlsma>
canton, ga USA - Tuesday, August 03, 1999 at 22:28:08 (EDT)
A website like this which contains excellent information concerning the cleansing of the body is greatly appreciated by me. I will try some of these remedies to help aid in maintaining my weight and to feel good.
Nina Wilson <RaymondOO5@webtv.net>
Salisbury, MD USA - Tuesday, August 03, 1999 at 19:59:04 (EDT)
I was very pleased to find a site that is healthy for the environment, people and our souls. Thank you for being here. I have severe allergies, asthma, and MCS, so I have started to look for Healthy products. Keep up the good information. Melody McArdle
Melody M. McArdle <mmcardle1@juno.com>
Blaine, MN USA - Monday, August 02, 1999 at 20:37:39 (EDT)
VERY INTERESTED IN DETOX BATHS PARTICULARILY CLEANSING FOR WEIGHTLOSS
SARAH ZORN <ZORNSNJAPAN>
MISAWA AIR BASE, AP JAPAN - Saturday, July 31, 1999 at 23:10:53 (EDT)
Jacki, I was searching for information on Roman Catholic doctrine and your testimony page came up. I have been saved for almost four years now and have a very similar testimony to yours, except that God is still in the process of changing the hearts of my family. I do not believe that any of them are truly saved. None of my Christian friends really understand what it is like to have family that believe in God, but differently. I was glad to find your testimony. It was very encouraging to me. Thanks.
Katie <kstanek54@hotmail.com>
Sparta, NJ USA - Saturday, July 31, 1999 at 20:04:57 (EDT)
I appreciate the information on your site on MCS. As a MCS person I can personally use this site to educate myself as well as pass the site along to friends.
Alice Connell <abcon@strato.net>
Avon Park, FL USA - Friday, July 30, 1999 at 09:14:19 (EDT)
I do not have any comments at this time.
Pearl Waters <pwaters@pop3.citicorp.com>
New York, NY USA - Monday, July 26, 1999 at 14:20:57 (EDT)
11c is short for the eleventh commandment. I have an "industral desease", toxic brain syndrome, also. Diagnosed by Dr. Rea in dallas TX. Thanks to Sue Pitman I found Dr. Rea. keep up the good work.
Scott Hunter <hunter@11c.com>
austin, tx USA - Thursday, July 22, 1999 at 20:36:16 (EDT)
Your information was very informative and i look forward to learning as much about this topic as I can. Thank you for making us aware of these possibilities.
Barb Bennett <callie_2@hotmail.com>
USA - Monday, July 19, 1999 at 11:31:54 (EDT)
I would be very interested in corresponding with you. I am a Christian as well, and have been chronically ill for 5 years, with no diagnosis. Most recently, my doctor has suggested Ebstein-bar Virus and/or Chronic Fatigue Syndrome. I would very much like to get in contact with others sharing a similiar experience.
Toni Hulbert <caragat@mailexcite.com>
Gloversville, NY USA - Friday, July 16, 1999 at 18:48:20 (EDT)
I loved Jacki's story, I have some of the same symtoms, not as severe yet, but have been to doctors just like she did. They now want to put me on antidepressants. I mostly am dizzy a lot and have that weak and spacey feeling. I have been a hairdresser for 35 years, so I feel like I might have this chemical poisoning too. I am going to clean up my house by getting rid of some of the stuff that you talk about. I certainly can start with the fabric softener...... I had to quit my work about 6 months ago, so I hope in time that that alone will help, not being exposed to the chemicals in the shop, amonia is in just about everything we use such as permanents, all colors, and bleaches, probably even the shampoos.........THANK YOU SO MUCH FOR YOUR INFORMATION..........GOLDIE
Goldie Chisum <gochisum@hotmail.com>
Beggs, Ok USA - Wednesday, July 14, 1999 at 19:22:45 (EDT)
My mother has this problem. She is 78 and on oxygen all the time. She lives in San Francisco and is planning on flying to Austin, Texas next month. I have arranged to have a nurse fly with her on an American non-stop flight from San Jose to Austin. American will provide the oxygen but is there any precaution we can take to minimize the chance that another passenger on the flight's perfume may trigger an adverse reaction in my mom? Thanks in advance for your help.
James V. Soletti <eanespro@prismnet.com>
Austin, TX USA - Monday, July 12, 1999 at 11:53:55 (EDT)
I am so pleased to have found your site, I am an mcs sufferer, I was disabled in l987 from a school rennovationI had fifteen high chemical levels in my blood The medical society gave me a 30% chance to live. I was diagnosed with chemically induced arthritis, fibromyalgia, and universal reactor. I couldn't go in buildings without getting sick for 2 years, so I lived in a tent for 2 years. Today I teach school 3 to 4 days a week, run a homebase business and help the chemically poisoned whenever I can. I studied cellular nutrition for 12 years when I realized that the medical profession did not have a clue what to do for me. I litigated for Worksmen Compensation against Aetna Insurance from a payphone in the park where I was living in my tent and won. I won by taking air samples in my workplsace with a certified chemist and taking blood samples for chemicals and correlating the two of them - 90% correlation. They do not argue with you in court if you have tight science to support your claims. Today I have no allergies, no arthritis, and no fibromyalgia - I stay away from strong chemicals, pesticides etc. After a year in my environmentally built home on eleven acres, I returned to part-time work. I worked for years as a consultant for the chemically injured. Today I share what I have, sell some of the products that have improved my health and teach school. I have an environmentally built home on 11 acres in Arizona for sale. It is the best air!! Private, pastoral and charming!!! If I can help you with this devastating illness, please e-mail me. I used to go into shock whenever I was exposed, so I have been there. I believe in everyone's healing. Find out what your body wants and needs!!! If you have not tried cellsalts, Microhydrin or the zapper and want to know more let me know. Know that I represent hopeand that you need to make good decisions at a time when your brain symptoms may not allow much clarity. I bless all of you canaries for helping change the world to become a less toxic place!! Contact: Jean,jeanl942@gateway.net
Jean McDonnell <jeanl942@gateway.net>
Chino Valley, Az. USA - Sunday, July 11, 1999 at 14:39:11 (EDT)
Well, I have been searching for a diagnosis for a lady I am very close to she passes out when she breaths in any chemicals or fragrances she has been very sick for a long time. She has a tracheostomy and is in the hospital as we speak. She has a lot of trouble breathing when she is sick and I just want to know if anyone nows anything about her condition. No one has ever heard of it.
Jill Hardy <franny45@yahoo.com>
P.E.I., Canada - Thursday, July 08, 1999 at 17:21:58 (EDT)
Thank you for sharing your story and providing such useful advice. As a recently diagnosed CFS, EBV, MCS patient, I am only beginning my journey into improving my health and environment. Your words offer much encouragement, and I thank you from the bottom of my heart for taking the time to create your page. I am currently undergoing IV Therapy and Sauna Detox in NYC with Dr. Adrienne Buffaloe (Health Care for the 21st Century). While it is still too soon to see improvement, I am confident that I am on the right path. I wish you continued success in your health care program. God Bless you. Marilu
Marilu Hansen <psgiants@webspan.net>
Newton, NJ USA - Tuesday, July 06, 1999 at 19:42:32 (EDT)
I couldn't resist writing. Hope everything is going well for everyone over there. -hugs- Julie
Julie May <jumay@telusplanet.net>
Sherwood Park, AB Canada - Tuesday, July 06, 1999 at 01:52:36 (EDT)
Regarding trying an elimination diet. I noticed alot of them use distilled water and rice as "safe foods". Unfortunately, with my MCS allergies, I am allergic to all the distilled waters presently available here in N. Calif locas grocery stores....I believe it may be the acetate from the bottles they are stored in. I can safely drink as much Aberfoyle(in clear bottles...)as I want without reacting, but I must boil it them filter in through 3 coffee filter. I am also allergic to rice( both white and brown) so this type of rice distilled water elimination diet would never work for me. My allergies may be rare, but there may be others of you also allergic. I would just like to say, an elimination diet using the boil/filtered aberfoyle and green or yellow beans or blackeyed peas would work for me. I can eat salmon, tuna and chicken, but all canned foods I must rince with "my water".
Belle
USA - Monday, July 05, 1999 at 20:27:29 (EDT)
Hi Jacki and all of you. Using an elimination diet(and removal of chemicals from my environment)I have gotten my MCS under controll. My recent discovery, I am allergic to tomatoes, onions,cucumbers, melon...and many more. I would encourage anyone interested to give an elimination diet a try. There are many available on the net. To update on my allergy to so many bottled waters on the market: I am able to drink aberfoil...but only 5 glasses a day before reacting. However, If I boil it in the microwave and then filter it through 3 coffee filters I can drink 8-10 glasses a day and without any allergic reaction. Also, just wanted to mention. I am allergic to nuts if I do not twice boil them in "my water", then rince with my water. Then, peal the skin off the almonds. Because I am also allergic to dairy..but love milk, I have made a milk substitute out of these nuts(twice boiled first,as I said). Mix together in blender, "my water" and almonds, hazelnuts, and walnuts. You can leave out the walnuts if you are on a low fat diet.(depending on your taste..also makes a pretty good salad dressing if you add salt and spices). Read about potential chemicals in nuts by going to the "Ask Jeeves" search engine and putting in the words "All about Nuts." ...common household bleach used for cleaning the shells...? Hmmmm...one of my worst offenders. Best wishes for feeling good again. Belle
Belle
USA - Monday, July 05, 1999 at 20:05:33 (EDT)
Praise the Lord! It's great to hear of fellow believers boldly glorifying Jesus. If you can Email me an answer, I have a question. I need formal information on "baking out" a new home. Any and all help would be greatly appreciated.
Pam Tronson <gtronson@wa.freei.net>
Suquamish, WA USA - Sunday, June 27, 1999 at 23:21:25 (EDT)
Is anyone doing anything in regards to http://www.grc.uri.edu/programs/1999/floral.htm Happening Sept 5-9 , 1999 in Oxford, UK. Did you know it was happening? Conference: "Biology, Chemistry and Evolution of Floral Scent"
Woody <dbwoody@hotmail.com>
UK - Sunday, June 27, 1999 at 10:53:16 (EDT)
I am the manager of an IPM mosquito control program run by Colorado Mosquito Control, Inc., here in Cortez. I have a lady in the area who suffers from MCS. She is planning to move to an area of New Mexico with less pollen, pesticide use, etc. I informed her that I had heard in graduate school (I am an environmental scientist) about a town in the high desert of west Texas where a sort of colony of people with MCS had settled because of the pure air and lack of pesticide usage. I am attempting to obtain the name of the town to give to this lady. Any assistance you could give would be greatly appreciated by myself and the affected individual. Thanks, and please respond if you cannot help so I can continue my search. My e-mail is tsmosq@r m i.net (no spaces) Tim Howard
Tim S. Howard, MS <tsmosq@rmi.net>
Cortez, CO USA - Friday, June 25, 1999 at 21:25:15 (EDT)
Hi. I think that this is a great site. I am not a MCS sufferer, but I am dedicated to the mission of replacing toxic chemicals in every home and business in America. This is a very serious problem and more people should become aware of dangerous household cleaners. Please take a moment to visit my site at http://www.naturalshoppe.com/ Kim
Kim Hojnacki <ltskimh@aol.com>
Milwaukee, WI USA - Wednesday, June 23, 1999 at 20:35:10 (EDT)
I suffer from asthma because of to many people wearing to much perfume. I can't avoid it, it's everywhere. I'm glad you have the web page more people need to know!
Melissa Cohon <mbcohon@mbf-law.com>
Chicago, IL USA - Friday, June 18, 1999 at 09:23:49 (EDT)
Hi Jacki & Gorden, Hope I spelled your names right. I don't have them in front of me at the moment. I just now found your wonderful site, and was so excited, I had to write to you right away. I and my husband were also Catholic and have similar testimonies to yours, Jacki. We now attend an evangelical free church which teaches meat from the Word! My three boys and myself (and probably my husband too) also have EI (in our case, multiple food sensitivities) We used to go to Boca Raton every year for intradermal provocative neutralization testing, so we could give ourselves food allergy shots. Our doctor -- Dr. Henderson -- retired about 4 years ago, and we haven't been able to afford to go to anyone else since. (We're heavily indebted, partly due to going despite not being able to afford it before.) I've been considering taking my youngest son to Dr. Albert Robbins in Boca, who I assume you must see?? (because of your links to him) Unfortunately, he's not a Blue Cross/Blue Shield PPC provider, or we would have already seen him. My dad has Tourette's, and I'm suspicious that our allergies are related, and have even wondered if many of my youngest's behavioral symptoms might be the precursor symptoms of Tourette's. I notice you live in Tallahassee. Did you attend FSU? I attended UF from '76 to '81, and have stayed in the Gainesville area since, recently buying a home in Alachua. We're not that far away! And if you go to Boca too, then we share our "home away from home". Also, I had a good friend I visited frequently at FSU when I was at UF, so have been there numerous times too. How old are your children? Do you homeschool? I did for 10 years, but just recently began working part-time because of our financial problems. Do you know the Goddards, by chance?? They belonged to the same church and homeschool support group in Gainesville, and moved to Tallahassee a couple years ago. Well, I better go now and make dinner (should've started a while ago) but had to say hi and thank you for a great site! I already signed on with Share, Care and Prayer Ministries. I didn't know they existed before, but have sometimes felt the need for an allergy support group. It's so great there's a Christian one! By the way, I love Last Days Ministries too, and even gave those Catholic pamphlets to my cousin, who reacted much like your friend (although she didn't declare me "dead"). Like I said, gotta go! I would love to "talk" more in depth with you again later, Jacki! Bye.
Janice O'Brien <janice_a_obrien@hotmail.com>
Alachua, FL USA - Wednesday, June 16, 1999 at 17:39:12 (EDT)
I have extreme sensitivity to tobacco smoke.
carolyn delaney <cdelaney@bcm.tmc.edu>
houston, tx USA - Wednesday, June 16, 1999 at 17:09:11 (EDT)
I am so glad to have found your web site. I have known for years that I was sensitive to chemicals but none of the doctors that I have consulted were able to figure out what was wrong with me. At last I have a NAME for all my medical problems MCS - allergy just doesn't cover it all. There have been times when I thought I was crazy - because no doctor would listen to me and I was often told that I had "emotional problems" was a "hypercondriac" had "Yuppie Flu" - but I knew that this was not the case, I was physically very sick - not crazy! I am very greatful for all information on MCS. At last I know that I am not the only one with these problems and it is not my imagination. Keep up the good work, and God Bless you for your efforts and the comfort you give to thousands of people who are so very often told that they are imagining their problems.
Carole Shenton-Tan <carole.shentontan@bt.com>
Swindon, England UK - Monday, June 14, 1999 at 12:02:53 (EDT)
Thank you, Jacki, for your great compliation of information on MCS! I visit your pages often, and I always learn something new. I use them to educate friends and relatives about my "weird" condition. I have had multiple sclerosis for 14 years, which I now suspect was partially caused by chemical exposures at a job. Thank you for letting me know that I am not alone in reacting to "ordinary" chemicals, and, no, I'm not nuts! Sylvia
Sylvia <SYLV77@aol.com>
Chicago, IL USA - Monday, June 14, 1999 at 10:08:56 (EDT)
Hi Jacki, I haven written in the visitor remarks page for ages. I have met some wonderful people here. I have Variegate Porphyria but developed an acquired porphyria several years back from having to use hormone replacement therapy. That has been a big mistake in my life and only the Lord has seen me through that time. He is faithful to help us to control disease and He is also helpful to heal our diseases too. You are a jewel. Keep up the good work and thank you for your page. Mary
Mary Pretlow <pretlowm@highpoint.net, pretlowma@webtv.net>
High Point, NC USA - Saturday, June 12, 1999 at 08:31:09 (EDT)
This site is exactly what I have been looking for. I suffer from Asthma. I work in a Hospital that is trying to implement a "no scent" policy. We are trying to make our hospital a healthy place. They've banned smoking in hospitals here, why not perfume!!!!!!!! I am on a safety comittee that is trying to put together a campaign to help promote our policy. I am having a very difficult time trying to get acrossed to staff members about the effects of scented products on our patients. They are very stubborn - and most of them are nurses that should know better!! I feel that I am on an uphill struggle. At least now with the information that I received from your site, I will be better armed to tackle these people. Thanks
Kathy LeBlanc <withak@nbnet.nb.ca>
Sackville, N.B. Canada - Thursday, June 10, 1999 at 18:58:43 (EDT)
Jacki, Thank you for your website. It is great what you have done. Someday I may add my story to the web. For now, your story and information is helping me prepare for my accommodation law suit against my employer. God Bless! Jo
Jo Ramsfield <jram12@aol.com>
WI USA - Wednesday, June 09, 1999 at 21:57:42 (EDT)
Clarification of the below stated... by me,"Belle". I said S & H grapefruit...but I meant "S & W Natural Style Grapefruit section." ...oops, it seems I'm always having to correct myself here. I'm so sorry Jackie. I really do hope some of what I say can help some of you suffering.
Belle
USA - Monday, June 07, 1999 at 01:52:35 (EDT)
Dear Jackie and All of You..... I am writing to make an apology and an update. On May 5th I left a posting at this site. It is listed below in this visitor remarks page. I felt my suggestion to drink a certain brand of water and certain brands of juices would help people as they had helped me over the past year. Well, strangely, as of May 5th, those products have now become offenders. It took me 4 weeks to test and retest to proove this to myself, and, yes, the same products that once helped me.... now make me very ill. I have found replacements finally and want to suggest this option to others highly sensitive to certain foods and water. I can drink the bottled water available at Wallmart. It comes from Canada and it is called "Aberfoyle Springs". ......Also,I can no longer drink Grapefruit Juices in the carton "Tropicana" and "Natures Best". They make me very ill now. I have found that I can eat S & H canned Grapefruit in natural juices. I will continue to try Tropicana and Natures blend on a monthly basis to see if I find a difference in their product. I'm not sure if it's me or a change in the product. I find this very, very strange. Again, with the new water and grapefruit, I am symptom free, but HAVE HAD to make these changes in order to stay well. Thank you again, Jackie, for allowing me to voice my theory here. I hope all of you with MCS with analyze your diet, get off the drugs if possible and listen to your body. Best wishes for wellness through diet and removal of chemicals from your environment.
Belle
USA - Monday, June 07, 1999 at 01:37:22 (EDT)
A thanks to Jackie for her fine work and service to the chemically sensitive community. A petition has been filed with the FDA to have the perfume Eternity declared misbranded (mislabeled). The basis of the petition is that there are substances used in Eternity that have not been adequately tested for safety and the product does not carry the required warning label. Support for this effort would be greatly appreciated. You can view the details of the petition at: http://www.fpinva.org/activist__advocacy.FDA99P1340.petition.htm
Betty Bridges <bcb56@ix.netcom.com>
VA USA - Wednesday, June 02, 1999 at 22:49:10 (EDT)
THANK YOU -I HAVE BEEN SEARCHING FOR A MONTH AND FINALLY TODAY STUMBLED ACROSS ALL THIS MCS INFO
KATHY KEGARISE
USA - Tuesday, June 01, 1999 at 17:08:57 (EDT)
What a wonderful web site. i am a complete dummy when it comes to computers. so that i could find my way easily around your site is a real feat for you. i am a porphyria sufferer with really bad spelling. i am learning a lot lately about this disease that i suffer with. i have pct with all the symptoms of aip ass well. my life is not usually very good. 2 weeks out of every 6 are usually good or at least not terrible. i would love to hear from anyone who knows someone or perhaps has this disease themselves. what has kept me going is my faith in god. he chose to spare me i don't know why but i'm still here thanks once again got the lovely web site
alice stevenson <davidalic@direct.ca>
abbotsford, b.c. canada - Tuesday, June 01, 1999 at 01:41:06 (EDT)
I am reasearching Tourette Syndrome because my son is showing some symptoms. He has not yet been diagnosed.
Linda Marteney <l_lmar@yahoo.com>
Copperas Cove, TX USA - Monday, May 31, 1999 at 16:32:58 (EDT)
Thank you for compiling such great information! I am currently undergoing a problem with a supervisor at work who refuses to reduce her perfume... even after being notified of making myself and several other workers ill. Your information will be of great assistance in my fight to breathe without congestion or headaches.
Patti Gumz <pgumz@sprynet.com>
Tampa, FL USA - Sunday, May 30, 1999 at 20:19:17 (EDT)
The wealth of information I can gather on your web site to help educate people keep me coming back. My symptoms are worsening, probably due to pre menopause. My daughter is getting more sensitive, she is approaching puberty. I am hoping to find a way to have the school board adapt a no scent policy, citing the Halifax example, 80% of their schools are scent free. The Globe and Mail had an excellent article on May 14. "Is your perfume a health hazard?" People are becoming aware. The worst for me is the feeling of being helpless. So I will become active. I wrote a letter to the editor in February, I wrote one yesterday. I talk to people about what is happening to me, I am not ashamed of it. I am sadened that MCS is affecting my voice. For me singing is worship, a spiritual uplifting. But I get phlegm on my vocal cords, become hoarse when someone in the choir wears perfume, cologne, hairspray, etc. Now I am getting these symptoms sometimes even from fabric softners. I could walk blindfolded into choir and know that a fellow choir member (whose choosen poison is Eternity)is there, I loose my voice, get a headache, have difficulty to concentrate. But she doesn't even put it on on choir nights, still it permeates her clothes like a cloying cloud. Then yesterday I received an activist kit from California via my MCS contact in Germany (I am on their mailing list) with a petition to the FDA to have Etenity from Calvin Klein "misbranded". It seems so little, yet it is a start. Please consider sending a petition. If we all would send a petition the numbers alone would help to raise awareness. For details see following adress http://www.ameliaww.com/fpin/petition%20index.htm I don't want to stand helplessly by, while my life is being striped from me inch by painful inch. I will send petitions, I will write letters to the editor, I will do what I can. I am attaching my letter, it is long, 692 words, but I couldn't edit any of it, I feel it is all important. My daughter read a series of books called Dinotopia, I loved the way they greet each other there (I hope I don't break any copywrite laws) " Breathe Deep, Seek Peace". CJ Here is my letter to the editor: To my delight the Globe and Mail had a whole page on "scents" on May 14. My friend handed me this page with the words " you are not alone". This article asked if your perfume is a health hazard ( yes, yes ) and spoke of VOCs ( volatile organic compounds ) and a handy little device that can measure the concentration of VOCs. How a health and safety officer with the York School Board set this device into alarm mode with two squirts of perfume during a High School assembly. This man is one activist of many convinced that perfumes and other scented products are a health hazard and is trying to educate our young people on that. Meanwhile the companies that produce "fine fragrances" which exclude scented goods as detergent and candles are getting worried. It is big business. We are talking 400 to 500-million dollars a year, and that is without fabric softener, detergent, soap, candles. But people are slowly becoming aware. In Halifax about 80 percent of the schools are scent-free. You can find scent-free offices and restaurants there. But the fragrance industry claims that there is no scientific evidence that perfume causes a multitude of health problems like asthma, environmental illness, multiple chemical sensitivity, even so they do admit that perfumes cause problems in a small group of individuals, just like flowers. They want proof. I just look around and notice the many people who are becoming ill. A friend did some research for her church in the hope to educate them so that she and her daughter will be able to attend church without ill effects. She found out that about 18 to 20 percent of people are somehow affected by diverse scented products, some scientists claim the number at the 30 percent range. Let me point out that we are not talking about the "scents" itself but chemicals. But the industry wants proof. If I walked blindfolded into choir practice I'd know that a singer who wears "Eternity" is there, even so she does not use it on choir days. It permeates her clothes like a cloying cloud, it makes me lose my voice ( phlegm on vocal cords ), causes me severe headaches. If I encounter it freshly "put on" it causes an asthma attack. A visitor's cologne caused me an anaphylactic reaction, that individual seems to be developing allergies. They want proof. My daughter got dizzy from a supply teacher's cologne. A girl I know is allergic to chlorine, yet I can't get close to her because of her perfume. My neighbor suffers from unexplained migraines, her house reeks of air freshners. My cousin and her daughter have developed asthma, her husband and younger daughter suffer migraines, yet the residue from their fabric softener makes me ill. More people are getting allergies in later life. My 65 year old uncle has recently developed a severe rash that Doctors at the University Hospital have linked to his fabric softener. A teacher reacts to air freshners, another to the bleach in cleaning products. But they want proof. How much more proof do they need? What could be causing all this? Scents, chemicals, toxins? Yes flowers, grasses, trees do cause allergies, but they have a season. When the season is over your body can recuperate. Yet "scent chemicals" are never out of season. We are forever bombarded by them. Don't forget the chemicals that you ingest through your food, it all adds up. After a while our bodies just can't take any more. In Europe they sometimes use the word TILT (Toxicant Induced Loss of Tolerance). I like this word because it says, in a nutshell, what it pertains to. My logic tells me ( Mr. Spock would be so proud of my logic ) that we could not possibly get rid of all the plants and the many other sources that cause allergies, but we could eliminate unnecessary exposures to these toxins. There are safe alternatives to chemicals. For the sake of us all let's try to be kind to each other and to our earth and personally seek out these alternatives. May 24.1999 Cornelia Jahn !37 Asmus Street New Hamburg NOB 2GO
Cornelia Jahn <kjahn@sentex.net>
New Hamburg, Ont. Canada - Wednesday, May 26, 1999 at 01:41:03 (EDT)
I've had mcs and e.i. since 1991, had to quit my job in 1994. Have been very ill and depressed. My husband doesn't understand my illness and won't research it or get involved with my recovery process in any way. It's too much of a bother for himm to be a True Partner. I am in this lonely battle alone. I have to move in with my 80 yr. old mom soon because my finances are 99% gone. I tried for "Disability" but you know what a run-around song & dance that mess is! I really don't know what6 is going to happen to me. I'm 48 and feel that life has wizzsed past me for the last 8 years. I sommehow manage to maintain my strong faith in God and keep my sense of humor. I pray to God that one day, with the proper interventions (and that takes money!!) I'll one day be my former vivacious, outgoing, fun-loving self again!!!! God Bless you ALL for your website....my prayers for your continuing and full recovery!!!!
lorrie smearcheck
USA - Tuesday, May 25, 1999 at 16:50:03 (EDT)
Thank you for your website and your incredible information. My brother has not been able to leave his apartment for 3 years - about the same time that I last saw him. I am 30 years old and my brother is 33. He has been complaining for years that people who visit him make him incredibly sick and violently ill for several days and sometimes weeks. We have been fighting for him to get help but he has always been too ill to leave his room or very few doctors have made house calls (not in the 90's anyway). I just came back from my brothers place over 2 hours away. I could not allow him to avoid visiting with me so I stole the keys to his apartment from my mother and surprised him. We spoke for over 2 hours about his problem. He couldn't explain everything - saying I wouldn't understand... All the doctors that have come to see him think he has a mental illness of some sort. He, for the first time, discussed with me that he would admit to me that if he had a mental illness he would be happy to know what has made him sick, but antidepressants make him ill, the doctors that prescribe it make him ill and in fact the 2 hours that I spent with him will make him sick for days. I believe that he may have MCS/EI. I need help. My brother needs something to improve his immune system. He cannot go near plastics, perfumes, detergents, cleaners, t.v.'s, computers or people. I believe his system is full of toxins and his body is fully loaded. Please help. Where do we start? We are in Canada and where would the specialists be up here? Unbelievably relieved to find some hope, but desperate for answers. Dan Sawatsky 705-329-7700 705-329-1209 fax705-327-7453 sawatsky@ican.net
Dan Sawatsky <sawatsky@ican.net>
Orillia, ON Canada - Monday, May 24, 1999 at 20:48:41 (EDT)
I was perusing your pages on MCS and was very disappointed to discover that the articles authored b the MD are so outdated that they are essentially useless. The newest reference on those articles is 1990 (only one of two of those, at that), which makes the information a minimum of 9 years old or older. As a member of the American ACademy of Allergy, Asthma, and Immunology, I can tell you that the strides made in knowledge about the immune system and its function in the last 9 years have been phenomenal. Your site needs updating.
Judith B. Paquet, RN <judyp@snip.net>
Clementon, NJ USA - Monday, May 24, 1999 at 08:19:14 (EDT)
I have always been wondering about my persistent coughing.Doctors found nothing wrong with my throat or lungs. It was while visitng you that it dawned on me that I am allergic to the turpentine that I use in painting. Thanks.
celina <celina@sji.com>
USA - Monday, May 24, 1999 at 02:57:13 (EDT)
My friend would like to know if there are any toxic free and safe carpets on the market? Mahalo, Susan
Susan <Swlkrueger@aol.com>
Honolulu, USA - Saturday, May 22, 1999 at 20:34:06 (EDT)
This has taken my breath away, oh my heart goes out to you. I am truley amazed at your story and will return to reread it. I sent a link to all my friends, and family to read this truly remarkable story. Thank you so very much for sharing something that was so painful for you . I often thought that I to suffer from this and now I am going to make my Dr. listen more to what I am saying and follow your advice as well. I have also been told it was depression and didn't think that's what was wrong. Oh I was so engrossed in what I was reading. You will be in my thoughts and my prayers.
Cindi <clrobbins@mindspring.com>
Warner Robins, Ga USA - Friday, May 21, 1999 at 23:49:52 (EDT)
In my youth I was a long-distance runner (cross country, 3 6 and 10 miles, several marathons and one 42 mile mega-marathon). I worked 30 years as a hospital pharmacist before getting this problem. Most of this time I cycled 30 miles a day to and from work so you can tell I am a pretty fit person. I have always had a problem with perfumes and aftershave but all it did was make my eyes smart and nose run. Then, about 8 years ago I started suffering symptoms of lethargy and aching all the time. One doctor thought I was stressed and depressed, another thought I had M.E. It was three years before I was tested for asthma. I didn't cough or wheeze much and my lungs are 25% larger than average (normal peak flow is 700), so it wasn't obvious. By that time I was only managing to work two or three days a week and didn't even recover over weekends. Finally they found I was sensitive to cationic surfactants, including benzalkonium, which is widely used as an antiseptic, especially in hospitals. It is almost impossible to avoid these substances; they are found in washing powders, fabric conditioners, floor, furniture and glass polishes, fire retardents, air conditioning systems, and are used as 'spreaders' in skin perfumes and aftershave. I was warned that if I didn't leave the hospital environment I could be dead within six months so I took early retirement on an enhanced, virtually full pension. I do have that advantage over most people with this problem - my employers believed I was suffering from something real. Even so I still wish I was still working. If I go near anyone who has washed their clothes with anything other than plain soap, rinsed them with fabric conditioner or has worn a 'fragrance' in the last few days or been near someone who has, I am in trouble. I can't visit anybody elses house, travel on any sort of public transport, enter public buildings or go shopping except possibly a supermarket at a quiet time. I can't go to the cinema, theatre or concert hall, stop in a hotel or even self catering accomodation. I am so sensitive now that I have trouble if I am downwind of a line of washing. Sometimes my wife's library books cause me to wheeze; the paper has absorbed the perfume from the last person who read it. If I ever become ill enough to require hospital treatment I don't know what will happen. I went for an X-ray recently. I was only there for half an hour before all the old symptoms came back. It took me nearly a week to recover. Fortunately I live in a rural part of Shropshire, and can avoid people most of the time. It obviously isn't perfume as such which causes me trouble. I have a large garden full of flowers, some of them strongly scented - they don't bother me in the slightist. I still cycle at least 10 miles every day when I am feeling well. The only way we can go on holiday is cycle camping, avoiding towns as much as possible. The government is always going on about chemical pollution. They seem to think most of the trouble is caused by cars and trucks. Have they never considered the unnecessary chemicals used every day in most peoples houses. People are obsessed with cleanliness and smelling OK. Half the adverts on the TV are for perfumes or cleaning agents or disinfectants. Everything has to have a 'fresh air' smell. If you don't wear perfume or after-shave you will have no success with the opposite sex. Your child is at risk if you don't virtually sterilise your whole house (they are more at risk from your overuse of perfumes - how many cases of childhood asthma are a direct result of contact with these substances) . No-one will visit you if you don't get rid of cooking, smoking and pet smells. etc,etc,etc. Yes, you can ask people to avoid perfumes for several days before visiting you. My two grown-up daughters try their best, but they both work in an environment where other people wear these things. As soon as they enter the house my eyes start to smart. Its just that the rest of the world is denied to people like us. I sometimes think that I am more disabled then people with physical problems. The government insists on making public buildings accessible to them. I can't get into them. I wouldn't mind if these things were necessary for peoples lives but most of them aren't. Its difficult enough stopping people smoking in public places. What chance is there of persuading them to do anything about this.
John Lea <john.lea@connectfree.co.uk>
Shrewsbury, UK - Thursday, May 20, 1999 at 15:11:50 (EDT)
I have had MCS aka EI for many years. I believe that it began as a child when a toxic waste dump was located near our farm for several years. I would love to plug into a newsletter with up to date info. If it weren't for my having a severely autistic son, I would be facing homelessness as my husband died in April. I went to the Social Services office in April. There I had so many exposures simultaneously that they called the paramedics. I had to turn down going to the hospital as I knew that I would only have more exposures in the ER. I could barely make it home, clinging to fences for support as I walked back from the bus. I'm looking for appropriate telecommutting work from my home, the only place I can avoid exposures, most of the time. I write and have desktop publishing capabilities and old style newsletter experience. I've not yet learned how to do a web page.But it's definitely on my agenda. I have been praying and working with God on my situation. That is why I continue to cast my bread upon the waters every place. I never know from where the next answer will come. I've already received several. This site is a definite bookmark for me. Thank you, Jacki.
Pat Williams <freeland@bcpl.net>
Baltimore, MD USA - Wednesday, May 19, 1999 at 10:25:13 (EDT)
We are in Health class and were told to look up something about the environment and found this!!! we use these items everyday and found these facts quite disturbing!!! thanx for the great info...hope to read some more info later!!! Thanx, Jen-Annie-Kimmy Fisher Catholic High School
Jen-Annie-Kimmy <Raspberry83@Hotmail.com>
Lancaster, OH USA - Monday, May 17, 1999 at 14:16:37 (EDT)
Thank you so much for your wonderful information and about your life story. I have not finished reading it all, but I am excited to learn everything I can. I am a Christian as well, and I strongly prayed today (05/16/99) that God would lead me to some answers. Wow! Does he know how to answer prayers. I have been searching for anything to explain why I am suffering with these extreme headaches and allergy symptoms. I believe you have hit it on the nail for me. I have been affected for 4 months now with everything I smell. Hair products, cleaning products, perfume, dust, etc. I have been trying my hardest to refrain from them all, but it has been quite difficult. I thank God for your information and will pray that through your wonderful sharing and faithfulness, that He will heal you. Thank you. In Jesus Christ, Cheryl Sanchez
Cheryl Sanchez <duckboy@ecst.csuchico.edu>
Chico, CA USA - Sunday, May 16, 1999 at 16:42:46 (EDT)
Thank you for this fine web site and God Bless you in all your endevors.
Merlin Williams <mewai@clear.lakes.com>
Waseca, MN USA - Friday, May 14, 1999 at 21:03:45 (EDT)
Would like to email or chat with anyone that has M.C.S.D. I have a severe case of it. Also would like to start a fund to help people with this disease. Also maybe when I get stronger go to Washigton
faith <faithful@tez.net>
Hampton, V.A. USA - Tuesday, May 11, 1999 at 20:53:26 (EDT)
I have had CFIDs/CFS/ME for 14 years since 1985.
Charles Gargiulo, Jr. <CGargiuloj@aol.com>
Melrose, Ma USA - Tuesday, May 11, 1999 at 19:19:52 (EDT)
Thank you for providing me with so much useful information.
Elaine Fulton <fultoele@nbed.nb.ca>
Minto, NB Canada - Monday, May 10, 1999 at 11:25:07 (EDT)
From Belle...again...I realize my notes to Jacki and All of you are a little jumbled here, but MCS is a lengthy complex issue to understand. I want all of you to know the path my symptoms took before they focused their attack mainly on by bladder and spine. My reactive symptoms began with headaches. then gurgling in the stomache without any pain. then nausea. then numbness and tingling in the arms and legs on and off. Plus fatigue and aching all over. Gradually my heart was becomming very sluggish and circulation very poor. All in combination with bladder and spinal pain. If any of you can relate to these symptoms...read how I got myself well in the comments by me (Belle) below. After one and a half years of suffering, I have my life back. Maybe you can too...before it starts to focus on your vital organs. Thank you Jackie for allowing me to express my theory here. If it helps... good, it certainly can't hurt.
Belle
USA - Thursday, May 06, 1999 at 02:26:34 (EDT)
If you are experiencing heart,circulatory, or organ related problems and the doctor cant find anything...ask yourself, Have you been overexposed to a harsh chemical or toxin? This could have triggered new food and chemical allergies you may have never experienced in your life. Try eliminating dairy and trying the grapefruit/distilled water/fresh fruit and vegetable diet I mentioned below. I am well again, thanks to discovering my new allergies, both food and chemical. Hope you can get well too. Remember,Varnishes, glues,paint strippers, enamel paints can probably also trigger MCS...think what have you been exposed to, Is that carpel tunnel "really" carpel tunnel... or an allergy? Good Luck from Belle....and my appoligies for my poorly written comments here...But Im not much of a writer. All I know is my CMS was debilitatingly real and with a new diet and environmental change I have been without symptoms for 6 months. Been to 3 specialist recently, as a symptom free person, to make sure I dont have any health problems and after sonagrams, blood tests etc....I tested fine. I feel healthy and energetic again. Life is good. Hope you too can get well again.
Belle
USA - Wednesday, May 05, 1999 at 22:17:26 (EDT)
My life has been ruined by asthma triggered by washing powders, fabric softeners and 'fragrances'. I am now unable to use public transport, enter public buildings, even visit hospital without risking an acute asthma attack and even worse, a delayed reaction several hours later. Nearly everyone I meet, even my own children, cause me problems because of washing residues on their clothing or perfume or aftershave.
John Lea <john.lea@connectfree,co,uk>
Shrewsbury, UK - Wednesday, May 05, 1999 at 18:27:29 (EDT)
Thank you for informing the world that chemical allergies come in many forms and can run a full range of symptom before they start to attack the vital organs. To all of you suffering, check those warning symptoms before they check you. Chemical allergies are real.
Barry
MA USA - Wednesday, May 05, 1999 at 04:33:31 (EDT)
GREAT SITE JACKI
Jenna
NV USA - Tuesday, May 04, 1999 at 19:14:30 (EDT)
Just dropped by. Keep up the good work!
Mary
CA USA - Tuesday, May 04, 1999 at 19:11:39 (EDT)
Jacki and others with alergies..... be aware that alergy causing water is in almost everything (bottles,cartons,boxes,cans...even tuna is packed in water). You may find improvement by becoming a label reader. If it says "water","filtered water", or "purified water", BEWARE.... Especially if you have a multi-chemical-sensitivity. Instead, stick to fresh fruit and vegetables, distilled water and Grapefruit juice(not-from-concentrate)untill you see improvement....then add new foods to figure out the offending ones. (I would like to note that distilled water does not mean boiled water) ....It would be so nice if more foods were made with distilled water....I think we would see alot less illness in our society. ...Just my theory...hope it can help some of you stay well.
Belle
USA - Tuesday, May 04, 1999 at 18:45:43 (EDT)
Thank you for what you are doing on environmental illness and for your clear testimony for the Lord Jesus!
Dr. Will Duke <willruthduke@home.com>
San Diego, CA USA - Friday, April 30, 1999 at 23:29:47 (EDT)
I have a theory that extreme bladder pressure (the actual lining of the bladder itself) and pain at the base of the spine are symptoms of chemical alergy. By avoiding chlorine (in household products,pools, hot tubs)as well as many other alergens such as nail polish, enamel paints, white out, (absolutly don't drink municiple water) and take short showers in it as the steam has chlorine in it. Eat fresh fruit and vegetables and drink a safe distilled water, such as "Flavorite" (which is very reasonably priced), and for a quick relief after being exposed, drink plenty of grapefruit juice (not....I repeat,not- from- concentrate)Tropicana and Natures Blend in the carton have been good. Be fast going through the bleach and laundry detergent isles in the grocery store. I would like to note that my alergies were brought on by over exposure to superglue in a longterm hobbie. I think all children should not be exposed to too much chlorine, especially if they are experiencing breathing problems and other unusual reactionary behavior problems. It takes sometimes 2-3 days to get over a chlorine exposure and the symptoms are followed by different withdrawal symptoms. Thats my theory, If it can help another person,good. Good luck taking control again,to anyone reading and suffering. Thankyou Jackie,Your sight is very insightful and cute. If anyone has experienced the bladder,spine problems I mentioned and can find complete relief from avoidence of alergens, I would be interested to hear your coments and will look for them at this site.
Belle
USA - Friday, April 30, 1999 at 14:34:13 (EDT)
I believe a person can get a chemical alergy from over exposure to one chemical. Note: Use Superglue sparingly and in well ventilated area.
Belle
USA - Friday, April 30, 1999 at 03:49:52 (EDT)
I would like to know about school or private institutions that teach environmental medicine or anything similar. Thanks a lot The Information you give is exellent Thank you so much
susanne lauf <susanne_lauf>
Tahoe City, ca USA - Thursday, April 29, 1999 at 17:39:59 (EDT)
I would like more information on different ways to releive symtoms of Tourettes other than medications.my son is 14 years old and suffers from very severe tourettes. Sometimes he can't even sit still, and i feel so bad for him. Please help me with as much info as anyone can. Thank You, Kimberly Fennessey
Kimberly Fennessey <kimbo999_98@hotmail.com>
College Station, TX USA - Thursday, April 29, 1999 at 14:31:14 (EDT)
Hello, looking for MCS friends. I think when you have this illness you definitely need others to relate with. I'm twenty eight and i have had MCS for years. Very tired of people not wanting to understand MCS. We need more younger people getting together and talking about having this illness. It's very very hard coping with it.
jason <powlig@aol.com>
bakersfield, ca USA - Sunday, April 25, 1999 at 17:15:21 (EDT)
trying to find the cause of my 5 year old boy's constant coughing and allergic/flu-like symptoms...i think i've traced it to his swimming in public pools...clorine
robert laker <rlaker@achallenge.com>
port washington, ny USA - Sunday, April 25, 1999 at 00:56:12 (EDT)
Please someone on this site. I am hysterical about the realization that I can't wear any of the clothes in my closet. I feel like antimatter. Please if you know of any catalogue or store that sells reasonable looking pants, shorts and/or underwear for petite women, send me the address at the above email address. I am feeling terribly down and ready to chuck everything. I finally found doctors who don't treat me for what I don't have and suggest that I see a psychiatrist or tell me I'm emotional. Please, I'm really feeling upset and unable to continue. If you can help with these things, I would greatly appreciate it and never forget your help. sincerely, Dorrie7373@aol.com And please answer soon because I can hardly stand time passing or rather standing still.
Mrs. R. Stanley <Dorrie7373@aol.com>
Newton, MA USA - Thursday, April 22, 1999 at 13:36:01 (EDT)
I have emailed you just now and am extremely depressed. Please read my email and answer it. I really need to know whether I can find decent looking clothes without formaldihyde or other irritating substances, because right now I don't feel like living and I can't face the future and I'm tired of the puzzle I pose and feel like antimatter. If you can tell me of catalogues of clothes, especially pants, shorts, underwear that a petite, 5 foot 2 person can wear without looking like a martian, I 'd be ever so grateful. Reading thru your whole website right now is too much for me and I'm in a state of utter terror. Sincerely, doris stanley
Doris Stanley <Dorrie7373@aol.com>
Newton, MA USA - Thursday, April 22, 1999 at 10:26:56 (EDT)
I qualified as a test subject at the Environmental and Occupational Health Sciences Institute at the local medical school, while visiting in LA, I could smell an impending earthquake. MCS wa a factor in obtaining social security disability. Now I'm looking for a good place to live on a fixed income. Any suggestions?
DJ Dowe <djdowe@aol.com>
Plainfield, NJ USA - Tuesday, April 20, 1999 at 20:04:07 (EDT)
I visit your site often and always come away with information I hadn't seen before. I also send as many people with open minds as possible to learn the true causes of their illnesses. When anyone asks me for informative articles, your site immediately comes to mind. I have one question - Are you looking for environmentally safe products to put on your resource page? I have found a product that uses only plain water to clean virtually anything. When a friend told me about it, I didn't believe her. She sent me a sample and I vigorously tested it on every cleaning chore I have. With just this cloth and plain water, it cleaned better than any product I've ever used. Absolutely no chemicals of any kind - unless you count toxic water from the tap. Let me know if you'd like more info about it - I'm really excited about because I can visualize how our environment would improve if everyone used this Cloth to clean with instead of all those poisons! Ruth
Ruth Rathbun <rrathbun@snet.net>
Putnam, CT USA - Monday, April 19, 1999 at 04:58:36 (EDT)
evolve or die!
does it really matter? <memnochk@yahoo.com>
USA - Sunday, April 18, 1999 at 14:36:20 (EDT)
Dear Jackie; I just stopped in to see what was new. It is just great. We have continued to learn more and more about out exposure and cannot believe that anything as toxic as the agent sprayed in our home could even have been legal. We did test the chemical and found everything in the chemical that was in our blood and in our home. The saddest thing is that the bankruptcy court is selling the poisoned house. God Bless and keep getting better.
Connie Ho <Ruby2_57@yahoo.com>
Chagrin Falls, OH USA - Saturday, April 17, 1999 at 23:18:27 (EDT)
Thanks for your web page. I have had chemical sensitivity for many years, and have a hard time getting others to understand it. Now I have somewhere I can refer them for more info. I especially appreciated the section on perfumes. My husband & I have often wished churches, restaurants and theaters had
Sharon Bussert <sharon@bussert.com>
Lafayette, in USA - Saturday, April 17, 1999 at 17:35:06 (EDT)
Jacki- Your testimony is extremely powerful!!!!! I told my husband that you are another "Charles Stanley"! Charles Stanley is one of my favorite teachers of all time. He is so "right on" when it comes to theology. I sense the same thing from you. What church do you go to, or did you go to when you were well? I go to Calvary Chapel, which is a non-denominational Bible believing church based out of Costa Mesa, CA , started by Chuck Smith in the 60's. Were you and your husband involved in leadership positions at your church? I would guess you were with your gift of writing, and it sounds like you have a gift in music as well. Have you thought of producing a CD or tape with Christian songs geared toward folks with MCS? That would be so cool!!!!!!! Anyway, my husband is reading your story of faith as I write this- he also came out of the Catholic church. We have always been very involved in our church until I became ill. He is still an elder, but we are no longer able to lead a home fellowship in our home, which has been disappointing, because we always loved entertaining, and those beautiful times of fellowship. How are you and your husband still able to get fellowship? My husband often goes to church or events without me. I get a lot of my spiritual food from my own personal study of the Bible, listening to tapes, and T.V. shows such as Charles Stanley. I do miss not being able to go and worship corporately as often as I'd like. I just keep looking forward to the big party in heaven when we'll get to worship Jesus whenever we want and be in His presence. I can't wait for that day!!!!! I, like you, know God has a plan for me being in this illness, and I have been able to minister to many MCS folks I have met in this area thru support groups. That helps give me meaning and purpose in this illness, knowing God is bringing some good out of my pain. And of course, in my own life so much good has come from my illnesss. I am a recovering "perfectionist/workaholic", trying to accept God's grace, and plan for my life. What freedom I have experienced as I realize I no longer have to "perform" for God or other people. I used to feel that the more ministries I could be involved with, the better Christian I'd be. God has shown me how wrong that mentality was- that I was neglecting His great salvation. Now I realize He wants my heart, not my works of service to Him. Well, thanks again for your tremedous testimony of faith and trust in our great God!!! I am sending copies of it to a girlfriend with MCS who doesn't have a computer. Hope that's O.K.!!! May God richly bless you!!!! Keep on writing!!!! Your sister in Christ, Janine P.S. I also wrote you a little note in the "Contact Us" area of your site. I would love to hear from you if you have a chance, but if not, I understand. With this illness, we must choose carefully where our energy goes!
Janine Ridings <jmridings@integrityol.com>
Snohomish, WA USA - Saturday, April 17, 1999 at 14:18:12 (EDT)
This is a really great web-site. I hope things are still going well for you. I have had MCS for many years but was only diagnosed about five years ago. I have a mild case compared to what you described but to me it is a real handicap. I still work and I don't have the ideal job for a MCS sufferer. I do however, avoid as many triggers as possible. My first EM doctor told me that I needed to quit my job and move to an island, this was not practical. He did however help me very much. I still have trouble but I just have to stay focused and not give up. I could go on for a long time but I think I better stop now. I hope you stay healthy.
MARK SCHMALHOFER <WINCUP20@NETZERO.NET>
NEW CASTLE, DE USA - Saturday, April 17, 1999 at 14:02:00 (EDT)
Thank you for this information on fragrances. I am extremely sensitive to them, and have had trouble explaining to friends and neighbors that "fragrance" doesn't mean they are wearing "perfume". So many products are scented artificially now, many people don't realize how they affect others. (My UPS driver said she uses only DIAL soap -- yet it is enough to cause several hours of adverse reaction in me, if I get close to her.) Keep up the good work! And again, thank you.
Alicia Carter <tonewood@northcoast.com>
Petrolia, CA USA - Saturday, April 17, 1999 at 02:57:00 (EDT)
Thank you for promoting the cause. I, too, have MCS and deal with the frustration of other people's ignorance daily. I don't think I can add anything you haven't felt or heard, so...God help us ALL.
Cindy DuBois <Cynthia.DuBois@enmu.edu>
Portales, NM USA - Saturday, April 17, 1999 at 01:15:05 (EDT)
thank you!!!!
Julie Walker <mrharris@btinternet.com>
kettering, uk - Friday, April 16, 1999 at 09:41:21 (EDT)
Thank you for creating such an informative web site. As someone who has always been very sensitive to chemicals and has a friend who has MCS (I may well have a low-level case myself), I am on the lookout for intelligent advocates of healthy lifestyles and your site is a winner. Regards, MJC
M.Congo <mjcongo@mtholyoke.edu>
USA - Saturday, April 10, 1999 at 22:12:34 (EDT)
About 2 wks ago, thanks to this information you supply and your testimonies, I learned that all the problems which have been dogging me for the last 8-9 years, which are worsening, are related, and the enemy has a name. I simultaneously was given the name of a specialist who helps us MCS people and see him next Thursday. I am overjoyed with even this. I hope to regain more of my time, not being part of the couch as a mindless "flu" victim! Thank you heaps for all the encouragement and information. I have come back here several times now.
Mary Brinton <bmjbrint@aol.com>
Lee, MA USA - Thursday, April 08, 1999 at 20:17:50 (EDT)
I am just realizing how greatly affected i am in the enviroment I live in. I have many simptoms which match some of the ones I have read about on this web site. I was looking for a possible link to yeast infections and my laundry soap. I have had only one since I changed to cheer free. But i used a fabric softner which I think could be the culprit. I was also wandering if our water has anything to do with it? I can tell when they put in the chemicals because i can smell the chlorine. Any help would be appreciated. Thanks It is very amazing to finally figure out that I am not crazy. I have many reactions and am greatlful that there are other people out there that can confirm these.
jill hebert <thehebs@dcnet2000.com>
houston, tx USA - Tuesday, April 06, 1999 at 21:12:29 (EDT)
I am a college student doing a speech on the negative effects of air fresheners have on our health....thank you for the help! J.K.
J.K. <Indigo_gaL1606@yahoo.com>
ny USA - Monday, April 05, 1999 at 22:59:12 (EDT)
Came across your site through a Keith Green search. Glad to see someone taking a stand to proclaim the truth. When anyone speaks out as such, many want to yell "you're judging!" However most fail to remember judging also means letting the guilty go free. We can be guilty of one just as well as the other. I don't know if you are familar with John Gill (lived in the 1700's) his view of the Catholic church is that of "the great whore of Rome." His commentary (9 volumes) is available through the ONLINE BIBLE cd-rom. It is available for around $30 bucks or so. The web site is at http://www.onlinebible.org/ This program is PACKED with materials. I is not shareware but a full program. God Bless You and continue to grow in His grace. Danny
Danny W. <Bockeyz1@netscape.net>
TN USA - Monday, April 05, 1999 at 04:17:29 (EDT)
Appreciate your pages and Christian outlook. I apparently have MCS. Praying that God will remove this. Thanks.
Linda Beilstein <beilstel@peak.org>
USA - Saturday, April 03, 1999 at 15:41:02 (EST)
I am planning to have my silver amalgam fillings removed. But before I do so, I would like some feedback from anyone who has done this already. I am particularly interested in your physical response to the procedure, and if the removal produced any relief from Multiple Chemical Sensitivity.
Kathee Roy <robroy@echo-on.net>
Toronto, ON CANADA - Friday, April 02, 1999 at 16:22:11 (EST)
Do you have any experience with the procedures called ElectroDermal Screening (EDS) ElectroAcupuncture According to Voll (EAV)? I have had CMS for approx 15 years. It is getting worse. Through the reading of several publications and books by Dr. Sherry A. Rogers and the American Academy of Environmental Medicine, I found only one doctor in Maryland, who was certified with the AAEM. Her credientials are vast, however, this EDS and EAV procedure is something that I have never read or heard about. The internet is full of information although it seems that this is used widely in France and Germany, very little in the United States. I appreciate your time in reading and answering these statements and questions. Although I have not read all of your website, I was confident in contacting you because of your boldness to share the faith and the trust you have in our Lord. God's continued blessings and encouragement to you and your family in this season celebrating the proof of that hope. Blessed Easter. Dari
D. McGinnis <mcginnis@crosslink.net>
Hughesville, MD USA - Wednesday, March 31, 1999 at 12:29:16 (EST)
Love your detail
Angela Krienke
La Ronge, Canada - Tuesday, March 30, 1999 at 15:55:29 (EST)
Thanks for a lot of information. I know that many MCS-patient in Germany are reading your homepage. And I hope it has your OK when I write this following information here in german. I have MCS and I want to create a TV documentary film about the MCS in Germany: Ich bin freier Fernsehautor und selbst an MCS erkrankt. Für meine TV Dokumentation "MCS in Deutschland" suche ich dringend MCS-Patienten, die vor der Kamera frei über ihre Krankheit und ihre Gedanken zum Industriestand Deutschland erzählen können. Dies wird wohl auch weltweit der erste längere TV-Film über MCS sein, der von MCS-Opfern selbst gemacht wird. Keine Angst: Die Geräte sind ausgegast und ich und meine Helfer (ebenfalls MCS-Patienten)leben alle parfümfrei. Übrigens: Ich drehe diesen Film nicht für das Amateurfernsehen, sondern professional fürs internationale Fernsehen. Harald Haack / TrueMedia Telefon: +4940 227 39 144 Mobil: 0179 23 77 380
Haald Haack <tv@truemedia.de>
Hamburg, HH Germany - Monday, March 29, 1999 at 04:20:10 (EST)
These comments are very interesting. I discovered this site because I am planning a trip to England at the end of this year and they don't seem to have to much information regarding this sensititivy or know anything about it. My main problem is perfume and scented products. They make me feel quite ill and give me extremely bad headaches. What surprises me however is that friends who you would think would be a little more respectful of my health are somewhat scornful when I ask them not to wear perfume. In fact I have one friend who almost seems to deliberately put it on if we are going somewhere, to the point where last week I told her that if she couldn't respect my health that we would have to stop going anywhere that required me being in an enclosed space. As we live in the country and have to take a car wherever we go this means that we won't go anywhere. I am really disappointed that people seem to think that this is "all in the head". Anyway, just a little venting going on here.
Valerie <valeriebecks@ns.sympatico.ca>
Halifax, NS Canada - Saturday, March 27, 1999 at 07:38:25 (EST)
My sister is living with M.C.S. in New Mexico. I haven't seen her in years. She can't have a computer but I thought I could send her any updated info. She is featured in the book The Dispossessed. Her name is Janet. Looking forward to hearing from you on any new developments in this disease.
Laurie Sleeper <Sleeper@net1plus.com>
USA - Thursday, March 25, 1999 at 21:39:48 (EST)
I'm currently looking up chemicals in perfumes as a project for class. I found this page to be the most informative one that I've found. I never would have imagined that my perfume could cause such serious effects as these. It's kinda scary to think that people out there don't know what they're truly putting on their bodies every day. I know, thanks to you, that my life will be a little different from now on. I'm passing on what I've learned to my fellow classmates and friends.
Stephanie <_stebb@yahoo.com>
OH USA - Wednesday, March 24, 1999 at 23:01:46 (EST)
Hi, I'm in health class at the moment and we were told to look at your site.I'm finding it really interesting and I feel really sorry for the person who got sick. I hope that nothing like that ever happens to me! BYE!!!!!!!!!!!!!!!
Amanda Sinclair
Australia - Wednesday, March 24, 1999 at 21:37:39 (EST)
I was over-exposed to chemicals November 96' was continuosly ill with all the symptoms you have in your "story" saw 5 doctors, all saying too much work/stress etc. Finally found an environmental specialist Feb 98' that knew right away what was the matter and have been improving ever since. I am so greatful that people have experienced this before me, at one point I thought I was the only one and it was so bizarre that no one understood. I couldn't imagine never knowing what was truly wrong with me and not getting help. Every day I face a struggle, I am very determined to get my life back 100%. I want to reach out and help others that are suffering from MCS. I am grateful for my improvement so far and if this is as good as it gets, I will be grateful. but I won't give up. If anyone has any suggestions on how I can help others please let me know.
Kim Emmons <jemmons007@aol.com>
Maple Valley, WA USA - Wednesday, March 24, 1999 at 18:54:29 (EST)
I am not sure if I have MCS, I have many of the symptoms that are listed on your page I have been tested for so many different medical problems and they always come back negative. I was recently tested for hyperglycemia and diabetes because I have been getting extreme headaches, dizziness, fatigue, nausea all at the same time. How can I find out if I have MCS? Can a primary care doctor diagnose this or do you need to go to a specialist? I am glad I found out about this stuff while I am still young. I am only 20 years old and I have all of these problems. I used to think it was stress because I am a college student. I hope to hear from you soon. Thank You, Rebeka McGee
Rebeka McGee <ram258@psu.edu>
Burgettstown, Pa USA - Wednesday, March 24, 1999 at 01:05:34 (EST)
Thank you for your very informative pages. I am gathering information for my NAET practitioner, who has cleared many of my allergies, but cannot clear perfumes after 6 treatments. I am also a Christian, and wish I could help my fellow parishioners how much their fragrances physically hurt me. How I wish we could have a fragrance-free service, or even a portion of the sanctuary set aside. There are more and more of us with fragrance sensitivities!
Diane Mettam <dmettam@sprintmail.com>
Bishop, CA USA - Tuesday, March 23, 1999 at 18:00:09 (EST)
Interesting information
Cindy Allen <sallen@i-plus.net>
Dublin, VA USA - Tuesday, March 23, 1999 at 16:25:48 (EST)
Thanks for helping to educate people about MCS, especially the hazards of perfumes and fabric softeners. I became disabled from perfume exposures in the workplace about a year ago. I didn't know what MCS was, only that I started developing migraines, vomiting, dizziness, and other symptoms after being around perfumes. Sometimes the migraines and nausea lasted 12 hours or longer after working around perfumes. Within months, I became "allergic" to not only perfumes and colognes, but to most scented products, like hair sprays, shampoos, and gels; laundry detergents; scented deoderants; lotions; etc. Soon everything was making me ill and no one knew why (doctors), or what to do to help me. After a year of being poisoned by the fragrances, I ended up in bed for 3 months and nearly died from the constant vomiting (dehydration, inability to eat, etc etc). I am now dealing with asthma, lupus, and breast cysts. I have no doubt that perfumes and other toxins in the environment poisoned me subtly over the years. People need to be aware of this. I suffered greatly also by the cruelty and ridicule of my coworkers.
Michelle <MHARTT@JUNO.COM>
Sacramento, CA USA - Tuesday, March 23, 1999 at 16:13:26 (EST)
I had been working selling perfume for 8 years; I have developed a severe allergic reaction to it. I'm presently filling a claim for Worker Comp. the insurance company sure is giving me a hard time. I found a lot of good info on your site. Thank you good information on your
Barbara Gallahan <bghg4545@swbell.net>
El Paso, Tx USA - Monday, March 22, 1999 at 20:04:58 (EST)
I have made many friends and have received much help through your pages, thank you for running them. I am MCS from OP(s)sheep dip 8 years ago and my immune system is recovering at last but I still need to be careful. I am due for dentistry soon and wonder if anyone can advise me about safe local anaesthetics for MCS folk? I have to avoid petrochemicals and sulphur as well as organophosphates.
Sandy Perceval <sandy@templehouse>
Ireland - Monday, March 22, 1999 at 19:31:47 (EST)
So glad to find this. My E.I. doctor suggested computer years ago to help with isolation. Finally got one. Want to find others to to share experiences with, and also offer encouragement!!!
jude craddock <judedove@aol.com>
Veneta, Or USA - Sunday, March 21, 1999 at 12:00:10 (EST)
Brought much insight into faith that I needed.
Paula Vining <PVining@aol.com>
College Park, Ga USA - Monday, March 15, 1999 at 19:14:45 (EST)
Your website is very informative...I have refered it to alot of friends and family...My son was in the hospital for a week a year ago..has had alot of tests...was treated for asthma...has been on steroids inhalers etc...after i read your site i realized it could have been a chemical sensitivity...he and his friends were messing around with a can of body spray...spraying it at each other...also i can't stand strong smelling perfumes...they give me headaches...now I know it wasn't just in my head!!!!! Thanks
Lisa Henegar <Henegars2@aol.com>
Springfield, MO USA - Saturday, March 13, 1999 at 23:47:53 (EST)
Up until a few days ago I did not know MCS had a name. It's a life style I don't wish on anyone.
John A Clements <CUTWRONG@AOL.Com>
Midland, MI USA - Thursday, March 11, 1999 at 14:20:05 (EST)
Have used some of this info to put on my door at work. EPA report helpful in Hazardous Waste Regulation Section where I am employed. One problem: the colors on this particular page make me have weird visual sensations flashing bars of lights, etc. Strange.
Margaret Holladay <holladay_m@dep.state.fl.us>
Tallahassee, FL USA - Thursday, March 11, 1999 at 11:23:49 (EST)
Thank you for the information on fragrances. I work with a girl who, on a daily basis, sets off an asthma attack for me. To make a long story short, she denied wearing perfume and no body else can smell anything on her. I cannot explain what this smells like to me. I just feel "sick and tired" all day; not to mention being irritable, impatient, lethargic, and "loose 50-100 IQ points"!!! Again, thank you for your information. I hope you continue to improve your health. I'm feeling better myself! ~:)
Janice Brown <jbrare@iquest.net>
USA - Wednesday, March 10, 1999 at 22:51:42 (EST)
Thank you so much for the info! I was searching & searching about chemicals in perfumes for my project. All I got was perfume prices until I found your site. I really learned a lot. 'hope to find more sites like yours. :)
Jennifer <jen19@eudoramail.com>
Philippines - Wednesday, March 10, 1999 at 20:34:36 (EST)
I've been hunting all morning for info on "Stinky Perfume" There is a lady here who insists on coating herself with perfume all day. She is making all the other employees in the cubicles next to hers sick. I want to adopt a "NO Perfume" Policy here and your information is wonderful!!! Thanks again, Laurie Mascari, Director-IS Avionics Specialist, Inc.
Laurie Mascari <lmascari@avionics-specialist.com>
Memphis, TN USA - Wednesday, March 10, 1999 at 11:11:48 (EST)
I just love this site, as it is full of excellent information. What do you think of a product that would support the immune system? Would this help many people who are suffering? This product has just emerged with many years of research. I hope that the information I am adding can help many. Legacy USA web-site www.legacyusa.com the product BioChoice is www.biochoice.net/products These can be ordered over the web with an ID # 416392 My father has a web-site with Non-Toxic household and personal care products at www.21stonline.com/bobgarvin If any of these products can help one person we have done a wonderful thing. Thanks again for this site!
Carolyn Peacock <cjpeacock@2xtremeaccess.com>
Vancouver, WA USA - Monday, March 08, 1999 at 14:45:34 (EST)
Thanks for sharing your story, it was very enlightening-- I am doing research to develop a protocol for a fragrance free work environment. I work for a health care facility and would love to eliminate as much allergen exposure as possible-- Again, thanks for the info
Terri Macias <Teresamacias@usa.net>
Porterville , Ca USA - Monday, March 08, 1999 at 13:06:33 (EST)
Yes Good site see it again
Peter Alan Kissagizlis <peterkay@clara.net>
Hessle, East Yorks UK - Sunday, March 07, 1999 at 14:29:59 (EST)
Yes very good!!
Peter Alan Kissagizlis <peterkay@clara.net>
Hessle nr. Hull, ey UK - Sunday, March 07, 1999 at 14:28:53 (EST)
I am really impressed by the wealth of information I am able to gather on your website. Thanks for all the work you have put into this. Since I just recently have come "out off the closet", so to speak, I have been visiting often. I have been having problems with perfumes for some time (asthma attacks), but I didn't connect my headaches and general discomfort to scents (chemicals) untill my 13 year old son got sick from the paint they used for the hallways in his school during Marchbreak last year. I watched and learned. Then I had to leave my choirpractise because of someone's perfume (I seem to be getting more sensitive)and that prompted me to write a letter to the editor, if it's too long just cut it out. After the letter was published I got many calls, that's how I found out the name for what I have and that I am not alone with this. Really love your tweety bird. Do you have a poster or sign with tweety, that people could put in their door to make visitors aware. How about buttons to promote awareness. I am trying to make a sign for my door. Keep up the good work, I hope that we will not leave a totally poisoned world as legacy to our children, that was not God's plan. Take care, get well. Cornelia Jahn Awareness has been raised about the danger of smoking and second hand smoke. I would like to make people aware of something that can cause distress, just like smoke. It is "perfume". And this single word stands for any scented product that is part of the hygiene industry, which include soap, shampoo, aftershave, hairspray, cologne, body lotion, hand cream, make up, etc. Let me tell you what happens when I walk into a room and detect a scent in the air. First of all I get scared, because I don't know how it will affect me and what will happen if I stay in the room. Sometimes nothing happens, but any of the following could happen. I could just get a dry, cottony mouth, a plugged up nose or phlegm on my vocal cords. I could go into coughing spasms or get an asthma attack and I could get a headache that ranges from mild to a classified migraine. I can get fatigued and I know that it lowers my immune system. The symptoms and the severity depend on the scent that I am exposed to. Over the years this condition has worsened and I had asked my Allergist for help. Unfortunately there is no remedy, allergy shots are not effective, since this is not an allergy but a reaction to chemicals ( please don't ask me what the difference is ). I have told family and friends about my dilemma and many wonderful people have "descented" themselves forever, or when they know that we will be in contact. Some even go as far as not wearing the coat or other clothing that have the lingering, offending scent on them, because it lingers and lingers............... But there are people who have told me that it is their right to wear any "perfume" they choose. Others don't say anything but just keep doing what they have been doing. And yes, they have that right. But what about my right? Does their right supersede mine? This might be far fetched but people have a right to drink, not to drink and drive. How about a courtesy concession, when we meet on common ground, please restrain yourself. And yes, there are body odors and they are extremely offensive. But they can be combated by regular washing with a mild soap; and there are a lot of unscented products like anti- perspirants and lotions available. If we are honest we must admit that no scent can overcome BO! When I look back at the times I have isolated myself from group activities and family gatherings it was due to this fact. Just imagine there are 10 people in a room. 10 people using 10 different soaps, shampoo and anti-perspirants. 10 people using 10 different kinds of aftershave, cologne, hairspray etc. This is simple math, by now you have many scents [chemicals] in the air, a viscous concoction. Which makes any public meeting like church, choir practise, funerals, weddings, concerts an open invitation for trouble. So next time you grab that bottle or tube ask yourself, do I really need this, who am I benefiting by using this or whom could I be causing distress? And if you don't care about other people, what about yourself, or your children? What are we causing by constant exposure to all these chemicals? Why am I writing this? It is not out of a desire to deny people their pleasure and their right, but out of a deep desire to be able to interact with people without repercussion, to be able to do the things I want to do, just like you. Cornelia Jahn January 18.1999
Cornelia Jahn <kjahn@sentex.net>
New Hamburg, Canada - Friday, March 05, 1999 at 15:44:38 (EST)
my brother, gaylon, has hyperactive airways disease, brought on we believe, by welding with inadequate ventilation. He has no trouble with animals at all, but cannot tollerate any contact with perfumes, cosmetics, cleaning agents, or ag chemicals.
barbara pittsley <geithyrd@northsidecomp.com>
spencer, wi USA - Wednesday, March 03, 1999 at 19:41:54 (EST)
Many EI patients have asked me for the address of this web site. It has stopped many from guessing and spending a lot of money on tests that did not help them. This lab report is low cost and they can order it from home without a Dr's office visit.
Dr. Donald A. Rosenthal <wellness1@email.com>
Elk Horn, IA USA - Monday, March 01, 1999 at 22:07:25 (EST)
Thank you for all the information. I am involved with a company called Lifetime Solutions, who is dedicated to making the world a safer environment. Their products are totally non-toxic and environmentally safe. This is a problem that is real and more people need to speak up to government. YOU can protect your own home and the ones you love by taking a stand. Please feel free to contact me for more information.
Kim Hojnacki <ltskimh@aol.com>
milwaukee, wi USA - Monday, March 01, 1999 at 21:04:30 (EST)
Enjoyed reading your testimony. A friend of a friend is Catholic, and not saved. He asked me to find something to share with her. I made copies of testimony and Good News page. Her name is Patti. Please pray God will prepare her heart to hear the Gospel and accept Christ as Savior. God bless. Hal
Hal Roby <HizRep@aol.com>
North Augusta, SC USA - Monday, March 01, 1999 at 15:31:41 (EST)
Thank you for being there. I am facing job loss due to problems caused by heavy usage of perfumes at work. Will be back because I would like to learn from your Christian witness. My wife and I are believers. The peace of the Lord be with you.
Jim Bryan
USA - Sunday, February 28, 1999 at 23:06:31 (EST)
Jacki, For anyone who is interested in reading the testimony of a young lady, I know, who was suffering terribly from chemical exposure on the job and found a way back to health, may I suggest they find the web site hacres.com and click on testimonies and go to the last testimony. This is the true story of Sandy Kureshi. My wife and I became Health Ministers through the training offered at Hallelujah Acres and sponsored Seminars where Sandy would tell her story. Many people were helped and not only those suffering from MCS. For further informaiton on the Hallelujah Diet and a new colloidal solution, called Planet Solutions, now available to take the place of chemicals in the home, please write to me at gardenoflife@juno.com Blessings. Bob
Bob King <gardenoflife@juno.com>
Indialantic, FL USA - Sunday, February 28, 1999 at 15:18:17 (EST)
Jacki I came across this site while viewing MCS sites. I have recently found a company that is committed to replacing chemicals in the home. Have you heard of Planet Solutions? I have a brochure and a copy of the MSDS if you write to me. Also are you aware of Label It Poison Foundation? Planet Solutions is working closely with this foundation and making a difference in the environment. Look forward to hearing from you. A couple of sites to check out. Chem-tox.com and labelitpoison.com Blessings Encouraging others to a healthy lifestyle, Bob
Bob King <gardenoflife@juno.com>
Indialantic, fl USA - Sunday, February 28, 1999 at 13:53:45 (EST)
Dropped in again to catch up on what is happening to others who suffer MCS/EI. I am saddened to read comments from others who have no understanding nor compassion, for the many people world wide who genuinely suffer these debilitating illnesses. What is worse is the fact that they , like all of us are free to leave a comment, but please let the comments be constructive, not destructive. Many suffers who view these pages are so happy to be able to read of others in like situations. It is not a pity party- but reality, I have made many new friends through this site. Keep up the good work. Great site. God Bless. Anne.
Anne Litjens <eandacad@hotkey.net.au>
Mt. Martha, Victoria Australia - Sunday, February 28, 1999 at 06:05:15 (EST)
I'm gagging on all this CRAP!!!
Vladimir Martinez-O'Reilly
Disputed Zone - Sunday, February 28, 1999 at 01:33:02 (EST)
A great deal of information. Thank you. How could I get more information on Dr. Joseph B. Miller, I would like to contact him to do some testing on me. Thanks.
Charlotte Gharib <iraji@worldnet.att.net>
Brownsboro, AL USA - Saturday, February 27, 1999 at 09:16:41 (EST)
all of the information is great. i didn't realize so many people were suffering the same way i am. i plan to get a physician referral from the american academy of environmental medicine & hopefully get some help in dealing with chemical sensitivity. thank you very much.
jean miller <sunshine@cwv.net>
lookout, wv USA - Saturday, February 27, 1999 at 09:05:42 (EST)
Thank You soooo much for all your information. I have major allergies and a thyroid problem. I have been having a lot of problems with smells. I look forward to reading all the information and learing from it. I know God is faithful to heal and I do stand on that. Thank You for all you have provided.
sherri moore <sherilgl@hotmail.com>
South Lake Tahoe, ca USA - Friday, February 26, 1999 at 10:41:31 (EST)
Great information, Thank you
Kathy Hill
San Jose, Ca USA - Thursday, February 25, 1999 at 16:48:27 (EST)
Doing research for a MCS patient incarcerated in Arkansas. Nancy Crow #703709, C-1, P.O. Box 5555, Newport, AR 72112-5555 please place her on anyones mailing list that might lend support. Thanks
Robert Yowler <ryowler@worldnet.att.net>
Apopka, FL USA - Wednesday, February 24, 1999 at 05:05:19 (EST)
Your Website is very interesting. I am really against all these chemicals in everything we use. I have just got into Melaleuca and I love their products. They have a great Web page you might enjoy. www.melaleuca.com They products are safe and great!!!!
Peggy & Arnold Guenter <apguenter@pacificcoast.net>
Victoria, B.C Canada - Tuesday, February 23, 1999 at 19:28:47 (EST)
I need help. My mother is chemically sensitive. She is on disability and is having trouble making ends meet. We can't find her cheap safe housing or a roommate who meets her needs. Do you know anyone in the Ft. Lauderdale,FL and/or Boca Raton, Fl who could help? Please we are desperate! Thank you, Tara
Tara Slomsky <Tarabell25@aol.com>
Boca Raton, FL USA - Tuesday, February 23, 1999 at 17:04:34 (EST)
Although new to the board I am not new to MCS. Our family of 5 has had MCS for nearly 10 years. I read the post dated 2-13-99 regarding "whining" and "God not liking complainers". I really feel that this person needs to be reading their Bible instead of going on boards judging people. No one has a clue what we all go through. At one time we were fighting the environmental pollutants that sickened us (this was in another state) and people called and said if my kids were going out getting mail they'd throw bleach on them. At the time the oldest was six. People have a tendency to continually crucify us. Most of the time we do not complain. We try to exchange and warn people. After what we've been through we don't want to see anyone suffer with something so horrendous. I would like to see these people try to walk in our shoes. My kids cannot attend public schools, they ought to try to be sick and teach their children or make a meal or go to the grocery store. It is not a normal life and cannot be. But it is faith that gets us through it. If anyone has a right to complain about the world it is us that live this day in and day out. I enjoy reading the information and learning tips from others.
KMarie <Katie@myworldmail.com>
Nashville, TN USA - Tuesday, February 23, 1999 at 16:09:05 (EST)
I am doing a report on the adaptations that may be needed for special needs kid in a pre school setting for my class in Early Childhood Education. Thank you for giving me a new perspective to consider. LinnAnn
LinnAnn Pike <sitandlaf@hotmail.com>
Aberdeen, wa USA - Monday, February 22, 1999 at 21:19:55 (EST)
This is probably the best web site I've seen so far on MCS. You are providing a great service! Thank You
Tom Adams <tdjml@aol>
Newville, PA USA - Monday, February 22, 1999 at 20:53:29 (EST)
Was searching for Tourette's Syndrome for info on grandson and ran across all the other info. Extremely enlightening! Have made copies to be passed on to all my grandchildren and children. If there is a mailing list for this type of info, please add my name. I'm just wondering ... what have we done to our children and what are we continuing to unknowingly do to them? This is beyond "sad" ... it's criminal! Betty Prater
Betty Prater <bprater@twave.net>
Hickory, NC USA - Sunday, February 21, 1999 at 19:52:32 (EST)
I have an 11 year old daughter with MCS.
Sara Wiseman <SaraWise@aol.com>
NY USA - Sunday, February 21, 1999 at 16:42:40 (EST)
I was exposed to Dursban June 97...i have developed health problems and MCS from this exposure..it has devastated my life
Lisa F. Hughes <Lisa9454@aol>
Lafayette, LA USA - Saturday, February 20, 1999 at 03:27:17 (EST)
Because I am ultra-sensitive to certain smells (odors)--migraine headaches--I am researching the reasons certain agents cause my headaches. Thank you for providing your information!
CFoley <cfoley@mtech.edu>
Butte, MT USA - Friday, February 19, 1999 at 10:07:26 (EST)
Well, I am very glad to find your page. I like others also suffer from allergies and asthma. It is very frustrating to live with these and not have others respect your health. I work in an office where there is NO "No Scent" Policy. Co-workers are aware of my allergies, especially to perfumes. It is a joke when I suffer from pain in my chest and cough from these aggravents. "Whine" about our disease. Never. Suffer with it, always. Give me a break, would I pour Javex into your lungs. That is how it feels, but the will never know until they walk in our shoes. Thanks for the vent..., it felt good.
Mary <cleopatra@ns.sympatico.ca>
Canada - Wednesday, February 17, 1999 at 20:00:25 (EST)
I have enjoyed visiting this site and have made some really great friends over the net. It is hard to meet people when going out in public makes you ill. This is a very hard illness to take sometimes. It is hard on the person that is sick and hard on the family. I know this first hand, because my husband just left me after 25 and years of marriage and 30 years of a great friendship. I know if not for this illness we would still be together. I have not been able to work in 2 years. I now have relocated and my health is slowly improving. I just want every who suffers from MCS that natural things can cause you to become very symptomatic too. This may not have caused the immune system to go crazy, but I know it can irritate this situation.I lived in Texas where there are alot of Cedar (Junpurus Mexicana). The pollen from these trees can cause alot of dicomfort in non-MCS people and I am living fact that they can cause major flair-ups for us that do have MCS. So I just want people to know that when they are looking to eleminate the toxins out of their lives, that some of their toxic reactions may be from what the Creator has given us not just from man made products. I have a few questions and comments that I would like those with any info or suggestions to contact me. 1) Is there a home or a government project that is deals with MCS people. If not there should be. I am soon to be homeless and would be interested in helping to start a place like that. I have no money, but I am sure that there are those out there that do and would see this as a good thing. A place in a clean enviroment that all MCS people from all walks of life could go and become self sificient and grow all natural organic fruits, veggies and meats. Our social security is disappearing very quickly in this country and there may be a time when more people will be forced to live on the streets because they have done nothing more than be poisined by their environments. Is there help out there. 2) I hear that Steven Segal has MCS. Has any one ever contacted him about becoming the spokes person for this cause. Some one to go public that is in the puplic eye and make this a household concern like it should be. I wrote an article on MCS and could not get the local papers in Texas to print it because they told me it was too contraversal. I asked them when did the truth become contraversal? We should all try and change that attitude in our society. It would be a shame that the stresses and extra work and heartach that this illness can cause should be placed on everyone. We need to speek out on the dangers that we place on ourselfs and on Mother Earth. She is what we are made of. And if she is sick it should be no suprise that we will become sick too. I hope to hear from those who have info that could help me and help others with MCS. Thanks, Jackie
Jackie F. <jackie1@netnitco.net>
Demotte, In USA - Friday, February 12, 1999 at 11:20:36 (EST)
I had MCS and I asked God to heal me of what I was allergic to and I am in the process of being made "whole". I thought I was going to die because of the problems I was having and the doctors could not help me. They all did not know how to treat MCS. I put my illness in the Lord's hands, he has healed me and pulled me from the "pit". God is the physician of physicians, and I am a witness that He truly loves us and he's in the healing business. Love in Christ, Debbie
Debra Foote <footeda@umdnj.edu>
newark, nj USA - Wednesday, February 10, 1999 at 12:54:50 (EST)
A member of our church congregation has MCS. He worked in the petrochemical industry and has been unable to work for the last two years. Your website has provided us with information to help understand his disease. Thank you.
J. Harriott <jharriot@nb.sympatico.ca>
Quispamsis, Canada - Saturday, February 06, 1999 at 20:47:32 (EST)
if only others believed MCS is causing or aggravating conditions you suffer from. they think its in your head, until they walk in your shoes. can't wait till the day when i can say "I TOLD YOU SO!"
debbie <moxie@socantel.net>
pa USA - Sunday, January 31, 1999 at 17:17:56 (EST)
This is a wonderful web site to see for Christians. I would love to learn more about how God has used you in His ministry.
Liz Hatfield <REHAT@gomontana.com>
Gardiner, MT USA - Thursday, January 28, 1999 at 16:02:05 (EST)
This Home Page of yours has really blest me! It has given me more Faith & I know that God does answer our Prayers, & That He loves us so much! God Bless You, Pam
Pam Roberts <pd11@webtv.net>
Kings Mountain, NC USA - Monday, January 25, 1999 at 11:56:30 (EST)
Thanks for the community! I've been recovering very slowly from MCS-CI for the last couple of years, and there's a long, long way to go... I'll be back!
Lori Claude <loriclaude@hotmail.com>
Necedah, WI USA - Friday, January 22, 1999 at 08:37:53 (EST)
I was so happy to find your webpage and the reports regarding fragrances. I have been allergic to downey, newspapers, deodorizers, perfumes, after shave lotion, and the work place. I am so sick, have asthma, am tired/exhausted, and chronic cough. I can not get rid of the cough. I am now going to a pulmonary specialist whom I hope and pray can help me. Glad to see the christian page. I am a Christian and pray everyday.
Jerri Lippert <lippertj@dtsw.army.mil >
Front Royal, VA USA - Wednesday, January 20, 1999 at 10:56:21 (EST)
Thank you for helping me realize that I'm not crazy! I have slowly discovered that I am allergic to Quaternium. Usually I break out in a red rash and become very itchy. When I started having trouble with my eyes watering, swelling, becoming itchy and red I went to the doctors thinking that I possibly had pink eye. The doctors really didn't have an exact answer so I started going through all my products that I was using and discovered that of all things, my contact lense solution contains quaternium! What a relief. I stopped using the product and my eyes are back to normal. Do you know where I might find more information on Quaternium specifically?
Kim <w_angel44@yahoo.com>
USA - Wednesday, January 20, 1999 at 07:30:21 (EST)
Thanks for your informative site and Christian testimony. My family has been poisoned by the emissions of a bitumen plant located very close to our church and home... your material on MCS is helpful Thanks again Rev. Bob Carner
Robert Carner <carner@hotkey.net.au>
Arundel, Q Australia - Tuesday, January 19, 1999 at 21:51:37 (EST)
I have allergies and asthma. Can't stand all the awful smells and such that are in the air. People tell me I have a very sensitive nose and "HOW" can I smell this and that when they can't. Your site was great. I really enjoyed it and learned a lot from it. Thank You.
Kim Poutre <Poohtray@aol.com>
USA - Sunday, January 17, 1999 at 18:14:17 (EST)
Thank you for shedding some light on a issue that I have been struggling with for the better part of 6 months. The doctors have been no help if not part of the problem.
Debbie Anderson <DebbieSAnderson@hotmail.com>
Fair Oaks, CA USA - Saturday, January 16, 1999 at 14:57:19 (EST)
My son has TS,OCD,ADHD,Bi-Polor,and seizures. I have asked his doctors many times if some type of allergies could be making things worse everyone has looked at me like I'm the crasy one. But perfume, hair spray and some foods have always made his behavior worse. His behavior is so out of control that I have been considering long term placement. But can't really seem to get any hlp there. Eveeryone expects me to deal with it the best way I can. He is 12 and as big as me . I need some help!!!
diane <dbfrey@hotmail.com>
carrollton, ga USA - Saturday, January 16, 1999 at 10:46:43 (EST)
MCS is a disorder caused by toxins and likelly causing inflammation of meurotransmitting organs. Such is as result of exposure to toxic chemicals, bacterial toxins of gram negative bacteria likely in intestines, mycdotoxins from fungi or exsotoxins from viruses. This is why it is so difficult to diagnose. Recent study in CANADA confirmed that injection of sodium lactate to people diagnosed with MCS caused neurobiological reactions simillar to panic disorder!!! Sodium lactate causes very mild acidity. One of the most dangerous consequences of metabolic changes resulting in acidity are disturbances of hormonal and enzymatic chemical balance. Consequently such disballance causes severe stomach acidity! The foods such as cheese, bananas, eggs, beer, do have enzyme known as TIRAMINE (or TYRAMINE). This enzyme is frequwntly associated with the bacterial fermentation process (aged cheese). The presence of this enzyme as well as intestinal bacteria byproducts result in food intolerance. Bacteria in colon produces lactic acid, causing also increasing acidity. Lactic acid is known to cause cramps and and muscular pains. Such likely is the cause of intestinal pains. The QUINUM is a medication known as anticramping medication likely controling lactic acid. Due to acidity many people withndental amalgam develop like metallic flavor in the mouth, and a symptoms of electrolysis when using metal utensils when eating! The canker sores in mouth develop as first signs and symptoms of accute mercury poisoning from dental amalgam due to acidity of system. The canker sores are frequently misdiagnosed by physicians for HH6 or oral herpies. The mercury from dental amalgam start leeching causing increased metallic taste in mouth, and consequent severer neurotoxicity. The pains start all ober the body, joints, liker carporal tunnell, loudly snapping joints, severe pain in the chest. Some people with with MCS develop symptoms simmilar to ASTHMA. Asthmais a neurospasm of smooth bronchial muscle. The latest research are confirming that asthma is caused by walless organism known as mycoplasmas. In case of MCS people are experiencing respiratory symptoms due to irritation of nerves in the trachea area as result of neurotoxicity. MCS (known as GULF WAR SYNDROME) is one of the stages of group of diseases known as CFIDS, FIBROMYALGIA, SICK BUILDING SYNDROME. THe reactions to inhalled ENDOTOXIN, MYCOTOXIN or GLUCANS from airborne bacteria and fungi is the only cause of SBS. People with MCS develop severe photosensitivity and even dizziness. Such is cused by the light flicker known as amplitude modulated light flicker from fluorescent light, TV and computer monitors (source of light as result of illuminated gases in alternative current -fluorescen, mercury, halogen,hidg sodium pressure light). This effect is perceived by skin and ans sight. People with MCS have damaged hypersensitive central nervous system (Time Dependent Neural Sensitization and Total Lost Neural Tolerance as resukt of neurogenic inflammation. Such may be caused by intestinal infections even by Helicobacter Pylori. Bacteria produces endotoxin interacting with central nervous system. The treratment to reduce photosensitivity consists of bacterial elimination. Metradonizole, biaxin, and prevacid for not less than 6 weeks. During the treatment one may experience what is known as HERXHEIMER effect, or almost imediatelly worsening of the health condition by the lipopolysacharides of dying bacteria which are binding to cell walls. The consequent treatment with TROVAN for 3 weeks reduces photosensitivity. Presence of Helicobacter Pylori is an indication that oyher anaerobic bacteria are presernt in digestive system. The medical tests of intestines are only geared toward detection of H Pylori and not other bacteria. Bacteria produces endotoxin whic may cause intestinal hyperplasia, and consequently irritated bowel. Hyperplasia (enlarged cells) causes leaking intestines. Food particles lesking from intestines (small molecukes) are being attacked by immune system. Pain in the stomach ias as result of enzyme known as oxygenase 2. The severe sence of acute smell is caused by damage to olfactory nerves which are becoming hyperreactive. The enzymatic changes disturb metabolizm and digestive process in combination with acidity. The damage to neurotransmission is related to limbic center. Hypotalamus and hypocammpus are nervous system centers also affected by neurotoxicity, Night sweats are the resukt of digestive abnormalities caused by inflamation. One of the best drugs to seek medical stability in case of MCS is DOXYCICLINE. Such need to be taken at very high doses ( 3 to 4 times a day) @ 300 to 400 mgfor 6 - 8 weeks! The theraphy may need several coursed of DOXYCICLINE repeated in series with intermision with AGUMENTIN (2 times 250 mg for 3-4 weeks). The point is to get rid of anaerobic Gram negative bacteria in the system. Bacteria are more resistant to antibiotics due to thickening bacterial wall as a self defence against antibiotics. Such thickening wall causes neurotocicity due to endotoxins. It appears that MCS may be caused by orhganic toxins, or bacterial fungal and viral toxins, not excluding mercury vapors from dental amalgam due to acidity. Some people experienc buckling legs and severe pains in knees, as result of neurotoxicity caused by dental amalgam! Sensitivirt to endotoxins, mycotoxsins and glucans, is very simmilar to misdiagnosed infections for allergies. Note monitoring of the level of cholesterol is helpful in determining the infection. Sligt increase in cholesterol is an indication of infection due to changed protein management. Some also develop easy and shocking bruiseing. The tests to confirm MCS invery advanced condition id nerve conductivity and diagnosis of mild neuropathy. Some may show interventicukar conductivity defect on EKG (neurotoxicity) in severe cases by abnormal "S - T" wave even with patern of reversal (toxicity). The above are based on research worldwide through INTERNET and based on personal experience after poisoning by hydrogen sulfide.
JACEK <C00LSTART@MICROSOFT.COM>
HONOLULU, HI USA - Saturday, January 16, 1999 at 06:31:04 (EST)
I did not realize there were so many EI sufferers. The stories on the guest page are, "deja vu". I was involved in welding smoke while a contractor was reconstructing my work location; he failed to provide proper ventilation to save money. The smoke exposure, in an already chemically rich work environment, made me hypersensitive to all airborne chemicals. I was not the same again. Diagnosed with occupational asthma, I spend my life running from chemicals; paint drying, newsprint, magazines, household cleaners, new clothes, plastics and you name it. Public transportation is impossible, as is any travel where traffic is heavy. I had no idea of how chemically polluted our environment was until I became the proverbial: "Miners Canary". How precarious our health is. I moved from New York City to a quiet small town on the West Coast of Florida where the air is very clean. I purchased a small house, removed the carpet and installed ceramic tile. My entire house is a chemical free zone; I go outside when cleaning is performed. No longer able work at a career that I loved as a Television Broadcast Engineer, I spend my days isolated. I hope that my additional tale of woe adds more illumination to the "ENVIRONMENTALLY ILL" quagmire.
John C. Baird <kb2gch@email.msn.com>
Nokomis, FL USA - Friday, January 15, 1999 at 16:29:22 (EST)
I am a MCS patient who has been on medical leave from teaching in a Publilc School, for 2 years duet to a chemical exposure in the classroom. I am contacting all governmental officials of the toxic environment we provide for public school children which causes illness every day. This issue must be brought to legislators to have proper laws enacted to protect our children from the toxic environment in Public School Classrooms. I plan to persue this issue until action is taken to correct the problem.
Shirley Pitman <sapit@cvns.net>
Shippensburg, Pa USA - Wednesday, January 13, 1999 at 14:03:26 (EST)
I have recently had a situation occur with a chemical called Amaranth. My 3 year old son got into a microscope of my nephews anmd got it in his mouth as a dry product. When we called poison control, they said they could mot find anything on it, but they think it is just a coloring and he should have no problems. They also told us that this particular chemical had been banned from use in cosmetics and certain other uses it had, Although they did not know why. Please respond if you have any idea why this would be, if there is any other problems you know of with it, or even if you know where I can go to find more information on it. I have looked on-line under chemicals, cosmetics, FDA, Amaranth, etc. Please respond. Nykndan@aol.com
Nicole Kobs <Nykndan@aol.com>
San Antonio, TX USA - Monday, January 11, 1999 at 15:02:55 (EST)
I also was diagnosed in 1990 with CFIDS/Fibromyalgia. I have become very interested in what you have to say and it makes a lot of sense to me so I am starting to clean up my environment. Thank you so much for putting this out. I have been to so many doctors and all they do is give me medicine, of which I believe has made me worse. I am getting a vinegar smell in my clothes and I don't like that very much. Is there another alternative for the rinse cycle. I definetly got rid of the downy and fabric sheets as we had already noticed some things were really getting to us. That was one of them. What about cats? I have one. Maybe I just haven't read far enough. The cats flea collar also had to go so we're working on things and I'm very hopeful. I'm not totally bedridden but I sure do have my problems. Thank you so much for this info.
Patricia <pab@tez.net>
Prospect,, VA. USA - Monday, January 11, 1999 at 14:32:44 (EST)
I was glad I found this site, and that I am not alone. I have been trying to get my employer to implement a "no perfume policy" for quite some time. Thank you.
Susan Vestal <fishvestal@AOL.com>
San Antonio, Tx USA - Sunday, January 10, 1999 at 15:10:10 (EST)
Thank you from the depths of my heart. Our family injured February 1997 after Unsmoke Thermo 55 (a deodorizing chemical)and ozone was used to "clean our air" from smoke odor after a fire, even though we demanded another method. The house was contaminated and all of our personal belongings. Even clothes taken out of the house were not able to be washed because they burned our skin. Upon entering the house the first time I passed out for 45 minutes in freezing air, luckily out of the house. Roth Construction who put chemical in house said they would test air. Air testing done with nose! He only smelled ozone and told our insurance adjuster it was safe even though we have learned ozone is a toxic gas. Manufacture of Unsmoke/Restorx chemical said the chemical make up was his trade secret and would not tell us ingredients. All mucous membranes burnt, including female, discarges from females green from ages 7 to 39. Lung, throat burnt,cannot swallow, drank gallons of liquid at a time and thirst would not quit. Lips cracked, skin came off in chunks or rubbed off, hair, especially private areas fell out. Coughing continuous. Tumors developed in uteruses, penis and testicular atrophy in males, impotency. Hair turned dark after falling out and regrowth, nails would not grow, Vision is damaged for all from age 7 to 43. 16 year old eyes turned black, constant chest pains and lungs are badly scarred, as if we were on a battlefield. Skin lesions developed and malignent melanoma and abnormal cells found in all lesions. Lesions develop mostly in sweaty areas. This family was never sick before except two who had mild history of asthma on excercise. Children never missed school, had straight A's last year missed a minumum of 44 days for the year. Collapse, disorientation, headache, vomiting, green diarhia, Chlamydia pneumoniae, joint swelling, low blood pressure, high cholesterol, irritation, anorexia have also occurred. Patent search showed chemical has copper 8-quinolinolate (a pesticide/fungicide), ethanol (produces acids and increases toxicity in the liver in high doses), substituted hydantions (forms free formaldehyde when oxidized), also contains other items one of which is used in medicine in increase the permeability of lung tissue and skin. Upon seeing there was copper in the ingrediants the doctor tested whole family for Copper in an Elemental Analysis. Results were surprising because heavy metals found in blood. Copper (toxic in 16 yr old who's eyes turned black, copper is documented to change eye color)other family members had high levels except 9 yr old who lost all of her selenium, zinc and molybdenum to get rid of it, and toxic elements which should not be in anyones blood; Antimony (toxic in mother who had skin cancer/malignent melanoma, and miraluma scan showed metal deposits throughout shoulder regions and in axillary region near melanoma) other members also had high levels of this; Lead in all members; Silver; Cadmium; and Tin. No members of family had mercury, no member of family had any cavities or fillings. House was then tested for what family could afford. Antimony, Lead, Copper, Tin and Arsenic (arsenic because antimony is 99% of time contaminated with it). The results concluded off the scale record of Antimony, copper, lead and arsenic but the level of tin was not recordable because a better test needed to be done. Other tests done in house showed Benzene, Toluene, Formaldehyde, Ozone levels 10x higher the allowed by industry much less a home and Nitrous Fumes. Ozone machines produce Ozone and nitric oxide at levels which are not able to be controled and creates a chemical fire on all it touches. No one with MCS should use this. Selenium, Zinc, and molybdeum wiped out in all family members. Tumors in uterus left (three ultrasound confirmed them over 2 year period after exposure)after 200mcg of Selenium and 100mg of zinc and 1000 mg of vitamin C presribed by doctor for girls, it took 10 days for recovery to begin. Hair is still falling out but eye lashes and nails beginning to recover. Males atrophy beginning to recover with same element prescribtion and coughing after 20 months of it is subsiding. Lesions on skin are still multiplying and enlarge, itch, and bleed. Pneumoniae still present with fatigue, and seamingly circulation problems. Menstral cycle going back to normal. We are grateful to be alive because most people with this dosage would have died, we never ate foods with pesticides because farm was always organic, water excellant, and take shoes off to enter home leaving contaminates outside. We have lost all of our personal belongings and have been homeless for two years with six people but God gave us a community of Angels to live in and they filled little rental house with more then you can imagine and gift certificates for food at places we can get organic food and distilled water(not canned), and clothes to keep us warm just arrive suddenly on the porch as well as home grown vegetables. They take us and pick us up from doctors and hospital and pray over and for us each day, surrounding us with peace and their strength. There is no wonder that we are still grasping for life even though medical bills are $50,000 this year alone. State Farm,though bringing in contractor would not replace anything because they said contract doesn't cover contamination. Roth Construction denies any wrongdoing and Cliff Zlotnik says the pesticide in his chemical is like water and he covers himself from revealing damaging chemicals by Trade Secret Law. Zlotnik's chemicals come from a Perfume factory called Aromatec in New Jersey. There are 5 plants together and only one reports hazardous discharge. They all say this is immoral. We will help all that need it. We plan to set up web site revealing these secrets because we feel the need to disclose the truth. Thank you for verifying our findings. We cannot express the extent of our gratitude.
Connie Ho <Ruby2_57@yahoo.com>
Chagrin Falls, OH USA - Tuesday, January 05, 1999 at 03:14:19 (EST)
thanks for your page, it has helped alot!
bruce ruckstuhl <bruckstuhl>
denham springs, la USA - Tuesday, January 05, 1999 at 03:01:36 (EST)
Hi yall! We were at Nancy and Andy's house for New Year's and Nancy showed us how to go on line to see your web site. We have enjoyed your family pictures very much. Write us and come visit sometime!
Ed & Winnie Waller & Nancy <dutch22@bellsouth.net>
Eatonton, GA USA - Friday, January 01, 1999 at 16:58:16 (EST)
Guess who?
Nancy Deutscher <NDeutscher@aol.com>
Greenville, SC USA - Monday, December 28, 1998 at 14:35:38 (EST)
Thanks so much for providing information on such a 'simple' but important subject as scent sensitivity.
Tom Casey <progmov@execpc.com>
Madison, WI USA - Saturday, December 26, 1998 at 11:39:45 (EST)
I am using your website to inform the contra dance community here and hopefully motivate a lower-fragrance dance environment
Paula C. Willis <paulawllis@aol.com>
Roanoke, VA USA - Thursday, December 24, 1998 at 11:28:43 (EST)
I am jst starting to recover from MCS, and wonder if I will ever fully recover, Thanks for creating this web site and your experiences have been a help to me.
Margaret Jackson <mprint@vicnet.net.au>
Melbourne, vic Australia - Wednesday, December 23, 1998 at 08:31:13 (EST)
THANK YOU SO MUCH FOR ALL THE INFO, IT HAS SAVED ME AND MY FAMILY ALOT OF TIME AND SUFFERING. I HAD BEEN SICK WITH WHAT IS CALLED CHRONIC FATIGUE SYNDROME FOR 13 YEARS, ONLY TO FIND OUT IT WAS CAUSED BY PETROCHEMICALS, THAT WAS ALOT OF NEEDLESS SUFFERING. NOW I AM ON MY WAY TO HEALING. THANKS AGAIN FOR YOUR HELP. I HAVEN'T FOUND A BETTER WEB SITE. MAY GOD BLESS YOU AND YOURS... CAROL RUCKER
CAROL RUCKER <CORAL56@AOL.COM>
ST PAUL, MN USA - Monday, December 21, 1998 at 00:20:46 (EST)
thank you so much for this website!:) i used it for a report i did for biology on the fragrances of products and the harmful chemicals that are in perfumes, shampoo, etc. you were a life saver!:):) thanks so much!!!! sorry, this is my brother's computer so i can't put a e-mail address!!
laura ulring
columbus, oh USA - Monday, December 14, 1998 at 19:10:08 (EST)
Great sight. Lots of good information. We believe in alternative health care. We do colonic irrigation and irridology in the local area. Thank you for your time and effort on this sight. Also the MIDI page, wonderful.
Dan and Dolly <abnormal@telcomplus.net>
Bellingham, WA USA - Sunday, December 13, 1998 at 15:29:14 (EST)
I appreciate this site, please add to it. I have suffered from EI for several years, and actually, am doing much better. However, it is an ongoing battle and I am frankly, worn out. Friends and family, alike, while trying to be understanding, are actually skeptical at the validity of the illness and those closest to me still do not refrain from wearing such things as scented fabric softners, etc. I know they want me to be well, and think that if I push myself, I will get well. I finally divorced from an abusive marriage of 19 years, and have had hell to pay for it since. As most ei persons, I'm unable to financially support myself, however, since January of 98, have been doing phone work from my home. My mother, who also lives in Washington and frequents the MCS chat room, corresponding with Ruth Fontane, and Birdie, and receives a host of information, still asserts her theory that if I want to get well, I will. My family's primary concern is that I am well enough to support myself so that they do not have to. This is exasperating. Although, it is true, that I have been making surprising improvements in my health thru avoidance, supplements which I cannot afford to continue, etc., I still basically am living a life of lonliness and seclusion. People with ei are not fun to be around because we are, unfortunately, uncomfortable with our surroundings most of the time. My experience is that if you don't complain about the environment you encounter if it is bothering you, then the people you are with are certain than you aren't being bothered; even if your face grows puffy and your behavior changes, etc. If you complain, then you are counseled that "wouldn't it make it more pleasant for yourself if you didn't compalin about the situation so much". I know that God is working in my life, and that as my spiritual life gets restored, my physical well being seems to be improving; however, the fact remains that I have bills to pay, and I cannot abide in a life that simply enables me to work 4 hours a day, and spend the rest of the day trying to prepare to work 4 hours the next. If life is nothing buy eeking out a meager existence so that I can go to bed and get up and work again, why bother living. I truly would rather die. I want to be able to love and be loved; to once again enjoy life. Basically, I do my phone work, then am too exhausted to even get on the computer to find electronic support. My brother in law is an optomitrist, and he could be invaluable in fighting our cause, from a medical stand point, but he doesn't believe that the vision problems I encounter are from the ei, because, for all the years he has known of my plight, he basically is an "unbeliever". He holds to the attitude that if it doesn't fit within his mind set, it doesn't exist. Because he works in the health profession, in the public health department, that he is an expert in all fields of medicine, and the truth is, he could learn a lot from me, if he would. Basically, I am blowing off steam, at the same time crying out for help. Most of the "help" available cost enormous amounts of money. I have just had my SSI hearing finally, without an attorney to represent me, because my case wasn't worth enough financially to be accepted by anyone, since I haven't been able to work in so long. I have no insurance of any kind, no dependents (my children are grown and out of the house), and finally made under $5000 this past year. Yet I do not qualify for any assistance. I received $13 in food stamps this month because of making $800 in October. Of course it cost that to move my u-haul up here. And I have had to pay the deposit and $200 per month (my share) of the rent. I receive housing assistance, and my portion is set, whether or not I am able to work or not. I have been in a much better frame of mind recently, but for some reason today, am pretty blown out!!! Basically I wanted to say thank you for your site, and I wish that instead of just forwarding me the information, my mother and sister and her husband would read the information I present to them! What can we do to bring this to the attention of congress, not that they have time or the inclination to do anything about it.
Jerrylou Salzmann <hikuntry@wolfenet.com>
Yakima, WA USA - Saturday, December 12, 1998 at 18:03:55 (EST)
My brother has this problem and I would like all the info I can find!
Cheryl Melton <cheryl.melton@usa.net>
PuebloWest, CO USA - Saturday, December 12, 1998 at 17:55:54 (EST)
Just learning about my multiple sensitivities. They can call it an allergy or whatever they want. All I know is that it makes me sick. I came to your page to learn more about perfumes. I have recently learned that I have a problem with some perfumes. I just can't stop sneezing!
Donna <dldeleon@ix.netcom.com>
WA USA - Friday, December 11, 1998 at 20:31:01 (EST)
I appreciated your website. My son has TS (9 yrs. old) and have spent many hours online to find help for him. We presently are not planning on taking the drug route and wish to explore more natural ways to help with the tics and the accompanying signs of OCD and ADD. Thank you for such helpful and indepth research in this area. We are taking steps one at a time to see if we can find some relief for him. Will come back again when positive and sure results are achieved. Not sure if he is just in a waning period right now...but tics have reduced with dust control and vitamins.
Brenda Goede <Boo22459@aol.com>
Edgerton, WI USA - Friday, December 11, 1998 at 12:06:45 (EST)
I am glad to know I am not alone. I suffer from fragrance allergies. Your Web Page is much appreciated. Thanks!
Gael Guerard <guerard@oz.net>
Bellevue, WA USA - Friday, December 11, 1998 at 11:24:37 (EST)
Ienjoy your web page. I started get sick in a mobile home that had be in a flood. 3 months of living in the home, started losing my hair and getting very sick. The doctors , I saw said I had Alopecia Areata and depressed. Two years later ,I started to find out about MCS. I would like anybody who has had hairloss or Chronic fatigue ,etc or know anybody with hairloss from MCS Thank you, Lisa Covington 1033@bellsouth.net (423)544-2840 Knox. ,tn. I
LISA Covington <1033@bellsouth.net>
Knoxville, TN USA - Thursday, December 10, 1998 at 16:24:44 (EST)
Thank you! I have been looking for a helpful website and I'm glad I finally found one. I just wish the twenty most common chemicals list had chemical formulas with them.
Julie T
Guelph, ON Canada - Thursday, December 10, 1998 at 10:07:09 (EST)
Very interesting and valuable website and resource. Pls. be aware that adverse reactions of MCS sufferers related to cosmetics can be reported to FDA, c/o the Office of Cosmetics & Colors Cosmetic Adverse Reaction Monitoring Program (CARM). The CARM Coordinator can be found at 202-205-4706. Our address can be found through the FDA Website, which is http://www.fda.gov.
DR.S.R.MILSTEIN <SMILSTEI@BANGATE.FDA.GOV>
WASHINGTON, DC USA - Wednesday, December 09, 1998 at 17:49:29 (EST)
Many people cannot leave there homes due to reactions to perfumes, chemicals, and carpets ect.. Here is one solution to replace some of the toxins in your home. With technology many are able to order products that really help over the internet. www.21stonline.com/bobgarvin I hope this helps many. There is also a Dr. message "Please stop posioning our children" 800-627-5440 # 90 I think this scares some people but it is true and it is a big problem that many parents dont realize.
Bob Garvin <garvin@worldaccessnet.com>
Vancouver , Wa USA - Tuesday, December 08, 1998 at 15:22:15 (EST)
Thank you so much for creating this website! It is the basis for my first college chemistry project! I had no idea how much I could be endangering myself by wearing my perfume. For my project, I analyzed a sample of my perfume and looked for the chemicals on the list you have published on your webpage. I did find a few of them. Thank you for making me aware of the possible dangers of wearing this perfume! Sincerely, Elise Bartholomew P.S. It's totally awesome that you have devoted this webpage to the glory of God!
Elise Bartholomew <erb138@psu.edu>
pa USA - Tuesday, December 08, 1998 at 00:39:26 (EST)
My little friend is only 9 years old. She is currently hospitalized due to enviromental illness. She is one of the severe cases. We're having problems getting help for her because this is such a new illness. Please e-mail me.
Andrea Hickey <hubind@nb.sympatico.ca>
Lincoln, NB CANADA - Sunday, December 06, 1998 at 12:29:56 (EST)
I wish I could make you feel how thankful I am for the information, suggestions and encouragement you provided on your web site. I read that the two of you are Christians. You'll be encouraged to know I've been seeking for God's help and guidance regarding my son's tics, and beleive that we are one of the familes God is helping because of Jacki's faithfulness and endurance. I hope Christ will find my family faithful to Him too. Rich Cavaness
Rich Cavaness <cavanessrd@home.com>
Femont, CA USA - Sunday, December 06, 1998 at 11:34:12 (EST)
This is a very useful website!It is now helping me with a Science Fair Project about different fragrances. I Luv this website!!!!
Toni <CleoKatra@mailexcite.com>
Austin, Tx USA - Friday, December 04, 1998 at 21:08:00 (EST)
Thanks for this site. I have been botherer by 'fragrances' since I can first remember. It took me years to realize what was happening. In high school I remember going out at night and putting on my favorite perfume, only to get sick and come home with a headache. I have been through the skin prick allergy tests and show no allergies with that. I could go on and on...Thank you!!
Sharon <snowbird@tznet.com>
Stratford, WI USA - Thursday, December 03, 1998 at 19:37:19 (EST)
GREAT INFO!!
MIKE MORSE <MIKEMUSA@AOL.COM>
MILLBURN, NJ USA - Wednesday, December 02, 1998 at 14:30:01 (EST)
I'd be veryinterested to hear from anyone who has inside information about the perfume industry - formulations etc., for a television programme I want to make on the subject of sensitivity to the chemicals contained in perfumes, cleaners etc. I am in London, my name is Sally Bell and my email address is plazatv@compuserve.com
Sally Bell <plazatv@compuserve.com>
London, UK - Wednesday, December 02, 1998 at 06:25:26 (EST)
asthma and chemical sensitivities are not an easy thing to deal with. my 3 year old daughter has terrible asthma and allergies and we've been treating mainly SYMPTOMS and not CAUSES...i think that your information really has made me think about the causes..as a registered nurse i am programed to treat symptoms which obviously doesn't work very well for severe suffers.i guess it's just easier to take meds and treatments than to take the time needed to create as optimal an environment as possible..(i'm the mother of 4 and time always seems in short supply) thanks again for your insight ...lisa
lisa <momslave24@webmail.bellsouth.net>
tn USA - Tuesday, December 01, 1998 at 00:48:49 (EST)
Jackie-thank you for this site-tonight I was feeling rather depressed and discouraged- and reading comments by others who have this illness has somehow given me the strength to continue on-if anyone knows of any safe housing in NY area-please contact me!!!!! All the best to everyone-Julia
Julia Tuchamn <Juliaoct67>
NY USA - Monday, November 30, 1998 at 23:37:53 (EST)
I have bad reations to different smells, most people think this is weird. I also have problems carpets, that are new, the glue bothers me, and perfums, and also when I got to a clothing store, I can only be around the clothes, for no longer 20 minutes, because after that, My heart starts to palpulate. so thanks for your sight, it has been helpful
ty <tylenevr@aol.com>
USA - Monday, November 30, 1998 at 16:28:33 (EST)
I never realized there was so much information about this subject until I got online. All of the medical information sites have been excellent, but this one is the sweetest one of them all. It is exactly what I have been looking for. Thanks for making this info available so that those of us who feel like we are walking around in the dark can educate our selves and maybe understand this condition a little better.
Debra Bailey
USA - Saturday, November 28, 1998 at 23:16:24 (EST)
Very good and very informative material on MCS! But going to Heaven to get complete relief from this condition is unnecessary ... Jehovah God will bring relief for this and every other bad condition by bringing us shortly into a cleansed New World where in time we'll all be set free from these terrible condition by virtue of Jesus' ransom sacrifice.
Cliff Peterson <cliffncarol@juno.com>
USA - Saturday, November 28, 1998 at 18:26:38 (EST)
Thank You!!!!
Nancy Barton
Plainville, CT USA - Thursday, November 26, 1998 at 20:36:47 (EST)
My mother and I can really relate to your poem. My children all have respitory problems, and my mother is extremely debilitated by environmental pollutants. She has spent almost 3 years experiencing similar physical limitations. We do not think your poem is sappy. Perhaps you need to have been there to appreciate the depth and despair that one experiences with this type of illness. Thank you for sharing your poem. The best of health and happiness to you. Sincerely, The Edwards Family
ANDREA EDWARDS <edwardsfamily@gbis.com>
Lovelock, NV USA - Thursday, November 26, 1998 at 20:09:04 (EST)
Excellent site--thank you for all your work.
Anne
USA - Tuesday, November 24, 1998 at 17:49:05 (EST)
Jacki, I still have your link on my SafeArbor page. I am trying to state the connection between Porphyria, MCS, and Faith as well as I can. I received an official diagnosis of Variegate Porphyria plus secondary PCT this summer but it hasn't helped me much as I still must avoid chemicals so I don't want to visit the doctors and the ER. All I can say is that Jesus stands in the shadows with me and that brightens my life. Please let me know if you ever put the music to that song, Standing somewhere in the shadows you'll find Jesus. Thanks again for your page and information.
Mary
USA - Monday, November 23, 1998 at 10:55:55 (EST)
This information was very helpful. Keep up the good work!
Brenda Zappacosta <jzappaco@sctcorp.com>
Coatesville, PA USA - Sunday, November 22, 1998 at 16:12:31 (EST)
What a beautiful site, Jacki! Thanks so much for your valuable insight to the OO loop!
Sheila Yount <nodiets4me@aol.com>
Houston, TX USA - Friday, November 20, 1998 at 20:51:54 (EST)
I was very glad to find your page. Myself and another coworker have been suffering from the perfumes at work. Finally, after using sick days to go home and generally not feeling well, we spoke up to management. We originally tried talking to the individuals who used the substance and it didn't work. After talking to management we were told that it was in these people's rights to wear what they want. Both of us feel defeated. I, myself became very ill this week from the scents. I loved finding your page and it makes me feel that I am not silly in my request for fragrance free air. I just wish I could convince my company. They are making us feel like we are troublemakers. I love my job and don't want to have to leave because of this issue. But I am tired of being ill. Thank you for the articles. I will show them to management and see if I can get any results.
Cheryl Vaughn-Modjeska <Cherylv@UWSI.com>
Milwaukee, WI USA - Friday, November 20, 1998 at 14:20:07 (EST)
I was not aware of the full consequences brought on by MCS. I am in a company where my main purpose is to help people get rid of the toxins in their homes. I represent a full line of all green, COMPLETELY NON-TOXIC home and health care products. I have had significant health changes since I have brought these products into my house and disposed of my old toxic cleaners. I read an article yesterday in E Magazine about MCS and I was truly saddened and blown away by the impact this disease has on people's lives. I know these products can help. I also know that the cleaning products can help lessen the amount of "Elbow Grease" uou would have to put into everyday cleaning. I love these products and hope that I can share more information with any of the people now suffering from MCS.
Joshua Merrion <jmerrion@juno.com>
Beaverton, OR USA - Friday, November 20, 1998 at 13:04:04 (EST)
Thanks!
Sharon Ponte <Ladysha99>
Belle Mead, N.J. USA - Friday, November 20, 1998 at 12:10:08 (EST)
Hello Jacki & Gorden! I am a neophyte Internet user (just installed last week through work) and have dared to venture out on my own prior to the scheduled training next Monday. My hubby, Dave, is a whiz on the computer and is very helpful. Dave says one can find just about anything on the Internet. One thing I am VERY interested in is MCS. On Dec 11, it will be 3 years that I have teleworked from a home office because of the poisons in the environment at work. I work for the Federal Government and was in a shiny new totally sealed building which brought the symtoms to the forefront. I am much healthier here working at home but it is very lonely and I lose a lot of 'casual training' - the kind one picks up in passing hearing your co-workers discuss new changes, etc. However, my 4 cats, 2 budgies and 33 gal tank of fish are pleased to have me home to feed, let in and out and to chat. However, my son Matt (almost 15 going on 29) would rather Mom was at work when it came time to leave for school -we don't like to wear winter coats in the winter -- not "cool" and nobody EVERY combs their hair after showering these days, I guess. Well, should get back to work. I am gratified to see MCS in print - too many people think it's all in our heads and should just 'get a grip!' Hope your health gets back on track and keep outta the way of those perfume poisons! Take care -- bye for now. w
Wendy Duffus <Duffus@oncomdis.on.ca>
Peterborough , OON Canada - Friday, November 20, 1998 at 09:02:32 (EST)
PLEASE HELP ME FIND A DOCTOR THAT CAN TREAT ME, I HAVE FOUND YOUR INFORMATION VERY INFORMATIVE AND WOULD LIKE TO FIND MORE. I CAN NOT AVOID THIS SITUATION.
Susan <sevenso@trism.com>
duenweg, mo USA - Thursday, November 19, 1998 at 14:38:22 (EST)
Hi there, Germany has a new - and I think - the first forum for MCS-patients. It's namend "MCS-Opfer". You may find it under the URL http://parsimony.net/forum/forum3462/. My Homepage of MCS is http://www.truemedia.de/mcs/ It would by very nice when I find your english spoken notice in my forum. Tell us more about your problems with mcs etc. For my reserches I need information (reports) about BENZOL. How danger is it for MCS-people? This information shall help another patient for his judicial way. Regard from Harald Haack
Harald Haack <tv@truemedia.de>
Hamburg, D Germany - Thursday, November 19, 1998 at 14:12:45 (EST)
Thank you so much for such a great web site. I gave a persuasive speech last week at college (and got an A) on "Using non-toxic products in the home". I found your web site so helpful, and also I learnt alot. No more perfume for me. I've also told several people at work about your website. I love the "Kiss My Face" olive oil soap. Thanks again & God Bless Elizabeth
Elizabeth Stark <estark@paemail.com>
Portland, OR USA - Tuesday, November 17, 1998 at 15:41:04 (EST)
Please check out our household and personal care products because I know that they will help many! This is a new technology with IE(tm) technology. Products good for us and the environment unlike anything out there. They use water molecules that have been munipulated. This creates a dipole which creates a positive and negetive affect. Anything natural it is added to greatly increases its affectivness. This is scientifically validated. I hope this can help many people looking for natural non-toxic products. It has helped me and my family. These products do not kill our children if they get into them.
Bob Garvin <garvin@worldaccessnet.com>
Vancouver, WA USA - Monday, November 16, 1998 at 16:36:13 (EST)
I am interested in finding a healthy house to rent as for a week or so anywhere on the East Coast. Any ideas?
mark marshall <mmarshal@columbus.rr.com>
columbus, oh USA - Sunday, November 15, 1998 at 22:58:21 (EST)
My mother had a story similar to Jackie's. My parents bought an old house, tore the roof off of it, added a second floor, blew insulation into the walls, etc. etc. She got to the point that she could not leave her room. Eventually she was diagnosed with MCS and found a great doctor in Akron, OH that has worked wonders. They "sealed" the house, removed the carpet and replaced it with tile and hardwood. The house is now healthy and my mother gets better all the time. She even went to my sister's wedding and was able to last over an hour at the reception (of course, there was no smoking allowed). She eats only organic food and they have made other lifesyle changes. Well, now she is talking about taking a vacation - they have not taken one in almost 10 years. I told her I would get on the 'net and try to locate a healthy house that they could rent for a week. You mentioned a natural place in Boca Raton. Can you provide any information on this and any other vacation location that you are aware of. I think she would like to be on a beach in NC, FL or anywhere in between. Thank you in advance, I look forward to hearing from you. Your site is a great service. It is grass roots efforts like yours that will prevent so many people from going through experiences like yours. My parents also have a very strong faith. I am working on getting my parents on the web and will pass along your web site once I finally do.
mark marshall <mmarshal@columbus.rr.com>
columbus, oh USA - Sunday, November 15, 1998 at 22:38:12 (EST)
thank you for all of the information.
Natalya <natalya912@gurlmail.com>
kent, oh USA - Sunday, November 15, 1998 at 17:53:44 (EST)
Thank you for the info.
Dwight Wilson <dwightwilson@earthlink.net>
Huntington Beach, CA USA - Sunday, November 15, 1998 at 03:38:31 (EST)
I was looking up chemical illness and came onto your faith. Thanks for speaking out on our environment. You are giving a wonderful gift...
Nancy Hawkes Achenbach <JRCMKMOM@Landmarknet.net>
Ossipee, NH USA - Friday, November 13, 1998 at 20:32:27 (EST)
MCS has changed my life. For over 2 years I have been in the house or in bed. I could do little more than "take it easy". I have changed my diet, exposures, lifestyle, and I have had alot of time to educate myself on the subject. I am new to the internet world. I would like to find a chat room on MCS. Even though I have been sick along time, these last 2 years have been the hardest and the loneliest years of my life. I have writen articles and tried to educate people in my area, mostly to fall on deaf ears. I want to talk to those who understand and to find ways to help myself and others. Thanks JLF
Jacqueline L. Franks <rfranks@281.com>
Burnet, Tx USA - Friday, November 13, 1998 at 20:30:35 (EST)
Your site furnishes just the information we need to help three friends in Madison spread the word about the dangers of perfumes to protect themselves and others from disabling symptoms which threaten their work life and their very physical life.
Lora Mermin <smermin@facstaff.wisc.edu>
Madison, WI USA - Friday, November 13, 1998 at 17:11:38 (EST)
Makes me realize that I am not a freak....
sara o martin <sara.o.martin@lmco.com>
orlando , fl USA - Wednesday, November 11, 1998 at 17:59:43 (EST)
Very imformative. Great information for my research. I have MCS and am going through the curse of Workman's Compensation Circus!!!
Tammy A. Mullendore <freshair@carlnet.org>
Burrows, IN USA - Wednesday, November 11, 1998 at 13:06:28 (EST)
Thank you so much for your web site. I have suffered with MCS for 5 years now and have not been able to work since. I worked in a medical laboratory for 9 years, where I breathed in bleach fumes for that period of time. I gradually became chemically sensitive and developed chronic fatique all of which went mis-diagnosed for 3 years! I was told there was nothing wrong with me, told it was psycological, told I was just trying to milk the system, I have been close to ending it at times...but through it all I have grown and learned and finally found a Doctor in the south Florida area who specializes in EI. I continue to avoid exposures as much as possible and do the things that my doctor recommends, but still at times I feel so isolated, so alone. Today I was feeling very sad and lonely, frustrated and powerless, lately it seems everything I do out in the real world causes me physical pain due to chemical exposures. I get so angry at the world and want so to shout my pain from the mountains tops and let everyone know how much there indescriminate use of chemicals and every day products affects me. That's why it was SO great to find your website today,I feel connected and not alone, thank you so much for being here in cyber space. Sincerely....Diane S.
Diane M. Sohn <Sohny222@aol.com>
Sunrise, FL USA - Tuesday, November 10, 1998 at 17:20:32 (EST)
Was doing some research for a lady I know who suffers from allergies such as yours, when I found your site. How very informative. This lady would really like to know if you are aware of any doctors here in Canada who treat and are sympathetic to people who suffer from MCS. Ssince I am at work, I do not have the opportunity to go through your entire site, but I did manage to get her a listing of all the ressources you had. To date, she has not had much luck with "allergy-free" materials. It would be greatly appreciated if you could send us the name of a Canadian doctor, or any doctor for that matter, who deals with MCS. Thanks again. Gwen
Gwen <gwen.bonsamis@on.aibn.com>
Val Caron, Ont Canada - Monday, November 09, 1998 at 09:34:14 (EST)
Dear Jacki, I can't believe you have this wonderful site! Everyone needs to visit and read every page. You have built a beautiful web site with really important information. I would love to be e-mailed when you up-date it. I will pass this site on to others. Thanks! Wayne Zako
Wayne Zako <wayne@humanoptions.com>
Rapid City, SD USA - Sunday, November 08, 1998 at 17:42:15 (EST)
Your web site was literally a godsend. I am presently combatting a health problem at work involving super- visors wearing perfume. I am a diagnosed asthmatic and find these perfumes causing me to have asthma attacks. While I found the information on your site very informative and will share it with my managers, I am particularly interested in knowing if you are familiar with any work-related restrictions in place anywhere in the country. Inasmuch as I work for a federal agency (the Post Office), if there are regulations anywhere in the country, I may be able to apply them to my own case. Your help would be (and IS!) greatly appreciated. God Bless! Loree
Loreen E. Kerr <Those_Kerrs@compuserve.com>
Lancaster, CA USA - Sunday, November 08, 1998 at 04:30:56 (EST)
A fellow co-worker sent me your site. Great information. I have been dealing with supervisors who simply don't care if I am allergic to perfume. One actually told me that no one is going to tell her that she can't wear it. I get terrible headaches from perfume. They just don't seem to understand that is is a REAL problem. I have to endure contstant headaches day after day. Maybe your information will make a difference. Thanks.
Marsha Sunderland <MarshaSun@aol.com>
Van Nuys , CA USA - Saturday, November 07, 1998 at 23:03:34 (EST)
Your articles on The Health Risks of Perfume is just what I needed. I am having problems at work with Supervisors wearing so much perfume that itI lingers for 5 to 10 minutes after they have left the area. The response I get from them when I tell them that I am allergic to whatever they are wearing and it is causing me to choke and is giving me headaches is, "I don't care". I will be sharing this with my fellow sufferers. Again, great article.
Becky Sandor <Jo JosGma@aol.com>
Canoga Park, CA USA - Saturday, November 07, 1998 at 18:31:13 (EST)
GREAT SITE!!!! Others' stories and symptoms fit me exactly! I recently had to quit job because I was allergic to the building - suffered for over a year with hives, burning eyes/throat/skin, etc., and then they got new CARPET. "Oh, that's (the smell) the glue and the smell will go away." I had enough when I couldn't breath. A lot of local events are in an auditorium I am severely allergic to, so I miss neice's dance recitals, plays and musicals, graduations, etc. I also avoid church because of the purfumes, candles, incense. I don't read many magazines because of the purfume samples. I don't visit because of products others use. I take my own bedding/pillows when traveling. I am getting some help soon in setting up a "work at home" job. Was annoyingly amused by QuackWatch web site explaining "so called" food allergies and EI as paranoid behavior. Thanks a whole bunch for doing this site!!
Roberta Barlow <rylos@kvmo.net>
MMMo USA - Thursday, November 05, 1998 at 19:19:55 (EST)
Hallo, with this mail I am hoping that may I find contacts to other MCS-people. My profession was tv-jornalist and filmdirector and I know about my sickness from the last may. I'am living in germany, in Hamburg and very isolate. The internet is this my only way to other people. I am a author too and I have my own domaine address (www.truemedia.de) Please, can you tell me what is the situation now for mcs-people in the USA? Here in germany we are listening that we live not today but in the time of King Arthur, the time of witches if you look to the science about the status of mcs. It is not a joke. It's reality. Please, give mcs-people my address. Everybody can write me so they will do this. I think you have your own problems in the USA, but it not bad to publish about this. Greetings, sending from Hamburg Harald Haack Webmaster of Truemedia
Harald Haack <tv@truemedia.de>
Hamburg, Germany - Wednesday, November 04, 1998 at 16:06:25 (EST)
Thank you for sharing your story. It is an encouragement to me. In June 1998, I had to quit my wonderful job of 5 years. They remodeled their office in March and that was the beginning of the end of my job. I developed respiratory problems, along with itchy skin, visual disturbances, balance problems, decreased "quick thinking", etc. I did not do any research as I did not want to have any pre-conceived notions. The allergist I saw ended our meeting with the statement of "I can't find anything wrong with you. Take Claritin to help your symptoms." The Claritin did help me to breathe easier, but remaining in the environment after his "no problem with you" diagnosis continued to cause multiple symptoms. Finally, my PCP advised me to get out of the environment if it could not be "cleaned up". It could not. New carpeting, cabinets, laminate countertops, paint, etc. have extended "off-gassing" times. So I quit my job. Now I have a claim with Labor and Industries. I do have appointments with 4 doctors next week, including an environmental health specialist, an allergist, a pulmonary specialist, and a ear, nose and throat specialist. I also am a born-again Christian who believes that God is still in control and I give to Him not only all my health concerns but also all of my praise. He is the King of Kings and the Lord of Lords and my welfare is ever on His mind. If it were not for my faith, I can see how this situation could easily overwhelm a person. Thank you again for sharing your story. Perhaps I will have the opportunity to share my story and encourage others as well. God bless you. Sheri
Sheri Lafferty <sheri@omnicast.net>
Spokane, WA USA - Wednesday, November 04, 1998 at 14:25:29 (EST)
thank you for the infromation on chemical sensitivity I myself have trouble with perfumes / chemicals badly . sever headaches leading to migrians, at times it has been so bad that it has put me into the hospital and nothing they gave me helped the pain . SO I would love to see this band from the work place , also medical clinics ,hosptial ect. because these places are the worst I know beacuse I work in a medical clinic and everybody weares perfumes,body spray ,ect. I have asked peole to please not to weare perfumes ,and this certian nurse weares her perfume as heavy as she can no#1 she thinks it is the greatiest because someone told her it smelled good , she also knows it bothers me and she wears it anyway despeite my request . so I suffer the ILL effects of these chemicals .Idonot want to ramble on about this but I feel this is the first time someone knows how I feel .If there is a way to stop this please let me know . also the chemicals they use to clean insruments for minor office surgey is very bad it almost takes my breath away just to come near it .Ihope congress can pass a law on this they have on eveything else . so thank you for the ear at least I know there is someone that understands my condition . may god bless you
penny <loos@essex1.com>
sterling , Il USA - Thursday, October 29, 1998 at 22:28:20 (EST)
Thank you so much for your site. I have just been diagnosed with candiasis, and have the first signs of chemical sensitivity. As a Christian, the spiritual comfort is really healing at this point. I am thankful for all that you have done...
Cathy Boileau
USA - Wednesday, October 28, 1998 at 22:38:11 (EST)
Jacki, you have done a marvelous job here which can help so many people. Thanks for all your hard work in doing this. MCS does change a couple's life. For 2 yrs. I have not been able to go to church because of perfumes, aftershave lotions, hairsprays, scented ladies' rms., etc. It was rough, but the Lord gave me the grace to rise above the loneliness. I'm blessed with an understanding, loving husband. Praise God! I am so much better than I was 2 yrs. ago when I was afraid I was dying. Found a good doctor in St. Petersburg, FL. Avoid food allergens, avoid exposure to scented products, cleaned out toxic cleaning products & home furnishings, change of diet -- all have helped me. Prayer & more prayer, plus looking to Jesus as my faithful Companion & Friend -- #1 Help! God bless you, Jacki & Gordon, & may He heal you more & more. Mary :)
Mary <mayedg@gte.net>
FL USA - Sunday, October 25, 1998 at 22:45:51 (EST)
Hi Again ! Had some time on my hands and thought I'd check into your home page and see the latest updates. Thanks again for such an informative site for all MCS/EI sufferers. Hope this finds you in good/better health. Anne.
Anne Litjens <eandacad@hotkey.net.au>
Mt. Martha, Vic Australia - Saturday, October 24, 1998 at 17:52:33 (EDT)
We offer free information on Natural Body Cleansing which will sweep out toxins and poisons from our body to ignite the body's own natural cleansing and healing. E-Mail me for more information.
RJ Garvin <garvin@worldaccessnet.com>
Vancouver, WA USA - Saturday, October 24, 1998 at 13:12:41 (EDT)
a girl freind in main pd for my enternet conection so that i could have contact with other people with allergies like mine. she also forwarded me you address. i to had to quit work three years ago. i was born with regular allergies and have developed chemical allergies. it has been a night mare. i don't know which way to turn and have even tried suicide. god must have a plan for me. i was very interested in your site and thant you for being there linda huston
linda huston <frodo#nacs.com>
rootstown, oh USA - Saturday, October 24, 1998 at 07:16:24 (EDT)
It is wonderful to see other people with this same problem. I know some people don't understand or believe me when I try to explain my situation. Most of my symptons are asthma and migrane headaches. I used to love to smell potpourri and perfumes, a log on the fire, french fries and so much more. Now I run the other way. The saddest part of this illness----the church I used to attend didn't believe me either. I miss the fellowship, but can no longer sit there without coughing and gasping. Someday, I pray soon, I will find a church that I can go to. Thanks for all the wonderful information. I will use it to help get others to understand better.
Susan Shoemaker <sshoemak@eagle.lhup.edu>
Lock Haven, PA USA - Friday, October 23, 1998 at 14:56:57 (EDT)
Jacki: I have enjoyed browsing your website and have found it extremely informative. Dawn
Dawn Northrup-Jones <dmn@unb.ca>
Fredericton, NB CANADA - Friday, October 23, 1998 at 12:35:47 (EDT)
If anyone needs information about non-toxic,household products,& non-toxic personal care products with IE(tm) technology please contact me.They are all natual and work great. They will help many people suffering.
Carolyn Peacock <ienow@ivillage.com>
Vancouver, WA USA - Thursday, October 22, 1998 at 18:20:24 (EDT)
Thank you for your exceptional website. As I sit here at the computer (to which I am inexplicibly allregic) I wonder where all of this will end, and who will win - the people or the industries looking for big bucks. Oh, well - just make it through one day at a time with the help of good folks like you. Bless you.
Laurie Huffman <Huffman3@concentric.net>
Littleton, CO USA - Thursday, October 22, 1998 at 17:05:36 (EDT)
been in the same situation but just started for me have any suggestions on where to turn
lawrence juliano <proverbs25@erols.com>
newark, de USA - Tuesday, October 20, 1998 at 22:14:13 (EDT)
Enjoyed the visit. Sorry to say that I didn't read it all. But was very inform.Promise to take afternoon and read it when i have time.Untill
Joan Stroffolino <joannlou@enter.net.com>
West Lawn , Pa USA - Sunday, October 18, 1998 at 17:39:39 (EDT)
Best overall source of info I've seen yet on the subject-- good work and thank you
Joe McAfee <joemcafee@hotmail.com>
Tyler, TX USA - Saturday, October 17, 1998 at 16:55:37 (EDT)
i have been suffering with multiple chemical allergies as well as food allergies for some time now. several years back i was diagnosed with panic/anxiety disorder only to find out now that it was all really just from allergic reactions. i am asthmatic as well and can relate tremendously to the problems and difficulty that is caused by people who 'bathe' in cologne/hairspray, etc as well as bus, car, plane exhaust, tobacco smoke, pesticides and i am very allergic to sulfites which are present in most everything. i too am also christian and without GOD, i would never be able to get through a day!!! he is my savior (literally) although when times are tough, it is difficult to trust and let go. i would love to have any feedback or information from you and have enjoyed visiting your website. thanks for the information GOD bless judy duggan
judy duggan <judyduggan@worldnet.att.net>
cystal lake, il USA - Thursday, October 15, 1998 at 23:12:21 (EDT)
God is SO VERY faithful!! I praise Him for discovering your web site today. It has given me answers. I was just diagnosed with formaldehyde poisoing, after being severely ill for almost 2 years, and continuing to go downhill. I have been so weak, ill and house-ridden for so long now and am so excited to finally have tips on "cleaning up" our home and environment. I'm so happy that you are finally getting better and I hope and pray that I, too, will start seeing results. You are in my thoughts and prayers. Love In Christ, Debbie Bauer
Debbie Bauer <frankbauer@hotmail.com>
Monroe, OH USA - Thursday, October 15, 1998 at 18:12:19 (EDT)
I urge MCS sufferers to contact the manufacturers of products which make them ill. The road to regulation is long and arduous. Strong feedback from the public could be quicker and more effective. Let the makers of perfumes, fabric softeners, insect repellant coils, air fresheners and antibacterial soaps know how you react to their products. If you are sensitive to fragrances, contact National Geographic at www.nationalgeographic.com/media/ngm/9810 regarding their October 1998 article regarding the perfume industry. Address the EPA at www.epa.gov/epahome; their mission statement is "...to protect human health and to safeguard the natural environment..." Hold them to it!
Peggy Davis <davilou@aol.com>
Atlanta, GA USA - Wednesday, October 14, 1998 at 12:59:55 (EDT)
Thank you so much for providing me with the materials to prove that my allergies to perfumes are not all in my head. I am so glad to find scientific evidence to support my problem.
HEIDI CLARK <heidijc@yahoo.com>
USA - Tuesday, October 13, 1998 at 20:43:13 (EDT)
Jackie,your personal story is very interesting, and is much like my own. I know from my clinical ecologist Dr.Alan Lieberman in SC that apples and pineapples have naturally ocurring levels of formaldehyde, did you know this? I am extremely sensitive to formaldehyde moreso than anyone I've met, probably due to living in too many new homes while growing up. When you speak of formaldehyde in foods are you referring to quaternium-15 being added to processed foods or that in fresh whole foods? Just curious as I need to eliminate as much form. exposure as possible in my life. Thanks for the informative article. We really are our own best resource.
pam ruggles <Eiadventur@aol.com>
tucson, AZ USA - Sunday, October 11, 1998 at 17:58:39 (EDT)
This is a great site with loads of information for myself and others.I found it while trying to find a Scent Free symbol to put on our support group meeting signs but I have been unsuccessful. If you know where on the web I can find one i would appreciate being sent the address as I'm not having much luck. Keep up the good work.
Betty Murphy <rmurphy@north.nsis.com>
New Glasgow, NS Canada - Saturday, October 10, 1998 at 15:54:53 (EDT)
Just peeked at your site for the first time, and will try to read more later. I just wanted to thank you for the info on perfume causing problems. I have had many migraines triggered by perfume, including just opening a bill from a dept. store. When I called to ask them not to do that again, I was horrified to be told "No problem, I'll just code you 'fragrance-free.'" If so many people have asked that they have a separate computer code set up for this, why do they continue to send them out??? Thanks again!
Michelle <quahog@aol.com>
USA - Friday, October 09, 1998 at 11:04:27 (EDT)
Thank you!
Anne <macgruder@uswest.net>
Minneapolis, aMNmn USA - Thursday, October 08, 1998 at 03:38:50 (EDT)
I am a member of the Occupational Health & Safety Committee at work. We have scheduled a special meeting to address the issue of updating our'scent free' policy. Past information postings seem to have been overlooked or ignored. We are now ready to formulate some 'teeth' for our policy. The information I found on your site is WONDERFUL. Plain language & understandable. I'm quite excited to present this info. Thanks for your efforts and diligence. Valerie
Valerie Nugent <nugentv@gov.ns.ca>
Halifax, NS Canada - Wednesday, October 07, 1998 at 14:34:20 (EDT)
I am just beginning to live "cleanly". I have multiple sclerosis and hope nontoxic living helps reduce my symptoms.
Marc Wieczorek <mwieczor@iusb.edu>
South Bernd, IN USA - Sunday, October 04, 1998 at 11:56:58 (EDT)
I am grateful to hear there is someone in the medical field that listens and does not minimize the tragety of this horrible condition. I have been exposed to many enviormental toxions,hair anay.showed higher than 2times the mean, aluminum,mercury,lead,silver and nickel. O.K., at least I know in part what is wrong with me. And as if heavy metal poisoning wasn't enough, my son and I were at the same time also being contaminated, along with everything in our apt., by some type of glass fibers that burned,itched and cut deeply within the skin when landing on the body. No m.D. cares, thank you for being real!
Lori <bugu2@egl.net>
Holland, MI USA - Sunday, October 04, 1998 at 03:07:02 (EDT)
I have an 11yr old son who has Tourette Syndrome, ADHD, OCD and ODD. Your ideas on Environmental Medicine are interesting and at this current point are worth looking into for my son's benefit. Thanks and best wishes to parents and sufferers of TS.
Ms Karen Pirc <KARENPIRC@bigpond.com.au>
Brisbane, Qld Australia - Saturday, October 03, 1998 at 09:02:51 (EDT)
I found your MCS and Health Risks of Perfume articles to be very informative. I am still searching for the Disability Act regarding Fragrances and how employers may legally ban fragrances. If you are aware of this address, it would be most appreciated. Thank you.
Sally Cymbal <B2Sally@wmcmhs.org>
Ludington, MI USA - Friday, October 02, 1998 at 14:19:39 (EDT)
Thanks for all the interesting and helpful information. It'll help me with my paper a great deal.
Tamekia Currence
USA - Monday, September 28, 1998 at 18:59:01 (EDT)
This info is just what I was looking for... thanks! I've had some problems with perfume and with other people's fragrances for years now, but no reaction quite like last week's. I've used Vaseline Intensive Care Lotion for 25 years. Recently, the company changed the package slightly by adding a blue cap and the word "NEW". Figuring it was just more modern packing, I bought the product. Immediately after applying a drop to my hands, I began to have an itchy throat and burning/numbness in my face (and I only applied the stuff to my hands!). I removed the lotion immediately and reapplied some to one hand and the old formula to the other hand. There is a very strong fragrance in the new formula which I had a reaction to. I've notified the manufacturer of my reaction and dissatisfaction. They sent me a coupon for another bottle of their product, but I no longer trust them!
Sarah
WA USA - Sunday, September 27, 1998 at 23:54:45 (EDT)
HI JACKI, Your story was almost like mine.I have been at my wits end because every thing I eat, touch or smell,it turns out I'm allergic to it.We have an environmental specialist in watson clinic in Lakeland ,Florida.I am going to try and get an appointment with him now that I've read your story.Please be praying that God will give the doctor some answers for me because I don't think I can take anymore.Thank you so much for writing your story,it was an answer to prayer for me and I'm sure to many others.God bless you!!!!!
Sheena Thrasher <rustyno2@gte.net>
Lakeland , Fl USA - Sunday, September 27, 1998 at 15:50:03 (EDT)
Hi Jackie,Your web site was very helpful to me. THANKS
Sheena Thrasher <rustyno2@gte.com>
lakeland, fl USA - Sunday, September 27, 1998 at 00:39:06 (EDT)
I am writing from Seattle, WA (yes, it is raining). I am chemically sensitive, have been for about eight years. I am wondering if anyone would have any ideas about relocation to the Southwest area, Nevada, New Mexico, Arizona, I think I would feel better in a dryer climate. The mold, rain and barometric pressure cause me horrible head, face pain and migraines. Help!!!! please E mail me. Thanks, Alice
alice kaupiko <akaupiko@hotmail.com>
seattle, wa USA - Friday, September 25, 1998 at 19:25:44 (EDT)
I totally agree. Have been chemically sensitive for over 15 years. Thought I was crazy and so did everyone else...til lately, as the evidence accumulates that we are all being affected, some of us more noticeably than others. I, too, called myself the canary..more of my friends now appreciate what I have been trying to say. Merci.
JOAN E. BAUMANN <jwbaumann@sprint.ca>
Montreal, P.Q. CANADA - Thursday, September 24, 1998 at 21:15:47 (EDT)
I feel I am severely limited by exposure to perfumes in the workplace. We don't use them at home and feel much better with the air we breath. When I come into contact with someone wearing perfume at work my sinuses become swollen and irritated, ears ring, lose coordination, etc.
Allen D. Bell <ttc223@aol.com or adbell@jcpenney.com>
The Colony, TX USA - Wednesday, September 23, 1998 at 21:38:06 (EDT)
Hi Jacki- My name is Lindsay Hassett and I am suffering from the effects of MCS. I have not been to any doctors specializing in this , however, in what I have read and the fact that for over 18 years my parents have used Shaklee (non-toxic and biodegradable products) I feel priveleged in knowing about the various causes unbeknownst to you in your earlier sick days. Although I am very aware of food products, cleaners and the air quality I am very interested in hearing more about detoxing. I printed out the info on detox baths and am encouraged to do that, however, I am now struggling with the fact that I recently had to intake oxygen at a big festival that people were burning plastics at. I feel much better as a result of the oxygen, yet would like to know how you are giving your immune system the recharge it needs to come full circle? The way I came about your site is that some clueless individual was cleaning with 409 in the cubicle next to me and reacting quickly I removed myself rom the building until the air dissipated the smell. I work in the internet industry as a sales rep and immediatley jumped on Yahoo, then the MCS page that come up and eventually came here. I was curious if you have seen the Hollywood movie "SAFE"? Or if you have heard of a company called Real Goods. If not I would recommend both. I am so glad that you are out there and that you have taken the time to create a Web site and have provided such a wealth of information. If you ever have any questions as to how you may develop your Web site into more of a business resource then I think then please let me know. I have a business background and strongly believe that this MCS sickness that is plauging people need to be more exposed and the best way to do that is through mass communication and sponsored by companies with big pockets and I mean in the hundreds of thousands of dollars. I will be travelling to Asia for a couple of years starting in November and am researching products that I will need for travelling through countries that do not have emmission controls and air pollution is very high. Well I hope this email isn't taking too much of your time as I probably needed this more so for my purposes to just get this all out and realize that I am not alone in this...actually the difference for you, your family and myself is that we are simply more aware! Thanks for your site and dedication to being a great information source. Lindsay Hassett 415-252-7484 HM 800-430-2508 x118 WK till November 9th ALWAYS at hassett@hotmail.com
Lindsay Hassett <hassett@hotmail.com>
San Francisco, CA USA - Friday, September 18, 1998 at 15:05:37 (EDT)
Thanks for all the valuable information you've compiled on your web site. My children suffer from terrible allergies to all scented products and it is a constant struggle to make others aware that their right to a healthy environment is being compromised. I would encourage everyone to get active and demand changes in their own places of work, schools, churches... wherever you see the need. "Scent-free" environments are a necessity for so many of us! People simply have to be educated.
Deb Murray <ddmurray@nbnet.nb.ca>
New Brunswick, Canada - Wednesday, September 16, 1998 at 08:22:58 (EDT)
What a great site and public service. My wife is hypersensitive to chemicals as a result of staying in our new travel trailer one night. After threats of a law suit the company that made the trailer bought it back. Now my wife suffers daily from all kinds of chemicals. Your information may help my adult daughters from suffering the same illness. They see no problem with the product they bring into our house. Thanks very much, Greg DiMaio
Greg DiMaio <pinecorn@madbbs.com>
Lakewood, NY USA - Tuesday, September 15, 1998 at 12:23:38 (EDT)
Your web site is very good, and I am findingit very useful for research on mcs and cfs. My significant other is chronicly ill and I will do everything in my power to help her in our quest for a better life and health. Thank You... Rick Moore.
Rick Moore/ Morgan Mcconnell <morgan mcconnell@att.net.com >
USA - Tuesday, September 15, 1998 at 00:25:52 (EDT)
hi. I think I'm mult. chemical sens. after chemical exposure at work- need help!!!!! please contact with any assistance - thx
becky <becky@comnett.net>
overton, nv USA - Sunday, September 13, 1998 at 18:55:07 (EDT)
Fabulous site! Like most people with CFIDS, my boyfriend and I are developing MCS as well. Thanks so much for your website! I've been looking for advice on how to live chemical-free which isn't easy in our lifetime. Thanks!!
Jen <jen@munn.com>
NY USA - Sunday, September 13, 1998 at 17:28:30 (EDT)
Hi Jacki, Thanks for putting up such a neat web site. My wife had MCS for six years and lived out of sheds for 6 months and was living in a park for a couple weeks at one point. Now she is completely healed and able to go and do things like NEVER before. We were amazed to see that her history of being squelched and abused made her vulnerable to the chemicals in our environment. Having dealt with such issues made it possible to overcome the many reactions she faced such as brain fog, seizures, asthma etc. etc. etc. Has anyone else encountered this?
Tim Reinagel <tim_reinagel@hotmail.com>
Thomaston, GA USA - Saturday, September 12, 1998 at 09:48:33 (EDT)
I wondered if I was it...Nice to have found this site....
Di <MCRAN46688@aol.com>
USA - Wednesday, September 09, 1998 at 20:38:19 (EDT)
Keep the information flowing. Too many people are being made chronically ill by toxics in the environment
Dr. W. Alfred Mukatis, PhD JD <Mukatis@bus.orst.edu>
Corvallis, OR USA - Wednesday, September 02, 1998 at 18:33:47 (EDT)
Thanks for the info on line. Its great to see that there are others that share in the same condition (MCS/EI). It's a great shame that we all have to work so hard to have our illness understood. Would be glad to hear from anyone who would like to share info. Unfortunately here in Australia, we have to rely on info from overseas to a great deal. We have very few medical practitioners here who can agree on this condition. I am fortunate to have ( after much searching), a local G.P. and a Allergist Specialist who deals in these conditions locally. For other tests I mush hop a plane and fly to Sydney. No mean feat when you consider the time in airports/aircraft etc, which can be quite debilitating. When I have to do these trips I have found that hotels and staff have been great, once my condition has been explained, and my requirements for my stay in these establishments, this minimises the overall effects to the system. Would love to hear from others. Anne.
Anne Litjens <eandacad@hotkey.net.au>
Mt.Martha, Victoria Australia - Tuesday, September 01, 1998 at 21:37:23 (EDT)
GREAT SITE...I have just been diagnosed after almost four years of W/C telling me I have a "psychological" illness with a few "minor" allergies to mold/mildews, chemicals, etc. Finally, I have just been authorized to see Dr. Albert F. Robbins in Boca Raton, FL. He has just diagnosed me with MCS. I worked in what became "officially" diagnosed (1995) as a "tight" school in my fifth year of a teaching career. Lots of teachers, students, and even parents coming to visit would get very symptomatic and ill while in the main building at this site. Then when my portable flooded (denied claim yet placed I and several teachers in portables before getting the "official" diagnosis)a few months later and left to "sit" with no air conditioning in the summer with wood floors and damp carpets, it got "sick" too. Wanting to stay well, I transferred. Building placed in had prior complaints too with adminstration just saying it needed a "dusting"...Students, parents, and I became ill within minutes, hours, etc. Renovations took place...Fiberglass left everywhere...I work in this for over a week before they have "time" to come check out...principal says it's not enough to "harm" anybody...I don't last and go "completely" haywire...for almost three years now...Story too long to tell all...there's lots more...but I haven't been the same since. I have tried to go back twice...no luck...finally...doctors throw up hands and don't know what to do...that's how I found Dr. Robbins...they were going to "give up"...I asked for a second "Occupational Health Specialist" opinion by someone who was also a "clinical ecologist...It tooks me two years to get them to listen, but finally they agreed...I am still waiting for his written report for his W/C IME...Hopefully he will get "authorized" to treat me too and it won't be too late to get some of my "health" back. Thanks for having such a wonderful website Jacki...It truly is GRAND!!! Barbara : - )
Barb Fun <barbfun@gte.net>
USA - Sunday, August 30, 1998 at 23:52:23 (EDT)
Thank You for all of this wonderful help and information. Everyone wonders what their purpose is and if they are doing something that really counts in this life, I assure you your efforts REALLY COUNT!Bless you for all of your hard work.
Catherine Warneski <warn@injersey.com>
Frenchtown, nj USA - Friday, August 28, 1998 at 11:47:16 (EDT)
I have been out of work for two years now, I'm a former lawn care worker, it was bad enouff when I had to mow yards that were sprayed and allowed to dry before I mowed them. They have switched to a newer cheaper form of application. They put down an odarless granular powder and put down a tag "KEEP OFF TILL DRY" although they never watered it in, Mowers kick up lots of dust. To make things worse it was a large industrial area that took me 40 hours to mow. over the period of about a year he applied about 4 times I spent the next 40 hours mowing it, somtimes the very next day. My symptoms are just like yours, and the arrogant peaple at the EPA tell me things like I'm one in twenty thousand, unlike you this was not just a buildup over the entire course of my life, after all the normal chemicals most peaple experiance I got a one two Knock out blow. And although I know exactly what happened to me theres not much I can do to convince the aragant fools (Medical Dr's, EPA, OSHA, the Local Dept of Entomology) They don't want to look at the ovious, instead they look for obscure excalmations, Hysteria, Depresion, Mabey I'm looking to win a big Law suite. I feal if you look at the history of peaple like us its nothing new, of course WWI when soldiers got exposed to gas it was "Shell Shock" With the Gulf War Its "Stress" Medicine has identified and developed test for just about every form of illness that Mankind has faced, (as long as they can blame a germ, virus, or genes) The truth with you and me is they will never Identifiey the Chemical Manufaturing Culpruts and they will take carful measures to insure that the truth does not reach the masses. Through the fabrication of imagenary or blown out of proportion disorders like Hysteria, Genes, or Depresion. All of which if you allow them to submit you to there treatments, anti depresents, viruse inhibeters, exercise, will make you far worse. I cannot let what happend to me have not happened for a reason, I want to get my own web page up and running and I want to do a mass mailing to other Lawn Maint Contracters, I virtually have no allies, or anybody to turn to for help in my quest, particually Slander and Liabillity I would appreciate any guidence that you could give me, my short term goal is a Web Page and to do a mass mailing to other Lawn workers. sincerely Robert Christ
Robert G Christ <antares2@mindspring.com>
Clearwater, Fl USA - Wednesday, August 26, 1998 at 16:16:07 (EDT)
THANKS FOR USEFUL INFO
JACO <jrabezui@mweb.co.za>
johannesburg, RSA - Wednesday, August 26, 1998 at 15:26:35 (EDT)
Hi Jackie, thought I would surf in and see what all the fuss was about. What a wonderful & informative, user friendly site you have created. "YOU" are really a gift to the MCS Sufferers of the world, with your educating website. Being a new MCS casualty since January 1998, I have found that between the email list and now your website, I have been getting much info and some comfort living with this disease. Keep up this GREAT SITE... HUGS TO YOU! $-)
Renee' <ra2taback@aol.com>
Westbury, NY USA - Tuesday, August 25, 1998 at 10:04:38 (EDT)
Was happy top find this web site. I've always believe that God meant for man to protect and keep our planet clean and safe for future generations. Yet, it seems that most Christians think that that is something to be left to Flower Children or people in other religions. Once we've totally polluted ourselves and our land where will we go and where will our children go? It's time Christians took a stand as evironmentallists as well as warriors of Christ.
Janice Denning <ddenning@tdsnet.com>
Knoxville, , TN USA - Sunday, August 23, 1998 at 00:36:00 (EDT)
Thankyou for putting all this information on the internet.
German MCS-Soc. <shgmcs@gmx.de>
Bayreuth, BY Germany - Friday, August 21, 1998 at 17:37:36 (EDT)
Loved your stie! I've had sensitivities to fragrances for years now. It's nice to know I'm not alone! Keep up the good work. If enough people are made aware of these problems, perhaps we'll all live in a fragrance free environment someday!
Deborah Lawhorne <deblawhorn@aol.com>
Pottstown, PA USA - Friday, August 21, 1998 at 16:16:07 (EDT)
I found your site to be very informative, and helpful.
E. Campbell <edie5@flash.net>
Arlington, TX USA - Friday, August 21, 1998 at 13:09:00 (EDT)
loved reading your info. any connection between chemical sensitivity migraines/allergies and liver dysfunction?
patty "chemical sensitivity migraines" link <pattysheila@webtv.net>
ripley, wv USA - Tuesday, August 18, 1998 at 23:16:55 (EDT)
I find this to be very rewarding. I hope I can help others like myself and my friends I have met over the last 2 yrs.
Nancy Drinoczy <nancydee2@webtv.net>
Barberton, oh USA - Monday, August 17, 1998 at 21:59:02 (EDT)
ATTENTION: Todd Hymas!! You can find the personal air purifiers from NEEDS - www.needs.com They're around $99.
Jacki
USA - Wednesday, August 12, 1998 at 15:42:06 (EDT)
So glad to find such an informative site for MCS. I am printing the fabric softener info to put in our apt laundry room (I have almost everything chemical free in my environment except when people do their laundry and pollute the outside air-and children). I will also be calling the #'s you gave. Thank you!
cindy barnard <taffina@webtv.net>
LA, CA USA - Wednesday, August 12, 1998 at 05:05:28 (EDT)
I have visited here before and left an entry, but I forgot to ask if there was someplace I could order or buy a personal air purifier? I am starting college in a week and I need all the help I can get with obtaining one ASAP. If anyone could help or get me information on where or how to get one, I would really appreciate it. I have no E- mail address at this time, so if a response could be left somewhere on this webpage or in the guestbook maybe? Thank you, and thatnk you for this EXTREMELY helpful site.
Todd Hymas
Grand Junction, CO USA - Tuesday, August 11, 1998 at 20:27:47 (EDT)
Thank you for providing this information. It is so very hard to explaine to people who have never experienced these problems. It seems that no matter how much you try and explaine they still don't get it and keep on using the perfumes, cleaning supplies, and smoking around you. Maybe you will be able to educate enough people that the word will start getting out. Keep up the good work
Kathy Martin
Roanoke, VA USA - Tuesday, August 11, 1998 at 11:35:33 (EDT)
It is a comfort to find that there are others out there who would actually believe me when I said I have MCS. It has taken so much away from me and I would hope that the medical community would quit saying that it's all in my head.
Mary <mbjaeger@juno.com>
Salt Lake, Ut USA - Saturday, August 08, 1998 at 18:46:46 (EDT)
You have a great site for references, especially items pertaining to perfumes and scents. Thank you.
Sandy Hughes <shughes!@neo.lrun.com>
Kent, OH USA - Saturday, August 08, 1998 at 13:20:30 (EDT)
Thank You for this information. I thought I must be going mad to think I was getting sick around fragrance. It is so frustrating when I tell people of my problem and they don't take it seriously.
Linda Schick <schicks@gte.net>
USA - Friday, August 07, 1998 at 22:12:36 (EDT)
I really want to thank you for the time and effort you have put into your pages. One of our family members has been sick for about 7 years with what we thought was some kind of virus. Although we had never heard of MCS until recently, we had already come to the conclusion that chemicals and fragrances had a lot to do with her symptoms. What prompted me to write was the message in your visitor remarks page from Steve in WA, USA. Since it was one of the most recent entries, I was concerned that others might not read further. Please don't let it discourage you. The link he claims to have used to find your site shows where he's coming from. Reading your pages and your visitor remarks page has been encouraging to us, and we are very excited to have found them!
Steve
USA - Friday, August 07, 1998 at 21:13:25 (EDT)
I just wanted to say thank you for such a great site. I have had MCS since I was a baby and was exposed to organophosohates. I have had great benifits from nuetralisation vaccines over the past yr and am having vitamin drips to boost my immune system - I have a long, hard struggle ahead, (i have been daignosed as having Tin, Mercury, Lead and Arsnic poisoning), but, I belive this treatment is the way forward in my case. Thank you for the information provided here as I have been able to give links to friends to help them to understand. I believe understanding my condition is the key to helping themselves!
*Tessa*
Scotland - Friday, August 07, 1998 at 20:31:13 (EDT)
I really enjoyed viewing your home page. I always put God first in my life and I am a better person because of it. Keep up the good works and may God continue to bless and strengthen you both as you go forth declaring that HE LIVES.
Len Baker <bakerl@diversetech.com>
McLean, VA USA - Friday, August 07, 1998 at 09:17:00 (EDT)
I was really suprised to see so many enteries in your web site. I wanted to let the people who visit your site that I also have a perfume allergy, and I was having problems with some people at my work wearing far too much scent. It took me 2 years to finally get resolve to this issue. I finally got the Indusrtreal Commission's view on this and they told me that it is a disablity, and that my work had to comply with a perfume free enviorment for me to work in, it is in conjuction with the clean air act. The Industrial Commision told me that I could ask for an investigation of the quality of the air if my company did not comply. Overland West has been very heplful to me on this issue. I do not know if me telling them that I had called the Industreal Commision made the differance or what, but I did get resolution. (For the most part anyway). I have gotten very good at knowing where all the perfume counters are in the stores here. I also recently went to a theme park here in Utah (Lagoon), I was so sick the next day from all of the rotting smells from food to machinery. Also I do get sick every time I go past the oil production plants in SLC, as well as a vehicale omitting polutiong exhaust. Thanks Jacki, I hope that you find some releaf for your physical & mental heath. Because I fell that this sensitivity problem effects your mind as well as your body. I am looking for more information on Anit-IGE, it is a new allergy treatment that I saw on a news magazine show. GOD BLESS ALL
Carrie Ewing <CEwing@Overlandwest.com>
OGDEN, UT USA - Wednesday, August 05, 1998 at 10:32:24 (EDT)
THANK YOU FOR YOUR WEB SITE! I lost my job of 16 years due to MCS in 1993 and am being treated by Dr. Alfred Johnson in Rea's clinic in Dallas. Your information is great and easy for lay persons to understand. What I would like to know is what else we can do to get employers, churches, federal regulators - society in general to understand? Are we all writing our government representatives? Is our impact weak because our disability prevents us from attending crowded public meetings? Also, could you add an article on dealing with Believers who say we lack faith for healing and ESPECIALLY ADDRESS THE REFUSALS OF CHURCHES TO PROVIDE SAFE AREAS FOR SENSITIVE INDIVIDUALS TO WORSHIP (free from perfumes, carpet-fresh, air fresheners, candles, etc.). I think some of the cruelest people have been my fellow Christians, gawking at my respiratory mask and eventually ostricizing me and my family. I long to be able to attend church again, but I get migraines or have seizures with extended exposure to perfumes and other petrochemicals.
J. Stalcup
Lubbock, TX USA - Tuesday, August 04, 1998 at 09:34:44 (EDT)
Excellent web site, full of usefull information, have a look at our web site, you may find that interesting.
Terry Bagness <terry@planet-solutions.co.uk>
London, United Kingdom - Sunday, August 02, 1998 at 16:42:16 (EDT)
In my book The Essential Oils Book Creating Personal Blends For Mind and Body, and in my lecturing and teaching I have indeed agreed with all you have to say about synthetic aromatic chemicals! Thank you for a great site. I was given your address by Sandy Perceval of Temple House.
Colleen K. Dodt <ckd115@aol.com>
Rochester Hills, Michigan USA - Sunday, August 02, 1998 at 12:06:43 (EDT)
Nice site. I complained to a friend last night about his deodorant. I have complained before. I do not think that I have allergic reactions to the odor, I just feel hypersensitive to the fragrance. I wanted to eat my food, and drink my beer without the intrusion of deodorant odors. Is it too much to ask? He said I was hypersensitive, and my "requirements" for being around were "high". I plan on showing him some of this information.... I applaud efforts to reduce the (over)use of fragrances in offices. dan
dan L <dleithaus@aol.com>
denver, co USA - Saturday, August 01, 1998 at 10:40:51 (EDT)
Only recently become aware of a name for my severe allergic affect from perfumes and colognes. Now looking for help in diagnosis and treatment.
Dr. Richard T. Trask <rthatchert@aol.com>
Eutaw, al USA - Friday, July 31, 1998 at 17:33:25 (EDT)
I would like you to know that I make mask for allergy patients and have been catering to them since 1985 My masks are cotton or silk or linen or special request fabrics. They are contoured as are the filters. The filters can be of one of the following charcoals-wood,coconut shell, lignite,or bituminous, fabric filters available for those sensitive to charcoal. Flier available. Thank you. Sandy
Sandra K DenBraber, R.N. <skdbrn@ticnet.com>
Arlington, tx USA - Sunday, July 26, 1998 at 11:47:14 (EDT)
Appreciate the trauma you have been through and your reaching out to others with christian love and care.
chaplain shields moore <chaplintia@ij.net>
St.Petersburg, FL USA - Friday, July 24, 1998 at 14:44:21 (EDT)
Jacki - I too have MCS, and I too am a patient of Dr. Albert Robbins. I thank God for him every nite for without him, I don't know where I would have ended up. My exposure was from new construction at work, and I have paid dearly for it ever since. My liver, pancreas, bones, cardiovascular system and neurological system have all been affected. I am presently seeing a Nuerologist in Naples, FL, who has a hyperbaric chamber. He is hoping to restore some of the tissue damage done to my brain. The cells are another story. The same chemicals and toxins which affected my other vital organs are now in the brain causing tremors to my right arm and hand, memory loss and confusion. I take each day at a time and thank God for the good days I may have. The bad days, I have learned to work with them. You cause yourself less frustration by doing this. At first it was very frightening to me to be losing control of my body, but now thru the help of Dr. Robbins and Dr. Rapp and Dr. Rea, I know that I have to live in a controlled environment in order to become whole and well again. Thank you for sharing your story - there are so many people out there who cannot understand why they are so sick, and the mainstream doctors do not want to take an interest or they do not know what the problem is. Yes, I too was told it was all psychological, but I know better now. I will keep you in my prayers - God Bless.
Roberta Morley <roberta.morley@GTE.net>
Orlando, FL USA - Friday, July 24, 1998 at 14:05:53 (EDT)
re: Subscribe MCS-EI, Woody BRONSON I would like to be on several MCS-EI mailing lists, so far I have not got on one since I am rather new to Internet. I do however have good access to medical literature resources being in London. If you need anything, try me! I use the British Library and several others, to get peer reviewed medical journal articles. MCS resources in the UK are not as developed as back home in Canada, so it has been difficult to get adequate treatment here in the UK. Hence, contact with others with MCS would help. Thanks D. Woody Bronson
Woody Bronson <dbwoody@hotmail.com>
London, x UK - Thursday, July 23, 1998 at 09:03:59 (EDT)
Hi, I have had MCS for 10 years now. We lived in a little rural town that was contaminated from old dumps, companies dumping along river's edge (hazardous waste), etc. It seeped into our private wells. What is sad is three little boys who MUST be homeschooled. (That is hard while being sick everyday). We moved over 1000 miles to detoxify our bodies and hopefully give the kids a future. Because the area is pure, the medical community doesn't know how to deal with this. I forgot last week the town (we live just outside) had fogged. I had an appt. and went into my seizures. The emergency room left me sitting for over an hour - needless to say the chlorine did wonders. I ended up walking out and called the hospital administration. I have been asked by the admin. to please educate them and the medical comm. on MCS and what they should do when I come to the ER. Pretty sad huh? Any one else been asked to educate? They would like to know what tests they can give me during episodes. I'd appreciate all help. Thanks, michels1000@hotmail.com
Kathy Michels <michels1000@hotmail.com>
CO USA - Wednesday, July 22, 1998 at 02:04:32 (EDT)
Thank you for all the information on this great web site. I have two sisters and several friends that suffer from MCS. I have been blessed to have come in contact with a company that addresses this question seriously, and have seen many relieved from their troubled existance, to lead a better quality of life. May God bless you in this effort to enhance the lives of those you touch, spiritually and physically! you touch!
Pierre & Gisèle Doucet <pdoucet.gpm@sympatico.ca>
Rollet, QC Canada - Tuesday, July 21, 1998 at 23:21:08 (EDT)
The information on this site has enlightened me and is what I have been searching for. I have suffered terrible headaches and other side effects for many years due to the ingredients in fragrances never knowing what the matter was with me until now. Thanks, so I'm not crazy, making up stories nor looking for sympathy.
John Pellew <pellew@netcom.ca>
North Vancouver, BC Canada - Tuesday, July 21, 1998 at 01:05:22 (EDT)
I am looking for any and all help I can find on chemical sensitivity of unknown origin in the work place. perfume/cologne/body lotions and what it does to some people. changes your mood, from nice to no so nice,major migraine headaches, loss of time from work,no understanding what so ever,
p <phifis@webtv.net>
atlanta, ga USA - Saturday, July 18, 1998 at 16:40:35 (EDT)
I cannpt tell you how encourages I wa by your site. I suffer from what I thought were "allergies" but I have become more convinces are Toxic reactions. I lived near Widnes.Runcorn ICI and I developed bad atopic exzema, In the kast 15 years I have had reactions to certain perfumes an cleaning materials. A doctopr told mr to avoid and go out whereever possible to stop it developing. I also go to Austria for 2 weeks in the summer up in the mountains. To me it is a nuisance not an illnes andI hope I can keep it like that. I'd really like to helkp spread this in Christian circles as I frequently miss chuirch services as somerone arrives with perfume on. I praise God for you site : please visit me if you come to England!
Jean Vann <kj.vann@virgin.net>
Westhoughton, UK - Friday, July 17, 1998 at 16:07:04 (EDT)
I too have a big problem with perfume, formaldehyde, and coal products. I feel light headed when I get a drift of these odors.
Madonna Pierret
Aberdeen, SD USA - Friday, July 17, 1998 at 10:23:52 (EDT)
Thank you so much for the insights into chemical allergy etc. My daughter is particularly sensitive to chemicals and I am forwarding your info to her. I am also going to take my time and read through your information more thoroughly later. Thank you for the time and effort it must have taken to compile off of the information. Thank you from the bottom of a mother's heart.
Sunshine <fuzzy@cyberhighway.net>
Elko, NV USA - Friday, July 17, 1998 at 01:24:32 (EDT)
I, too am very sensitive to many chemicals and especially scent. I get instant migraine-like headaches and nausea when near someone with perfume on them. More people need to be aware of the dangers of scents/chemicals in their foods/ cleaning/personal products!! Keep up the awesome job of doing so! Silver
silver <silver@newhealth.net>
Clearwater, FL USA - Tuesday, July 14, 1998 at 15:12:02 (EDT)
I thank God for you! God has been the only one that has stuck by me, as I lost my wife in 1994,my dad one yr and nine days later, and one uncle four months later. kudos to you and your wife, as I belive I have CSD too. wayne@olypen.com
wayne Bohannon <wayne@olypen.com>
Port Angles, wa USA - Sunday, July 12, 1998 at 03:32:35 (EDT)
this is a great site,thanks!
Pat Yokley <ply1988@flash.net>
Norman, Ok USA - Friday, July 10, 1998 at 19:15:21 (EDT)
Good Site!!! Good information and it is so good to read you testomy!!! I am a Christian too. I have been for about 5 years now. God is awesome. He has changed my life and my ways and my will. I would like to talk to you more. Please e-mail me and we can get to know each other more. Still Fishing---Katy
Katy Bettman <angelinn@kiva.net>
Blooming, IN USA - Tuesday, July 07, 1998 at 23:02:32 (EDT)
I would like to let you know that I appreciate how you have touched upon some isues of chemical toxicity. There is a lot more out there and it would be wonderful to explore more of this topic and its consequences.
Kristin Bauer <STHPAW@prodigy.net>
Phoenix , az USA - Tuesday, July 07, 1998 at 22:54:32 (EDT)
I have to say thank you for such a wonderful and hopefilled place! I received an MCS diagnosis in 1992, but can not recall a time when I ever felt well, even as a child. I would like to email to other MCS victims and would welcome email from others homebound to avoid toxic exposure as well. It was soooo nice to find a place like this to shine out and touch my life in so personal a way and I too, like so many others, cried...tears of joy! I'm not alone afterall! Jackie, I don't know where you found the energy to coordinate all of this wealth of material, but I thank you, thank you, THANK YOU!!!
Paulina <zionispaulina@worldnet.att.net>
West Warwick, RI USA - Sunday, July 05, 1998 at 17:30:00 (EDT)
I developed MCS in February or March of this year perhaps from all the low-level exposures to chemicals that I've had throughout years, but I noticed it the most right after I had a container of gasoline in the car with me for a week w/ out the windows open. I would appreciate info. about inexpensive ways to change to organic living since my symptoms are fairly severe and I have little to no money because I'll be starting college next year. the site has helped me in my self-education. thanks much
Tod Hymas
Grand Junction, CO USA - Friday, July 03, 1998 at 01:57:44 (EDT)
I FOUND OUT AFTR 5 YEARS OF SEARCHING THAT WHAT WAS WRONG WITH WAS ALLERGIES. JUST GOT THIS WEV SO DON'T KNOW IF THIS WILL REACH YOU OR NOT. MY BP GOES UP WHEN I'M ALLERGIC.THANKS TO YOU FOR A WONDERFUL SITE. WIL VISIT OFTEN. GOD BE WITH YOU.CAY -EVERGREN@WEBTV.NET.
EVERGREN
Carleton, MI USA - Thursday, July 02, 1998 at 18:56:46 (EDT)
Great info! I'd like to share that I am recovering from mcs, fibromyalgia & lupus-symptoms via a cleansing program which consists of low-tep. saunas, hydrotherapy & colonics. If anyone is interested in this, please e-mail me. I'd love to share my nutritional tips as well, as this is my career. Thanks again for being an excellent resource & God bless you.
Julie Williams <jkw@seanet.com.>
Issaquah, WA USA - Thursday, July 02, 1998 at 01:35:19 (EDT)
I am about to lose my job of 25 years because I am always sick. Just glancing at the info about mobile homes may have alreayd solved some of my problems. Thank you so much for being there.
Linda J. Adams
Manchester, TN USA - Wednesday, July 01, 1998 at 14:56:24 (EDT)
I am SO thrilled to find your site, after so much misunderstanding about chemical sensitivities, particularly perfume reactions. I am currently trying to get my workplace to address perfume use and its effects--to ask the community to be more aware in general, and your site has given me valuable "ammunition." THANKS!!
Kaejae Hallen <khallen@lesley.mail.edu>
USA - Monday, June 29, 1998 at 16:07:23 (EDT)
My husband I also suffer from MCS, but our major problem comes in new cars and trucks! Our symptoms include severe irritability, over sensitive hearing (things seem louder than normal), hunger pains, fatige and sleepiness, and his blood pressure rises 25 points. We own an 84 GMC cargo van that gives us no problems, can anyone help us with what change has been made to the new GM and Ford products - could it be changes in paint, plastics, or what? We also suspect the car problem we notice to be the major cause of the new phenomenon called "Road Rage". We believe MCS is more common than most people are aware of.
Tom & Patty <kellyconco@aol.com>
St. Louis, MO USA - Saturday, June 27, 1998 at 14:58:29 (EDT)
Thank you for the wonderful service you are providing through this site. I developed symptoms in 1987, while I was an art student. I've taken painful and expensive steps to eliminate as many chemicals from my life as I reasonably can without living in a damn glass bubble. No more musing over vats of photography chemicals in a dark room for me (don't laugh, it was like loosing a child, well maybe a best friend). I've gotten better, but deal with reactions daily, some not so bad, others nearly tragic. My activities and quality of life are mostly limited by what lies outside of my house, and I would really appreciate information on masks, portable personal air purifiers, and the like. I'd like to be able to drive my car, walk my dog, go to the hardware store, go to a play or lecture without nearly passing out, becoming loopy or incoherent, getting asthma, triggering a migrane, or screaming at my husband. Anyone, please email me with info on masks or tiny air purifiers. Anna
Anna <emerald@humboldt1.com>
USA - Friday, June 26, 1998 at 19:13:31 (EDT)
I have been concerned about toxic poisonings in my basement for a while now. We do have water problems with excessive rainfall and you can actually see and smell fuel oil floating in the water that lays for days in the basement. There is a fuel oil tank buried under ground that is no longer used (the last 3 three yrs) because we now have natural gas. My comment is... can this be danegerous to a person if the are sensitive to particular toxins, mold or whatever may be lurking down there. I ask because I have been sick for the last two yrs...with no luck on finding out why? The list of ailments is quite long, but the last is a chronic sore throat that just wont go away. I have had a test, a tube was inserted down the nostrils and throat and nothing is found to be out of the ordinary. I am at my wits end and want so much to feel better and have my life back. I am married and the mom of three boys, 17,14,and 5. I am sure they are all pretty tired of me being tired and sick all the time. I would appreciate any help you could offer me. Sincerely, Debra Moorhead
Ded Moorhead <dmoorhead@hotmail.com>
Lasalle, MI USA - Thursday, June 25, 1998 at 22:10:09 (EDT)
Fantastic uplifting site!! PTL!
Judy K. Sunderman <74124.77@compuserve>
Wy USA - Thursday, June 25, 1998 at 17:43:45 (EDT)
Thanks for sharing such valuable information. It is comforting to know we are not alone in our struggle. Your condition has made you a godsend to others. Congratulations on finding the positive amongst so many negatives.
Nancy <RIZBEE86@aol.com>
Boynton Beach, FL USA - Wednesday, June 24, 1998 at 02:28:49 (EDT)
My father suffers from MCS and I am gathering as much information as I can to help him (and of course my mother) cope.
Owain Powell-Jones <owainpj@aol.com>
St Albans, United Kingdom - Sunday, June 21, 1998 at 11:00:08 (EDT)
I'm glad I have 'ALEXA' and found your site! (Even though it was by way of the "Cheese Lord Studio" site. Talk about weird!!!!!) I actually bookmarked some of their so called 'sappy sites' about LOVE and HUGS! THANK YOU for all of your time and work you've put into your site. I'll bookmark it and return often. I especially appreciate the "Scripture for Spiritual Strength" page.
Lois
San Antonio, TX USA - Friday, June 19, 1998 at 20:09:23 (EDT)
Wow! What a wealth of info. I haven't even scratched the surface yet. I stumbled upon this as I was reasearching cosmetic ingredients to begin MAKING MY OWN!! Although I don't suffer from MCS (not yet, anyway) I have found it very rewarding to make my own products, and really control what is entering my body. Thanks again!!
Liz Silberlicht <lsilberlicht@earthlink.net>
Palos Verdes, CA USA - Thursday, June 18, 1998 at 22:22:22 (EDT)
Thank you for putting this information together and making it available on the internet. It's hard to understand the insidiousness of most of the chemicals in our lives.
Beth Bach <beth@tmpa.org>
Austin, TX USA - Thursday, June 18, 1998 at 10:50:01 (EDT)
Jacki hello!! I was so very impressed with your website I too have been a patient of Dr. Robbins and I always tell him by sharing this invaluable information he probably saved my life at the very least the quality of my life. The information you are putting out there is so very valuable. Thanks for your effort and congratulations for your skill. There are so many people suffering who have no idea what is going on with them. Your site will help more people than you can know.
Maxine <JBajbek@aol.com>
USA - Thursday, June 18, 1998 at 02:46:07 (EDT)
Thank you for putting so much information together for other suffers. We are the canaries warning others of what a huge problem is coming. I have been on TV and radio in Ireland trying to explain what happens to people like us when we are sensitised to perfumed or aerosol products and so many more. 96% of perfumes are based on hydrocarbons and I am convinced that the Organophosphates pesticides on our food and in our environment as pesticides have made us allergic also to all the other uses they are put to and very commonly in traffic smoke, first symptom asthma. They are used as plasticisers, glues, varnishes, paints, fabric conditioners in washing powders, anti foaming agents in unleaded petrol and diesel and also in aerosol cans etc... They are very hard to avoid. I was poisoned by Organophosphate sheep dip over years and slept it off as farmer's flu. Then suddenly my health crashed in Oct.91 when I smelt the OP dip off sheep. We run a perfume free zone at home but I often have to spend days in my room trying to get back on my feet after a sniff of perfume,hairspray or deodorant. I have tried to help others in Ireland to understand what this may do to them. It is not compulsory to use them now since I helped to run a campaign to allert people to their dangers. I have just joined the internet fraternity and may I suggest another site which I find helpful in understanding what happens to us? www.geofjoan.demon.co.uk/op/index.html Sandy
Sandy Perceval <templehouse@tinet.ie>
Sligo, Ireland - Wednesday, June 17, 1998 at 18:56:55 (EDT)
This is a great site and a wonderful "typical" experience. You both are great people and I'm glad I know you. Please keep in touch. I'm sorry I've been away so long. Creg
Creg Cranford <lcranfor@bellsouth.net>
Cochran, GA USA - Sunday, June 14, 1998 at 21:43:28 (EDT)
twas very interesting to be here at this webpage... The cartoons u added to this page were very cute.. thank u for placing extra places were I could find scriptures to help me with my daily life... thanks again....
Janet Hart <mulligan@mail.libby.org>
Libby, MT USA - Sunday, June 14, 1998 at 01:14:02 (EDT)
Your page are wonderfull
Uwe Mertens <Megla@t-online.de>
Germany - Saturday, June 13, 1998 at 16:12:18 (EDT)
After watching Dateline, 6/12/98, I realized that my son may have tourette syndrome, while I've known that I tend toward chronic fatigue. Thanks to your page, I now know that the two are caused by the same chemical. Mahalo!
DJKH <dho@hawaiiancement.com>
Kaneohe, HI USA - Saturday, June 13, 1998 at 11:29:48 (EDT)
I have mcs also since 1991. i felt alone in this until i saw this sight
bobbi dowdy <bobbi@mcmsys.com>
Holliday, Mo USA - Friday, June 12, 1998 at 03:31:22 (EDT)
I suffer such extreme headaches from perfume. Even one quick wift leaves me with a sick headache that can go on for 48 hrs. or more. It's so terrribly hard to avoid, as people wearing the stuff are everywhere...even good friends, who claim they wear it "lightly". Just like the FDA approves the deadly Aspartame, aka NutraSweet, perfumes and colgones are make from toxic and deadly substances and chemicals. I looke at it this way: People made a big stink about smoking, and eventually things changed. There are now non-smoking airflights, restaurants, etc. It's time to make the same thing happen with perfumes. Personally, I prefer a smoke filled room to the stench of headache and other ailments from nasty perfume. It seems that perfumes have gotten "worse" and all smell the same. I really don't know why people even wear it, unless they actually believe all the stupid advertisements, etc. It is risky to go to the grocery store, place of business, or malls, or even a one-on-one get-to-gether for lunch with someone whom you are not sure if they wear perfume or not. I wish there was some way to get the FDA to STOP letting these deadly chemicals evade our air and our lives. Connie
Connie Pitts <cpitts9466@aol.com>
Aurora, CO USA - Friday, June 12, 1998 at 01:57:04 (EDT)
VERY GOOD!ESSENTIAL SUPPORT FOR AN ISOLATING CONDITION.
Karen Forbes
Victoria, B.C Canada - Wednesday, June 10, 1998 at 01:07:44 (EDT)
Great site! I did a search on fragrance-free to help promote this concept to our City of Grand Forks offices. I am writing an article for the next City employee newsletter, and found more than I expected! I will refer your site to city employees. It is superb! (On a side note, this is a personal concern of mine, since I suffer from menstrual migraines, and when I am in my "migraine-vulnerable" times of the month, a whiff of cologne makes me headaches so incredibly worse! This info is very good for my own personal awareness. I didn't realize how far fragrance-free goes, until I read your website. Thanks for educating this health professional!
Bev Benda-Moe <bendamoe@corpcomm.net>
Grand Forks , ND USA - Tuesday, June 09, 1998 at 17:57:05 (EDT)
That brings us to a difficult (but healthier) choice of society....
Jean-Pierre & Louise <jpj@cablevision.qc.ca>
Rouyn-Noranda, Qc CANADA - Saturday, June 06, 1998 at 07:12:46 (EDT)
I enjoyed browsing through your website, reading the information on toxic chemicals was mostly interesting, we became aware of this danger 2 1/2 yr. ago and we did the switch. We now shop at Melaleuca Inc. and have been feeling a lot better since. More & more consumers are learning about these dangerous chemicals thanks to people like yourself and others. It's seems like a non ending task and there are millions of people to educate on this urgent matter! I wish you the very best of health in your endeavor, Roger & Mimi Savoie, New Liskeard, ON Can Melaleuca Marketing Executives
Roger & Mimi Savoie <rsavoie@nt.net>
New Liskeard, ON Canada - Friday, June 05, 1998 at 19:48:02 (EDT)
Although I am now a healthy person, it has been only in the past 6 months that I came to realize the negative impact of household cleaning product on our health. I don't think I suffered from MCS, but I will never know. Keep up^the good work!
Pierre Doucet <pdoucet.gpm@sympatico.ca>
Rollet, QC Canada - Friday, June 05, 1998 at 11:16:39 (EDT)
This is a great site! I recently met a woman who suffers from MCS. She is an an anti-toxic activist. I have learned a lot about MCS from her, but your site contains very useful, specific info. which will be quite convincing for those (not me) who are still skeptical about MCS. I'm a co-founder of the Campaign to Protect the Organic Food Standard, a Boston-area group hoping to prevent the attempted unfriendly takeover of the organic food industry. The conventional food supply is filled with toxins, as you probably know, so it's essential that we preserve a "safe haven" for people who don't want to be guinea pigs for toxic sewage slude fertilized food, genetically mutated and irradiated food. I hope you are able to heal your health, and I will be certain to refer other people to this site.--Jason
Jason Boehk <jasonab@mediaone.net>
Cambridge, MA USA - Thursday, June 04, 1998 at 23:24:25 (EDT)
Interesting sight...i have FMS and TMJ and a constant sore throat and headache that we cant find a reson for. Personally i believe it is a reaction to fuel oil fumes in our basement that comes from an old underground tank (that leaked) that is no longer used, we converted to gas heat. We also have a wet basement the majority of the time and use can actually see the swirls of oil in the water that lays in the basement when it rains heavily. I have tossed around the idea of toxic poisoning for a few months now, but I am the only one with any symptoms in a house of 5 people. I would apprectiate any feedback or info you could send to me. Sincerely, Deb Moorhead
Deb Moorhead <dmoorhead@hotmail.com>
MI USA - Tuesday, June 02, 1998 at 23:56:35 (EDT)
Hi there - I have to tell you how very impressed I am by your site. I suffer from EI and have been cruising the net for different sites - this is the best I have seen yet!! Very informative, and I know it is one that I will turn to again and again. I know that knowledge is our best defense and I need to find alternatives and supplies. I have not yet found a good Canadian Site for such, but will keep searching. Thanks for taking the time and ENERGY to help others in need. I will recommend your site to others I know. Thanks again, Doris Anne Scrimgeour
doris anne scrimgeour <dascrimgeour@brunnet.net>
Canada - Tuesday, June 02, 1998 at 16:32:16 (EDT)
This is the first time I've checked out this site. I've had MCS/EI for about 13 years now. I'd like to be able to join a support group in my area--Southern Califonia--if anyone knows of one. Thank you so much! I'll be writing again.
Lauren K. Zack-Hanson <lkzhanson@juno.com>
Lakewood, CA USA - Tuesday, June 02, 1998 at 01:21:44 (EDT)
I have known for awhile that the chemicals we are ingesting are very harmful, along with all of these chemicals. I do wish more people-along with their medical doctors would take into consideration the chemicals & toxins and advise them to be cut out of our lives. I am a nurse and it astounds me when I see patients with problems are are not put on a diet-not to lose weight, but to gain their health back!!
Denise <dede10@yahoo.com>
Nashville, TN USA - Friday, May 29, 1998 at 09:12:13 (EDT)
Thank you for all your hard work that has gone into this site. This is VERY important information that we all need to know. As much as I think I know about chemicals being in our everyday products and their long and short term effects I'm still shocked sometimes when I read what else is hiding. I would love to make a link to you from my site if I may. You are unfortunatly, living proof of what I'm trying to help people with as well as myself. I will be saying a prayer dear.
Melissa <espial_life@hotmail.com>
Woodridge, IL USA - Friday, May 29, 1998 at 07:19:03 (EDT)
thank god i have found a mcs webisite at last
patricia whitehead <patriciaw2@juno.com>
jamaica plain , ma USA - Wednesday, May 27, 1998 at 18:27:05 (EDT)
The song "remember me" is very beautiful. A nice homepage.
theo jukes <theojukes@wxs.nl>
Vogelenzang, NH Holland - Wednesday, May 27, 1998 at 16:54:38 (EDT)
This is great to have found this web sight.. I have been injury while working at Texas Instruments. I have and many others as well been exposed to a variety of Chemicals like Silca dust, and Triclorethylene (sp) and many other chemicals. Who to say what effect it has had on us, health wise. There has been several died of cancer and related disorders to which is felt to be chemically caused. But nothing has really been done as Texas has a protection laws that keeps people from coming after them. They have worker's comp. but the time runs out before something can be done. We need lots of help but have found dead ends and lost of time.. Your friend in Christ, Terry
Ms. Terry Krawitz <godsbears@texoma.net>
Sherman, TX USA - Wednesday, May 27, 1998 at 16:39:09 (EDT)
Thank you for your hard work, here. I will be praying for your physical condition. I plan to tell everyone I know with children about this website. I have known for a long time that I should stop using the stuff that gives me those unbelievably painful headaches and sinus problems (aerosals, Nutra-sweet, perfumes, etc...). Now I can take courage because you have provided me with alternatives for me and my family. Praise God for you!
Lisa Bizjak <LBBIZJAK@Zebra.net>
Mobile, AL USA - Tuesday, May 26, 1998 at 21:11:25 (EDT)
my mother has this illness
julie dykeman <blu@landmarknet.net>
madison n.h., n USA - Tuesday, May 26, 1998 at 18:52:17 (EDT)
Great info,now I know other folks suffer with the problems that I do.
Bob Werner <gilman@iglou.com>
Louisville, KY USA - Monday, May 25, 1998 at 23:34:47 (EDT)
What about those chemicals that the flowers give off? Would they be harmful as well?
George Vartabedian <george_vartabedian@bushboakeallen.com>
Dandenong, VIC ustralia - Monday, May 25, 1998 at 22:23:28 (EDT)
Many thanks for all the info. At last i have what I need to show my doubting parent and friends of the dangers in their perfumes and dryer sheets.
sandra
NOVA SCOTIA, CANADA - Friday, May 22, 1998 at 18:09:18 (EDT)
My precious 30 year old daughter was dx with MS last September. She has been quite ill all but about 3 months since then. She recently has begun to use the wheelchair as her way of getting around. Her name is Anna Box and I would certainly appreciate any prayers for her. We are Christians and she has a strong faith. Thanks.
Jane W. Gillit <janeg@osc.com>
lubbock, TX USA - Friday, May 22, 1998 at 17:58:54 (EDT)
Jackie, I praise God for you and your WEBSITE. HE has truly blessed you to spread the word. I have been researching the issue of toxic chemicals manufactured in household cleaning, personal hygiene and nutrition products. What I have discovered is shocking and confirms your research. To make sure I was on the right track, I presented my findings before our federal, state and local government officials. My findings were validated. Now I lecture on this issue every chance I get. I would be very pleased to meet you to discuss more on this topic. God has truly blessed me to deliver this word; and, I will not rest until I have completely done so! From one sister in the Lord to another - God speed!
Tracy Everette <mentorme@juno.com>
Columbia, Md USA -
Keep up. this is the web page with the most valuable information on ts syndrom
ewa Gulbinowicz <compmart@tbaytel.net>
Thunder Bay, on Canada -
Your symptoms sound like mine and I can't get a doctor to listen to me. They all think I am crazy and gave me nerve pills. Still didn't help. Now skin itches like crazy and sometimes break out in a rash.
Susan <bubbles@advnet.net>
mi USA -
Thank you for your web site. It is encouraging. This is an illness that has one feeling alone and rejected. Your web site is making me feel less alone.
Kathy Norrie
Ft. Collins Ft. , Co. USA -
Nice information Please do send info with respect to environment on my id
Alok Malaviya <malaviyaap@hotmail.com>
Bhopal, MP INDIA -
I suffer from MCS I was injured in a chemicl accident in a school.
T.Morgan Skye <journy@worldnet.att.net>
Manchester, NH USA -
Hey Sis ;) I wanted to see your site again since you have added more to it!! I am so proud of you Jacki for all the effort you have put into your websites! Looking good!! This has brought tears to my eyes knowing that you have touched so many people and have offered them hope! I pray that one day you will be back to living the "normal" life you once had...I'll support you all the way! Keep up the good work ;) I miss you and love you Michelle God Bless You always
Michelle Waller <micki1@concentric.net>
NC USA -
Thank you for hosting these pages & the site. Maybe misery does love company, because it is comforting and helpful to hear other people tell their stories. My MCS started in Riyadh in '85. Doctor said it was just a real bad variety of flu. Did some electronic fuel control experimental work and marinated myself with kerosene flow test fluid. MCS has cost me a 30+ yr marriage and some family estrangement, because they suckered into medicos comments that it was all in my head, I was nuts. One sharp doctor predicted it all and warned me what might be coming! The emotional hurts are slowly healing and there is life after. VA and the Vietnam Veteran's Agent Orange program has been much needed help. My MCS seems to have drifted over into Fibromyalgia and that is giving me a rough time now. Avoidance is the only thing I've found that works. Live clean and stay clean and you got a chance to come back. How long the road is I know not. Keep up your hope and emphasize positive mental attitude. Thank you Julia, for the kind words and encourangement when it was much needed! Thank you Rudy, for helping her be an angel of mercy, with encouragement for so many of us seemingly lost souls! Thanks to the other visitor remarks page respondants, for sharing their wisdoms. Hank, 515-438-2725, calonkey@netins.net
H.W. Calonkey <calonkey@netins.net>
Woodward, IA USA -
This is the most comprehensive information I have found so far on MCS. I'll take your website address to my next support group meeting. Thanks for all your efforts.
Jimee L. Hurst <JimeeL@AOL.com>
CA USA -
Imagine my surprise when I found that we share not only this stupid condition, but also a wonderful name!
Donna B.
Ft Myers, FL USA -
Thanks Jacki I've got lots of reading ahead of me!! Regards, Annwyn
Annwyn Godwin <Annwyn.Godwin@aph.gov.au>
Canberra, ACT Australia -
My sister has been suffering from Multichemical sensitivity for about 5 years. She has seizures if she smells any chemical. Six months ago her Kidney failed and had to be removed. She feels isolated and alone. I am hoping to connect her with others in her area who are suffering. I hope you will reply we are at our wits end. Thank You
Catie <Fuzyslpr@aol.com>
Nashville, Tn USA -
I enjoyed your story, So many of us have "stories" to share. I have suffered many years also. Please let us always Pray for all who suffer, let us accept the cross we need to carry with the help our Lord. Praise and Glory! Blessings to All!
Melody Owens <beachldy@sccoast.net>
Myrtle Beach, SC USA -
Wonderful information. If only we could convince everyone of the reality of MCS and EI. Our family suffers from this and it is so difficult to avoid chemical contamination outside the home. May God bless you.
Esoteric Ferret <esotericferret@n2life.com>
ON Canada -
I suffer from multiple chemical allergies. Asthama brought on from exposure to fragrances. I feel I have a hidden handicap--I cannot go where others are because of my allergies--there are no ramps for me in any way or form. I have become somewhat of a recluse--having to pick where I can go and time of day. I would like to find a support group to help me not only with the feeling of isolation, but with ways I can help myself feel better physically. Thanks, Mary
Mary T. Langer <onenoah@ziplink.net>
Southbridge, Ma USA -
interesting page,makes things easier for me to explain to friends what mcs is all about when ican tell them to sit down and read this rather than me blurting on about nothing for 10 minutes.
steve barker <jbarker@sprint.com.au>
melbourne, victoria australia -
Hi Jacki, You have been an inspiration to me. I have CFIDS/FCS/MCS. I have just linked your story to my new homepage. I have also have a parachat prayer group. If you can't get ParaChat, please still come to visit my home page. Please make suggestions for links to people of faith and MCS or other chronic conditions. I myself have many allergies and go to Dr. Walter Ward in Winston-Salem. He is helping withEnvironmental Illness and also with my daughters food allergies. Mary <><
Mary Pretlow <pretlowma@webtv.net, pretlowm@highpoint.net>
High Point, NC USA -
Great site! Thank you! I, too, have MCS and am a patient of Dr Robbins in Boca Raton. Maybe I'll run into you there one day. Have just gotten online and find my computer to be my new window to the world. Keep up the great work! :-)
Margie White <Mblankpage@aol.com>
Naples, FL USA -
Am very greatful for your site. I, too, am very sensitive to the products I have been using. Have been sick and getting worse, having all kinds of symptoms that are listed in your site. Thank you so much for the information on chemically free products . Will have my family read Jackies Story maybe then they will understand what I'm going through. Thanks again. Cindy
Cynthia Guss <cguss@hotmail.com>
Finlayson, MN USA -
We are vegans and my son has a wheat allergy. Anyone know of a cookbook(s) or recipe collection for us?
Adrienne Dumont Gage <adrienne@galenalink.net>
USA -
I would like to be on your AE-mail discussions. And I enjoy all the info. that I have read its been enlightening,a dn sentit to a friend of mineso he cnunderstand. Thanks for the great info
Kathy <KweenB@webtv.net>
Las Vegas, NV USA -
I read Jackie's story and I share much the same. I do wish I had someone close to understand. My family has been wonderful, but I've never met another who can relate to my MCS and really understand. It is refreshing to know I am not the only one. I have made many of the same changes and as long a sstay away from the public and avoid all the chemicals, I am doing much better. I hope this isn't too long. I just appreciate talking to someone. Thank you, Linda Plett
Linda Plett <rplett@bcit.bc.ca>
Abbotsford, BC Canada -
Very professional, highly educational, and very supportive to those of us who KNOW that 99% of the fragrances we encounter thoughout the day are TOXIC -- and so unnecessary!! I'll visit your site again, and will probably order the pamphlets from -- (I forget, but will find the link again!) Anyway, thanks so much for your efforts at education and reform. Synthetic scents are one of the most pervasive factors in our declining health -- and it's high time we buck the big business and cultural norm aspects that have such a powerful grip on most people.
Candace Rose <crose@bmi.net>
Walla Walla, WA USA -
VERY HELPFUL INFORMATION , THANK YOU FOR ALL THE PEOPEL , CREAT THIS PAGE.
Monthir Al-Asady <abela@sprint.ca>
TORNTO, ON. CANADA -
Very nice homepage you have hear...thanks for all the info on this disease.. before i came here i never even knew this existed...Keep up the nice work and take care!!!
sherry oursien <oursien@telusplanet.net>
alberta canada -
Wonderful website!! My dad, my mom, and one of my brothers have MCS and I have a less chronic case of chemical sensitivity. It's very hard to work because I work around a lot of chemicals and perfumes. Sometimes I wish more people would understand, but I know they won't unless they have reactions too, because I didn't understand until about two years ago when I started having a growing sensitivity to chemicals. Thank you so much for the encouraging scriptures and advice on how to live non-toxic lives. It's encouraging to know that we are not alone and that others really do understand. If you've got any advice on how to educate others, please let me know. Thanks again!
Dawn Elsinger <dawn_gl7@hotmail.com>
Decorah, IA USA -
My children twins 3 and a half, husband and my self have been poisoned by pesticides FICAM D, TEMPO, CB-38 three years ago. We all have suffered greatly and exibit alot of the symptoms on this site. Our immune systems show deficencys. Does any one know anyone who has had this same chemical exposure????? or same family of chemicals??? Thanks for any help! H.
Hisyd <Hisyd@aol.com>
USA -
Hello, Gordon and Jacki, I love your site, visited them dogtired but couldn`t stop reading your story! Keep up your positive thinking towards eating! I will come back to your page soon!
Daniela
nbrunn, Germany -
I too am becomeing housebound because of perfumes and chemicals. Is there any treatment other than avoidance? Thanks, JH
Jeff Howel <Moneyman@yahoo.com>
Irving, Tx USA -
Thank you for a wonderful website to visit! I would like to ask permission to add this link to my home web page which is under construction at his time. I was initially diagnosed with CFS, then MCS, then four years later they found that I have two active types of porphyria with chemical exposures being my major trigger for attacks. I hope to offer links in my site that have important info on issues pertaining to this, organic and nontoxic living, and Christianity. Thanks again for your wonderful site. :)
Gayle Monk <JazzBB@aol.com>
W> Richland, WA USA -
I have very severe MCS and have had for around four or five years now I also have copd along with steroid dependant Asthma. The MCS really raises havok with the other diseases. I do pretty well if I just stay home and go no where however that is not possible all of the time as I have a mother that needs me as she had a stroke and I am her representative and need to get down to the little town where she lives pretty often. I live in the Cascade Mts. and there are no problems here as yet. It's beautiful and pretty clean aired except when they burn fields in the valley and the smoke comes up here. I have to be very forceful with visitors and not let them in if they are wearing any type of fragrance at all, including what they washed their clothes in, I have to use all unscented products, thank god they make them now, some I found say unscented however if I open them up and they have a scent I check and see what they have in them, and sure enough toward the bottom there it is, "FRAGRANCE" I now check first to make sure it's ok. I get so ill for days and sometimes weeks after an exposure. Well I have taken up quite a bit of space here so I had better go. Thank You for your time. Toni
Toni Rowlan <trowlan@dswebnet.com>
Cascadia, Or USA -
My friend read your letter. She thought I wrote it. At the end we both cried. I am approximately the same age as your wife. Thank you. I am going to try an further you and your wife and childrens challenge to the world.
Pat Roberts <proberts@ccrtc.com>
Spencer, In USA -
Great website - thank you for your hard work and for promoting chemical sensitivity. Love the perfume section and found the information really great. Kind regards - Dorothy ASEHA Qld Inc is a support group for people with allegy, food and chemical sensitivities. Like you we gravitate towards practitioners with training in environmental medicine and are fortunate to have a felow of the AAEM in Brisbane.
Dorothy M. Bowes (Mrs) <asehaqld@powerup.com.au>
Brisbane, Qld AUSTRALIA -
Hi! I would just like to say that this is a gr8 webpage. Hopefully, it will influence some people to become Christians and spread the word about multiple chemical sensitivity. : )
Amanda <Ilovedrewm@aol.com>
Acworth, GA USA -
I want to thank you for all the information you have posted on the net. I learned only a few months ago from my Doctor that I had MCS. But I've a reaction to perfumes, soaps ect. since as far back as 1983. It's nice to know that I'm not a nut case, but the down side is that it's not going to get any better and that there is no cure. bummer! Anyway. you have a nice web site and thanks for all the info. Tumbleweed
Dan Rowley <tumblewe@stc.net>
cleveland, GA USA -
I think it is a wonderful thing that you are doing here. My best friend, June Reavis, has MCS. Before I met her I wasn't even aware of the disease. She recently had the net installed and cried when she found out that there are people who are like her. She is a very brave and wonderful person and I just wanted you to know that you helped her to know that she is not alone.
Suzanne Arnold
USA -
Elísabet Magn™sdóttir Good day, I call from Iceland, I just found you, so my comments later But I would like to be in thuts with you I have I son at 13 and he has sever TS
Elisabet Magnosd Uttir <emagn@islandia.is>
Reykjavik, Iceland -
I have mcs with reactions at first to perfumes,white out ink,hairsprays,laundry soap &etc.;
Virginia Rice <rudedog@mail.castles.com>
Fairfield, Ca USA -
Our World's a Mess, but there is Hope!!! I've enjoyed looking though your visitor remarks page. This MCS stuff is going crazy, but I guess it has to do overall with the increased amount of chemicals and toxins poured into our environment each day. I heard recently that we have had a 50% increase in toxins in the last 40 to 50 years. Wonder why were getting sick. Here is some good news though, a new discovery in Nutruaceuticals may be part of the answer for MCS and all types of Auto Immune Dissorders, GLYCOPROTEINS which are very new, were identified by Harper's Biochemestry in 1996, as essential for cell to cell communication. Harper's noted that our cells need 8 essential carbohydrates, or glycoproteins, in different combinations on the surface of all cell, to make up the language of the cell. If one or several of these were missing, our cells were miscommunicating, when cells can't talk (so to speak) they are in real trouble, but when they can talk, they can repair themselves of almost all problems. It is now believed that the body can heal itself, if it is given the proper tools and nutrition. Well I've about rambled on enough, but these glycoproteins may be the missing link between sickness and wellness, so you should maybe check them out. If you need more info, I'd be glad to steer you to what I know. Neil D at castleland@sk.sympatico
Neil D <castleland@sk.sympatico.ca>
Beechy, sk Canada -
I meant to say how much it means to me to have Christians sharing their faith, in any and all mediums, the net included. I've know Christ now for just over 21 years, and he is really the reason my life has gone where I am, He is my reason to live. Really enjoyed the visitor remarks page, I'll visit it again.
Neil D <castleland@sk.sypatico.ca>
Beechy, sk Canada -
a breath of fresh air! thank you!
danica markham <danica@sapphire.kachinatech.com>
albuquerque, nm USA -
Pleased to locate your web site. After two months of suffering symptoms such as sore throat, watery eyes, and yesterday an earache, I finally have information to back up a request that co-workers cease to use the lotions made by Bath & Body Works.
D MEDDERS <DJM6317@AOL.COM>
ANNISTON, AL USA -
I saw your page a few weeks ago, but didn't make the connection. I used it to ask the principal to read it for information. Don't know if he did. I have more information of another nature, and expect to file another grievance. Yours was the first site I saw that I was able to get useable information, and enough from
joanna jones <jjones8@hotmail.com>
waimea, Hi USA -
Hi Jacki You might recognize me from the MCS-CI list. I wanted to visit your new improved site and I love it. Thank you for all your hard work. I reinforced a lot of the information that I already knew and learned some new things as well. I have a question. I use Arm& Harmmer's Washing Soda, I have to rinse my clothes two or three times with any detergent to make sure there is absolutely nothing left in the clothes. You seemed very adament with not using Arm& Hammer could you tell me why? Thanks for your response and see you on the list! Great, Great job Charon
Charon Marie Graham <charon@intergate.bc.ca>
Surrey, BC Canada -
Thankyou for putting all this information on the internet. It can only help those of us who have been suffering for years with little or no help. Maybe soon more people will understand this condition and the restrictions on your lifestyle that it causes. Unfortunately I have no E-Mail or Web Site address, but I can be contacted by snail-mail at PO Box 104 North Adelaide SA 5006 Australia.
Josie Lee
North Adelaide, SA Australia -
I am also a teacher and have been having problems for the past five years. At first I was just getting hoarse by the middle of the day then I began having full blown anaphylaxic attacks. Finally I put the occurance together with Victoria Secret's line of Pear products. My superiors think I am crazy. I just returned fom two weerks absence because of the frequency of recuring alttacks. Many of these times, in the past three years, I have had to leave work. I have seen two different allergists. The are trying to find someplace that I can be tested, since there are those who do not believe that these attacks have any real basis. Does anyone know a facility that does these types of tests. One person said that they had made positive ateps to improve. I would like to know what they have done. What are EDP Injections and where would one go to get this. My life has been turned around, I like so many others on your guest page. Does anyone know of a class action suit against the makers of Victoria Secret?
Jody Mentzer <jmentzer@ >
Rowland Heights, CA USA -
I found your website while I was searching for info on MCS. I recently had a very severe reaction which consisted of swelling of my eyes and the surrounding area and subsequent peeling of the skin of my face, also a severe rash on both arms. I'm not positive but I do believe this problem was caused by exposure to a product called TILEX which is used to remove scum from the shower and tub. I would appreciate any comments you might have on my story. Thanks
Pete Sigrist <ultrapete@aol.com>
San Diego, CA USA -
Hi! I was very glad to find your site. It's very informative and helpful. I have 3 children who were recently diagnosed with asthma. Their asthma is triggered by hairsprays, perfumes, and other strong odors. I suspect they have MCS. We've been cleaning up our home in response to this and have noticed big improvement in everyones health. We've had trouble with the schools however. My oldest daughter, 15, had to quit the high school she was attending because of the perfumes and hairsprays. We communicated with the teachers and nurses at the school and eventually she felt pretty safe in the classrooms, but not anywhere else in the school(restrooms, halls, library or cafeteria). We feel that the school and school system needs to implement a policy of no use of perfumes, hairsprays, etc. within the school. The school nurses I spoke with are in agreement and were willing to write the policy. However, the asssistant school superintendant for the district told the nurses not to get involved in this or they could lose their jobs. I'm trying to go forward with this issue on my own, gathering information and involving other parents. If anyone who reads this has any information on how other schools and districts have dealt with this, I would appreciate hearing about it. I'd be especially interested in hearing of any schools or districts that have prohibited the use of these stong odored products. Thank you, keep up the good work...Cindy Maus You can email with any information regarding this at Cindy7x7@aol.com
Cindy Maus <Cindy7x7@aol.com>
Cedar Creek, TX USA -
Thank you for the information. I contracted MCS last fall when the classroom in which I teach at the University of Maryland was contaminated with Orthene, an organophosphate. Can anyone help me 1) find a method of treatment 2) contact other sufferers who experience burning in the lungs and atrial fibrillation? 3) find a homeopathic doctor who assisted them? 4) counsel me on filing for social security disability if I do not recover by next fall when my sick leave expires (unless I expire first).Thanks to you all, Lynn
Lynn Penner <oceanvac@cts.com>
san diego, ca USA -
Thank you for being on the Forefront of a little known about condition.
Marc A Romansky <mroman@cruzers.com>
Captila, CA USA -
I am a hairstylist and concerned about my health. A lady that works with me has asthma and had problems with both of her pregnancies. If you have any information re: my work hazards please email me. Thank You......
Tandra Smith <banfld@pdq.net>
Houston, Tx USA -
I have it too. Multiple Chemical Sensitivity I mean. I have been on the web for 6 months as part of my plan for putting my life back in order, I've lost everything of course, but only just a few days ago I stumbled onto Yahoo's MCS page. I saw a huge list of sites, but I just couldn't get myself just then to check them out, way too painful. But today I came back and started with your site. The first thing that I found there was about perfume, one of my biggest problems. This is hard. I usually can face any of my problems and talk about any of my issues, solving them is another story, but talking I can usually do. This time however it's really hard. And it's 4:30 in the AM here, but I'll be back. Thank-you for your site and I hope to actually meet you someday. When I first really got sick, five years ago, the first person that I could find who had MCS told me that it was so hard for us to meet and get together because we were all allergic to one another and to any place where we could meet. She seemed to me at the time to be tragically right, but now there is the web. Things are looking up. Rita Wondrak
Rita Wondrak <wondrak@mailexcite.com>
Metuchen, NJ USA -
I searched for perfume allergies thinking of course that I was crazy! Found your visitor remarks page, but not the website. Can someone tell me how to get to the website. Thanks.
Karen Norton <karen_norton@fleetcapital.com>
Glastonbury, CT USA -
Excellent work and appreciated. I, too, am virtually home-bound and have been labelled as `disabled' because of a severe intolerance to chemical compounds - scents and fragrances. I must limit my public and social exposure but, contrary to a report I read this morning, I DO wear a facial mask with carbon filter from coconut fibre. While by no means 100% protective, it HAS allowed me to get out some and to return to church where many people have ceased wearing perfumes, colognes, etc. in deference to me. Nevertheless, I still have problems. I also suffer from rhinitis [chronic], skin rashes and severe itching and have both chronic bronchitis and asthma. I have COPD. I was forced to retire at 59 because I could no longer travel by public transportation primarily air nor attend meetings, all because of fragrances intolerance. Again, thank you and God bless.
Ron Davies <rwdavies@smartt.com>
Surrey, BC Canada -
I have recently developed asthma and several other symptoms and am trying to investigate why I go into coughing spells when I am exposed to perfume. I guess maybe I just found out. Thanks for the information.
Kaylene Beach <beachv@pilot.msu.edu>
East Lansig, MI USA -
does anyone know where I can find a Dr. or hospital in southern ontario that I can be tested for chemical sensitivity. I soon going to be house bond .I am very fortunate that we have a living air machine. Without it i would be very every ill. Ihope someone knows of a good dr. Keep smiling people will wonder what you have been up to! ruth haines
ruth haines <ghainespipcom.com>
peterborough, ontario canada -
Quite helpful information, keep up the good work!!!
Bob Rose <fz207@cleveland.freenet.edu>
Chardon , oh USA -
I'm new at this---just in the last 1 1/2 weeks learned there may be (is) a name for what I've been struggling with since Oct. 1997 in particular. I'm having a lot of trouble at work, will lose my job because of it, my doctor is unknowledgable, and not willing to support MCS for some reason, and I wish I had known about this so i could have been documenting "officially" since October. As it is, I dfidn't start until early Dec, and it was full blown then . I now wear a face mask to work-I teach - but the people coming into my room are still using their chemicals: As I have been told loudly by the boss" They have a right to wear perfume." I will soon file for med retirement, and am trying to decide aboutr filing a grievannce because of the stress and lack of support, from the dr, from the union, and "official" records. any suggestions would be appreciated. Thanks, Joanna Jones
joanna jones <jjones8@hotmail.com>
Waimea, HI USA -
I am presently visiting your page . i am pleased to see thatyou make mention of the word of God.
robert & nicole; perras <marrob@magma.ca>
hammond, ont USAcanada -
Gordon & Jacki: very informative, very worthwhile-thanks!!
Johanna Wolf <wolfj@elwha.evergreen.edu>
USA -
Very interesting site, my boss suffers from this condition and its hard for people to understand, they think it's all in your head!
Lynn Burke <LBPig@aol.com>
Danville, IL USA -
Just bought computer for Christmas and got on the Net about a month ago. So much of the MCS info depresses me, but your site is so uplifting and helpful. Thank you so much. I intend to redo the Scripture list in KJV, I've memorized so much in King James, I sometimes get confused with all the new versions/translations! You know, brain fog! Your name is familiar to me. Do you belong to Share, Care and Prayer? Do you know of any online prayer lists/groups for Christians with MCS? Blessings and good health from a sister in the Lord. I
Joyce Heiser <djheiser@gateway.net>
Elk Grove , IL USA -
Thank You for creating a site where this is information about Pefume Allergies!
James Chen <ihchen@pe.net>
Hemet, CA USA -
Am 59 and have been quite sensitive to fragrances [Avon Skin-So-Soft handcream is a killer] and just had to leave work at 9:a.m. because my throat and chest started shutting down. Heart reacted quickly too. Have lost jobs or quit because of it all and intolerant people who make fun and tell me to quit and get out of their path. I have been forbidden to say anything to anyone at work...so, I have to leave. Somehow, I believe I deserve a job too and am quite good at the computer work I do. Just needed to "air" a bit. Would love any information you might have about this being a disability, legal help, and medical help as I am getting so much being ignored from doctors and lawyers.
Ruth A. Olson <RAOJazz@Mailexcite.com>
Minneapolis, MN USA -
I am thankful to finally find information about what has been bothering me for years (30 yrs.). I was reading an article in People Magazine (Feb.9, 1998) called "Toxic Avenger" and I wondered if I could find a Web Site about this lady that the article was about and lo and behold I started finding all of this information about MCS. I could see the connection instantly relating to the things I have been experiencing for so long but not being able to prove. I live in St. Pete. and would be most grateful to find people in this area that I could correspond with (if you know any I would be most grateful to know how to contact them). Praise the Lord for the Christians who are giving encouragement. In Christ, Robert Malick
Robert L. Malick <RMALICK227@AOL.COM>
ST.PETERSBURG, FL USA -
This is very valuable information for me and my husband. He has been suffering from this problem for some time, but we didn't know it had a name or anyone else was addressing the problem. Thank you. We appreciate it very much.
j.martinez
houston, USA -
After reading some of your information I feel two different things. It makes me feel good that you can provide all these information to people like me that knew about mcs to a certain level but now i had received more information, but also makes feel really frustrated and angry because we are harming other people's health. I have a really good friend that suffers from mcs, And i wish I could do something to make the illness go away. For me to find this page means a lot, it is right now like I'm in shock.
Flor Chahua-Ortiz <chaortiz@yahoo.com>
Berkeley, CA USA -
Have been on the EPD subscribe list and just decided to log onto yours for news and information. Look forward to leafing through your "library"!!!
Sandy Belair <bsbelair@email.msn.com>
Gig Harbor, WA USA -
Hey, Gorden! Didn't know y'all had a page out here. Nicely set up too. Just wanted to drop you a line and let you know I enjoyed the page. I hope things are going well for you both. Take care.
Jay Hayes <jfhayes@nettally.com>
Tallahassee, FL USA -
Great site! My wife Barbara has MCS, and her history mirrors your experience. I'm sure she'll e-mail you when she has a chance to look at your site. Larry Smuckler
Barbara Smuckler <larrybar@eudoramail.com>
Capon Bridge, WV USA -
Hey Jacki, Nice to visit your site. . . . from your rad rd list sissie
Stacey Martin
USA -
Hi my name is Nancy: I just left work this morning after having an attack from someone's perfume. No matter how many times I tell people I'm allergic to perfume, after shave, etc., they don't seem to respond to the extremity of my condition when exposed to these chemicals. Today one of the new girls walked by me doused with perfume and I started coughing, and gagging and had to go to the bathroom where I coughed and wretched until my stomache hurt. My eyes are swallon, my throat tight and I feel like crap. They heard me coughing and puking in the bathroom and told me to go home for a little while. I still have to go back to work in a couple of hours, but she will be there and so will here perfume. I know that people have a hard time relating to others unless it happens to them and most people only view allergies as a runny nose and sneezing. It's so much more. When I'm exposed I'm bed ridden. I can't function. It's like I have phneumonia. I live all alone. I'm 50 years old. I have no one to take care of me and so I must work. But I can't function in a working environment where people where aftershave and perfume. I want to go to theatres and movie shows, concerts, etc., but the mingling of perfume with aftershave lotion, hand creme, body lotion, is too much, so I don't go. I am on a mission to try to enlighten the people about chemicals, perfume, etc, and their effect on people. I would appreciate it if you could tell me how I can help in some way. Something must be done, just as cigerettes were made known to the public, the public has to be made aware of the consequences of perfume and other chemicals. I would very much like to hear from you and your organization. Nancy E. Kucharczyk, ashes9@flash.net
Nancy E. Kucharczyk <ashes9@flash.net>
Westland, MI USA -
Very informative!! Learned about things that I've never given a thought to. Thanks so much! Will definitely pass this info along.
Dawn McKay-Comer <mckaycom@remcen.ehhs.cmich.edu>
Alma, MI USA -
just collecting commants at present, I have problems with MCS (allergies) I have friends with ME (CFS). Cheers
peter kissagizlis <peterkay@clara.net>
Hessle nr, Hull, England -
I am 27 and have had this c.s. for about 5 years. I am a mechanic and I know that this contributes to the c.s and am currently looking for a new career. I too have a strong faith in the lord and attend Bethel bible fellowship with my wife and 2 children. Working with the grease, oil and other chemicals at work has really ruined my health. I have 'brain fog', pain in my joints, especially my hips, and skin irritations. But with the help of a carbon filter mask and eating healthy I can function normally.
damian abbate
edmonton, ab canada -
Have not viewed it yet!
Elizabeth Witt <healthnut@mindspring.com>
TN USA -
Love your webpage. I am a Christian, too and had a miracle take place with my MCS through EPD injections. Do you know about this? You may be too ill for EPD to work, but it would definitely be worth talking to an EPD doc to find out.
tessa sansovich <sansovich@salisbury.net>
salisbury, nc USA -
SUCH AN EYE OPENER OR SHOULD I SAY AIR OPENER. Thank You ,It took a lot of your time to research and put together your page and for the health of everyone you have done a great and selfless job.
Sandra Brown <TheBrownCrewInc@webtv.net>
Levittown, pa USA -
My husband has been sick for 7 months now since we moved into our new construction home. I am searching for information to help us get the answers we are looking for. We have been unable to find a Dr. to help us--they all think it is a stress/anxiety problem. We have ruled that out with various trials of medications, which have not worked.
heather fox <dphillips@pekin.net>
pekin, IL USA -
Do you remember me from The Natural Place? I was there alone when you were there and was doing sauna-detox with Dr. Robbins. I had the middle room. It was great to read what you have put together here. I started reading your story and was thinking how much it sounded like this person who I met at the a Natural Place. I got really excited when I read that you had been to Dr, Robbins and I knew who you were. After the sauna-detox, I came home and went back to work. This was my final undoing, and a year ago I had to quit and apply for disability. I'm now on the board of Directors at MACI (Mass. Assn. for Chem Injured). I've been working with local schools, to get them to clean up air quality because my daughter developed MCS a year ago and I had to take her out of school for 2 months. I'm also working with Harvard Community Health Plan (my HMO). doctors there diagnosed me as phobic 2 years ago, but now they are listening and are working on plans to provide MCS accessible rooms and educate the primary care physicians to recognize MCS. Keep up the good work. Janet
Janet Bonner <jbonner@flash.net>
Lexington, MA USA -
I have just been introduced to Jacki and I look so forward to reading all the info she has written. This E-Mail is going to be wonderful for me. Thanks for sharing so much already with me Jacki. I know it will really help me Helen D.
Helen Duckworth <MsPeanut1@aol.com>
San Ramon, CA USA -
Jacki, I enjoyed your story. I really could relate to your Oa experience. I joined back in 1995 and I haven't had much success with the program. It is a lot of work! Anyway I would love to hear more about your progess. Thank You for your story!
Saundra C. <saundra-c@usa.net>
California USA -
Jacki, I really related to your story. I too have stuggled with my weight all my life. I also can relate to your oa story. I joined oa in 1995 and I lost about 28lbs during the honey moon period. I also found oa to be a lot of work. I mean I like the concept of excepting there is a problem with food but who wants to live their life by a book. If you don't go to enough meetings you will lose your abstinence. I couldn't live that way. Now I'm searching for a new approach. I deal with the people in oa. They would be friendly in meetings then when you call them they could only talk for a minute. The oo approach sounds good. I would love to hear about how it's working in your life. I know I'm fed up with always having to focus on food. Thanks, Saundra
saundra cooks <saundra-c@usa.net>
los angeles, ca USA -
Thanks for being here. My husband is allergic to perfumes, and I was ready to tear my hair!!! Thanks for your ideas and support.
Sandi Lotter <
slotter@smsocs.com>
Clayton, CA USA -

W ell, I can't figure out why the "Heartless Bitches" put your page down!!! I find it interesting, I will have to come back and read more about everything. Well, at least you get some web traffic, huh? =) Sincerely, Amy
Amy <urhere@hotmail.com>
MT USA -
I have this also.
Diane Ballard <dballar2@bellsouth.net>
Winston-Salem, NC USA -
I am having trouble with a co-worker who wears perfume and lotions. The smells give me headaches, scrathcy throat and make it hard to concentrate. I am trying to find any guidelines that address this issue in the workplace. Any ideas?
Stacy Guerin <sguerin@aif.com>
Tallahassee, FL USA -
I LOVE your site. Thank-you so much for all of this information. I just copied all of it off (I hope that was ok?). I will be sending it to my sister-in-law. She uses so much perfume, and her husband has chronic migraine headaches. Also, she visited me the other day and I broke out in hives from her hairspray. I had told her no perfumes, but she thought that just meant no cologne. Thank you!
Linda Ellen <keele@baraboo.com>
Baraboo, WI USA -
Your web page is beautiful and your scripture verses a blessing. I am very sorry to hear of Julia's passing -- although it is clear that she is with the Lord. It is just so unfair for someone to have to go through such suffering. God bless you and your four-legged children as you continue in such a worthwhile effort.
Helen Haggard <hchag@ibm.net>
Portland, TX USA -
I am working on a paper about narcotics in perfume. I am curoius as to weather any of the symptoms of injesting narcotics form perfume or drug abuse are also experienced when inhailing them from fragerences. If you can help me, I would appreciate it very much!
Cassie Krause <tekcjt@freeway.net>
East Jordan, MI USA -
Very interesting, need a contact list for others with MCS to enable us to converse with one another.
Carol Henderson <suekm@efn.org>
Eugene, OR USA -
Thank you for the information contained in your web site. After an extremely toxic day at work, I left sick and it took hours for the pain in my face and head to subside, not to mention the asthma. At least you know exactly what I'm experiencing. All for the sake of the almighty after shave. I'm allergic to all fragrances and the fabric softners and dryer sheets set my system on fire! I will be contacting the manufacturers listed. That Downey is a killer!...and Bounce, whew! Thanks again for sharing, I have printed some of the material and will share with all the others I know at work who suffer in silence, and have people laugh at them when they complain about the fragrances. The ignorance knows no boundries! I've had the problem for many years now to where it is debilitating at times. I hope your health continues to improve...knowing the cause is half the battle, right?
BEV BODEN <BBODEN@INFICAD.COM>
MESA, AZ USA -
As a chemically sensitive person I am trying to gather info on perfume-free workplaces and alternatives to harsh house- hold cleaning products. Both of which aggravate my asthma causing wheezing and dizziness.
Krista Vangen <vangen@frontiercomm.net>
Bloomington, MN USA -
Its nice to know that there are others out there like me who are concerned, sometimes horrified at what is in the products that are used everyday. Keep up the good work~!!!!
Julia Tilley <julia.tilley@paonline.com>
Harrisburg, pa USA -
Lots of new information for me. Really enjoyed going through the program.
Jackie Paul <sweets@ccrtc.com>
Greencastle, Ind. USA -
I thank God for allowing me to find your article, it was a LIFESAVER! I now know what I've been dealing with for the last 10 years, and can make some positive steps to improve. Thank you.
JoAnn LaFramboise <windwlkr@cyberhighway.net>
Boise, ID USA -
Hi I wanted to write and tell you how much I enjoyed tweety bird it made me laugh. I am envirnomentally ill and still in a bit of denial about the whole thing even though my life has been turned upside down. I can totally relate with everything you are going and went through. At first I didn't get any support from anyone. They thought that I was overworked or depressed or lonley or a million other things. Slowly people are starting to understand but it has been a good journey I have learned so much and feel so much more depth about people and reality than I ever have before. I won't ramble anymore I just want to thank for all your effort. It's helping me to accept that I can't go back to the way I was. Not that I would even want to but it's just familiar I guess. Thanks Charon
Charon Marie Graham <charon@intergate.bc.ca>
Surrey, , BC Canada -
Hi! I found your message and came directly to your home page. Imagine my suprise when I clicked on a picture of you and saw myself staring back at me!! I called my daughter into the room to look at the picture and she wanted to know who the man in the picture with me was! No kidding! I just wanted to share that with you. Now I will go finish reading the information you have here. Toni
Toni Miller <skeeter@mail2.quiknet.com>
Chico, Ca USA -
My girlfriend has perfume allergies. Her allergies started over two years ago after she got over viral meningitis. Her sensitivity to perfumes has increased over the past 6 months. She is desperately seeking a solution to her allergy problem. Conventional medicine does not and has not helped her to date. Any suggestions from you would be greatly appreciated. (I wrote this note before I explored your web site.)
Mark McLean <mhmclean1@aol.com>
Boston, MA USA -
I would like to ask you some questions regarding a specific problem related to reactions to chemicals.
barry sapolsky <bsapolsk@mailer.fsu.edu>
tallahassee, fl USA -
IS there any way to try to find out information about any MCS victims who have been sent to Johns Hopkins Hospital to Dr. Barry Gordon for an IME examination. He is planning to use some type of smell test where he wants to expose me to liquids in a vial and have me smell them. I have a liability lawsuit and am presently representing myself ProSe and need any help or information that anyone might have.
Pat Helinski <helinski@erols.com>
Pasadean, MMMMMMMMaryland USA -
Jacki, thanks for your e-mail. You're like an Angel who reached out to me. I look forward to hearing from you. I will take your advice to heart. I'll join the e-mail list you suggested and look forward to chatting once a month as well. Nedra-January 8,1998
Nedra Schilders <nedra@cei.net>
Crossett, Ar USA -
I am fighting a battle to obtain accomodation in my work environment (hopefully before I die) for a fragrance free environment. Does anyone know of any legal precedents with regards to this?? Or does any one know of any companies who have accomodated in this way? Also where can I obtain a full copy of the EPA report on fragrances??
christa garrett <slmadeh@aol.com>
dumas, tex USA -
Great website.
Sue
USA -
Aloha, Jacki, I always enjoy updating myself by looking at your home page from time to time. This time I cannot get your Detox Baths for Purification. Could you please send me this info to my email address? Mahalo (thank you) Susan
Susan <SWLKrueger @aol.com>
Hono, Hi USA -
Very informative site learned a lot.
Daisy King <king@scsn.net>
Columbia, SC USA -
Hi Gordon and Jacki, What a surprise! I have found this site by visiting Patti in Florida. Glad to see you are some better and really glad you got to meet Patti. God Bless You, Susie
Susie Williams <msds@iAmerica.net>
Bossier, La. USA -
This is a very helpful and informative site. I am planning to take a copy of this to work tomorrow to show my boss. I have been complaining about perfumes for some time now.There are many of us working for gte phone co with asthma that are extremely bothered by perfume. Thank you
Jakki Parker <jakki@eee.org>
Hesperia, CA USA -
I am here where are you
Joan Boyd <joan.boyd@xtra.co.nz>
Auckland, New Zealand -
Found you site while showing my girlfriend how to get around in the net. Very interesting page.
Neale Banks <COLDIS@bigpond.com>
Mooloolaba, Qld Australia -
Congratulations on your website! It is easy to read, well researched and extremely comprehensive. All the best.
Debra Sine <sine.debra@ic.gc.ca>
Ottawa, ON Canada -
I enjoyed your website. My wife and I love clogging also. We are members of a local clogging team called "The Country Motion Cloggers". I tell everyone that we ain't good but we have fun.We do most of our clogging in nursing homes.
Wm. Kirby <wkirby@bellsouth.net>
Spartanburg, SC USA -
None at this time.
Sharon
USA -
My first visit to this site. Looks to be very interesting and informative for MCS sufferers. Thanks....Carolyn
Carolyn S Kelley <cskly@webtv.net>
Cuyahoga Falls, OH USA -
Please keep up the good work and add me to your mailing list Thanks so much.... Ed Hogan
Ed Hogan <safehavn@erols.com>
Manassas, VA USA -
thanks... i use the fragrance links for concerned friends who don't understand why i end up in the doctor's office after certain classes or work shifts... of course, now i just stay home... gotta love being allergic to the planet. take care... hugs
ygg <krasota@ibm.net>
washington, dc USA -
Hi Jacki, I used to read your posts on the yeast list. I've had CFS and Environmental Illness for almost 20 years. I think I'm finally working my way up and can almost see light. Would like to discuss it with you. Barb
Barbara Huston <brh@wolfenet.com>
Yakima, WWa USA -
you have a very nice web site! I hope we will get one some day soon so ya'll can see ours!
Marcia Lawhead <you know!>
Tallahassee, fl USA -
My MCS was caused by paint stripper and other chemicals used to refinish our kitchen cupboards. I already had problems with perfume, and formaldehyde, etc., but the most severe reactions came at the beginning of the kitchen project, and I didn't know what was causing my problems. It took 3 years to finish the project. And I was very ill for 7 years, and very nearly died. I am somewhat better now, as long as I don't come in contact with too many chemicals. Easier said then done. Donnie
Donnie <mickiemc@frontiernet.net>
Concord, MI USA -
What a great website, Jacki!! I love all the sound effects with the pictures. My boyfriend really enjoyed the "Homer Simpson" clips!! He also loves chocolate!!
Sheila <no-more-diets@webtv.net>
Houston, TX USA -
Good for you for expressing some feelings in your poem. The comment in Heartless Bitches was cruel. Hope it doesn't get you down!
janice colvin <unionorg@aol.com>
USA -
Greetings.....Blessings....Best wishes.... There's a mission you are accomplishing..you are helping many, I know..
L. Dee Rohe <drrohe@aressco.net>
Miami, FL USA -
Been disagnosed with fibromyalgia, allergies among other things. I have been saying for years I feel like a toxic dump. I agree with you 100% on the chemicals we have and use everyday of our lives. It is so much a part of our life, unless we start changing things, we will never get better. Good luck to you.......Shirley
Shirley Goodwin <sjgjag@spartanburg. net>
Pauline, SC USA -
I am publisher of a small youth culture magazine, doing research for a story on governmental and evironmental madness. I would like permission, if possible, to refer readers to your site, and perhaps quote information from it. Keep up the good work!
Michael Carmody <carmody@feist.com>
Wichita, KS USA -
Dying with MCS for 13 years, but think I'm getting better.
Carey Sullins <CareySullins@juno.com>
waco, tx USA -
I think you guys should have included more detailed information about the dangers of air fresheners. Its fine to say that they are not good for you, but you never siad why. Don't be so quick to jump to conclusions and telling others the dangers without giving the specifics. If you have done your research you would know that the chemicals in air fresheners are not dangerous at the levels we have in our homes, only at extreme high concentrations do they produce such adverse effect.
Cheryl Cameron <cherylcameron@hotmail.com>
Toronto, on Canada -
Thank you for your page and the MCS information. I am very sensitive to fragrances and beauty products. I am a 47-years old woman with a husband and 2 sons ( 20 and 16 years). I have been sensitive all my life, but earlier I felt 'normal'. In -85 I went to work to a bank (documentary credits) and after that I have been more or less ill. I finished at the bank in -94 and have been at home since that. At home I feel well, but no guests are wellcome. We do not use any scented products ourselves (stopped using in 91/92) but sons bring scents in their clothes when they come home from the school/university. That 20-year old son has now a girl friend, and this causes me problems. Her mother uses loundry detergent that smells terribly, they also use perfumes etc., as normal people do. When my son comes home from his girlfriend, we first put his clothes our for a night or two, then I wash them and dry them out. After washing the clothes still smell so much that they cause me asthma-like symptoms. My everyday life is a struggle with other people, who do not understand. Fragrances are not discussed here in Finland, no, the only comfort I can get is MCS-pages in Internet, therefore I am very g r a t e f u l for these pages and the information I can get. I am worried of children, the indoor air e.g. in schools is terrible, I could not breathe it, it is so scented, but nobody believes me. I just have to wait that more people become ill. I have contacted some institutions here in Finland, but a single person can do very little, I have enough job to convince my family that fragrances and chemicals are dangerous. Thanks and regards Marjo Jarvinen
Marjo Jarvinen <juhohk@dlc.fi>
FIN-02340 ESPOO, Finland, Europe -
I am researching about fabric softener and what effect it has on fabrics. Eg; why does it make your clothes softer, and does it work. If you have any comments on this I would be very grateful if you would e-mail me. Thank you very much. Kelly Dockray
kelly Dockray <kbd100@mead.anglia.ac.uk>
england -
Send more environmentally minded individuals to post on the ADD alternatives folder in keyword Better Health
Jim Fiaschetti <Lonvoyc>
West Palm , Fl USA -
thanks fro the info
marie mentze
kelowna , bc canada -
I also suffer from exposure to perfume and chemicals. It is a never ending battle to try to avoid them.
Donnie <mickie@mi.frontiercomm.net>
MI USA -
I too suffered from multiple chemical sensitivity. Asthma, and all the rest. I am no longer a prisoner. I applaud you for your efforts to educate the public about the dangers of perfumes and other chemical toxicants. If you truly want your life back again, get yourself to a qualified classical homeopath!!!! It has changed my life, and could probably help you too. Three years ago I couldn't even sleep at night because I couldn't breath. This summer I ran five miles a day outside in the fresh air! Take care. E-mail me if you would like more info about Homeopathy. It saved my life!
nancy <hdwrds@ctive.com>
USA -
IMPRESSED BY YOUR SITE. PLEASE AIRMAIL LITERATURE FOR READY REFERENCE. RAJA R.A. P.O.BOX 9591 AL-AHMADI 61006 KUWAIT
RAJA R.A. <RRAJA@KOC.COM.KW>
AL-AHMADI, KW KUWAIT -
cool!!!! i like the page i like the graphics....i just like it!!!!!!!!
Sara <sarabelle7@juno.com>
tempe, az USA -
I have I.T.P. and have been pesticide damanged by being sprayed on by a pesticide applicator while seated in my back yard. Local pesticied agencies are reluctant to seek action against the company responsible. Do you know of an activist group who may be able to assist me in forcing the issue with the legal establishment and the pesticide company. Thank you . Anita
Anita Kanakaris <AandAwaterdevas@worldnet.att.net>
Fresno, cal USA -
It's so nice to find a site addrssing issues such as these. I look foreward to keeping my reading of this page up.
Sandra Hobbs <hobb0010@algonquinc.on.ca>
Gloucester, oOnt Canada -
Thank you - Please continue and God Bless.
susan wells vaughan <sioux@interpath.com>
Kill Devil Hills,, NC USA -
I haven't gotten to read any of your pages yet (this is as far as I've gotten so far), but I am bookmarking it for later use. I am severely allergic to perfume, but nobody seems to understand that. Thanks for providing this page!
Mary Ellen Thomas <melon804@snip.net>
Broomall, PA USA -
Kathi Gorman <kgorman@ribogene.com>
Hayward, CA USA -
I'm new to this site & have no comment at this time- I have had MCS for 15 yrs-- I may be able to share some info with you if interested-I need to see what info you already have
Cindy Holland <Ciholland@aol.com>
Barberton, OH USA -
Joan has suffered from enviromental allergies for years. Her reaction is one of severe years. Her reaction is one of severe migraines, lethargy, inability to coordinate thought and action, etc. At times she has been unable to attend church as a result. In spite of being examined by doctors for years, it is only just recently that we have even started to get a handle on what the problem is all about. Even the term "Multiple Chemical Sensitivities" is new to us and was how we came across your site. We hope to learn more and more about MCS. Alan is pastor of Riverview Baptist Church which is located in Johnstown, Ontario right on the St. Lawrence River.
Alan and Joan Litchfield <litch@mulberry.com>
Prescott, ON Canada -
Thanks for a very informative page on perfume/fragrances. I would REALLY like to see the original EPA report from 1991, I cannot find it at their web-site. Do you happen to have the exact title? Also, I love the canary with the face mask, do you mind if I borrow it for my own MCS page? Thanks Steen
Steen <hansen+@osu.edu>
Columbus, OH USA -
Hello to all from, Texas!!!!!!!!!!!!!!!!!!!!!!!
Pepsi Man <Mtdewone@aol.com>
Dallas, Tx USA -
I agree about things in the enviroment making me ill. I had sprayed the yard for fleas 2 times had pneunioma 2times lung Dr. made the connection. I stay away from everything now, but its been 10 yrs. & I'm still paying for being so stupid< but as sick as I am at times I try to thank God I'm still alive if I hadn't found out I'm sure I would be dead by now.Utill I got sick I didn't see danger in anything. Thanks for answering my e
Nice to to discover your page. Colors of the Wind is a joint venture that sell hand-crafted jewelry in order to help finance a future Center for recovery & healing for people with EI/MCS. I (Rita) happen to have EI/MCS. Our website will soon expand and offer several services to the EI community.
Rita Ferraro-Shapiro <RitaFS@AOL.com>
Santa Fe, NNM USA -
Hi Jacki, your website is great and very attractively designed. The info is very important. So glad you are getting it out.
MARGE SMITH <MNWSMITH@COSMOSLINK.NET>
USA -
I have been looking into my personal problem with perfume sensitivity and have been helped immensely by the information that you have provided. Thank you so much!!!
Carol Cranston <cranston@monarch.net>
Medicine Ht, AB Canada -
Thanks for the address
Donna Totillo <totillod2is.nyu.edu>
New York, NY USA -
No comment
Donna Totillo <totillod2is.nyu.edu>
New York, NY USA -
See you on the list
John DeVries <jonra19@mail.idt.net>
Nashville, TN USA -
I'll likely come back to read the material on perfumes, air fresheners, etc. I just got here now and can't stay long.
Claire Gilbert <blazing@igc.apc.org>
Half Moon Bay, CA USA -
Great website!
Dionne Steiner <dimntd@aol.com>
Feasterville, PA USA -
Interesting site, I tend to sneeze with certain personal colonges and usually find myself disliking them more and more. Thanks for passing along the info! I hope the good days are soon less the exception than the norm! Sent this on to friends.
Linda Ramos <singpretty@webtv.net>
Los Angeles, CA USA -
Great info. Great pages. I was told in Nov. 1995 that I had 2 years to live (Till Nov. '97) unless I got into a safe house. No money, but we have made some changes and am doing oxygen therapy. Thank you for your website.
Donna <EAGELS2200@aol.com>
Las Vegas, NV USA -
WOW! I have horrible allergies, but people w/ MCS have it 100 times worse. Your page on perfumes was a real eye opener.
spikey4him <spikey4him@aol.com>
USA -
I am very interested in getting this information distributed to EPA & FDA offices. The perfume industry needs regulation now!
Peggy Davis <ppsdavis@juno.com>
Atlanta, GA USA -
Mike Youell <mikeyo@lsl.co.uk>
Cambridge, England -
Thank you for all the wonderful information. I have been suffering from numerous sinus infections, bronchitis, etc over the last 7 months. Now the fragrances that my coworker (that I share an office with) uses has made it difficult for me and my breathing. I also have a mysterious chemical allergy in my eyes that my doctors cannot seem to figure out. Once again thank you. I think your information and experiences will help me.
Suzanne Murphy <murphsu@itis.com>
Oregon, WI USA -
Great Web Pages!!
Helen Keaton <hkeaton@nettally.com>
Tlh, Fl USA -
Hi Jackie & Gordon! Love your WEB site! Great job on the perfume article. I hope you get a lot of positive response. From the postings I've read so far, this page is just what we MCS sufferers need.
Michelle Duval <Michedu@aol.com>
Belchertown, MA USA -
I have been struggling with MCS for 4 years. I am now basically a prisoner in my home. Where it began is very difficult to know. I had my almagams out 6 years before the beginning of my MCS symptoms. I certainly could have worked in sick building since I worked in the corporate world for 14 years, flew many times a month, stayed in many hotels and drove new rental cars - all very toxic environment. Now I just stay in my home, only being able to go to our local health food store, which is managed by a woman whose partner has MCS. I have tried everything, but had no relief. Allergy testing is too dangerous since I react violently to anything and it is deadly to me. The thing that I worry about is the more I stay cloistered here, the more sensitive I become, making it more and more impossible to go out in the world. Are we to eventually be like the "boy in the bubble"? I eat only organic food, but have done that for 20 years, and have been leading as much as is possible in my private life a green oriented life. Another toxin that we must also we aware of is the electromagnetic effects. It is just as difficult to cope with. I become just as fuzzy and sick when using my computer as I do when being next to chemical toxins. Also, going into stores with many machines, like a grocery store or living too near power substations or high transport lines is extremely difficult. Thank you for your site and the links to others. We have so little contact with others, it is a gift to have the ability to access info from our homes and have so much available.
Donita Jolly <altrara@aol.com>
Durham, NC USA -
THANK YOU!!! I am trying to educate my family because I have MCS which is becoming worse by the week now. It started slowly many years ago (in retrospect) and after working for five years in a converted sewage treatment plant it really started to cause problems. I am almost to the point of having to withdraw from normal activities like going to the grocery store, etc. etc. I gave up going to church, group events, etc. about two years ago. Your site is helping me understand my problem better and hopefully manage it more successfully. I am still committed to finding a "cure" for this. I hope I am not just deluding myself. God bless you.
Charlene Joslyn <cjoslyn@worldfront.com>
Kingston, WA USA -
What is your car going to look like in the futcher?
Mark St. Jeam <gen41@aol.com>
russell, ma USA -
Hi!, Received your address from a friend. I'm chairman of the Environmental Comm. at school, have been reading about MCS and many related topics for 3 years and personally know 2 people suffering from MCS. I know what you're going through. I'm very new to the computer. Not sure if may address is correct. Take care. Marilyn
Marilyn Greathouse <www.Mcmztbp2.AOL.com>
Melbourne Bch., FL. USA -
Do you know where I can buy a computer screen shield made by Etienne Raze of France?
Susan <Swlkrueger@aol.com>
Honolulu, HI USA -
Oye Roberto Frito, Quite a workout for the optic nerves. Visiting with family, slumming the net, and following the "Roving cultural desperado's" creed. Take nothing but photos. Leave nothing but footprints. Looks bleak for 21 June soiree. We'll see. Many thanx for clues. See you around the watering hole, mate//EOM//H. Frito sends//
Hymen P. Frito
JustVisiting, OH USA -
Thank you so much for all the good info on your site! I am telling all my friends about the dryer sheets and other info.
Sue Shaw <rdshaw@alaska.net>
Eagle River, Ak USA -
My husdand came in while I was reading Perfume and chemical pages and read some off the screne. PTL! He wants to help but is somewhat overwhelmed by the changes to be made. All I can get him to read helps get us thinking and working together. I sent him to Dr. Cowden's lecture when he was in Winston-Salem. I just wanted him to understand some of my problems. Now, I think he is going to buy me a waterfilter, which is a great investment for him since I had to quit even answering the business phone (plumbing) and have applied for disability. I have quite a few cognative problems and fibromyalgia. (Possibly some brain damage from all the migrains all these years.) He has also taken the hair analysis and is taking garlic and chlorella for led and aluminium in his system from years of breathing solder(sp?) from work with copper-lead mixtures, using solvents on hands to clean etc. I think I've had cfs for 40 years. Diagnosed with fibromyalgia in 1992. I've only been out to support groups Lupus and cfs/fms past years. I hate going out to doctors offices when I sick with something that they DO know about because of sents, halagin lights, eucululiptis plants with mold on them too. I now go to Dr. Walter Ward who is an allergist and gives me the EPD treatment. The avoidance helps me most. Even that office doesn't understand that afternoon appointments expose me to the sun which I an very sensative to. Since learning about you on the web I don't feel crazy. I feel I have kied's now. Thank's or sharing --especiaily, your faith. Love in Christ Jesus <>< Mar
Mary Pretlow <pretlowma@webtv.net, pretlowm@highpoint.net>
High Point, NC USA -
Your music on the MC Survivor page is great. I have't seen your page yet but I exspect it will be terrific. Thanks for informing people like me who are new asthma patients and suspect MCS. I need all the facts and help I can gather. The medical world is not very helpful here in Seattle. Maybe I just don't have the right Docs.
Lana E Weed <lweed @gte.net>
Seattle, Wa USA -
Your letter sat on my dresser for a long time. I found it while cleaning up and decided to check out your web site. Looks great! Hope ya'll are doing fine. I guess ya'll know that Aunt Joan has Alzheimer's. She's not doing too good. Ed also has a leaky valve in his heart and an irregular beat. Just found out about that last night. This is my company e-mail address. I think it's ok for ya'll to e-mail me here anytime. I hope I surprised ya'll!
Bobby Waller <bwaller@ball.com>
Warner Robins, GA USA -
I'm searching for info on perfume allergies for my sister whose throat almost completely closes up from contact with some perfumes. I'm a member of First Baptist Church, Franklin, TN. My husband, Dr. Richard Land, is president of the Christian Life Commission of the Southern Baptist Convention.
Becky Land <horns@earthlink.net>
Franklin, TN USA -
Please send any info regarding new treatments for mcs
Judy Beeber <Pulsebeat@webtv.com>
New York, N.Y. 10463 , USA -
I have MCS and CFS - trying to find anyone who has had success with work place accomodations.
Rena Latouche <Elcom@hcr.net>
Newark, VT USA -
Hello!! Thanks for your wonderful, insightful homepage. The information on MCS was extremely helpful. I have a new friend with this disease and I wanted to find out as much as I could about it so I can be around him without causing him physical pain or suffering. Your tips were great!! I plan on visiting your site again in the hopes that you will continue to inform us about new findings concerning MCS. I will pray that your health, Jackie, continues to increase daily as I know it will since it is obviously apparent that you are relying on the only true source of strength and peace of mind that there is---GOD!! The scriptures you have mentioned on your page are inspiring. I intend to use them to encourage and uplift my friend. It will be a nice reminder to him that "No temptation [trial] has seized you but what is common to man; and God is faithful, he will not allow you to be tempted [or he will not allow you to suffer] beyond what you can bear. And when you are tempted [made to suffer], He will provide a way out, so that you can stand up under it." (I Cor. 5:10 ??) I have lupus (an autoimmune disorder) and the resulting kidney failure that sometimes goes along with it. With the gift of my earthly daddy's kidney, I am currently pretty healthy. Praise God!! I just found out I had lupus not too long ago, though I suspected it for a while. Although I am not having any problems with this disease right now, I ask for YOUR prayers that God will continue to bless me with good health. Please pray for my friend, too, as he probably needs it more than me (health-wise). His name is Tron. Just uplift him to God that he would stay true to his faith and remember that these "momentary" problems are nothing compared to the "eternal" glories of heaven. You both remember that, too. Thanks for listening to me and for sharing your life and knowledge with us all. Write me sometime, if you feel like it! My address is: Laura Wilhelm, 10424 Ol' Loggin' Rd, Gravette, Arkansas 72736. The Joplin, MO address stems from the fact that I'm a student at Missouri Southern State College student over here. Just a little bit of useless information about me. Anyway, I should get back to my research..... Love, your sister/daughter in Christ----Laura
Laura Wilhelm <ms-wilhe@mssc.edu>
Joplin, MO USA -
Hallo Jacki- Never give up hope. We hope we all get to meet one og these days. Cordially, Doris and Gernot from Wuerttemberg and Switzerland
Dr.med.Gernot & Doris Schwinger-Tschanz <dschwinger@t-online.de>
D-73269 Hochdorf, D Germany -
Hi Jacki! Just came by to see what's up. Afriend of yours, Kimee, mentioned your name in our OO group in NYC with Jane. Heard I was on the list. Thanks for all your valuable comments. Love Fran
Fran Wolfson <FranW210>
NYC, NY USA -
Very nice web site, and quite a service, too. My wife is in the early stages of figuring out the MCS problem, so we are happy to have read your story. (My wife is a college professor who has worked in a completely sealed 'sick building' for over 20 years--but she's not going back until the building is fixed. Thanks for the info--especially the mention of dizziness, which is Sandra's primary symptom--along with mental confusion . . . which is not good for a professor! Your work on this site is much appreciated--communities are wonderful, whether it's the neighborhood or the web!
Jim Gibson <jimgibsn@mindspring.atl.com>
Atlanta, USA -
Forgot to mention,,...your page is beautiful...nice job!! KC
Kasey Blake <kcblake@aol.com>
USA -
Thanks so much for the page. I was diagnosed with CFS in 1990 and have rather a classic case. I did get sick tho, one year after moving into an apt over the boiler,and fuel tank, the parking lot is under my bedroomn window..and a two parkways are blocks away. I have always been sickly so I really didn't think that MCS could apply. A friend just told me of a doctor who treats CFS from the chemical angle. It's very expensive and I am not covered for it...really, I have tried so many things and seen so many doctors, I have little hope of anything really helping. I have a question. Can the chemicals effect your hormones because I am extremely hormonal (greasy hair, acne...etc am 36 female). If you could get back to me I'd really appreciate it..I appreciate you taking the time to educate and help others. kcblake@aol.com
Kasey Blake <kcblake@aol.com>
Long Island, NY USA -
Your "No perfume means healthier air" was fantastic. I always thought there was something toxic in perfume, now I can show people that it is true and I'm not just making up my allergies and asthma episodes. I look forward to any new info you share Thank you very much.
Lisabeth Bryon <lisabethb@hotmail.com>
Whitehorse, YT Canada -
Thank you for the extensive information and energy that it obviously took to gather all of this helpful information! I am convinced that I have been sedated by my cologne! I am personally turning over a new leaf and plan on getting on my 100% natural, frangrance free, soap box! I would like to be able to give this information to others. Between word of mouth and reference material, this information should be able to go a long way. My prayers are with you and yours, in attempting to re-settle your lives. I am hopeful that I will no longer be needing daily naps (15 minutes-2 hours duration). If I get my life back, I will be sure to update you. An elder might call this an "act of power"-to make a major change of habit like this. It is a challenge that I gladly accept! I just want to say again, thanks so much for the hard work! I feel I could go on all night, hope is very encouraging, but I should be making my way to a gathering. Warmest Regards, Debra ÷stling
Debra ÷stling <ostling@gte.net>
Welches, OR USA -
sent email with comments
Janet M. Winkeler <dwinkeler@sprintmail.com>
Highland , IL USA -
An E-mail penpal direct us to your site. If it is all right we would like to make a link to your page. You have good information we want shared with people. Great Page will come back often. later, db
David & Deb Bosle <dbosle@navix.net>
Hastings, ne USA -
I haven't read your material yet, but I plan to share it with a nurse who is writing for the LA CFIDS newsletter. I am the leader of the HEAL chapter in So Cal and publish "Human Ecology Resources".
Anne Jackson & Norman Gauss <Ngauss@aol.com>
Los Angeles, CA USA -
I was also diagnosed with MCS and CFS 2 years ago.
Rena Latouche <ELCOM@hcr.net>
Newark, VT USA -
I really liked your web site.
Kevin & Stacy Haney <kevhaney@mail.usmo.com>
Washington, Mo USA -
I have just logged on and look forward to exploring our site.
Denise Karuth
USA -
This is so cool
Jack
Burlington, Ont. Canada -
I designed Benson's site and he gave me a copy of your e-mail. I will recheck the spelling to make sure every thing is correct. If you remember where the errors are you can e-mail me at image@nettally.com I love your site and hope you receive strength as you endure your illness. Back in college at Liberty University, I came down with something. The doctor told me that something was wrong with my blood (white cells). I asked if it could be leukemia and was told it looked like leukemia. That night, I looked up leukemia and had 100% of the symptoms. I layed in bed that night and prayed. I told God that I had heard of other people having peace, but I didn't have any. I asked Him to help. I had just memorized Prov. 3:5,6. "Trust in the Lord with all thy heart and lean not in thy own understanding. In all thy way acknowledge me and I shall direct thy paths." (This is from memory so may not be exactly correct) Instantly, peace flooded my soul! I had many people at Thomas Road Baptist Church praying for me as we waited for the next blood test in one week. When I got the results, the doctor told me that they could find nothing. He thought that the first tests were mis-read. I told a friend, about the results - "tests were mis-read", he said, "Wait a minute, we have been praying for you. God may have healed you from this." Anyway, I am still kicking 19 years later. I will pray for you and hope that you are receiving the peace that I received. He is good. Respectfully, Tim Setliff
Tim Setliff <image@nettally.com>
Tallahassee, FL USA -
Very interesting to know. I sell fragrance and am really considering not doing it. Thanks
Jana Johnson <Manzelli@binah.cc.brandeis.edu>
Waltham, MA USA -
You are an inspiration. Thank you. I have been dealing with chemical sensitivity for the past five years. I, too, can no longer tolerate perfumes, and a multitude of other chemicals, too numerous to mention. I, too, was forced to leave a career I loved. I became sensitive due to petrochemical exposure. (Office renovation) Again THANK YOU. You have a great site.
Carole Jarvis <jarvis@qns.com>
Newcastle, OK USA -
I have been sick for 2 1/2 years. I have been doing research on my symptoms due to lack of support from any doctors (so far). I think I have this "environmental illness". I hope to gain some support on the net, because most of my friends and some family think it is "all in my head". It is really difficult at times. I'm allergic to several foods, bleach, fabric softner, cleaning agents, and cigarette smoke. I don't have many good days. I was studying to be a chiropractor, but I have not felt good enough to go back to school. I worked with cadavers in formaldehyde for 1 year. I am learning, slow but sure. I am very worried about my future. I can't work, and am the sole supporter for my son and I. I am afraid I will be homeless. I hope to find some help online. Thank you for this wonderful, informative, page! (Teresa)
Teresa Dalton <Dalton@qconline.com>
Bettendorf, IA USA -
I am looking for a E. Chamberland, M.D., PhD who specializes in Environmental Medicine. I have tried everything Jackie -- do you know where he is located? Thank you! Barbara Stock
Barbara Stock <LVKE24A@Prodigy.com>
Winter Park, FL USA -
Recent subscriber to MCS-CI Enjoyed your home page! Maybe someday.... Madeline read your Fabric Softener and Perfume info--I got a copy from Linda Hamilton at sdsu. Same as yours. Next we'll reduce it on a copy machine for some of our smelly friends! Nice getting acquainted a bit! :-)
Madeline and Omar Bose <Obose@aol.com>
Portland , OR USA -
Ur page is Lookin Good Jackie!
Mona Lisa Abbott <monalisa@tapple.org>
Tallahassee, FL USA -
don't know quite how I found you, but nice...very nice!
pat
USA -
Made it into your page on "Air Poisoners!" Glad to see it up. As always, you do a tremendous job! BTW, got you listed in the New Reactor, wonder if your site will get any hits as a result. Take care and be well. Hugs --barb
Barb Wilkie <wilworks@lanminds.com>
Berkeley, CA USA -
Just arrived. The front part is quite nice. Talk to you soon.
Richard & Jamie Morris <rmorris@mailer.fsu.edu>
USA -
I was hunting info on MCS and found your home page. I have trouble with asthma attack reactions when exposed to fragrances and my sensitivity is getting worse. I am on 4 different medications to "prevent" reactions but it doesn't always help. Any suggestions..
Ann Specht <Spechts@worldnet.att.net>
San Antonio, TX USA -
Jacki.....I first met you on immune-webber mailing list. You have made a remarkable web-site! I am spreading the word about the info you have available here. Thanks so much.
Rhoda Rosen <Rhodar7300@aol.com>
Overland Park, KS USA -
cool
Daniel L Waters <Waters@Together.net>
vernon , vt USA -
Had to check out the anti-perfume stuff--Iím suffering!
Betsy VanBuskirk <bvanbusk@uli.org>
Washington, dc USA -
My daughter has MCS and is living w/ me. We are constantly looking for products and information. I just discovered this website and will get back. PS, I am a christian, but daughter is not. She cannot come into our church, because of perfumes. It's a difficult issue.
maura davis <mdavis@fhcrc.org>
seattle, wa USA -
I am retired on a disability due to depression and other medical problems caused by candidiasis. My avocation has now become helping people online who may have candidiasis. Becuase multiple chemical sensitivities is one of the symptom complexes often associated with candidiasis I am interested in MCS.
Bill Monroe <BillMonroe@aol>
Orlando, FL USA -
I have EI or MCP I would rather call it Multiple Chemical Poisoning. I too react to all chemicals. MY most severe reaction is my throat closing off to the point of limbs going blue. I know that some day I will end up having to have my neck cut open and a tub stuck down it for air. That to me scares me to the point of not wanting to even go out to see what kind of day it is. But I still do, just to walk, and do my daily things. I use Shaklee and Enrich products, they have kept me alive this long, (4 and 1/2 years) ****Please see my Web page http://www.av.qnet.com/~healthlady/ Your page is God Sent. Thank you. Love Jeri Van Dyke
Jeri Van Dyke <healthlady@qnet.com>
Palmdale, Ca USA -
Hi Jackie! I've been meaning to visit for some time and am glad I finally have. Very pretty, so far. Very interested in your data on fabric softeners. Take care, Carol
Carol D'Agostino <caroldag@liii.com >
Valley Stream , NY USA -
What a beautiful, informative, and fun loving Web Site. I am chemically sensitive to and so is my mom. Thanks for the great inforamtion. I wish everyone would see it and take it to heart.
Jodi Beyer <jbeyer@idcnet.com>
Fort Atkinson, WI USA -
Coming for a return visit. Brought a student with me this time.
LIndsay Van Sicklen <lindsayv@commonwealthcollege.com>
Richmond, VA USA -
Just started to read your writings. Unfortunately I don't live a non-toxic lifestyle but I do beleive that we do indeed live a highly toxic world that causes all manner of illness. It is a subject that I am interested in and would like to pursue.
Carol <Steve_elliott@bc.sympatico.ca>
Canada -
I really appreciate you sharing all of this information with us folk out in cyberspace. Keep up the good work! Karen, Arizona
Karen Sheldon <hsheldon@bslnet.com>
Prescott, AZ USA -
hmmmmm.....havnt looked yet but terribly impressed so far:)
michelle ayers <mikah@microtech.com.au>
launceston, tas australia -
Thanks for writing to me...I never took this approach before. As you said, what can it hurt?! I'll go and read the rest of your info. now...THANKS!!
Beth Boyd <boyd@cville.net>
Charlottesville, VA USA -
H, I am visiting, and will comment after I read the story... Thanks for your note and I'll be in touch. ' We have a lot in common, as my husband, Craig is a commercial web designer and does incredible work.... Check out one of his sites (this is not an elaborate one) at http://www.explorepub.com This is a magazine that may have a lot to offer you, that's why I am sending you there, although it is not finished. Sara
Sara Klein Ridgley <saraklein@aol.com>
San Diego, CA USA -
1,2,3---------------2-16-97 way to go!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!
James R. Newton II <fignewt@network-one.com>
Fulton, MS USA -
I am a Christian with EI/MCS. Diagnosed two years ago after having had pesticide exposure 32 years ago. That was my downfall and didn't know what was wrong. Am seeing a great EI doc who is treating me with homeopathic remedies. God speed your health!!! In His care and love, CE
Cheryl England <Cherilana@aol.com>
Tempe, Az USA -
Hi Jacki!!! Nice website! Hi Gordon!
Lucia August <laugust@bayweb.net>
Hayward, CA USA -
I have had CFIDS for over 2 years. I appreciate the info on perfume. Now I have ammunition to back up what I have been trying to say for years. Also, I really enjoyed the Midi pages.
M. Halligan <marymac@macconnect.com>
Houston, TX USA -
Hi Jacki, Re viewing your website since I now have access via netscape. I'll have to wait til no one's in my library before I do sights and sounds to any great degree. Have a great day. Looking forward to working with you on OO web page.
Lindsay Van Sicklen <lvansick@leo.vsla.edu>
Richmond, VA USA -
Haven't read your page yet, but just wanted to say HI. I have FMS, but it's undercontrol most of the time. I am also a Christian who worships at First Presbyterian in Salinas. I may write more when I read your home page. Jeanne
Jean Hoffmann <normjean@dedot.com>
Salinas, CA USA -
Jacki, I saw your address on the OO group and I just had to see what you looked like. It's so nice to put a name to a face...especially when you've been so supportive of me in the group for the past couple of years. I haven't been posting, but I'm still lurking, and I'll probably post again eventually. It was great to "meet" you! Great page! Best, Jill Sharer
Jill Sharer <sharer@visuallink.com>
USA -
My Aurnt has this disease and I am greatful for all the information that you are giving so I can further understand this illness and her condition.
Noelle Paro
Hartford, VT USA -
Hi Jackie!!!!!!!
misty buck <mistyb@ix.netcom.com>
Littleton, CO USA -
Great web site.
Carole Jarvis <jarvis@qns.com>
Newcastle, OK USA -
hello
David Anderson <plumb111@aol.com>
Little Rock, AR USA -
Very nicely done. Thanks for sharing yourselves and valuable information. We're all in this together, aren't we? God Bless you! Melissa
Melissa Cranor <mcranor@cyberhighway.net>
Salem, Or USA -
My wife is toaly disabled with MCS/EI. She's been to the Environmental Health Center - Dallas several times. Dr. William REa is her doctor.
Jim Clark <clark9812@aol.com>
Elizabeth, CO USA -
i like your games . i am 14 years old
kobi shaul <kobi1@netvision.net.il>
bat yam, israel -
After seeing the address a million times in Jacki's email sig, I had to come see your web page! Karen from the OO group
Karen Locke <karenml@rahul.net>
USA -
I was recommended to this website by WITSENDO
Jennifer Melofchik <jen2jen2@aol.com>
West Paterson, NJ USA -
Nice page!!!
Chris <cabby@ptialaska.net>
Soldotna, AK USA -
I love it Jacki! Thanks for letting me be a part of it!! You did a great job! ;)))
your sister!!....Michelle ;) <mickimar@rbdc.rbdc.com>
W-S, NC USA -
Neat site.
Roxanna Smith <cptroxy@eos.net>
Morrow, OH USA -
I haven't had the opportunity to do anything but visit here yet. Best to you for the holidays!
Alan Feldman <afeldman@ix.netcom.com>
East Meadow, NY USA -
Just wanted to fill your visitor remarks page with my Hej and take care. If you don¥t know, Hej is Hello in Swedish.
Fredrik Sandstrom <Fredrik.Sandstrom@Kumla.mail.telia.com>
Kumla, Sweden -
Hey jacki !! neat site! :):)
mary mcloughlin <72623.62@compuserve.com>
memphis, tn USA -
I am interested in the Chemical Sensitivity story since I have endometriosis, a disease that some think is caused by environ. pollutants, esp. dioxin.
Kristen Kramer
NC USA -
Hi Jacki, I hope this finds you feeling much better and recovered. Take Care. Don
Don Paladin <donpaladin@aol.com>
Bellingham, WA USA -
Hope Jacki's recovering well from the surgery! We miss her on mcs-immune-neuro! Have enjoyed, so far, stopping in to view your page.
Lynn Wegener <CLHW@InfoAve.net>
SC USA -
You are very talented. Your web site is very easy on the eyes. The information is of great value. Especially those of us that are ill and homebound. You must have put in many hours of work to put together all this information. Thank God there are people like you out there, helping people like me. I really do appreciate what you have done for us. Much thanks! Patti
Patti Rentz <cbreeze621@earthlink.net>
Pompano Beach, Fl USA -
Your web page is awesome. I loved all the pictures. Sure hope your surgery went well. I didn't get the posting until after it should all be over so I hope and pray that you are recuperating easily.
Barb <barb@dlm.erinet.com>
Dayton, OH USA -
GULP! Just read your poem and through the work you've put up. I'm glad you got Julia Kendall's "Making Sense of Scents" up. I never got to that one, but I was glad I got her "Twenty Most Common..." and her Fabric Softeners = Health Risks up (uploaded to IMMUE some time ago plus to the California Air Resources Board). It's obvious that while you may be on the inside looking out, you are doing a fine job of reaching out. Congratulations! I've taken the New Reactor down a slightly different path as I've been listing web sites that deal with MCS. I will happily list yours! Keep up the great work. Be well! My thoughts are with you. --barb
Barb Wilkie <wilworks@lanminds.com>
Berkeley, CA USA -
I, too, am chemically sensitive. It's affecting nearly every aspect of my life. I'm almost to the point where I can't work. I don't know what to do.
Teresa <Tproy@aol.com>
Seattle, WA USA -
Great page. Love the midi page and your animated graphics. Thanks for helping out with the Mac section of our Web Site. Aloha Oe
Steve Mapua <smapua@nwlink.com>
Kent, WA USA -
I just got here, but already I love it! Your happy face is fantastic! Can wait to look further. xxoo jill d.
Jill Donovan <jilld@wpco.com>
Chicago, IL USA -
I've read your posts on the immune list, so thought I'd visit your site. Thanks!
Patty Billings <pattyb@cdsnet.net>
OR USA -
I used to be an instructor in the 80's and I loved it all. I am now an elementary p.e. teacher. I was wondering what Jacki's programs were doing .
Susie Stanfield <ericracer@IQEST.NET>
USA -
Jacki, what a treat to see your web page! It gives you a context, and I love it. My son is building me one for my birthday, so I'll share the site as soon as I can.
Susan Meredith <susanm@iconn.net>
New Haven, CT USA -
whoa nice page jacki girl!!!!!!!!! way to go! i have "page envy" . what s/w did you use? i have this friend, renee, who has lupus (hmmm....makes me wonder about her mcs potential)...she is like obsessed with midi...and music... can you help her? i don't know diddly about it! and....are there any pictures of you and gorden? am i missing something? love you. am thinking of you always....and praying abt next week. love, kathleen love to gorden too.
kathleen comalli dillon <timbre@hooked.net>
novato, ca USA -
Great Site! Saw it though Pacbell Internet. I am the Ruth Fontana running the MCS group on AOL. It is going well. What are the ones on the internet? I have this for free until Dec.1. Hope you are well, Ruth Fontana
Ruth Fontana <RDFont@aol.com>
Walnut Creek, CA USA -
Hi Jacki! What a treat to see you and Gorden and your beautiful neice, Taylor. I already felt like I knew you, but your terrific home page sure made me feel even more like we're "old" friends. I'm putting info in the mail about the hair and skin care stuff I use. You certainly are multi-talented, lady! Thanks for sharing yourself with me this way. Blessings and health, Pat Rapp
Patricia A. Rapp <parapp@netzone.com>
Scottsdale, AZ USA -
I am Joyce Brooks' friend. She certainly thinks highly of both of you.
Jim Barnidge <jbarnidg@unr.net>
Tallahassee, Fl USA -
Jackie, I found you through Sans-Uteri and will e-mail you. Great home page.
Paula Golle <pgolle@ix.netcom.com>
Bowie, MD USA -
Hi there. I live in Standish Maine (as you can see above). I have been clogging with Country at Heart cloggers for 2 1/2 years or so. The group is actually in Windham, ME. I joined it because there were a few people from work in it. Janet Waterhouse is our "fearless leader". We went to the Northeast Clogging Convention in Burlington, Vermont last April and won 1st and 2nd prizes in lots of categories. I hope you're enjoying clogging as much as I am.
Jackie Mulholland <jmulholl@sjcme.edu>
Standish, ME USA -
I am Steve Mapua's sister. I live in Orange, California. I have been on the Internet since May of this year, and on a computer (IBM compatible) since February this year. I enjoy e-mailing my friends and relatives. I am writing to tell you how much I enjoyed Canon in D and Bach's violin concerto. I very much enjoy baroque music. I do not know much about it, but I enjoyed those two melodies a lot. Thank you for sharing them with me. Stella Benitez
Stella Benitez <benmap@internetmci.com>
USA -
I noticed the scripture and thought it is good to find someone that may be a Christian
Joyce Richardson <robertlr.Hiwaay.net>
Tuscumbia, AL USA -
Just checking out your web page per your request! It's windy in Boulder today... 100 mph wind gusts!
Jennifer FArnham <Jennifer_Farnham@access.com>
Boulder, CO USA -
Just want to say 'Lots of love from Wales'
Roj <rojbc@uk.pi.net>
Wales -
Great page, I'm still not through absorbing all of it. Great to be in contact with you again :} NitaG & Family
Nita Galloway <articglo@ptialaska.net>
Kasilof, AK USA -
great!
naomi skoglund
Amherst, ma USA -
Fibromyalgia Resource Centre 315 1195 Davie Street Vancouver, BC Canada, V6E 1N2 PHONE/FAX: 604 581 9386 ~CALL COLLECT~ We supply ALL products, goods, services, information, et cetera FREE OF CHARGE
Colin Williams <fibro@Direct.Ca>
Vancouver, BC CANADA, V6E 1N2 -
Hi Jacki, I finally got around to checking your website It is great. Wish I had better system to hear music see photos etc. Someday maybe.
Susan Jay <sjay@uhs.umass.edu>
Montague, MA USA -
Hi Guys! This is so COOL! I'm so glad that I checked it out. I was really nice to see a picture of you two. It reminded me of the times we used to hang out together. I miss you all! Love, Kimee
Kimee Davidson
NY, NY USA -
Dear Jacki, You are so talented. This is just beautiful.
Sybil Dinter <sybil@snip.net>
Atco, NJ USA -
got your address from the yeast list.
gwyn williams <vikin@iinet.com.au>
Perth, Australia -
I am also chemically sensitive and it has greatly impacted my life.
Teresa <Tproy@aol.com>
Seattle, WA USA -
HI SWEET PEA :-) I WAS HERE - I WILL GO AND LOOK ANOTHER TIME AGAIN - AS I HAVE CLOSE TO 100 MAILS IN MY MAILBOX :-)
Helle Kongevang <mcscphdk@cybernet.dk>
Copenhagen, DK Denmark -
Hi I saw your website listed on the MCS-Immune list or it could have been on the intermediate one going on now. Scary reading. I printed out the non-toxic living page. I've done a lot already but need to try more. Also will definitely try the shampoos as I have terrible trouble with those. Some of the stuff you list of course I can't use. But I do need to work on the pesticides for example. I have told my complex not to spray but I need to put up a no tobacco, no perfume, no bug spray.... sign probably at the front door or on it. Thanks. Kathleen
Kathleen Owen <mko@rti.org>
Cary, NC USA -
Congratulations, Guys! Your site is wonderful!! Love, Dee
Dee Garza <DeeGarza@aol.com>
Houston, TX USA -
I haven't looked yet.
Doreen Gugler <dgugler@planet.net>
Hackettstown, NNJ USA -
How did you get Dr. Richard Gots to pose for this site, sniffing his environmentally sensitive fragrances. Your prize for this achievement, a personal reading by Dr. Gots of his latest sonnet: A synthetic, rose-like fragrance by any other name would smell of formaldehyde, benzene, toluene, and all those other things we long for in this nasty, natural world. It can also be sung to the Battle Hymn of the Republic. Wonderful site so far but my computer is too slow to take advantage, and since the sound died in July (last year) I can't hear a thing. Must be MCS (mine or the computer's). Hugs Bernard
Bernard Miller <102446.2300@compuserve.com>
Montreal, PQ Canada :-( -
Hi Jacki I haven't surfed around yet, so I don't have many comments. So far so good though. Stacey
Stacey Martin <skm1radrd@igc.apc.org>
San Francisco, ca USA -
Jacki, kudos to you
Deb <radio@olywa.net>
Olympia, Wa USA -
Hey Jacki, Finally got your site checked out. Looks great!! By the way I do not have a respond to all on my e-mail, so I'm listening until the new list gets a address. I am posting to the Immune list.
Betty Bridges <bcb56@ix.netcom.com>
Amelia, Va USA -
ugh
Alec Brindell <abrindel@acs5.gac.peachnet.edu>
Milledgeville, GA USA -
Hi Jacki, Just started looking but so far I like you web page! Kathy :-)
Kathy Ott <kott@msn.com>
Madison, WI USA -
This is my very first time at a homepage! I even had to go to aol help to clear my cache and I still don't know what that is! This is quite an adventure for me today. I really only know the very basics of email, so I am now off to another world. So far this looks pretty nifty!!!!!
Mary Cahen <MARYALC>
USA -
Jacki - you've done a *magnificent* job on your site ... I had no problem accessing it from home -- I'll try it from work in the a.m. I look forward to 'visiting' you here often! Geri
Geri Finkelstein <gerif@ix.netcom.com>
Los Altos, CA USA -
great!!!
Lucinda Moody <lucinda@avci.net>
Cass City, MI USA -
Glad to see your new web site! It seems very informative :)
Ted Holmes <Holmest@Cadvision.com>
Calgary, Canada -
I think that I solved the problem by checking the box that said do not show this warning again
linda goodrich <goodrich@pacbel.net>
san francisco, ca USA -
Hi Jacki and Gordon, I love it ! Probably won't spend much time here as my system isn't set up for images. On the other hand, I'll see what I can find without the fancy stuff. God bless you.
Lindsay Van Sicklen <lvansick@leo.vsla.edu>
VA, 23235 USA -
Hey Jacki - here I am. Great web page. I like it!!
Jennifer Gill <jcostello@mail.utexas.edu>
Austin, TX USA -
Looks good!
Carolyn J. Marks <marks@nrlmry.navy..mil>
Marina , CA USA -
Nice work! Wish I could make some time to work on a web page of my own.
Kent Finley <bhr4@hg.uleth.ca>
Lethbridge, AB Canada -
Hi Jacki! Great web-site, it's good to "see" you...... sorry to hear about your illness, but glad that you are fighting back.... see you around the OO list
Barbara Millward <babs@pilkington.co.uk>
Wigan, UK -
I just had to come back and say WOW! This is really a great web page J -- you knocked yourself out! :D
Linda Again
USA -
I just LOVE your web page. I need to make one for the Peace Center (I'm on the board of directors), so maybe you can help me if I get stuck. I'm starting and big NIL of knowledge, but I guess I'll figure it out. Can I borrow some of your source code to get me started? -- linda
linda peterson <mandolinda@value.net>
Concord, CA USA -
Hi Jackie - You sound so excited about your new website that I just had to come visit. It looks fun so far, but I've just arrived and am planning to look around a bit. I've got Netscape 1.12 is all, so I won't be able to hear anything, I guess. So far, the only thing that could be improved, it seems to me is the black type on dark purple background. Maybe red or yellow type would be more readable. (Or maybe it's just the way my monitor is set up near the window here, and today there is sunshine coming in the window, here on the Oregon coast. I'm going to browse your site for a few minutes, then get out in the sun. Hugs, Tom
Tom Kerns <tkerns@pioneer.net>
Yachats, OR USA -
Nice Site!! I also have MCS and have struggled trying to support myself and take care of my MCS as well. I've had a TERRIBLE time trying to go to church and Bible study because of all the PERFUME. I wish more people would LISTEN and UNDERSTAND how toxic chemicals lead to a deterioration of our lives.
Patti Skari <patricia_skari@stortek.com>
Denver, C0 USA -
Great home page Jacki! I am SOOOO impressed with all the work you put into it! Thanks for providing an easy access resource to point others who need/want to learn more when I am just too tired to try to explain it all myself. Now I can say - here - look at Jacki's page!! :)
pamela weishaupt <pamelamw@goshen.edu>
goshen, in USA -
Really nice page Jacki!! I love the little dancing circles (although they reminded me of M & M's a definite no no one our candida diets!) Take care, Barb (from Yeast-l)
Barb Henry <ot@sprynet.com>
St. Louis, MO USA -
Nice website folks, must have cost you a lot of weeks/months to compose this, I suppose. I' m sorry I can't hear your midi files; my boss doesn't think a soundcard is important at work (and he's right). Bye, Kees
Kees Broek <broek@ecn.nl>
Netherlands -
Great! Good place for a witness.
Musa Knickerbocker <32hyfev@CMUVM.CSV.CMICH.EDU>
Mt Pleasant, MI USA -
Waa HooiEE!! GREAT job on the homepage Jacki & Gorden! I jus LOVE those clogging outfits too! you two look like SOME hoofers!! See ya!! love, Bob O'Lary
Bob O'Lary <bob@bitbrothers.com>
Tallahassee, fl USA -
Nice pages Jacki, I shall test your file and contact you later. BW - Dan
Dan Jansson <dan@quicknet.se>
Vaesteras, U Sweden -
WOW Jacki and Gorden - this is some great home page! I love all your animation and the MIDI page is wonderful! You are very talented Jacki (as if I didn't already know that)! The poem with the music is just super. Great pix of you and your family too. Big HUG to you Jacki! Vicki
Vicki Mossman <vsmossm@bentley.univnorthco.edu>
Greeley, CO USA -
jacki and gordon, Good Job!!!!!!! I'm impressed. This is a great home page. You didn't spare any glitz. I loved being able to play a Midi sequence and lesurely look around while it was playing. Your embedded sounds were the first that I have experienced. I love your artwork, is it original? Love Jim
Jim Plante <jplante@tyrell.net>
Kansas City, KS USA -
How fun!!!!!!!!!! Your own website. Too kewl Jacki :) Steve's working on our website. I having a feeling it will be constantly "under construction" - LOLOLOLO
Kelly E. Beadnell - Mapua <kellybAnwlink.com>
Kent, WA USA -
Hey, you've done a great job! Yes, I've got netscape 3.0 and everything looks great!
Craig <kreggers@atl.mindspring.com>
Kennesaw, GA USA -
Filling up your visitor remarks page! :-)
Andrew Finkenstadt <kahuna@supernet.net>
Tallahassee, FL USA -
(Scripts can be found at nms.)

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